COVID-19 Longhauler Advocacy Project
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project
@c19lap.bsky.social
3K followers 3.8K following 250 posts
A U.S. based #grassroots, #patientled, all-volunteer 501(c)(3) #nonprofit organization advancing the understanding of & expediting solutions for #LongCOVID. #FBLC #IACC #Disability #PublicHealth https://www.bit.ly/FR4LC26
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c19lap.bsky.social
This #campaign is about building a nationwide public health infrastructure for #LongCOVID, something no federal agency has delivered. Your gift accelerates state-level systems, clinician education, and national leadership.

#Donate this #GivingTuesday. Support #SystemsChange: https://bit.ly/FR4LC26
December 8, 2025 at 12:30 AM
c19lap.bsky.social
C19LAP will honor our top 5 fundraisers w/ 100 3M N95 masks, a #LongCOVID Awareness shirt & wristband. Donate or create a campaign to help C19LAP’s continuity, expansion, & success here: https://bit.ly/FR4LC26 #GivingTuesday #GivingSeason
December 7, 2025 at 7:25 PM
c19lap.bsky.social
This movement rises when the community rises. Your donation, fundraiser, or major gift strengthens the national #LongCOVID response. From the start of the pandemic, Long COVID patients have not only risen to the occasion but led the work. https://bit.ly/FR4LC26
#GivingTuesday #GivingSeason
December 7, 2025 at 12:30 PM
c19lap.bsky.social
C19LAP drives Long COVID legislation and work nationwide, bringing forward the lived experiences of our community to develop the needed solutions. Your contribution fuels this work: https://bit.ly/FR4LC26 #LongCOVID #GivingTuesday #PublicHealthMatters #GigingSeason
December 7, 2025 at 2:15 AM
c19lap.bsky.social
C19LAP plays a central role in national public health education, providing guidance to medical specialty societies, clinicians, researchers, medical students, & state and local health departments. Help support our work: https://bit.ly/FR4LC26

#LongCOVID #GivingTuesday #GivingSeason
December 6, 2025 at 7:30 PM
c19lap.bsky.social
Guidance from public health officials has lacked since the start of the pandemic. C19LAP has filled those gaps and needs your help to continue to do so! Your support ensures families and clinicians have access to essential resources. https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #GivingSeason
December 6, 2025 at 3:10 PM
c19lap.bsky.social
C19LAP, as a patient-led, volunteer organization, has built the largest #LongCOVID network in the US. Your generosity helps scale this impact. https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters #GivingSeason
December 6, 2025 at 12:45 AM
Reposted by COVID-19 Longhauler Advocacy Project
longcovidmommy.bsky.social
This story is about UNC Chapel Hill's #LongCOVID clinic being closed due to funding being cut. Another huge reason for our plea for donations to the @c19lap.bsky.social C-19 Longhauler Advocacy Project 🙏🏾.

www.charlotteobserver.com/charlottefiv...

bit.ly/FR4LC26
Long COVID patients in NC struggle to find care as clinics close their doors
“Like a lot of people, I still have a house payment, I still have car payments, and, you know, I couldn’t just stop working.”
www.charlotteobserver.com
December 5, 2025 at 2:40 PM
c19lap.bsky.social
Your leadership matters. Whether through a personal contribution or a major gift, you fuel the programs federal, state, and local agencies have abandoned.

Donate or start a fundraiser: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
December 5, 2025 at 8:00 PM
c19lap.bsky.social
We are transforming more than 60 C19LAP chapters into coordinated statewide #LongCOVID systems to create the national infrastructure families and clinicians need.

Help power this expansion and drive progress: https://bit.ly/FR4LC26
#GivingTuesday #Donate #GivingSeason
December 5, 2025 at 1:01 PM
c19lap.bsky.social
C19LAP develops the most comprehensive patient-led #LongCOVID resources in the world. Our #publichealth tools are used by patients, clinicians, medical schools, state health departments, and beyond.

Your donation this #GivingTuesday helps power and disseminate this work: https://bit.ly/FR4LC26
December 5, 2025 at 12:00 AM
c19lap.bsky.social
Every day without action on #LongCOVID leads to progressive disease, rising #disability, death, economic instability, and healthcare collapse.

Your investment this #GivingTuesday can help us change the outcomes for millions. #Give today: https://bit.ly/FR4LC26
December 4, 2025 at 6:30 PM
c19lap.bsky.social
#LongCOVID is now the leading #chronicillness in children. Schools are unprepared and families are overwhelmed. Your support helps builds #pediatric guidance, school resources, and statewide programs.

