Flavia Galletti
@flaviagalletti.bsky.social
Advocacy #ADPKD #ARPKD
PKD International 🌷 AIRP 🌷ePAG/ERKNET
(Views are my own, rtw ≠ endorsement) http//pkdinternational.org http//renepolicistico.it 📍Zürich 📍Siena
PKD International 🌷 AIRP 🌷ePAG/ERKNET
(Views are my own, rtw ≠ endorsement) http//pkdinternational.org http//renepolicistico.it 📍Zürich 📍Siena
Reposted by Flavia Galletti
✨ Useful PKD resource alert 💛
We’re happy to share this clear, practical guide from PKD Foundation of Canada on food safety and nutrition for people living with #PKD 👉 www.endpkd.ca/food_safety_...
#ADPKD #ARPKD #KidneyHealth #FoodSafety #Nutrition #PatientEmpowerment #PKDCanada
We’re happy to share this clear, practical guide from PKD Foundation of Canada on food safety and nutrition for people living with #PKD 👉 www.endpkd.ca/food_safety_...
#ADPKD #ARPKD #KidneyHealth #FoodSafety #Nutrition #PatientEmpowerment #PKDCanada
November 14, 2025 at 8:38 AM
✨ Useful PKD resource alert 💛
We’re happy to share this clear, practical guide from PKD Foundation of Canada on food safety and nutrition for people living with #PKD 👉 www.endpkd.ca/food_safety_...
#ADPKD #ARPKD #KidneyHealth #FoodSafety #Nutrition #PatientEmpowerment #PKDCanada
We’re happy to share this clear, practical guide from PKD Foundation of Canada on food safety and nutrition for people living with #PKD 👉 www.endpkd.ca/food_safety_...
#ADPKD #ARPKD #KidneyHealth #FoodSafety #Nutrition #PatientEmpowerment #PKDCanada
💬 Polycystic Kidney Disease (PKD) Charity UK offers free educational events, both in-person and online, open to people living with #ADPKD and #ARPKD, their families, and caregivers.
🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events
#PKDInternational
🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events
#PKDInternational
November 13, 2025 at 9:43 AM
Reposted by Flavia Galletti
#PKDInternational Board Update — November 2025
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
November 12, 2025 at 2:58 PM
#PKDInternational Board Update — November 2025
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
Reposted by Flavia Galletti
🇨🇦 Empowering the PKD Community — The Canadian PKD Summit Awaits!
On 5–6 November, PKD Foundation of Canada will host its annual online PKD Summit — two days dedicated to learning, support, and connection for everyone affected by PKD.
👉 Register here:
myemail.constantcontact.com/Register-Now...
On 5–6 November, PKD Foundation of Canada will host its annual online PKD Summit — two days dedicated to learning, support, and connection for everyone affected by PKD.
👉 Register here:
myemail.constantcontact.com/Register-Now...
Register Now!
Email from PKD Foundation of Canada 2025 PKD Summit - November 5 & 6, 2025 Make a Donation Registration for our FREE virtual 2025 PKD Summit is now open! 2025 PKD Summit The PKD Summit is our annual o
myemail.constantcontact.com
October 31, 2025 at 8:25 AM
🇨🇦 Empowering the PKD Community — The Canadian PKD Summit Awaits!
On 5–6 November, PKD Foundation of Canada will host its annual online PKD Summit — two days dedicated to learning, support, and connection for everyone affected by PKD.
👉 Register here:
myemail.constantcontact.com/Register-Now...
On 5–6 November, PKD Foundation of Canada will host its annual online PKD Summit — two days dedicated to learning, support, and connection for everyone affected by PKD.
👉 Register here:
myemail.constantcontact.com/Register-Now...
Perché la sanità non funziona più
Wilson - Perché la sanità non funziona più
ilpost.link
October 23, 2025 at 11:48 AM
Reposted by Flavia Galletti
🔬 Multi-Omics: A Personalized Future for #PKD Patients
Multi-omics research is already transforming #ADPKD and #ARPKD studies.
💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇
@theracilproject.bsky.social @erknet.bsky.social
Multi-omics research is already transforming #ADPKD and #ARPKD studies.
💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇
@theracilproject.bsky.social @erknet.bsky.social
October 17, 2025 at 7:43 AM
🔬 Multi-Omics: A Personalized Future for #PKD Patients
Multi-omics research is already transforming #ADPKD and #ARPKD studies.
💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇
@theracilproject.bsky.social @erknet.bsky.social
Multi-omics research is already transforming #ADPKD and #ARPKD studies.
💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇
@theracilproject.bsky.social @erknet.bsky.social
¡Bienvenidos, pacientes mexicanos! 💛 I'm very happy for this new addition to the PKD Global Family 🌎
🌍 Welcome to our global PKD family!
We’re thrilled to announce that on Friday, 26 September 2025, during its Board meeting, PKD International officially welcomed Riñón Poliquístico de México A.C. as our newest member. 🇲🇽✨
#PKD #PKDCommunity #PatientAdvocacy #GlobalCollaboration
We’re thrilled to announce that on Friday, 26 September 2025, during its Board meeting, PKD International officially welcomed Riñón Poliquístico de México A.C. as our newest member. 🇲🇽✨
#PKD #PKDCommunity #PatientAdvocacy #GlobalCollaboration
September 29, 2025 at 11:16 AM
¡Bienvenidos, pacientes mexicanos! 💛 I'm very happy for this new addition to the PKD Global Family 🌎
In the last few years we’ve seen remarkable progress in diagnostic and care for #ARPKD patients. I m looking forward to see where this acceleration will take! 💛🌷
Diagnosing #ARPKD in children is challenging.
Now a urinary peptide pattern can help distinguish it from other kidney diseases 👉 theracil.eu/publications...
@theracilproject.bsky.social
#PKDInternational
Now a urinary peptide pattern can help distinguish it from other kidney diseases 👉 theracil.eu/publications...
@theracilproject.bsky.social
#PKDInternational
Urinary peptide signature distinguishes autosomal recessive polycystic kidney disease from other causes of chronic kidney disease - TheRaCil
Burgmaier et al, Clinical Kidney Journal, May 2025.
theracil.eu
September 26, 2025 at 12:46 PM
In the last few years we’ve seen remarkable progress in diagnostic and care for #ARPKD patients. I m looking forward to see where this acceleration will take! 💛🌷
Reposted by Flavia Galletti
🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg!
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
September 23, 2025 at 12:49 PM
🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg!
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
Reposted by Flavia Galletti
💦 Staying well-hydrated is essential for those living with polycystic kidney disease (PKD). Emily Campbell, Registered Dietitian, explains that proper hydration lowers vasopressin and helps flush waste through urine.
🔗 Read the full article on @endpkd.bsky.social:
www.endpkd.ca/hydration_an...
🔗 Read the full article on @endpkd.bsky.social:
www.endpkd.ca/hydration_an...
September 16, 2025 at 8:23 AM
💦 Staying well-hydrated is essential for those living with polycystic kidney disease (PKD). Emily Campbell, Registered Dietitian, explains that proper hydration lowers vasopressin and helps flush waste through urine.
🔗 Read the full article on @endpkd.bsky.social:
www.endpkd.ca/hydration_an...
🔗 Read the full article on @endpkd.bsky.social:
www.endpkd.ca/hydration_an...
🫶🏽🌷
❤️ Today we celebrate 20 years of AIRP in Milan!
PKD International President @flaviagalletti.bsky.social proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛
#PKDInternational #PKD #ADPKD #ARPKD
PKD International President @flaviagalletti.bsky.social proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛
#PKDInternational #PKD #ADPKD #ARPKD
September 20, 2025 at 10:53 AM
🫶🏽🌷
Reposted by Flavia Galletti
On September 20, 2025, at the Auditorium Testori in Milan, the event “AIRP: 20 Years of Commitment in the Fight Against Polycystic Kidney Disease, Supporting Patients” will take place.
We are proud to stand alongside AIRP in this shared mission
👉 renepolicistico.it/save-the-date
We are proud to stand alongside AIRP in this shared mission
👉 renepolicistico.it/save-the-date
September 19, 2025 at 7:37 AM
On September 20, 2025, at the Auditorium Testori in Milan, the event “AIRP: 20 Years of Commitment in the Fight Against Polycystic Kidney Disease, Supporting Patients” will take place.
We are proud to stand alongside AIRP in this shared mission
👉 renepolicistico.it/save-the-date
We are proud to stand alongside AIRP in this shared mission
👉 renepolicistico.it/save-the-date
Reposted by Flavia Galletti
In this video, Professor Dominique Guerrot presents the DAPA-PKD study, a collaborative research effort he co-leads with Professor Emilie Cornec-Le Gall (Brest). This important study will evaluate the potential of SGLT2 inhibitors, such as dapagliflozin, in the treatment of #ADPKD.
September 12, 2025 at 6:32 AM
In this video, Professor Dominique Guerrot presents the DAPA-PKD study, a collaborative research effort he co-leads with Professor Emilie Cornec-Le Gall (Brest). This important study will evaluate the potential of SGLT2 inhibitors, such as dapagliflozin, in the treatment of #ADPKD.
