COVID-19 Longhauler Advocacy Project
@c19lap.bsky.social
A U.S. based #grassroots, #patientled, all-volunteer 501(c)(3) #nonprofit organization advancing the understanding of & expediting solutions for #LongCOVID. #FBLC #IACC #Disability #PublicHealth https://www.longhauler-advocacy.org
C19LAP was founded by patients, for patients. Our work drives action that gets us closer to solutions, treatment, cures, prevention, assistance, and more. Our work is rooted in education, the center of being able to address Long COVID. Learn more here: www.longhauler-advocacy.org/post/novembe...
November 2025
Dear community, We’re closing out November with urgency, momentum, and a renewed commitment to the tens of millions still living with Long COVID. This month’s newsletter brings critical updates from o...
www.longhauler-advocacy.org
November 26, 2025 at 5:45 PM
C19LAP was founded by patients, for patients. Our work drives action that gets us closer to solutions, treatment, cures, prevention, assistance, and more. Our work is rooted in education, the center of being able to address Long COVID. Learn more here: www.longhauler-advocacy.org/post/novembe...
We’re closing out November with urgency, momentum, & a renewed commitment to the tens of millions living with #LongCOVID. This month’s newsletter brings critical updates from our work, calls to action, research updates, community stories & more!
Read our newsletter here:
bit.ly/C19LAPNLNOV25
Read our newsletter here:
bit.ly/C19LAPNLNOV25
November 25, 2025 at 4:42 PM
We’re closing out November with urgency, momentum, & a renewed commitment to the tens of millions living with #LongCOVID. This month’s newsletter brings critical updates from our work, calls to action, research updates, community stories & more!
Read our newsletter here:
bit.ly/C19LAPNLNOV25
Read our newsletter here:
bit.ly/C19LAPNLNOV25
Thank you to everyone who joined our recent webinar hosted by Kantor & Kantor, LLP in collaboration with the COVID-19 Longhauler Advocacy Project (C19LAP).
The webinar recording is available here: www.youtube.com/watch?v=RFCM...
#LongCOVID #disability #C19LAP
Longhauler-advocacy.org
The webinar recording is available here: www.youtube.com/watch?v=RFCM...
#LongCOVID #disability #C19LAP
Longhauler-advocacy.org
Navigating Long COVID, SSDI, and Disability Insurance: What Patients Need to Know
YouTube video by COVID-19 Longhauler Advocacy Project
www.youtube.com
November 19, 2025 at 11:34 PM
Thank you to everyone who joined our recent webinar hosted by Kantor & Kantor, LLP in collaboration with the COVID-19 Longhauler Advocacy Project (C19LAP).
The webinar recording is available here: www.youtube.com/watch?v=RFCM...
#LongCOVID #disability #C19LAP
Longhauler-advocacy.org
The webinar recording is available here: www.youtube.com/watch?v=RFCM...
#LongCOVID #disability #C19LAP
Longhauler-advocacy.org
We’re asking for short videos (under 1 minute) from individuals willing to share the importance of C19LAP’s work and why now, more than ever, our work and continuity is essential.
Your stories drive action. Tell yours today! bit.ly/C19LAPLCTEST...
Your stories drive action. Tell yours today! bit.ly/C19LAPLCTEST...
November 18, 2025 at 6:27 PM
We’re asking for short videos (under 1 minute) from individuals willing to share the importance of C19LAP’s work and why now, more than ever, our work and continuity is essential.
Your stories drive action. Tell yours today! bit.ly/C19LAPLCTEST...
Your stories drive action. Tell yours today! bit.ly/C19LAPLCTEST...
NEW! The Long COVID Community Spotlight
Have you done something to contribute to Long COVID advocacy? Tell us about it! Complete the form for a chance to be featured in our newsletter under our new community spotlight section! bit.ly/C19LAPLCSPOT...
Have you done something to contribute to Long COVID advocacy? Tell us about it! Complete the form for a chance to be featured in our newsletter under our new community spotlight section! bit.ly/C19LAPLCSPOT...
November 17, 2025 at 7:58 PM
NEW! The Long COVID Community Spotlight
Have you done something to contribute to Long COVID advocacy? Tell us about it! Complete the form for a chance to be featured in our newsletter under our new community spotlight section! bit.ly/C19LAPLCSPOT...
