Colostomy UK
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colostomyuk.bsky.social
Colostomy UK
@colostomyuk.bsky.social
53 followers 13 following 400 posts
Charity that SUPPORTS and EMPOWERS people living with a #stoma. Your voice on the bigger issues; campaigning, & running projects. #StomaAware
www.ColostomyUK.org
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colostomyuk.bsky.social
Colostomy UK @colostomyuk.bsky.social · 12d
We’re proud to launch our new online listings of stoma-friendly toilet venues.

Featuring facilities like hooks, shelves, bins & full-length mirrors – small changes that make a big difference for people living with a #stoma.

Find out more: https://ow.ly/YJy950Y00xS

#stomaaware
We have launched our new Stoma Friendly Toilets Finder - Find stoma friendly toilets near you! https://www.colostomyuk.org/information/stoma-friendly-toilets-finder/ Our Stoma Friendly Toilets Finder has been created to help you confidently manage your stoma wherever you are. #notalldisabilitesarevisible #Stoma #StomaAware #ColostomyUK #urostomy #ilostomy #colostomy
colostomyuk.bsky.social
James, 80, says #ActiveOstomates has given him “company, conversation and shared experience” after his #stoma surgery. Our online classes are back 26 Feb - 8 weeks - including Pilates, yoga, mindfulness & Chair Yoga from home - Sign up today: https://www.colostomyuk.org/active-ostomates/
James had stoma surgery in 2021 at the age of 80, following a diagnosis of bowel cancer. Since joining Active Ostomates at home, James has said "Having company, conversation, and shared experience makes a huge difference." Our Active Ostomate online classes are starting February 25th, for eight weeks, including Pilates and Chair Yoga, all from the comfort of your own home! To find out more or sign up today, visit https://www.colostomyuk.org/active-ostomates/
February 7, 2026 at 3:00 PM
colostomyuk.bsky.social
This brilliant video from Stormont Estate perfectly shows what a #StomaFriendly toilet looks like! If you'd like to make a facility near you #stoma friendly, visit https://www.colostomyuk.org/campaigns/

Thank you to Stormont Estate for making these changes for people living with stomas
February 6, 2026 at 8:00 AM
colostomyuk.bsky.social
Our #semicolon t-shirts are available via our online shop!

We've chosen the semicolon to represent those living life with only part of their #bowel

Get yours here: https://ow.ly/PHMg50XZz4g

#StomaAware #Colostomy #Ileostomy #Urostomy #Stoma
Our #semicolon t-shirts are available via our online shop! 👕 We've chosen the semicolon to represent those living life with only part of their #bowel Get yours here: https://colostomyuk.bigcartel.com/product/colostomy-uk-semicolon-t-shirt?fbclid=IwAR2MXD6r1Ggz0tWJxMz7qTfByKcxXcR9eYQkwsvYkNvQfQVq8sdkJlvv_Yg #StomaAware #Colostomy #Ileostomy #Urostomy #Stoma
February 5, 2026 at 7:55 AM
colostomyuk.bsky.social
Today is #WorldCancerDay 💜 Did you know that over 5,000 people in the UK have #stoma surgery yearly due to cancer? If you're one of them find out how we can support you by visiting colostomyuk.org #bowelcancer #ovariancancer #rectalcancer #bladdercancer
Today is #WorldCancerDay 💜 Did you know that over 5,000 people in the UK have #stoma surgery yearly due to cancer? If you're one of them find out how we can support you by visiting colostomyuk.org #bowelcancer #ovariancancer #rectalcancer #bladdercancer
February 4, 2026 at 7:55 AM
colostomyuk.bsky.social
From Healthy Eating to Stoma Reversal, our A to Z list of fact sheets & booklets will have you covered 📖 Explore the full range here: https://ow.ly/NV1O50XZyGT Or to receive a free hard copy, call us on 0118 939 1537. #stomaaware #stoma #colostomyuk #ibd #colitis #crohns
Are you looking for clear answers on stoma care and nutrition? From Healthy Eating to Stoma Reversal, our A to Z list of fact sheets & booklets will have you covered 📖 Explore the full range here: link in bio 'A-Z List of our Factsheets and Information Booklets' or if you would like to receive a hard copy, call us on: 0118 939 1537 #stomaaware #stoma #colostomyuk #ibd #colitis #crohns
February 3, 2026 at 7:55 AM
colostomyuk.bsky.social
"Cristian’s Change Campaign is a local initiative in Penzance dedicated to improving access to stoma friendly toilets in public spaces, hospitals, and businesses."

