COVID-19 Longhauler Advocacy Project
@c19lap.bsky.social
A U.S. based #grassroots, #patientled, all-volunteer 501(c)(3) #nonprofit organization advancing the understanding of & expediting solutions for #LongCOVID. #FBLC #IACC #Disability #PublicHealth https://www.bit.ly/FR4LC26
The Work for #LongCOVIDAwareness Month Begins Now!
March is #LongCOVIDAwareness Month and what we build in February shapes what’s possible in March. bit.ly/LCA26PGE
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March is #LongCOVIDAwareness Month and what we build in February shapes what’s possible in March. bit.ly/LCA26PGE
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February 7, 2026 at 11:21 PM
The Work for #LongCOVIDAwareness Month Begins Now!
March is #LongCOVIDAwareness Month and what we build in February shapes what’s possible in March. bit.ly/LCA26PGE
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March is #LongCOVIDAwareness Month and what we build in February shapes what’s possible in March. bit.ly/LCA26PGE
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Today our #LongCOVIDAwareness letters are on their way out to every US senator, representative, & governor, the president, each states department of health, federal health agencies, public health associations/ medical societies, HHS, & major national and state-based media.
YOUR UP NEXT!
#LongCOVID
YOUR UP NEXT!
#LongCOVID
February 2, 2026 at 2:56 PM
Today our #LongCOVIDAwareness letters are on their way out to every US senator, representative, & governor, the president, each states department of health, federal health agencies, public health associations/ medical societies, HHS, & major national and state-based media.
YOUR UP NEXT!
#LongCOVID
YOUR UP NEXT!
#LongCOVID
We’re hard at work planning & finalizing Long COVID Awareness Month 2026!
So far, over 140 people have signed up as state-based organizers or event participants & we’re still looking for more.
If you’re interested, please add your name to the interest list here: docs.google.com/forms/d/1ZtM...
So far, over 140 people have signed up as state-based organizers or event participants & we’re still looking for more.
If you’re interested, please add your name to the interest list here: docs.google.com/forms/d/1ZtM...
Long COVID Awareness Events 2026- State Organizers & Participants Interest Form
March 15th is Long COVID Awareness Day Internationally. We honor Long COVID throughout the month of March and over Long COVID Awareness week, the week of the 15th through the 21st this year.
The CO...
docs.google.com
January 19, 2026 at 12:23 AM
We’re hard at work planning & finalizing Long COVID Awareness Month 2026!
So far, over 140 people have signed up as state-based organizers or event participants & we’re still looking for more.
If you’re interested, please add your name to the interest list here: docs.google.com/forms/d/1ZtM...
So far, over 140 people have signed up as state-based organizers or event participants & we’re still looking for more.
If you’re interested, please add your name to the interest list here: docs.google.com/forms/d/1ZtM...
100+ people registered on day 1! Join us for #LongCOVIDAwareness 2026 & register below!
Preparing for Long COVID Awareness 2026!
- March is Long COVID Awareness Month!
- 3/15: Long COVID Awareness Day
- 3/15-21 Long COVID Awareness Week!
The COVID-19 Longhauler Advocacy Project is seeking state leads/ organizers & participants! Register & learn more: forms.gle/UYLqmBUDGfvZ...
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- March is Long COVID Awareness Month!
- 3/15: Long COVID Awareness Day
- 3/15-21 Long COVID Awareness Week!
The COVID-19 Longhauler Advocacy Project is seeking state leads/ organizers & participants! Register & learn more: forms.gle/UYLqmBUDGfvZ...
1/2
Long COVID Awareness Events 2026- State Organizers & Participants Interest Form
March 15th is Long COVID Awareness Day Internationally. We honor Long COVID throughout the month of March and over Long COVID Awareness week, the week of the 15th through the 21st this year.
The CO...
forms.gle
January 5, 2026 at 8:31 PM
100+ people registered on day 1! Join us for #LongCOVIDAwareness 2026 & register below!
Preparing for Long COVID Awareness 2026!
- March is Long COVID Awareness Month!
- 3/15: Long COVID Awareness Day
- 3/15-21 Long COVID Awareness Week!
The COVID-19 Longhauler Advocacy Project is seeking state leads/ organizers & participants! Register & learn more: forms.gle/UYLqmBUDGfvZ...
1/2
- March is Long COVID Awareness Month!
- 3/15: Long COVID Awareness Day
- 3/15-21 Long COVID Awareness Week!
The COVID-19 Longhauler Advocacy Project is seeking state leads/ organizers & participants! Register & learn more: forms.gle/UYLqmBUDGfvZ...