Have you done something to contribute to Long COVID advocacy? Tell us about it! Complete the form for a chance to be featured in our newsletter under our new community spotlight section! bit.ly/C19LAPLCSPOT...
The COVID-19 Longhauler Advocacy Project (C19LAP) is expanding our national efforts, and we’re looking for dedicated volunteers to help strengthen Long COVID advocacy, education, policy, and public-health work across the U.S.
Links ⬇️
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Links ⬇️
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November 15, 2025 at 4:00 PM
The COVID-19 Longhauler Advocacy Project (C19LAP) is expanding our national efforts, and we’re looking for dedicated volunteers to help strengthen Long COVID advocacy, education, policy, and public-health work across the U.S.
Links ⬇️
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Links ⬇️
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Long COVID isn’t a moment, it’s a mounting public health crisis affecting tens of millions.
This is your moment to help shape the future of Long COVID care, education, and public health.
#LongCOVID. #GivingTuesday #GivingSeason #NonProfit #Donate
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This is your moment to help shape the future of Long COVID care, education, and public health.
#LongCOVID. #GivingTuesday #GivingSeason #NonProfit #Donate
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November 14, 2025 at 8:35 PM
Long COVID isn’t a moment, it’s a mounting public health crisis affecting tens of millions.
This is your moment to help shape the future of Long COVID care, education, and public health.
#LongCOVID. #GivingTuesday #GivingSeason #NonProfit #Donate
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This is your moment to help shape the future of Long COVID care, education, and public health.
#LongCOVID. #GivingTuesday #GivingSeason #NonProfit #Donate
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Since the start of the pandemic, C19LAP has been one of the leading patient voices for Long COVID, fully patient-led, volunteer-run, and grounded in lived experience.
If our work has informed you, supported you, or strengthened the Long COVID movement, please take a moment to leave a review ⬇️
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If our work has informed you, supported you, or strengthened the Long COVID movement, please take a moment to leave a review ⬇️
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November 14, 2025 at 1:52 AM
Since the start of the pandemic, C19LAP has been one of the leading patient voices for Long COVID, fully patient-led, volunteer-run, and grounded in lived experience.
If our work has informed you, supported you, or strengthened the Long COVID movement, please take a moment to leave a review ⬇️
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If our work has informed you, supported you, or strengthened the Long COVID movement, please take a moment to leave a review ⬇️
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The COVID-19 Longhauler Advocacy Project is proud to have donated high-quality N95 masks to the DC Public Health Association (DCPHA)!
After learning more about #LongCOVID, DCPHA will be partnering with us to continue working to raise awareness leading up to Long COVID Awareness Day in March.
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After learning more about #LongCOVID, DCPHA will be partnering with us to continue working to raise awareness leading up to Long COVID Awareness Day in March.
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November 12, 2025 at 4:13 PM
The COVID-19 Longhauler Advocacy Project is proud to have donated high-quality N95 masks to the DC Public Health Association (DCPHA)!
After learning more about #LongCOVID, DCPHA will be partnering with us to continue working to raise awareness leading up to Long COVID Awareness Day in March.
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After learning more about #LongCOVID, DCPHA will be partnering with us to continue working to raise awareness leading up to Long COVID Awareness Day in March.
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The C19Lap team may be heading home, but the mission doesn’t stop. Join us in calling for action on #LongCOVID from the White House, Congress, HHS & beyond! Who will be the first to respond?
November 8, 2025 at 3:51 PM
The C19Lap team may be heading home, but the mission doesn’t stop. Join us in calling for action on #LongCOVID from the White House, Congress, HHS & beyond! Who will be the first to respond?
Today, #C19LAP met with the office of U.S. Senator Marshall to elevate the needs and priorities of the #LongCOVID community.
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November 7, 2025 at 11:23 PM
Today, #C19LAP met with the office of U.S. Senator Marshall to elevate the needs and priorities of the #LongCOVID community.
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The COVID-19 Longhauler Advocacy Project joined #APHA’s #RallyforPublicHealth at the #NationalMall to raise awareness, educate, and engage #publichealth leaders on behalf of the tens of millions living with #LongCOVID. Urgent and scaled action is needed to address this growing public health crisis.