Read Annie's story: https://ow.ly/MQv450Y0JpJ

#stoma #stomaaware
Why Stoma Friendly Toilets Matter: Annie's Story Behind Cristian’s Change Campaign
February 2, 2026 at 7:55 AM
colostomyuk.bsky.social
Busy planning a spring escape? ✈️ We've got all the latest travel advice to make your journey as smooth as possible.

Download our advice booklet & Civil Aviation Authority-endorsed travel certificate: https://www.colostomyuk.org/information/travel-advice/

#stoma #stomaaware #travel
Busy planning this year's summer holiday? We've got all the latest travel advice to make your journey as smooth as possible
February 1, 2026 at 7:55 AM
Reposted by Colostomy UK
saunders14.bsky.social
If interested check out my article in the latest issue of @colostomyuk.bsky.social 's Tidings magazine. I talk about research on the role of AI in #stoma care
#ostomy #ibd 👇👇👇
online.fliphtml5.com/hilnq/fccr/#...
January 31, 2026 at 11:24 AM
colostomyuk.bsky.social
Menopause can affect individuals with stomas, particularly in terms of skin health and bowel habits, due to hormonal changes. In this video Dr Nighat Arif offers her guidance on Stomas, Menopause, and HRT: https://www.youtube.com/watch?v=BI1yYZqRuC4

For more guidance visit https://ow.ly/Ccxi50XNCvm
Menopause can affect individuals with stomas, particularly in terms of skin health and bowel habits, due to hormonal changes. In this video @DrNighatAri offers her guidance on Stomas, Menopause, and HRT: https://www.youtube.com/watch?v=BI1yYZqRuC4 For more guidance please visit https://www.colostomyuk.org/information/stomas-and-menopause/
January 31, 2026 at 8:00 AM
colostomyuk.bsky.social
Do you feel pain and discomfort after recovery from #stoma surgery? The causes, coping strategies and treatment options are covered in our Pain and Discomfort booklet, downloadable here http://ow.ly/P75350Oj1zf #stoma101 #stoma #stomaaware
Do you feel pain and discomfort after recovery from #stoma surgery? It's common for people to feel pain and discomfort in the rectal or perineal area. The causes, coping strategies and treatment options are covered in our Pain and Discomfort booklet, downloadable here http://ow.ly/P75350Oj1zf #stoma101 #stoma #stomaaware
January 30, 2026 at 7:55 AM
colostomyuk.bsky.social
Pancaking impacts lots of people living with a #stoma. It occurs when instead of dropping to the bottom of the bag, the motion collects around the stoma and may seep between the flange/baseplate and the skin. https://ow.ly/HNbF50Uj5Sy

#stoma101 #stomaaware #stoma
Pancaking impacts lots of people living with a #stoma. It occurs when instead of dropping to the bottom of the bag, the motion collects around the stoma and may seep between the flange/baseplate and the skin. https://www.colostomyuk.org/information/stoma-problems/pancaking/ #stoma101 #stomaaware #stoma
January 29, 2026 at 7:55 AM
colostomyuk.bsky.social
For many people, returning to work after their stoma surgery is an important milestone, signifying a welcome return to ‘normality’. However, it can also be a source of anxiety. Visit our website for our hints & tips: https://ow.ly/E30r50XwNzW #Stoma #StomaAware
For many people, returning to work after their stoma surgery is an important milestone, signifying a welcome return to ‘normality’. However, it can also be a source of anxiety. Visit our website for our hints & tips on returning to work https://www.colostomyuk.org/information/returning-to-work-after-stoma-surgery/ #Stoma #StomaAware
January 28, 2026 at 7:55 AM
colostomyuk.bsky.social
Having a clear out? Donate your unwanted clothes & household items to raise funds for Colostomy UK 💜 Free collection via https://ow.ly/PGcb50XgZtp 0344 879 4417 https://ow.ly/FFps50XgZto #Stoma #StomaAware #icollectclothes
We've teamed up with iCollect Clothes to offer a hassle-free way to donate. 💜 iCollect will pick up your unwanted clothing, shoes, bedding, towels, curtains, accessories books, soft toys, small domestic appliances and much more! This then gets converted into a donation for Colostomy UK. Bag up your clothes, box up those household items, and then arrange your free collection by calling 0344 879 4417 or visiting https://www.colostomyuk.org/get-involved/fundraising/donate-your-unwanted-items/
January 27, 2026 at 3:55 PM
colostomyuk.bsky.social
Sleep is crucial to our health and well-being. People who have a #stoma can feel anxious about sleeping. Issues such as leakage can be disruptive too. For advice and lots of tips to get the best night’s rest, visit: https://ow.ly/rtwZ50XOo7P #StomaAware #stoma101 #Stoma
Does your stoma keep you up at night? Sleep is crucial to our health and well-being. People who have a #stoma can feel anxious about sleeping. Issues such as leakage can be disruptive too. For advice and lots of tips to get the best night’s rest, visit: colostomyuk.org/information/sleep #StomaAware #stoma101 #Stoma
January 27, 2026 at 7:55 AM
colostomyuk.bsky.social
We’re proud to launch our new online listings of stoma-friendly toilet venues.

