Erin Crellin
@erincrellin.bsky.social
PhD candidate | The University of Melbourne | Murdoch Children’s Research Institute 👩🏻🦼➡️
Passionate about helping health services enhance families’ experiences as #genomics becomes part of routine #paediatric care
Passionate about helping health services enhance families’ experiences as #genomics becomes part of routine #paediatric care
Such a fabulous suite of resources that showcases the immense value of co-design. Look forward to learning more about their use in practice and impact. #genomics #equity #rarediseases
Why does 𝙂𝙚𝙣𝙤𝙢𝙞𝙘𝙨 𝙊𝙪𝙧 𝙒𝙖𝙮 matter? Hear directly from Professor Alex Brown as he shares why this course is a game-changer.
Source: Australian Alliance for Indigenous Genomics
Source: Australian Alliance for Indigenous Genomics
May 27, 2025 at 7:43 AM
Such a fabulous suite of resources that showcases the immense value of co-design. Look forward to learning more about their use in practice and impact. #genomics #equity #rarediseases
Reposted by Erin Crellin
Attend the ELPAG Award lecture at 14:15 at #eshg2025 with Sylvia Metcalfe who played a leading role in setting up the Genioz project and find out about her research that led to the ELPAG Award.
May 24, 2025 at 11:45 AM
Attend the ELPAG Award lecture at 14:15 at #eshg2025 with Sylvia Metcalfe who played a leading role in setting up the Genioz project and find out about her research that led to the ELPAG Award.
Great to see participant involvement, population diversity & ELSI highlighted (among others) as key pillars of #genomics programs internationally
📣 New paper out now in The American Journal of Human Genetics highlights key priorities from national #genomics programs across seven countries.
👉 Read it here: tinyurl.com/ys66euwy
@ajhgnews.bsky.social @genomecanada.bsky.social @genomicsengland.bsky.social
👉 Read it here: tinyurl.com/ys66euwy
@ajhgnews.bsky.social @genomecanada.bsky.social @genomicsengland.bsky.social
March 11, 2025 at 6:42 AM
Great to see participant involvement, population diversity & ELSI highlighted (among others) as key pillars of #genomics programs internationally
Reposted by Erin Crellin
What happens when #genomic testing is funded?🧬
👉 rdcu.be/d8MSL
Last 10yrs 🇦🇺:
Many tests approved as evidence grows ✅
BUT testing volumes low AND inequitable access
Budget impact of #genomics minor: AU$3Mpa or <0.01% of all health expenditure 💰
@ausgenomics.bsky.social @iliasgoranitis.bsky.social
👉 rdcu.be/d8MSL
Last 10yrs 🇦🇺:
Many tests approved as evidence grows ✅
BUT testing volumes low AND inequitable access
Budget impact of #genomics minor: AU$3Mpa or <0.01% of all health expenditure 💰
@ausgenomics.bsky.social @iliasgoranitis.bsky.social
Utilisation of subsidised genetic and genomic testing in a publicly funded healthcare system 2014–2023
European Journal of Human Genetics - Utilisation of subsidised genetic and genomic testing in a publicly funded healthcare system 2014–2023
rdcu.be
February 6, 2025 at 3:25 AM
What happens when #genomic testing is funded?🧬
👉 rdcu.be/d8MSL
Last 10yrs 🇦🇺:
Many tests approved as evidence grows ✅
BUT testing volumes low AND inequitable access
Budget impact of #genomics minor: AU$3Mpa or <0.01% of all health expenditure 💰
@ausgenomics.bsky.social @iliasgoranitis.bsky.social
👉 rdcu.be/d8MSL
Last 10yrs 🇦🇺:
Many tests approved as evidence grows ✅
BUT testing volumes low AND inequitable access
Budget impact of #genomics minor: AU$3Mpa or <0.01% of all health expenditure 💰
@ausgenomics.bsky.social @iliasgoranitis.bsky.social
Reposted by Erin Crellin
Now this is fascinating! 🌟 Genomic medicine is expanding beyond genetics clinics, but how do we make it sustainable? A new paper highlights the power of non-geneticist champions. 🧵1/4
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Non-geneticist champions are essential to the mainstreaming of genomic medicine - European Journal of Human Genetics
European Journal of Human Genetics - Non-geneticist champions are essential to the mainstreaming of genomic medicine
www.nature.com
February 4, 2025 at 1:33 AM
Now this is fascinating! 🌟 Genomic medicine is expanding beyond genetics clinics, but how do we make it sustainable? A new paper highlights the power of non-geneticist champions. 🧵1/4
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Reposted by Erin Crellin
A new interactive online tool developed by Australian Genomics provides easy and accessible information in bite-sized chunks to guide patients through the key concepts of genomic testing.