November 6, 2025 at 8:09 PM
The COVID-19 Longhauler Advocacy Project joined #APHA’s #RallyforPublicHealth at the #NationalMall to raise awareness, educate, and engage #publichealth leaders on behalf of the tens of millions living with #LongCOVID. Urgent and scaled action is needed to address this growing public health crisis.
Today, C19LAP presented “Clinical & Public Health Implications of the NASEM Long COVID Definition & Its Role in Standardizing Care – A Roadmap to Long COVID Assessment, Diagnosis, Documentation, Care Management, & Support” on the final day at #APHA. While the conference is over, attendees are…
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November 6, 2025 at 12:28 AM
Today, C19LAP presented “Clinical & Public Health Implications of the NASEM Long COVID Definition & Its Role in Standardizing Care – A Roadmap to Long COVID Assessment, Diagnosis, Documentation, Care Management, & Support” on the final day at #APHA. While the conference is over, attendees are…
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Today, C19LAP presented “Mobilizing State, Local, and Territorial Health Departments
to Confront Long COVID Amid the Public Health Consequences of Federal Abandonment and the Erasure of Programs Serving Millions” at #APHA.
Our team also continued…
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to Confront Long COVID Amid the Public Health Consequences of Federal Abandonment and the Erasure of Programs Serving Millions” at #APHA.
Our team also continued…
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November 5, 2025 at 3:52 AM
Today, C19LAP presented “Mobilizing State, Local, and Territorial Health Departments
to Confront Long COVID Amid the Public Health Consequences of Federal Abandonment and the Erasure of Programs Serving Millions” at #APHA.
Our team also continued…
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to Confront Long COVID Amid the Public Health Consequences of Federal Abandonment and the Erasure of Programs Serving Millions” at #APHA.
Our team also continued…
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C19LAP firmly believes that education is the nucleus for all that needs to happen in the #LongCOVID space. Our strengths are education, resource development, and cross-sector convening. C19LAP is doing the work, everyday, to
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November 3, 2025 at 10:57 PM
C19LAP firmly believes that education is the nucleus for all that needs to happen in the #LongCOVID space. Our strengths are education, resource development, and cross-sector convening. C19LAP is doing the work, everyday, to
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APHA Day 1 was a success. Thank you to all the #publichealth leaders & advocates who work to make this world a safer place.
C19LAPs ability to do this work is dependent on grassroots community support. Please consider donating $5/month to help us continue our mission. www.paypal.com/donate/?host...
C19LAPs ability to do this work is dependent on grassroots community support. Please consider donating $5/month to help us continue our mission. www.paypal.com/donate/?host...
November 3, 2025 at 1:22 AM
APHA Day 1 was a success. Thank you to all the #publichealth leaders & advocates who work to make this world a safer place.
C19LAPs ability to do this work is dependent on grassroots community support. Please consider donating $5/month to help us continue our mission. www.paypal.com/donate/?host...
C19LAPs ability to do this work is dependent on grassroots community support. Please consider donating $5/month to help us continue our mission. www.paypal.com/donate/?host...
The scariest this out there this #halloween isn’t the monsters you can see, but the ones you can’t until it’s staring you back in the mirror. Say it 3x COVID, COVID, COVID!
It’s spreading faster than a zombie apocalypse & cuts deeper than Edward Scissorhands. Be like Michael Myers & wear a mask!
It’s spreading faster than a zombie apocalypse & cuts deeper than Edward Scissorhands. Be like Michael Myers & wear a mask!
October 31, 2025 at 12:49 PM
The scariest this out there this #halloween isn’t the monsters you can see, but the ones you can’t until it’s staring you back in the mirror. Say it 3x COVID, COVID, COVID!
It’s spreading faster than a zombie apocalypse & cuts deeper than Edward Scissorhands. Be like Michael Myers & wear a mask!
It’s spreading faster than a zombie apocalypse & cuts deeper than Edward Scissorhands. Be like Michael Myers & wear a mask!
Our team heads to the American Public Health Associations conference. #APHA2025 Is the biggest public health assoc. & conference. C19LAP will present 3x & exhibit. We are wishing our team health & success as they connect w/ thousands to help advance solutions to Long COVID!