Reposted by Flavia Galletti
Researchers from the #ARegPKD registry & #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: bit.ly/4fUcyEU
#PKDInternational
#PKDInternational
September 8, 2025 at 7:36 AM
Researchers from the #ARegPKD registry & #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: bit.ly/4fUcyEU
#PKDInternational
#PKDInternational
Yesterday was such a busy day with patients meeting, planning, dreaming and slowly shaping the future.. the best way to spend #PKDAwareness day! And now we are looking forward to the rest of the month packed with amazing events and activities for #ADPKD and #ARPKD
🌍 Today is #PKDAwarenessDay !
The global community comes together to raise awareness, share knowledge, and support one another.
Throughout September, our members across many countries are hosting events and activities to shine a light on Polycystic Kidney Disease.
#PKDInternational
The global community comes together to raise awareness, share knowledge, and support one another.
Throughout September, our members across many countries are hosting events and activities to shine a light on Polycystic Kidney Disease.
#PKDInternational
September 5, 2025 at 7:45 AM
Yesterday was such a busy day with patients meeting, planning, dreaming and slowly shaping the future.. the best way to spend #PKDAwareness day! And now we are looking forward to the rest of the month packed with amazing events and activities for #ADPKD and #ARPKD
Reposted by Flavia Galletti
🌍 On Sept 4, the global PKD community unites for #PKDAwarenessDay to raise awareness, support patients & push research forward.
#PKDInternational #EndPKD #ADPKD #PKDResearch
#PKDInternational #EndPKD #ADPKD #PKDResearch
September 1, 2025 at 7:41 AM
🌍 On Sept 4, the global PKD community unites for #PKDAwarenessDay to raise awareness, support patients & push research forward.
#PKDInternational #EndPKD #ADPKD #PKDResearch
#PKDInternational #EndPKD #ADPKD #PKDResearch
Reposted by Flavia Galletti
💛 Why Are Kidneys So Important?
Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body.
#PKDInternational
Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body.
#PKDInternational
August 1, 2025 at 7:35 AM
💛 Why Are Kidneys So Important?
Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body.
#PKDInternational
Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body.
#PKDInternational
Reposted by Flavia Galletti
KDIGO ADPKD Guideline: A Milestone in Genetic Kidney Diseases Why is a global guideline for ADPKD so important?
Prof. Roman Müller explains how the new KDIGO guideline marks a crucial step forward in harmonizing care for patients with #ADPKD) worldwide 👇
Prof. Roman Müller explains how the new KDIGO guideline marks a crucial step forward in harmonizing care for patients with #ADPKD) worldwide 👇
July 29, 2025 at 8:13 AM
KDIGO ADPKD Guideline: A Milestone in Genetic Kidney Diseases Why is a global guideline for ADPKD so important?
Prof. Roman Müller explains how the new KDIGO guideline marks a crucial step forward in harmonizing care for patients with #ADPKD) worldwide 👇
Prof. Roman Müller explains how the new KDIGO guideline marks a crucial step forward in harmonizing care for patients with #ADPKD) worldwide 👇
Reposted by Flavia Galletti
Millions of patients around the world live with Polycystic Kidney Disease, facing daily challenges and uncertainties.
Every contribution moves us closer to improved care and a brighter future for the PKD community.
pkdinternational.org/donate
#PKDInternational #DonateForPKD
Every contribution moves us closer to improved care and a brighter future for the PKD community.
pkdinternational.org/donate
#PKDInternational #DonateForPKD
July 25, 2025 at 7:48 AM
Millions of patients around the world live with Polycystic Kidney Disease, facing daily challenges and uncertainties.
Every contribution moves us closer to improved care and a brighter future for the PKD community.
pkdinternational.org/donate
#PKDInternational #DonateForPKD
Every contribution moves us closer to improved care and a brighter future for the PKD community.
pkdinternational.org/donate
#PKDInternational #DonateForPKD
Reposted by Flavia Galletti
🌞 Stay Cool, Stay Safe: #SummerTips for Living with #PKD
Hot weather can bring extra challenges for those living with Polycystic Kidney Disease (PKD). These simple precautions can help you enjoy the season while protecting your kidneys and overall health 👇
Hot weather can bring extra challenges for those living with Polycystic Kidney Disease (PKD). These simple precautions can help you enjoy the season while protecting your kidneys and overall health 👇
July 18, 2025 at 7:51 AM
🌞 Stay Cool, Stay Safe: #SummerTips for Living with #PKD
Hot weather can bring extra challenges for those living with Polycystic Kidney Disease (PKD). These simple precautions can help you enjoy the season while protecting your kidneys and overall health 👇
Hot weather can bring extra challenges for those living with Polycystic Kidney Disease (PKD). These simple precautions can help you enjoy the season while protecting your kidneys and overall health 👇
Reposted by Flavia Galletti
💬✨ How Can Your Story Shape the Future of Kidney Care?