Learn more: www.australiangenomics.org.au/new-online-c...
#genomics #genomictesting #consent #onlinetool
Learn more: www.australiangenomics.org.au/new-online-c...
#genomics #genomictesting #consent #onlinetool
New online consent tool for patients — Australian Genomics
Informed consent is a critical component of genomic and genetic testing. It is a process whereby a patient agrees to undergo genomic testing in full knowledge of the potential risks, benefits and outc...
www.australiangenomics.org.au
January 23, 2025 at 4:38 AM
A new interactive online tool developed by Australian Genomics provides easy and accessible information in bite-sized chunks to guide patients through the key concepts of genomic testing.
Learn more: www.australiangenomics.org.au/new-online-c...
#genomics #genomictesting #consent #onlinetool
Learn more: www.australiangenomics.org.au/new-online-c...
#genomics #genomictesting #consent #onlinetool
Reposted by Erin Crellin
Separating immediate genomic diagnosis from broader genetic screening helps families with critically ill children focus on urgent decisions first: Flexible timing for additional screening later supports better decision-making bit.ly/3C0S65J
January 17, 2025 at 9:23 PM
Separating immediate genomic diagnosis from broader genetic screening helps families with critically ill children focus on urgent decisions first: Flexible timing for additional screening later supports better decision-making bit.ly/3C0S65J
Great to see patient involvement featured in the revisions to the Declaration of Helsinki #patientexperience #livedexperience
This Viewpoint describes the World Medical Association's comprehensive revision of the Declaration of Helsinki on its 60th anniversary.
ja.ma/4jc5K6L
ja.ma/4jc5K6L
January 9, 2025 at 8:11 AM
Great to see patient involvement featured in the revisions to the Declaration of Helsinki #patientexperience #livedexperience
Reposted by Erin Crellin
📣And out now in Genetics in Medicine:
How do we best support choices when offering #genomic screening? @ausgenomics.bsky.social
Check out our 2-step model👇
doi.org/10.1016/j.gi...
Terrific collab @yvonnebombard.bsky.social & GeneticsAdviser! 🇨🇦🇦🇺 @genetic-fi.bsky.social @stephaniebest.bsky.social
How do we best support choices when offering #genomic screening? @ausgenomics.bsky.social
Check out our 2-step model👇
doi.org/10.1016/j.gi...
Terrific collab @yvonnebombard.bsky.social & GeneticsAdviser! 🇨🇦🇦🇺 @genetic-fi.bsky.social @stephaniebest.bsky.social
December 16, 2024 at 6:14 AM
📣And out now in Genetics in Medicine:
How do we best support choices when offering #genomic screening? @ausgenomics.bsky.social
Check out our 2-step model👇
doi.org/10.1016/j.gi...
Terrific collab @yvonnebombard.bsky.social & GeneticsAdviser! 🇨🇦🇦🇺 @genetic-fi.bsky.social @stephaniebest.bsky.social
How do we best support choices when offering #genomic screening? @ausgenomics.bsky.social
Check out our 2-step model👇
doi.org/10.1016/j.gi...