1/2
Long COVID Awareness Events 2026- State Organizers & Participants Interest Form
March 15th is Long COVID Awareness Day Internationally. We honor Long COVID throughout the month of March and over Long COVID Awareness week, the week of the 15th through the 21st this year.
The CO...
forms.gle
January 4, 2026 at 7:16 PM
Preparing for Long COVID Awareness 2026!
- March is Long COVID Awareness Month!
- 3/15: Long COVID Awareness Day
- 3/15-21 Long COVID Awareness Week!
The COVID-19 Longhauler Advocacy Project is seeking state leads/ organizers & participants! Register & learn more: forms.gle/UYLqmBUDGfvZ...
1/2
- March is Long COVID Awareness Month!
- 3/15: Long COVID Awareness Day
- 3/15-21 Long COVID Awareness Week!
The COVID-19 Longhauler Advocacy Project is seeking state leads/ organizers & participants! Register & learn more: forms.gle/UYLqmBUDGfvZ...
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Still in the mood for holiday giving?
Your gift can make a world of difference when supporting the work of the COVID-19 Longhauler Advocacy Project.
Consider giving today!
www.longhauler-advocacy.org/support-our-...
Your gift can make a world of difference when supporting the work of the COVID-19 Longhauler Advocacy Project.
Consider giving today!
www.longhauler-advocacy.org/support-our-...
Support Our Mission | C19LAP | COVID-19 Longhauler Advocacy Project
By partnering with C19LAP, donating, volunteering, or simply amplifying our message, you help us move the needle significantly. As we continue to grow and tackle the challenges of Long COVID, includi...
www.longhauler-advocacy.org
December 26, 2025 at 5:07 PM
Still in the mood for holiday giving?
Your gift can make a world of difference when supporting the work of the COVID-19 Longhauler Advocacy Project.
Consider giving today!
www.longhauler-advocacy.org/support-our-...
Your gift can make a world of difference when supporting the work of the COVID-19 Longhauler Advocacy Project.
Consider giving today!
www.longhauler-advocacy.org/support-our-...
The lack of #LongCOVID education has contributed to the largest public health failure of our time.
Our plan offers a scalable, state-implemented, nationally aligned model to rebuild Long COVID infrastructure rooted in education.
Learn more ⬇️
longhauler-advocacy.org/so/5aPiVBtbw...
Our plan offers a scalable, state-implemented, nationally aligned model to rebuild Long COVID infrastructure rooted in education.
Learn more ⬇️
longhauler-advocacy.org/so/5aPiVBtbw...
Background
Long COVID (LC) is a systemic, disabling disease that follows COVID-19 infection with no treatments, cures, or therapeutic preventatives, and everyone is at risk. Ten of millions are impacted across t...
longhauler-advocacy.org
December 15, 2025 at 4:40 AM
The lack of #LongCOVID education has contributed to the largest public health failure of our time.
Our plan offers a scalable, state-implemented, nationally aligned model to rebuild Long COVID infrastructure rooted in education.
Learn more ⬇️
longhauler-advocacy.org/so/5aPiVBtbw...
Our plan offers a scalable, state-implemented, nationally aligned model to rebuild Long COVID infrastructure rooted in education.
Learn more ⬇️
longhauler-advocacy.org/so/5aPiVBtbw...
This #campaign is about building a nationwide public health infrastructure for #LongCOVID, something no federal agency has delivered. Your gift accelerates state-level systems, clinician education, and national leadership.
#Donate this #GivingTuesday. Support #SystemsChange: https://bit.ly/FR4LC26
#Donate this #GivingTuesday. Support #SystemsChange: https://bit.ly/FR4LC26
December 8, 2025 at 12:30 AM
This #campaign is about building a nationwide public health infrastructure for #LongCOVID, something no federal agency has delivered. Your gift accelerates state-level systems, clinician education, and national leadership.
