@iamals.bsky.social
I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. We’re fueled by urgency to find a cure and a track record of real impact.
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iamals.bsky.social
@iamals.bsky.social
· Sep 15
We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ iamals.org/progress
Anyone whose life has been touched by ALS knows that the grief comes in stages, each new wave triggered by another loss—mobility, speech, and eventually everything else. Caregivers are at the front lines working through EVERY stage, and we can't thank or honor them enough.
December 1, 2025 at 12:14 AM
Anyone whose life has been touched by ALS knows that the grief comes in stages, each new wave triggered by another loss—mobility, speech, and eventually everything else. Caregivers are at the front lines working through EVERY stage, and we can't thank or honor them enough.
Sandra knows firsthand the pain of seeing a loved one suffer. Caregivers—we see you, and we're honoring YOUR journey. The panic-filled late nights, the anxiety when you hear something fall, we see it all, and you are not alone.
November 30, 2025 at 9:11 PM
Sandra knows firsthand the pain of seeing a loved one suffer. Caregivers—we see you, and we're honoring YOUR journey. The panic-filled late nights, the anxiety when you hear something fall, we see it all, and you are not alone.
Sandra is a tireless ALS advocate, wife, and caregiver. Her ALS story began with our other co-founder, her spouse Brian Wallach, being diagnosed in 2017 on the day she brought home their second daughter from the hospital. We can't wait to share their story with you!
November 30, 2025 at 4:08 PM
Sandra is a tireless ALS advocate, wife, and caregiver. Her ALS story began with our other co-founder, her spouse Brian Wallach, being diagnosed in 2017 on the day she brought home their second daughter from the hospital. We can't wait to share their story with you!
Will's story highlights the highs and lows family caregivers face when their loved one has been diagnosed with ALS. Moments of joy are often followed with a heartbreaking reminders of what this disease takes from you. #ProgressisPersonal
November 29, 2025 at 7:48 PM
Will's story highlights the highs and lows family caregivers face when their loved one has been diagnosed with ALS. Moments of joy are often followed with a heartbreaking reminders of what this disease takes from you. #ProgressisPersonal
Will Plews-Ogan is a loving son and husband and was caregiver to his father, Jim, after Jim's ALS diagnosis. Jim built an online ALS advocacy community through Jim's blog and their whole family fought HARD for progress. Stay tuned for his story! #ProgressisPersonal
November 29, 2025 at 1:51 PM
Will Plews-Ogan is a loving son and husband and was caregiver to his father, Jim, after Jim's ALS diagnosis. Jim built an online ALS advocacy community through Jim's blog and their whole family fought HARD for progress. Stay tuned for his story! #ProgressisPersonal
Community, you may already know Kendra Womack. She is co-chair of Many Shades of ALS, a team that works to make the ALS community more representative a dedicated volunteer, and a caregiver to her mother, Elaine. Watch this space for her story! #ProgressisPersonal
November 28, 2025 at 4:06 PM
Community, you may already know Kendra Womack. She is co-chair of Many Shades of ALS, a team that works to make the ALS community more representative a dedicated volunteer, and a caregiver to her mother, Elaine. Watch this space for her story! #ProgressisPersonal
Community, you may already know Kendra Womack. She is co-chair of Many Shades of ALS, a team that works to make the ALS community more representative. She's a dedicated volunteer, and was a caregiver to her mother, Elaine, who had ALS.
Watch this space for her story!
#ProgressisPersonal
Watch this space for her story!
#ProgressisPersonal
November 28, 2025 at 2:11 PM
Community, you may already know Kendra Womack. She is co-chair of Many Shades of ALS, a team that works to make the ALS community more representative. She's a dedicated volunteer, and was a caregiver to her mother, Elaine, who had ALS.
Watch this space for her story!
#ProgressisPersonal
Watch this space for her story!
#ProgressisPersonal
We're partnering with Broth Agency to bring awareness and find answers to two major questions: why are Veterans more than two times as likely to be diagnosed with ALS, and how can we change that? This is Operation: END ALS. JOIN US TODAY @ operationendals.org
November 27, 2025 at 8:06 PM
We're partnering with Broth Agency to bring awareness and find answers to two major questions: why are Veterans more than two times as likely to be diagnosed with ALS, and how can we change that? This is Operation: END ALS. JOIN US TODAY @ operationendals.org
Community, Happy Thanksgiving! What's your favorite Thanksgiving dish? Tell us in the comments below! 👇
November 27, 2025 at 1:52 PM
Community, Happy Thanksgiving! What's your favorite Thanksgiving dish? Tell us in the comments below! 👇
Introducing OPERATION: END ALS. We're working with Broth Agency to raise awareness about the elevated ALS risk among Veterans and push for answers. JOIN US NOW @ bit.ly/op-endALS
November 26, 2025 at 3:54 PM
Introducing OPERATION: END ALS. We're working with Broth Agency to raise awareness about the elevated ALS risk among Veterans and push for answers. JOIN US NOW @ bit.ly/op-endALS
The average family caregiver spends $7,242 or 26% of their annual income caring for their family member.
