Different paths, various diseases, one purpose!

Next week join me in Vienna at #ERA25! When not in meetings or attending key sessions, you’ll find me and my colleagues at the @pkdinternational.bsky.social booth (info👇).
Come say hi — we’d love to connect, share insights, and talk all things #ADPKD & #ARPKD ! #PatientEngagement

Thank yoy @erknet.bsky.social 🫶🏽 for an inspiring 3-day Annual Meeting in Leuven! Grateful to contribute to this ERN and amazing ePAG team ⭐️ Exciting #ADPKD & #ARPKD projects ahead 🎉

Interesting update from Prof Franz Schaefer on #ERKReg. Take home message: #genetic diseases have fast track towards kidney failure (right side of chart) #ARPKD #ADPKD @pkdinternational.bsky.social

Want to learn, connect, and exchange best practices to better advocate for the rare diseases community? Join me at #EMM2025 in Riga - I’d love to see you there!

🙋 Open to all in the rare disease community

🗓 22–24 May | 📍 Riga, Latvia
👉 go.eurordis.org/EMM25
#PatientVoice #RareDiseases #ARPKD

🚨 Today is #RareDiseaseDay! 🚨

We stand together to raise awareness for Autosomal Recessive Polycystic Kidney #ARPKD a rare genetic condition affecting children from birth.

To all affected: You are not alone. Your strength drives change.

#StrongerTogether @pkdinternational.bsky.social

This week we joined experts & policymakers in Brussels at the #KidneyForum2025 to push kidney health higher on the agenda. The “Five Key Recommendations” were presented at the @europarl.europa.eu ! 🇪🇺 💬 @theisn.org @erknet.bsky.social

I have so much to be grateful for this holiday: patients, colleagues, PKD_Int , AIRP, Federg, ERKNET, and the whole scientific community. I’m holding Tess in my heart, she continues to inspire and guide me. 💙 Here’s to hope for remarkable advancements in 2025. 🎄

Merry Christmas & Happy New Year! 🌟

“PKD International wrapped up an inspiring 2-day Board meeting! We set a bold vision for the next 3-5 years with plans to strengthen governance, elevate communications, and deepen connections with members.

A new chapter begins—stay tuned for the journey ahead! #ADPKD #ARPKD