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@iamals.bsky.social

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I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. We’re fueled by urgency to find a cure and a track record of real impact.

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iamals.bsky.social @iamals.bsky.social · 29d

We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ iamals.org/progress

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iamals.bsky.social @iamals.bsky.social · 14h

Thank you for recognizing Hispanic Heritage Month with us! We hope you'll share all of our newly translated pages and help them reach Spanish speakers who need them, including this one; we have several peer mentors who speak Spanish on the roster! https://bit.ly/48kWUAw

Poster announcing "Resources in Spanish: Connect with a Peer" for Hispanic Heritage Month by I AM ALS, featuring a striped background decorated with colorful flowers.

iamals.bsky.social @iamals.bsky.social · 16h

Miguel was diagnosed with ALS at the age of 42. His family was split between the US and Aruba and at 9 & 13, his younger kids became his part-time caregivers until he passed.

ALS is cruel, but we’re DETERMINED to find real treatments & keep families like Miguel’s together.

iamals.bsky.social @iamals.bsky.social · 1d

Our current policy unintentionally excludes the spouses of Veterans who die from ALS from receiving compensation benefits. Justice for ALS Veterans would change that, providing relief to thousands of families nationwide!

SUPPORT Justice for Vets TODAY @ bit.ly/justice4Vets

iamals.bsky.social @iamals.bsky.social · 1d

Happy Indigenous Peoples’ Day!

Indigenous Peoples are underrepresented in the ALS community and face unique barriers to receiving care.

That’s why we’re pushing to change that through the Natural History Studies funded by ACT for ALS!

iamals.bsky.social @iamals.bsky.social · 2d

Thanks to you, our #PushforProgress campaign has brought a HUGE new wave of community members pushing for a cure!

DONATE $4 TODAY to keep this momentum going → iamals.org/progress/

iamals.bsky.social @iamals.bsky.social · 2d

ALS clinical trials are a critical source of hope and promise for people living with ALS, and not speaking English shouldn't be a barrier to participation. Check out our Treatments and Trials page, now in Spanish: https://bit.ly/4h526KY

And this flyer from ALL ALS en español: https://bit.ly/3KILdKa

iamals.bsky.social @iamals.bsky.social · 2d

Progress means something different to each of us. So caregivers, we’d like to hear from you— what does progress look like to you?

iamals.bsky.social @iamals.bsky.social · 3d

Looking to build community and connect with others impacted by ALS? Join a support group TODAY @ bit.ly/ALSgroups

iamals.bsky.social @iamals.bsky.social · 3d

Meet the newest member of the ALS Caucus: Rep. Josh Riley! Huge thank you to Scott Daly & Mary Kusior for helping us secure this relationship. YOU can be the one to make a difference in your district; see if your elected officials are on the Caucus (and ask them to join) here: https://bit.ly/3Fw76Ku

iamals.bsky.social @iamals.bsky.social · 3d

Osiel Mendoza is a community member currently living with ALS. Through telling the story of his progression, Osiel is pushing for a future without ALS.

iamals.bsky.social @iamals.bsky.social · 4d

October is National Disability Employment Awareness Month!

After being diagnosed with ALS in 1963 at 21 years old, Stephen Hawking made HUGE contributions to black hole radiation theory and transformed the field of physics.

iamals.bsky.social @iamals.bsky.social · 4d

Several of our most popular ALS resources are now available in Spanish! Check out our resource with everything you need to know about Social Security Disability Insurance (SSDI), now en español: https://bit.ly/4h4jLmi

Informative poster about Spanish resources for Social Security Disability Insurance (SSDI), highlighted during Hispanic Heritage Month, featuring decorative floral borders.

iamals.bsky.social @iamals.bsky.social · 4d

ACT for ALS has made a HUGE impact, bringing us closer than ever to a cure for ALS.

But we need to push for fully funded reauthorization to keep this critical funding—and collaborative work—in place next year. JOIN US TODAY @ bit.ly/fundALS

iamals.bsky.social @iamals.bsky.social · 4d

HAPPY WORLD MENTAL HEALTH DAY!

