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iamals.bsky.social
@iamals.bsky.social
I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. We’re fueled by urgency to find a cure and a track record of real impact.
Anyone whose life has been touched by ALS knows that the grief comes in stages, each new wave triggered by another loss—mobility, speech, and eventually everything else. Caregivers are at the front lines working through EVERY stage, and we can't thank or honor them enough.
December 1, 2025 at 12:14 AM
Sandra knows firsthand the pain of seeing a loved one suffer. Caregivers—we see you, and we're honoring YOUR journey. The panic-filled late nights, the anxiety when you hear something fall, we see it all, and you are not alone.
November 30, 2025 at 9:11 PM
Will's story highlights the highs and lows family caregivers face when their loved one has been diagnosed with ALS. Moments of joy are often followed with a heartbreaking reminders of what this disease takes from you. #ProgressisPersonal
November 29, 2025 at 7:48 PM
Community, you may already know Kendra Womack. She is co-chair of Many Shades of ALS, a team that works to make the ALS community more representative a dedicated volunteer, and a caregiver to her mother, Elaine. Watch this space for her story! #ProgressisPersonal
November 28, 2025 at 4:06 PM
Any parents who are also ALS caregivers can relate to Allie's heartbreaking story. To anyone who can relate—we see you, we hear you, and we're honoring YOU this month. #ProgressisPersonal
November 25, 2025 at 4:14 PM
THANK YOU to everyone who participated in this big moment with us! And perhaps most of all: thank you Eric for sharing your story with the world. ❤️

Did you watch "Brilliant Minds" last night? If so, share your thoughts below!
November 25, 2025 at 3:46 PM
Tonight's #BrilliantMinds with @realericdane on @nbc shines a light on the stark realities of ALS. We're working to change that reality and end ALS. Give NOW to help—every $1 you donate tonight will be matched by +$2! Donate at https://bit.ly/3Xg2pty.
November 25, 2025 at 3:06 AM
WE REACHED OUR $10K MATCH! Thank you so much to everyone who donated to help us get there. But we're not done yet! More amazing donors have stepped forward, pledging a $2 match for every $1 donated for the rest of today up to $10,000. Give now to TRIPLE your impact! https://bit.ly/3Xg2pty
November 24, 2025 at 10:00 PM
We are SO CLOSE to fully funding the $10K match that our beloved board member Dan Tate pledged today. Can you help us get there? Donate $7 NOW to help us get to $10K raised before 4pm ET!

Click to give: https://bit.ly/3KiV0Xk

And TUNE IN tonight at 10pm ET to NBC!
November 24, 2025 at 8:36 PM
Mike & Linda Buhr are partners in more ways than one.

Together, they have advocated for more treatments and a cure for ALS, and on top of his caregiving duties, Mike is co-chair of the Clinical Trials Team.

For Mike, caregiving and advocacy go hand in hand. #ProgressisPersonal
November 24, 2025 at 12:11 AM