@georgiarivers.bsky.social and I can finally share our Cervical Screening for Trans+ Autistic People: A Self-Advocacy Zine

#AutResearch #AutismResearch 🎓🌈

autisticltd.co.uk/2025/06/13/c...

Had my last Zoladex injection today. Mixed emotions. Glad to have reached 5 years past diagnosis and that my endocrine treatment will finish soon. Feel apprehensive over what will happen now. My routine is changing and I don’t know how my body will react. #AutisticHealthcare
#cansky

Please take a look at this blog post by @kmunday.bsky.social and I discussing healthcare barriers in cancer care for autistic people. Based on our fireside talk at OUTpatients LGBTIQ+ Cancer Conference

#oncsky #cansky #medsky

Autism Research Study!

Participants needed for an interview study exploring the experience of breast cancer diagnosis & treatment as an autistic person (in UK)

Interview questions have been co-designed with our Lived Experience Advisory Group.

To find out more please go to: www.aebcstudy.co.uk

Menopause is an oft-overlooked autism research topic. The Bridging the Silos: Autistic Menopause project asks "how autistic people experience menopause and how they can better access information, services, and supports that might help them."

autisticmenopause.com

I was autistic when I was a kid and everyone called me “quirky”

I was autistic when I was an “awkward” teen

I was autistic when a psychiatrist misdiagnosed me and said I wasn’t autistic

I was autistic when I got a second opinion that confirmed I’m autistic

Self diagnosis is valid 💜

Anyone can be inquisitive, but many Autistic people are extra thirsty for knowledge and I love it. Unknown things that intrigue others for a few minutes become our hyper fixations, special interests and areas of expertise. It’s like others *want* to know things, but we *need* to know things.

Costumes to scare scientists.

If you are an autism researcher
And you reject autistic participation or feedback
You might want to rethink being an autism researcher
(We said what we said)

Inspired by the fantastic CARES Conference.

@autisticdoctor.bsky.social and I were at the Breast Cancer Now event in Westminster yesterday to talk to politicians about our Autistic Experiences of Breast Cancer research project and barriers to healthcare for autistic people. sites.exeter.ac.uk/aebcstudy/

🗞️NEW PAPER🗞️

Barriers to healthcare & a ‘triple empathy problem’ may lead to adverse outcomes for autistic adults

“It was life threatening and nearly killed me because I was too ill & too disabled to access doctors”

Read free: journals.sagepub.com/doi/10.1177/...

@autisticdoctor.bsky.social

The pharmacy gave me a different brand of Tamoxifen yesterday, a brand that had given me horrible side effects, and I didn’t realise until just now. I really hope there isn’t a shortage of my usual brand.
#autistic #cansky

captapnetwork.wordpress.com/2023/09/19/h... Hurrah. Our lovely guide to using kind and respectful language about autistic people is out. Feel free to share.

I am re-reading my journal extracts from when I had just finished active treatment for breast cancer, as part of the autoethnography I am writing. It’s reminds me how lost I felt at the time trying to process it all.
#AutRes

I’m a passionate advocate for co-produced Autism research (and Autistic-led studies) not just because this is ethical and empowering, but because it results in better research with more applicable findings.
One study I’m working on atm explores Autistic experiences of menopause autisticmenopause.com

Looky here!

I made a feed for autism research:
bsky.app/profile/did:...

Post by including #AutRes or just use the words “autism research”

Please follow and 🩵

Thanks @markrubin.bsky.social for the guidance. Please add this to your list!

Any tips for working out how to use blue sky? Finding people I used to follow on the bird app.

#HiSciSky #introduction
Hello! I’m a Research Fellow at Uni of Exeter, UK exploring autistic experiences of breast cancer (funded project with Breast Cancer Now)