If you’re impacted by ALS, don’t forget to take care of yourself. Today and always. Find a support group TODAY @ bit.ly/ALSgroups

iamals.bsky.social @iamals.bsky.social · 5d

HAPPY BIRTHDAY to our wonderful friend, co-founder, changemaker, and leader, Brian! We're so grateful for you.

Drop your birthday wishes for Brian in the comments 👇

iamals.bsky.social @iamals.bsky.social · 5d

ALS can be incredibly isolating. Share your hard-earned knowledge with someone who needs it. Get that first-hand knowledge from someone who knows exactly what you're going through. All as part of our Peer Support Initiative! Learn more: https://bit.ly/3FBR1mx

iamals.bsky.social @iamals.bsky.social · 5d

Since we launched our #PushforProgress campaign on September 1, we’ve helped support over 100 people impacted by ALS.

And we couldn’t have done it without you. THANK YOU for all your hard work, community! 💙🧡

iamals.bsky.social @iamals.bsky.social · 6d

Caregivers — we want to hear from you. How do you care for yourself? Tell us at bit.ly/careALS

iamals.bsky.social @iamals.bsky.social · 6d

After Julie’s diagnosis, she poured her time and energy into her friends, family, and loved ones. She used her story to educate others about ALS and made the most of every moment.

iamals.bsky.social @iamals.bsky.social · 7d

In honor of Hispanic Heritage Month (and with the generous assistance of volunteer Carmita Silva), several of our most popular ALS resources are now available in Spanish! Check out "¿Recientemente diagnosticado?" en español: https://bit.ly/4nHRfJJ

Colorful promotional graphic for Hispanic Heritage Month, announcing resources in Spanish for those recently diagnosed with ALS, by the organization I AM ALS.

iamals.bsky.social @iamals.bsky.social · 7d

Social Hour is back, and (of course) this month’s theme is Halloween! Come in costume bearing treats (or tricks) for your fellow attendees. Join us on October 21... if you dare! https://bit.ly/4jbhYuS

Promotional graphic for Social Hour, hosted by I AM ALS, featuring a festive Halloween theme with a smartphone displaying the event webpage. Details include the event time at 6pm ET on October 21, with RSVP link provided.

iamals.bsky.social @iamals.bsky.social · 7d

Juan Reyes is an Air Force Veteran, community member, and advocate fighting for better treatment opportunities and support for people impacted by ALS!

Thank you for all your amazing work, Juan!

iamals.bsky.social @iamals.bsky.social · 8d

November is National Family Caregiver Month, and we're looking forward to sharing incredible stories of resilience and courage from caregivers like you. Share your caregiver story today, and you might see it on our socials next month! https://bit.ly/4kOeH5B

Promotional image for I AM ALS, featuring two individuals at a table, one in a wheelchair, in an engaging conversation under text about celebrating caregiver stories.

iamals.bsky.social @iamals.bsky.social · 8d

What is the ALS Caucus? Why is it important? And how do I get my elected officials to join? Get the answers to all these questions and more at our ALS Caucus 101 webinar on October 15!
🗓️ RSVP today: https://bit.ly/3W33ILB

Promotional image for an "ALS Caucus 101" webinar hosted by the I AM ALS Legislative Affairs Team. Features an illustration of the Capitol Building. Event scheduled for Wednesday, October 15 at 5:30 PM ET. Includes graphic elements in orange and blue with text in white and blue.

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iamals.bsky.social @iamals.bsky.social · 13d

Music Fights ALS 2025 has officially begun! A $20 donation to I AM ALS = one raffle ticket for an amazing music photography prize of your choice, all throughout October. Check out some of this year's prizes and enter today at musicfightsals.com!

Promotional graphic for Music Fights ALS Year 5, featuring three stylized guitars in blue and orange against a sunset background. Text includes the event name and the website 'www.musicfightsals.com'.

Promotional image featuring musician Prince in 1980, sitting on a sofa. Photo by Deborah Feingold. Text overlay includes 'Win This!' and logos for I AM ALS and Music Fights ALS.

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