Featuring facilities like hooks, shelves, bins & full-length mirrors – small changes that make a big difference for people living with a #stoma.

Find out more: https://ow.ly/YJy950Y00xS

#stomaaware
We have launched our new Stoma Friendly Toilets Finder - Find stoma friendly toilets near you! https://www.colostomyuk.org/information/stoma-friendly-toilets-finder/ Our Stoma Friendly Toilets Finder has been created to help you confidently manage your stoma wherever you are. #notalldisabilitesarevisible #Stoma #StomaAware #ColostomyUK #urostomy #ilostomy #colostomy
January 26, 2026 at 7:55 AM
colostomyuk.bsky.social
Our #ActiveOstomates – At Home online classes are back!

Starting February 26th, Eight weeks of Pilates, yoga, mindfulness and Chair Yoga all from the comfort of your own home!

To find out more or sign up today, visit https://ow.ly/SmcC50XGX4e

#activeostomates #stoma #stomaaware
Our #ActiveOstomates – At Home online classes are back! Starting February 25th, Eight weeks of Pilates and Chair Yoga all from the comfort of your own home! To find out more or sign up today, visit https://www.colostomyuk.org/active-ostomates/ #activeostomates #stoma #stomaaware #urostomy #ileostomy #colostomy #colostomyuk
January 25, 2026 at 12:30 PM
colostomyuk.bsky.social
Leakage is one of the biggest causes of anxiety for anyone living with a #stoma.

Our website has lots of hints and tips, and resources to help you manage leakage

To find out more, head to https://ow.ly/ibmz50XJMjQ

#stoma101 #colostomy #ileostomy #StomaAware
Leakage is one of the biggest causes of anxiety for anyone living with a #stoma. Our website has lots of hints and tips, and resources to help you manage leakage To find out more, head to https://www.colostomyuk.org/information/stoma-problems/sore-skinleakage/ #stoma101 #colostomy #ileostomy #StomaAware
January 25, 2026 at 8:00 AM
colostomyuk.bsky.social
This Cervical Cancer Prevention Week, we’re proud to share the powerful story of Bobbie. Read Bobbie's story: https://www.colostomyuk.org/cervical-cancer-prevention-bobbies-story/

#stoma #support #stomaaware #cervicalcancerpreventionweek #CervicalCancerPrevent
This Cervical Cancer Prevention Week, we’re proud to share the powerful story of Bobbie – who is making a real difference to the stoma community. For Bobbie, a diagnosis of cervical cancer came at a time when she was living abroad with her husband, who was serving in the RAF, and their two young daughters. Like many people, cancer was something she never expected to face – and certainly not something that would shape the rest of her life in the way it did.
January 24, 2026 at 3:00 PM
colostomyuk.bsky.social
Did you know that a RADAR key will open over 9000 locked public toilets around the UK? 🔑

If you would like to buy one, they're available from our online shop for £4.50: https://ow.ly/kQ9K50XJKOv

#notalldisabilitiesarevisible #stoma #colostomy #urostomy #ileostomy #StomaAware
Did you know that a RADAR key will open over 9000 locked public toilets around the UK? 🔑 If you would like to buy one, they're available from our online shop for £4.50: https://www.colostomyuk.org/information/radarkey/ #notalldisabilitiesarevisible #stoma #colostomy #urostomy #ileostomy #StomaAware
January 24, 2026 at 8:00 AM
colostomyuk.bsky.social
Could you be our next winner? Play the Colostomy UK lottery today to be in with a chance to win big while also giving back!
£25,000 jackpot & weekly cash prizes! Just £1 to enter & 50p goes directly to us.