October 30, 2025 at 4:52 PM
Our team heads to the American Public Health Associations conference. #APHA2025 Is the biggest public health assoc. & conference. C19LAP will present 3x & exhibit. We are wishing our team health & success as they connect w/ thousands to help advance solutions to Long COVID!
Call to Action
With the government currently shut down, many Members of Congress are back in their home districts, and that means now is the perfect time to reach out and request meetings.
• www.congress.gov/members/find...
• Action Network: actionnetwork.org/letters/4aee...
With the government currently shut down, many Members of Congress are back in their home districts, and that means now is the perfect time to reach out and request meetings.
• www.congress.gov/members/find...
• Action Network: actionnetwork.org/letters/4aee...
www.congress.gov
October 26, 2025 at 3:03 PM
Call to Action
With the government currently shut down, many Members of Congress are back in their home districts, and that means now is the perfect time to reach out and request meetings.
• www.congress.gov/members/find...
• Action Network: actionnetwork.org/letters/4aee...
With the government currently shut down, many Members of Congress are back in their home districts, and that means now is the perfect time to reach out and request meetings.
• www.congress.gov/members/find...
• Action Network: actionnetwork.org/letters/4aee...
October 8, 2025 at 12:39 AM
Join us for a free #LongCOVID #Disability webinar on October 8th at 3pm ET!
The webinar will discuss the confusing & frustrating insurance system, understanding your rights, preparing stronger claims, & knowing what to do if benefits are denied.
Register here:
us06web.zoom.us/webinar/regi...
The webinar will discuss the confusing & frustrating insurance system, understanding your rights, preparing stronger claims, & knowing what to do if benefits are denied.
Register here:
us06web.zoom.us/webinar/regi...
September 29, 2025 at 8:29 PM
Join us for a free #LongCOVID #Disability webinar on October 8th at 3pm ET!
The webinar will discuss the confusing & frustrating insurance system, understanding your rights, preparing stronger claims, & knowing what to do if benefits are denied.
Register here:
us06web.zoom.us/webinar/regi...
The webinar will discuss the confusing & frustrating insurance system, understanding your rights, preparing stronger claims, & knowing what to do if benefits are denied.
Register here:
us06web.zoom.us/webinar/regi...
We want to thank HHS Secretary Kennedy and fellow hosts for convening last week's #LongCOVID roundtable. The COVID-19 Longhauler Advocacy Project’s (C19LAP) leadership watched with great interest.
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www.longhauler-advocacy.org
September 26, 2025 at 1:11 AM
We want to thank HHS Secretary Kennedy and fellow hosts for convening last week's #LongCOVID roundtable. The COVID-19 Longhauler Advocacy Project’s (C19LAP) leadership watched with great interest.
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Please join the COVID-19 Longhauler Advocacy Project in proudly welcoming our newest Board of Directors, Tammy Wilshire and Brooke Keaton. We’re honored to have their leadership, expertise, and unwavering commitment as part of our team. Learn more about them below!
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July 7, 2025 at 7:25 PM
Please join the COVID-19 Longhauler Advocacy Project in proudly welcoming our newest Board of Directors, Tammy Wilshire and Brooke Keaton. We’re honored to have their leadership, expertise, and unwavering commitment as part of our team. Learn more about them below!
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Today marks five years since the COVID-19 Longhauler Advocacy Project (C19LAP) was born out of urgency, out of frustration, and out of the unshakable belief that patients deserve to be heard, believed, and protected.
Read more here:https://longhauler-advocacy.org/so/47PUuRQjx?languageTag=en
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Read more here:https://longhauler-advocacy.org/so/47PUuRQjx?languageTag=en
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Today marks five years since the COVID-19 Longhauler Advocacy Project (C19LAP) was born out of urgency, out of frustration, and out of the unshakable belief that patients deserve to be heard, believed...
In Community, C19LAP Leadership
longhauler-advocacy.org
June 28, 2025 at 10:34 PM
Today marks five years since the COVID-19 Longhauler Advocacy Project (C19LAP) was born out of urgency, out of frustration, and out of the unshakable belief that patients deserve to be heard, believed, and protected.
Read more here:https://longhauler-advocacy.org/so/47PUuRQjx?languageTag=en
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Read more here:https://longhauler-advocacy.org/so/47PUuRQjx?languageTag=en
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