For ALS caregivers, that number skyrockets to $85,000 to $250,000 a year.
Caregivers need more support, now. #ProgressisPersonal
For ALS caregivers, that number skyrockets to $85,000 to $250,000 a year.
Caregivers need more support, now. #ProgressisPersonal
November 26, 2025 at 2:06 PM
The average family caregiver spends $7,242 or 26% of their annual income caring for their family member.
For ALS caregivers, that number skyrockets to $85,000 to $250,000 a year.
Caregivers need more support, now. #ProgressisPersonal
For ALS caregivers, that number skyrockets to $85,000 to $250,000 a year.
Caregivers need more support, now. #ProgressisPersonal
Any parents who are also ALS caregivers can relate to Allie's heartbreaking story. To anyone who can relate—we see you, we hear you, and we're honoring YOU this month. #ProgressisPersonal
November 25, 2025 at 4:14 PM
Any parents who are also ALS caregivers can relate to Allie's heartbreaking story. To anyone who can relate—we see you, we hear you, and we're honoring YOU this month. #ProgressisPersonal
THANK YOU to everyone who participated in this big moment with us! And perhaps most of all: thank you Eric for sharing your story with the world. ❤️
Did you watch "Brilliant Minds" last night? If so, share your thoughts below!
Did you watch "Brilliant Minds" last night? If so, share your thoughts below!
November 25, 2025 at 3:46 PM
THANK YOU to everyone who participated in this big moment with us! And perhaps most of all: thank you Eric for sharing your story with the world. ❤️
Did you watch "Brilliant Minds" last night? If so, share your thoughts below!
Did you watch "Brilliant Minds" last night? If so, share your thoughts below!
Meet Allie! She's an artist, mother, caregiver, and a fierce online advocate for ALS research and funding. We can't wait to share her story with you. #ProgressisPersonal
November 25, 2025 at 1:51 PM
Meet Allie! She's an artist, mother, caregiver, and a fierce online advocate for ALS research and funding. We can't wait to share her story with you. #ProgressisPersonal
Tonight's #BrilliantMinds with @realericdane on @nbc shines a light on the stark realities of ALS. We're working to change that reality and end ALS. Give NOW to help—every $1 you donate tonight will be matched by +$2! Donate at https://bit.ly/3Xg2pty.
November 25, 2025 at 3:06 AM
Tonight's #BrilliantMinds with @realericdane on @nbc shines a light on the stark realities of ALS. We're working to change that reality and end ALS. Give NOW to help—every $1 you donate tonight will be matched by +$2! Donate at https://bit.ly/3Xg2pty.
WE REACHED OUR $10K MATCH! Thank you so much to everyone who donated to help us get there. But we're not done yet! More amazing donors have stepped forward, pledging a $2 match for every $1 donated for the rest of today up to $10,000. Give now to TRIPLE your impact! https://bit.ly/3Xg2pty
November 24, 2025 at 10:00 PM
WE REACHED OUR $10K MATCH! Thank you so much to everyone who donated to help us get there. But we're not done yet! More amazing donors have stepped forward, pledging a $2 match for every $1 donated for the rest of today up to $10,000. Give now to TRIPLE your impact! https://bit.ly/3Xg2pty
We are SO CLOSE to fully funding the $10K match that our beloved board member Dan Tate pledged today. Can you help us get there? Donate $7 NOW to help us get to $10K raised before 4pm ET!
Click to give: https://bit.ly/3KiV0Xk
And TUNE IN tonight at 10pm ET to NBC!
Click to give: https://bit.ly/3KiV0Xk
And TUNE IN tonight at 10pm ET to NBC!
November 24, 2025 at 8:36 PM
We are SO CLOSE to fully funding the $10K match that our beloved board member Dan Tate pledged today. Can you help us get there? Donate $7 NOW to help us get to $10K raised before 4pm ET!
Click to give: https://bit.ly/3KiV0Xk
And TUNE IN tonight at 10pm ET to NBC!
Click to give: https://bit.ly/3KiV0Xk
And TUNE IN tonight at 10pm ET to NBC!
Eric Dane delivers a powerhouse performance in this week’s Brilliant Minds as Matthew, a firefighter confronting ALS with courage, heart, and authenticity. Don’t miss it! Tune in TODAY on NBC as we shine a light on ALS and the hope driving I AM ALS' #PushForProgress.
November 24, 2025 at 4:14 PM
Eric Dane delivers a powerhouse performance in this week’s Brilliant Minds as Matthew, a firefighter confronting ALS with courage, heart, and authenticity. Don’t miss it! Tune in TODAY on NBC as we shine a light on ALS and the hope driving I AM ALS' #PushForProgress.
Mike & Linda Buhr are partners in more ways than one.