Play now & support our work https://ow.ly/JQZi50WnBCA

#Stoma #StomaAware
Could you be our next winner? Play the Colostomy UK lottery today to be in with a chance to win big while also giving back! 💪 Every week you have the chance to win the £25,000 lottery jackpot, plus many other fantastic cash prizes, whilst also supporting us! ⭐ For every £1 entry at least 50p is donated directly to us. The more people that play, the more money we raise! 💜 Play the lottery today! https://www.colostomyuk.org/get-involved/fundraising/unity-lottery/ #Stoma #StomaAware
January 23, 2026 at 4:55 PM
colostomyuk.bsky.social
'Proctectomy surgery' or 'Barbie Butt' surgery, is where your rectum and anus are removed and sewn up permanently. This article in our Tidings magazine, discusses this surgery, the recovery period and what life is like afterwards https://ow.ly/lYbb50XJKJQ #barbiebutt #stoma
What is ‘Barbie Butt’ surgery – and why do some people need it? 'Proctectomy surgery' or 'Barbie Butt' surgery, is where your rectum and anus are removed and sewn up permanently. We’d love to hear your story! Share your experience in the comments or drop us a DM. This article in our Tidings magazine, discusses this surgery, the recovery period and what life is like afterwards 💜 https://www.colostomyuk.org/wp-content/uploads/2023/12/Dear-Nurse-Barbie-Butt.pdf #barbiebutt #stoma #stomaaware
January 23, 2026 at 7:55 AM
colostomyuk.bsky.social
If you're thinking of taking up a new sport but are looking for inspiration, why not check out our top tips! The series currently includes #Football #Swimming #RugbyLeague #Golf #Running and #Hiking and they can all be viewed via our A to Z page: https://www.colostomyuk.org/information/a-z-list/
If you're thinking of taking up a new sport but are looking for inspiration, why not check out our top tips! The series currently includes #Football #Swimming #RugbyLeague #Golf #Running and #Hiking and they can all be viewed via our A to Z page: https://www.colostomyuk.org/information/a-z-list/ #Stoma #StomaAware
January 21, 2026 at 7:55 AM
colostomyuk.bsky.social
Have you read Grandma’s New Bottom yet?

Created by a Grandma living with a stoma, Santina has written and illustrated this delightful book to help children understand #stoma surgery 💜

Download now: https://ow.ly/G7bf50WyJl2.

#StomaAware #Stoma
Have you read Grandma’s New Bottom yet? Created by a Grandma living with a stoma, Santina has written and illustrated this delightful book to help children understand #stoma surgery 💜 Download your free copy: www.colostomyuk.org/wp-content/uploads/2023/10/Grandmas-New-Bottom-FOR-WEB.pdf or call us on 0118 939 1537 for a printed version. #StomaAware #Stoma
January 20, 2026 at 4:20 PM
colostomyuk.bsky.social
Changes to how you order your stoma supplies.

Some areas are introducing central prescription services. The ordering process may change but your right to choose your products and delivery company does not.

Read more: https://ow.ly/Vvhr50Y02gC

#StomaAware
Many areas in England are introducing central prescription services for stoma and other medical appliance supplies. While the way you place your monthly order may change, your right to choose your products and delivery company stays the same. These services are designed to make repeat prescriptions more consistent and clinically supported, but it’s important you understand what this means for you.
January 20, 2026 at 12:44 PM
colostomyuk.bsky.social
Cervical Cancer Prevention Week 💜 - We’re sharing the inspiring story of Isobel, whose lived experience and volunteering are making a real difference for people living with stomas: https://ow.ly/UkMX50XJOlk

#stoma #stomaaware #cervicalcancerpreventionweek
Cervical Cancer Prevention Week | 19–26 January 💜 This Cervical Cancer Prevention Week, we’re proud to share the powerful stories of Isobel – who are making a real difference to the stoma community.
January 19, 2026 at 7:55 AM