#Donate this #GivingTuesday. Support #SystemsChange: https://bit.ly/FR4LC26
#Donate this #GivingTuesday. Support #SystemsChange: https://bit.ly/FR4LC26
C19LAP will honor our top 5 fundraisers w/ 100 3M N95 masks, a #LongCOVID Awareness shirt & wristband. Donate or create a campaign to help C19LAP’s continuity, expansion, & success here: https://bit.ly/FR4LC26 #GivingTuesday #GivingSeason
December 7, 2025 at 7:25 PM
C19LAP will honor our top 5 fundraisers w/ 100 3M N95 masks, a #LongCOVID Awareness shirt & wristband. Donate or create a campaign to help C19LAP’s continuity, expansion, & success here: https://bit.ly/FR4LC26 #GivingTuesday #GivingSeason
This movement rises when the community rises. Your donation, fundraiser, or major gift strengthens the national #LongCOVID response. From the start of the pandemic, Long COVID patients have not only risen to the occasion but led the work. https://bit.ly/FR4LC26
#GivingTuesday #GivingSeason
#GivingTuesday #GivingSeason
December 7, 2025 at 12:30 PM
This movement rises when the community rises. Your donation, fundraiser, or major gift strengthens the national #LongCOVID response. From the start of the pandemic, Long COVID patients have not only risen to the occasion but led the work. https://bit.ly/FR4LC26
#GivingTuesday #GivingSeason
#GivingTuesday #GivingSeason
C19LAP drives Long COVID legislation and work nationwide, bringing forward the lived experiences of our community to develop the needed solutions. Your contribution fuels this work: https://bit.ly/FR4LC26 #LongCOVID #GivingTuesday #PublicHealthMatters #GigingSeason
December 7, 2025 at 2:15 AM
C19LAP drives Long COVID legislation and work nationwide, bringing forward the lived experiences of our community to develop the needed solutions. Your contribution fuels this work: https://bit.ly/FR4LC26 #LongCOVID #GivingTuesday #PublicHealthMatters #GigingSeason
C19LAP plays a central role in national public health education, providing guidance to medical specialty societies, clinicians, researchers, medical students, & state and local health departments. Help support our work: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #GivingSeason
#LongCOVID #GivingTuesday #GivingSeason
December 6, 2025 at 7:30 PM
C19LAP plays a central role in national public health education, providing guidance to medical specialty societies, clinicians, researchers, medical students, & state and local health departments. Help support our work: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #GivingSeason
#LongCOVID #GivingTuesday #GivingSeason
Guidance from public health officials has lacked since the start of the pandemic. C19LAP has filled those gaps and needs your help to continue to do so! Your support ensures families and clinicians have access to essential resources. https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #GivingSeason
#LongCOVID #GivingTuesday #GivingSeason
December 6, 2025 at 3:10 PM
Guidance from public health officials has lacked since the start of the pandemic. C19LAP has filled those gaps and needs your help to continue to do so! Your support ensures families and clinicians have access to essential resources. https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #GivingSeason
#LongCOVID #GivingTuesday #GivingSeason
C19LAP, as a patient-led, volunteer organization, has built the largest #LongCOVID network in the US. Your generosity helps scale this impact. https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters #GivingSeason
#LongCOVID #GivingTuesday #PublicHealthMatters #GivingSeason
December 6, 2025 at 12:45 AM
C19LAP, as a patient-led, volunteer organization, has built the largest #LongCOVID network in the US. Your generosity helps scale this impact. https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters #GivingSeason
#LongCOVID #GivingTuesday #PublicHealthMatters #GivingSeason
Reposted by COVID-19 Longhauler Advocacy Project
This story is about UNC Chapel Hill's #LongCOVID clinic being closed due to funding being cut. Another huge reason for our plea for donations to the @c19lap.bsky.social C-19 Longhauler Advocacy Project 🙏🏾.
www.charlotteobserver.com/charlottefiv...
bit.ly/FR4LC26
www.charlotteobserver.com/charlottefiv...
bit.ly/FR4LC26
Long COVID patients in NC struggle to find care as clinics close their doors
“Like a lot of people, I still have a house payment, I still have car payments, and, you know, I couldn’t just stop working.”
www.charlotteobserver.com
December 5, 2025 at 2:40 PM
This story is about UNC Chapel Hill's #LongCOVID clinic being closed due to funding being cut. Another huge reason for our plea for donations to the @c19lap.bsky.social C-19 Longhauler Advocacy Project 🙏🏾.
www.charlotteobserver.com/charlottefiv...
bit.ly/FR4LC26
www.charlotteobserver.com/charlottefiv...
bit.ly/FR4LC26
Your leadership matters. Whether through a personal contribution or a major gift, you fuel the programs federal, state, and local agencies have abandoned.
Donate or start a fundraiser: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
Donate or start a fundraiser: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
December 5, 2025 at 8:00 PM
Your leadership matters. Whether through a personal contribution or a major gift, you fuel the programs federal, state, and local agencies have abandoned.
Donate or start a fundraiser: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
Donate or start a fundraiser: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
We are transforming more than 60 C19LAP chapters into coordinated statewide #LongCOVID systems to create the national infrastructure families and clinicians need.
Help power this expansion and drive progress: https://bit.ly/FR4LC26
#GivingTuesday #Donate #GivingSeason
Help power this expansion and drive progress: https://bit.ly/FR4LC26
#GivingTuesday #Donate #GivingSeason
December 5, 2025 at 1:01 PM
We are transforming more than 60 C19LAP chapters into coordinated statewide #LongCOVID systems to create the national infrastructure families and clinicians need.