Together, they have advocated for more treatments and a cure for ALS, and on top of his caregiving duties, Mike is co-chair of the Clinical Trials Team.
For Mike, caregiving and advocacy go hand in hand. #ProgressisPersonal
Together, they have advocated for more treatments and a cure for ALS, and on top of his caregiving duties, Mike is co-chair of the Clinical Trials Team.
For Mike, caregiving and advocacy go hand in hand. #ProgressisPersonal
November 24, 2025 at 12:11 AM
Mike & Linda Buhr are partners in more ways than one.
Together, they have advocated for more treatments and a cure for ALS, and on top of his caregiving duties, Mike is co-chair of the Clinical Trials Team.
For Mike, caregiving and advocacy go hand in hand. #ProgressisPersonal
Together, they have advocated for more treatments and a cure for ALS, and on top of his caregiving duties, Mike is co-chair of the Clinical Trials Team.
For Mike, caregiving and advocacy go hand in hand. #ProgressisPersonal
Whether virtually or in person, engaging with this community has always been the highlight of our work.
Whether you’ve been a part of the I AM ALS community for years, weeks, or hours, what’s your favorite thing about the ALS community?
Tell us in the comments! 👇
Whether you’ve been a part of the I AM ALS community for years, weeks, or hours, what’s your favorite thing about the ALS community?
Tell us in the comments! 👇
November 23, 2025 at 11:50 PM
Whether virtually or in person, engaging with this community has always been the highlight of our work.
Whether you’ve been a part of the I AM ALS community for years, weeks, or hours, what’s your favorite thing about the ALS community?
Tell us in the comments! 👇
Whether you’ve been a part of the I AM ALS community for years, weeks, or hours, what’s your favorite thing about the ALS community?
Tell us in the comments! 👇
We know Veterans are more than two times as likely to be diagnosed with ALS, and their experiences with the disease are unique.
If you’re a Veteran living with ALS, we have a space just for you.
JOIN TODAY @ bit.ly/ALSgroups
If you’re a Veteran living with ALS, we have a space just for you.
JOIN TODAY @ bit.ly/ALSgroups
November 22, 2025 at 7:49 PM
We know Veterans are more than two times as likely to be diagnosed with ALS, and their experiences with the disease are unique.
If you’re a Veteran living with ALS, we have a space just for you.
JOIN TODAY @ bit.ly/ALSgroups
If you’re a Veteran living with ALS, we have a space just for you.
JOIN TODAY @ bit.ly/ALSgroups
Community, meet Mike! He is a loving husband, caregiver, volunteer, father, and VERY active within the ALS community.
Stay tuned for Mike’s story! #ProgressisPersonal
Stay tuned for Mike’s story! #ProgressisPersonal
November 22, 2025 at 7:49 PM
Community, meet Mike! He is a loving husband, caregiver, volunteer, father, and VERY active within the ALS community.
Stay tuned for Mike’s story! #ProgressisPersonal
Stay tuned for Mike’s story! #ProgressisPersonal
📺 DON’T MISS IT— Eric Dane on Brilliant Minds NBC on Monday 11/24 @ 10pm EST/9pm CST playing a firefighter struggling to share his ALS diagnosis with his family!
November 21, 2025 at 10:47 PM
📺 DON’T MISS IT— Eric Dane on Brilliant Minds NBC on Monday 11/24 @ 10pm EST/9pm CST playing a firefighter struggling to share his ALS diagnosis with his family!
The Tim Lowrey ALS Panel Series is making headlines! Huge thanks to Juliet Taylor for covering this program and its impressive growth. If your classroom, workplace, or organization could benefit from hearing from people impacted by ALS, request a panel: https://bit.ly/481WJIA
ALS panel series shares information, insight, and hope
Columnist Juliet Taylor discusses the Tim Lowrey ALS Panel Series, which has provided tailored information to 1,500 people this year alone.
bit.ly
November 21, 2025 at 9:13 PM
The Tim Lowrey ALS Panel Series is making headlines! Huge thanks to Juliet Taylor for covering this program and its impressive growth. If your classroom, workplace, or organization could benefit from hearing from people impacted by ALS, request a panel: https://bit.ly/481WJIA
Community, THANK YOU. We’re closer than ever to reauthorizing ACT for ALS, and we would not have come this far without you.
But our work isn’t done yet. JOIN US TODAY @ bit.ly/fundALS to keep this critical ALS research funding in place!
But our work isn’t done yet. JOIN US TODAY @ bit.ly/fundALS to keep this critical ALS research funding in place!
November 21, 2025 at 4:09 PM
Community, THANK YOU. We’re closer than ever to reauthorizing ACT for ALS, and we would not have come this far without you.
But our work isn’t done yet. JOIN US TODAY @ bit.ly/fundALS to keep this critical ALS research funding in place!
But our work isn’t done yet. JOIN US TODAY @ bit.ly/fundALS to keep this critical ALS research funding in place!