Fred Rossi
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darthfoo.bsky.social
Fred Rossi
@darthfoo.bsky.social
270 followers 1K following 350 posts
My passions: Lightsabers, tech, books, comics, graphic novels, and the sweet sound of a Penguins goal horn. 🚨 My not-so-secret villain: #LongCovid. Still here, still nerdy! #LetsGoPens
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Reposted by Fred Rossi
tomkindlon.bsky.social
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"I am not the first author to suggest never-words for illnesses such as Long COVID, myalgic encephalomyelitis/chronic fatigue syndrome, & other complex chronic illnesses. The fact that the Lee et al2 and the Smyth & Blitshteyn..."

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#chronicillness #LongCovid #MEcfs
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · Feb 14
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Unusual but sympathetic paper:

Language Matters: What Not to Say to Patients with Long COVID, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, and Other Complex Chronic Disorders

www.mdpi.com/1660-4601/22...

#LongCovid #MEcfs

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Abstract People with Long COVID, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and other complex chronic disorders consistently report having difficulty obtaining effective and compassionate medical care and being disbelieved, judged, gaslighted, and even dismissed by healthcare professionals. We believe that these adversarial interactions and language are more likely to arise when healthcare professionals are confronting complex chronic illnesses without proper training, diagnostic biomarkers, or FDA-approved therapies. These problematic conversations between practitioners and patients often involve specific words and phrases—termed the “never-words”—can leave patients in significant emotional distress and negatively impact the clinician–patient relationship and recovery. Seeking to prevent these destructive interactions, we review key literature on best practices for difficult clinical conversations and discuss the application of these practices for people with Long COVID, ME/CFS, dysautonomia, and other complex chronic disorders. We provide recommendations for alternative, preferred phrasing to the never-words, which can enhance therapeutic relationship and chronic illness patient care via compassionate, encouraging, and non-judgmental language.
September 27, 2025 at 1:12 AM