#Donate this #GivingTuesday to support our work and #LongCOVIDKids: https://bit.ly/FR4LC26
December 4, 2025 at 2:01 PM
c19lap.bsky.social
C19LAP leads at the highest levels of national public health, partnering with cross-sector partners across public health to shape the national response to #LongCOVID.

#Donate, start your own #campaign, and strengthen our #impact today! https://bit.ly/FR4LC26
#GivingTuesday #SystemsChange
December 4, 2025 at 12:30 AM
c19lap.bsky.social
We are building a national #LongCOVID #PublicHealth infrastructure including statewide offices, clinical alignment, resource hubs, community outreach, and disability and workforce support.

Your support strengthens the national the response: https://bit.ly/FR4LC26
#GivingTuesday #GivingSeason
December 3, 2025 at 4:14 PM
c19lap.bsky.social
Long COVID affects every community. Parents, teachers, healthcare workers, and employers are all impacted as systems fail and support disappears.

Your contribution helps build the response families need.

Donate and start a campaign: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
December 3, 2025 at 2:01 PM
c19lap.bsky.social
C19LAP's reporting on disability prevalence & economic cost of #LongCOVID lead to the memorandum that formed the majority of Long COVID federal efforts. Now abandoned, C19LAP is stepping in but we need your support this #GivingTuesday! https://bit.ly/FR4LC26
#SystemsChange #PublicHealth #Donate
December 3, 2025 at 12:30 AM
c19lap.bsky.social
Help C19LAP lead the #LongCOVID response millions need this #GivingTuesday! #Donate, #Give, #Spreadtheword, and create your own individual or team campaign today! bit.ly/FR4L ✅

Email ⬇️ (video too long to post but embedded within)
longhauler-advocacy.org/so/07PhWIS7S...
bit.ly
December 2, 2025 at 10:23 PM
c19lap.bsky.social
Every fundraiser becomes a force multiplier, expanding awareness, strengthening the national response, and fueling real progress for #Long COVID.

Start an individual or team campaign for C19LAP or donate: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
December 2, 2025 at 5:45 PM
c19lap.bsky.social
Delay is devastation. Every day without action brings more disability and economic loss. Your donation powers national clinician guidance, public health coordination, and vital resources families rely on.

Act now: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters #Donate
December 2, 2025 at 1:30 PM
c19lap.bsky.social
#GivingTuesday Week: Day 1 Summary

The #LongCOVID crisis is accelerating while the response collapses. C19LAP is stepping in to fill the gap.

Read + take action: https://longhauler-advocacy.org/so/f7PhRSMp-?languageTag=en&cid=32cccdf3-66ea-4355-b4fd-6877749a1a9d

#Donate: https://bit.ly/FR4LC26
Help Lead the Long COVID Response Millions Need!
The crisis is growing. The response is shrinking. We need you.Long COVID affects an estimated seventy million people in the United States, and nearly every Long COVID program has been dismantled six years into the pandemic. There are no FDA-approved treatments, no cures, and no coordinated national response to guide patients, clinicians, or public health leaders.Since 2020, disability rates have risen 20 percent, mirroring Long COVID prevalence. Eighty percent of affected children report difficulties with daily activities, and Long COVID has surpassed asthma as the leading chronic condition...
bit.ly
December 2, 2025 at 4:45 AM
c19lap.bsky.social
C19LAP helped define Long COVID at the national level. This definition now guides clinicians, researchers, and disability determinations.

Support the organization carrying this work into every state: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters
December 2, 2025 at 12:30 AM
c19lap.bsky.social
You have the power to shift what happens next. Your support accelerates clinician education, research translation, and public health alignment at a time when federal leadership has retreated.

Take the lead: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SystemsChange #SocialImpact
December 1, 2025 at 6:30 PM
c19lap.bsky.social
The #LongCOVID crisis is accelerating while the national response collapses. Your support strengthens the national infrastructure families urgently need.

Donate or start a fundraiser: https://bit.ly/FR4LC26
#GivingTuesday #PublicHealthMatters
December 1, 2025 at 2:02 PM
c19lap.bsky.social
Now - Dec 31, YOU have the power to propel a national movement forward.

C19LAP has launched a major campaign & we need your help to lead the response millions desperately need.

Be a Force Multiplier & Get Started: www.zeffy.com/en-US/peer-t...

#GivingTuesday #GivingSeason
#DonateNow #LongCOVID
November 30, 2025 at 5:39 PM