Terrific collab @yvonnebombard.bsky.social & GeneticsAdviser! 🇨🇦🇦🇺 @genetic-fi.bsky.social @stephaniebest.bsky.social
So pleased to see attention being drawn to the often inaccessibility of PDFs. Publishers should be adhering to digital accessibility guidelines! No one should be excluded from academia.
December 13, 2024 at 8:08 AM
So pleased to see attention being drawn to the often inaccessibility of PDFs. Publishers should be adhering to digital accessibility guidelines! No one should be excluded from academia.
Thank you @trangdo.bsky.social!
Fantastic presentations, including a very insightful one from our Genomics in Society group's @erincrellin.bsky.social and Rigan Tytherleigh during
MCRI/RCH Grand Rounds to celebrate the International Day of People w/ #Disability
MCRI/RCH Grand Rounds to celebrate the International Day of People w/ #Disability
December 4, 2024 at 4:40 AM
Thank you @trangdo.bsky.social!
Reposted by Erin Crellin
Join us next Wednesday for the #GCRConnect Showcase and hear more about what genetic counsellors get up to in research. More info and link to register below ⬇️
Interested in hearing more about what Genetic Counsellors get up to in research? Join us for the GCR Connect End of Year Showcase on Wednesday 4th December and hear from 4 amazing GCs! @ausgenomics.bsky.social
Link to register 👉 mcri.zoom.us/webinar/regi...
Link to register 👉 mcri.zoom.us/webinar/regi...
November 28, 2024 at 4:06 AM
Join us next Wednesday for the #GCRConnect Showcase and hear more about what genetic counsellors get up to in research. More info and link to register below ⬇️
Reposted by Erin Crellin
📣 Out now in #HumanGenomics!
🤔 What do the public think about the use of AI in #genomic medicine?
👉 rdcu.be/d0PLP
Benefits: efficiency ⬆️ errors ⬇️
Concerns: data security 🔐 discrimination
Who would be liable for error? 🤖👩⚕️
@genetic-fi.bsky.social Danya Vears & Jack Harrison 👏
🤔 What do the public think about the use of AI in #genomic medicine?
👉 rdcu.be/d0PLP
Benefits: efficiency ⬆️ errors ⬇️
Concerns: data security 🔐 discrimination
Who would be liable for error? 🤖👩⚕️
@genetic-fi.bsky.social Danya Vears & Jack Harrison 👏
Analysis of public perceptions on the use of artificial intelligence in genomic medicine | Human Genomics
rdcu.be
November 20, 2024 at 6:49 AM
📣 Out now in #HumanGenomics!
🤔 What do the public think about the use of AI in #genomic medicine?
👉 rdcu.be/d0PLP
Benefits: efficiency ⬆️ errors ⬇️
Concerns: data security 🔐 discrimination
Who would be liable for error? 🤖👩⚕️
@genetic-fi.bsky.social Danya Vears & Jack Harrison 👏
🤔 What do the public think about the use of AI in #genomic medicine?
👉 rdcu.be/d0PLP
Benefits: efficiency ⬆️ errors ⬇️
Concerns: data security 🔐 discrimination
Who would be liable for error? 🤖👩⚕️
@genetic-fi.bsky.social Danya Vears & Jack Harrison 👏
Reposted by Erin Crellin
Patient engagement is often described as the process of involving patients in healthcare research, decision-making & co-design. But there’s a deeper layer we rarely discuss: patient engagement is actually grief work
•Linxi Mytkolli💭
tinyurl.com/3srhxdwm
#PatientExperience #LivedExperience #Health
Why Patient Engagement is Actually Grief Work
Patient engagement is often described as the process of involving patients in healthcare research, decision-making, and co-design. But there’s a deeper layer we rarely discuss: patient engagement is a...
tinyurl.com
November 16, 2024 at 1:34 AM
Patient engagement is often described as the process of involving patients in healthcare research, decision-making & co-design. But there’s a deeper layer we rarely discuss: patient engagement is actually grief work
•Linxi Mytkolli💭
tinyurl.com/3srhxdwm
#PatientExperience #LivedExperience #Health