Join us on July 22 for an inspiring webinar hosted by the PKD Foundation of Canada and discover how patients are stepping up as partners to drive meaningful change.
🔗 Register for free: us02web.zoom.us/webinar/regi...
Join us on July 22 for an inspiring webinar hosted by the PKD Foundation of Canada and discover how patients are stepping up as partners to drive meaningful change.
🔗 Register for free: us02web.zoom.us/webinar/regi...
Welcome! You are invited to join a webinar: Shaping Kidney Care: Patient Partner Experiences. After registering, you will receive a confirmation email about joining the webinar.
How can sharing your story change the future of kidney care?
Join us for this inspiring 1-hour webinar featuring the voices of four diverse PKD patients who have stepped up as patient partners - usin...
us02web.zoom.us
July 14, 2025 at 8:47 AM
💬✨ How Can Your Story Shape the Future of Kidney Care?
Join us on July 22 for an inspiring webinar hosted by the PKD Foundation of Canada and discover how patients are stepping up as partners to drive meaningful change.
🔗 Register for free: us02web.zoom.us/webinar/regi...
Join us on July 22 for an inspiring webinar hosted by the PKD Foundation of Canada and discover how patients are stepping up as partners to drive meaningful change.
🔗 Register for free: us02web.zoom.us/webinar/regi...
Reposted by Flavia Galletti
📺 Patient-scientist collaboration – key to investigator-initiated trials: SGLT2i and beyond.
In this video interview, Prof. @muellerrom.bsky.social highlights the power of working together: scientists, patients, and advocacy groups united to tackle the big questions in #PKD
#PKDInternational
In this video interview, Prof. @muellerrom.bsky.social highlights the power of working together: scientists, patients, and advocacy groups united to tackle the big questions in #PKD
#PKDInternational
July 15, 2025 at 7:43 AM
📺 Patient-scientist collaboration – key to investigator-initiated trials: SGLT2i and beyond.
In this video interview, Prof. @muellerrom.bsky.social highlights the power of working together: scientists, patients, and advocacy groups united to tackle the big questions in #PKD
#PKDInternational
In this video interview, Prof. @muellerrom.bsky.social highlights the power of working together: scientists, patients, and advocacy groups united to tackle the big questions in #PKD
#PKDInternational
Reposted by Flavia Galletti
🎥🧪 SGLT2 Inhibitors: Should They Be Used in ADPKD?
In this new video, Prof. @muellerrom.bsky.social — medical doctor and researcher at the University of Cologne — explores one of the most debated questions in the field of kidney disease today 👇
#PKDInternational
In this new video, Prof. @muellerrom.bsky.social — medical doctor and researcher at the University of Cologne — explores one of the most debated questions in the field of kidney disease today 👇
#PKDInternational
July 1, 2025 at 10:28 AM
🎥🧪 SGLT2 Inhibitors: Should They Be Used in ADPKD?
In this new video, Prof. @muellerrom.bsky.social — medical doctor and researcher at the University of Cologne — explores one of the most debated questions in the field of kidney disease today 👇
#PKDInternational
In this new video, Prof. @muellerrom.bsky.social — medical doctor and researcher at the University of Cologne — explores one of the most debated questions in the field of kidney disease today 👇
#PKDInternational
Reposted by Flavia Galletti
July 1, 2025 at 11:42 AM
This is a question #ADPKD patients have been wondering about for quite some time. Thankfully, two studies are now underway 🥳 and that should finally provide some answers. We’re looking forward to the results!
🎥🧪 SGLT2 Inhibitors: Should They Be Used in ADPKD?
In this new video, Prof. @muellerrom.bsky.social — medical doctor and researcher at the University of Cologne — explores one of the most debated questions in the field of kidney disease today 👇
#PKDInternational
In this new video, Prof. @muellerrom.bsky.social — medical doctor and researcher at the University of Cologne — explores one of the most debated questions in the field of kidney disease today 👇
#PKDInternational
July 1, 2025 at 1:35 PM
This is a question #ADPKD patients have been wondering about for quite some time. Thankfully, two studies are now underway 🥳 and that should finally provide some answers. We’re looking forward to the results!