Char Goodwin
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drchargoodwin.bsky.social
Char Goodwin
@drchargoodwin.bsky.social
#Autistic Research Fellow researching autistic experiences of breast cancer | Breast cancer 2019 | views my own | She/They

Autistic Experiences of Breast Cancer project https://www.aebcstudy.co.uk/
to focus on giving myself more time to do the activities I enjoyed to help me get through the wait. The Autistic SPACE framework www.magonlinelibrary.com/doi/full/10.... from @autisticdoctor.bsky.social not cancer specific but you may wish to share with your medical team. Take care and best wishes.
Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings | British Journal of Hospital Medicine
Autistic people experience significant health disparities and reduced life expectancy. Barriers to accessing healthcare are associated with adverse health outcomes. Autism training and healthcare prof...
www.magonlinelibrary.com
September 24, 2025 at 4:35 PM
Thanks Ann. We will be producing guidelines as the outcome of the project which I appreciate won’t be helpful to you right now. There is a Self Advocacy Guide that might be useful www.autismcanada.org/advocacyguide. From a personal perspective the scanxiety waiting for results is tough. I tried /
Self-Advocacy Guide | Autism Canada
www.autismcanada.org
September 24, 2025 at 4:27 PM
Ain’t that the truth!
December 1, 2024 at 9:27 AM
Thank you, just reached 5 years since diagnosis. Waiting for annual mammogram. Always a stressful time.
December 1, 2024 at 9:19 AM
Thank you so much. I have liked the Cancer feed.
December 1, 2024 at 9:13 AM
Hi, is it too late to be added. I’m an autistic researcher exploring ways to improve cancer care for autistic people. Also had a breast cancer diagnosis myself.
December 1, 2024 at 8:58 AM
Hello, can you send me an email at [email protected] and we can chat there. Is that ok?
November 26, 2024 at 11:45 PM
Hi, no problem at all. There needs more research about autistic and otherwise neurodivergent experiences of cancer. I would love to connect, thank you.
November 25, 2024 at 7:23 AM
Yup, I’m here. I need to post more though. Thanks for mentioning me.
November 24, 2024 at 5:50 PM
Hi, happy to chat about the project.
November 24, 2024 at 4:56 PM
November 16, 2024 at 7:21 PM
Thank you, great to hear about initiatives happening in other countries. I’m pinging @autisticdoctor.bsky.social and @autisticdoc.bsky.social
October 19, 2023 at 3:03 PM
Congratulations Mary, fantastic news 🎉
October 16, 2023 at 5:53 PM