Help power this expansion and drive progress: https://bit.ly/FR4LC26
#GivingTuesday #Donate #GivingSeason
Help power this expansion and drive progress: https://bit.ly/FR4LC26
#GivingTuesday #Donate #GivingSeason
C19LAP develops the most comprehensive patient-led #LongCOVID resources in the world. Our #publichealth tools are used by patients, clinicians, medical schools, state health departments, and beyond.
Your donation this #GivingTuesday helps power and disseminate this work: https://bit.ly/FR4LC26
Your donation this #GivingTuesday helps power and disseminate this work: https://bit.ly/FR4LC26
December 5, 2025 at 12:00 AM
C19LAP develops the most comprehensive patient-led #LongCOVID resources in the world. Our #publichealth tools are used by patients, clinicians, medical schools, state health departments, and beyond.
Your donation this #GivingTuesday helps power and disseminate this work: https://bit.ly/FR4LC26
Your donation this #GivingTuesday helps power and disseminate this work: https://bit.ly/FR4LC26
Every day without action on #LongCOVID leads to progressive disease, rising #disability, death, economic instability, and healthcare collapse.
Your investment this #GivingTuesday can help us change the outcomes for millions. #Give today: https://bit.ly/FR4LC26
Your investment this #GivingTuesday can help us change the outcomes for millions. #Give today: https://bit.ly/FR4LC26
December 4, 2025 at 6:30 PM
Every day without action on #LongCOVID leads to progressive disease, rising #disability, death, economic instability, and healthcare collapse.
Your investment this #GivingTuesday can help us change the outcomes for millions. #Give today: https://bit.ly/FR4LC26
Your investment this #GivingTuesday can help us change the outcomes for millions. #Give today: https://bit.ly/FR4LC26
#LongCOVID is now the leading #chronicillness in children. Schools are unprepared and families are overwhelmed. Your support helps builds #pediatric guidance, school resources, and statewide programs.
#Donate this #GivingTuesday to support our work and #LongCOVIDKids: https://bit.ly/FR4LC26
#Donate this #GivingTuesday to support our work and #LongCOVIDKids: https://bit.ly/FR4LC26
December 4, 2025 at 2:01 PM
#LongCOVID is now the leading #chronicillness in children. Schools are unprepared and families are overwhelmed. Your support helps builds #pediatric guidance, school resources, and statewide programs.
#Donate this #GivingTuesday to support our work and #LongCOVIDKids: https://bit.ly/FR4LC26
#Donate this #GivingTuesday to support our work and #LongCOVIDKids: https://bit.ly/FR4LC26
C19LAP leads at the highest levels of national public health, partnering with cross-sector partners across public health to shape the national response to #LongCOVID.
#Donate, start your own #campaign, and strengthen our #impact today! https://bit.ly/FR4LC26
#GivingTuesday #SystemsChange
#Donate, start your own #campaign, and strengthen our #impact today! https://bit.ly/FR4LC26
#GivingTuesday #SystemsChange
December 4, 2025 at 12:30 AM
C19LAP leads at the highest levels of national public health, partnering with cross-sector partners across public health to shape the national response to #LongCOVID.
#Donate, start your own #campaign, and strengthen our #impact today! https://bit.ly/FR4LC26
#GivingTuesday #SystemsChange
#Donate, start your own #campaign, and strengthen our #impact today! https://bit.ly/FR4LC26
#GivingTuesday #SystemsChange
We are building a national #LongCOVID #PublicHealth infrastructure including statewide offices, clinical alignment, resource hubs, community outreach, and disability and workforce support.
Your support strengthens the national the response: https://bit.ly/FR4LC26
#GivingTuesday #GivingSeason
Your support strengthens the national the response: https://bit.ly/FR4LC26
#GivingTuesday #GivingSeason
December 3, 2025 at 4:14 PM
We are building a national #LongCOVID #PublicHealth infrastructure including statewide offices, clinical alignment, resource hubs, community outreach, and disability and workforce support.
Your support strengthens the national the response: https://bit.ly/FR4LC26
#GivingTuesday #GivingSeason
Your support strengthens the national the response: https://bit.ly/FR4LC26
#GivingTuesday #GivingSeason
Long COVID affects every community. Parents, teachers, healthcare workers, and employers are all impacted as systems fail and support disappears.
Your contribution helps build the response families need.
Donate and start a campaign: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
Your contribution helps build the response families need.
Donate and start a campaign: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
December 3, 2025 at 2:01 PM
Long COVID affects every community. Parents, teachers, healthcare workers, and employers are all impacted as systems fail and support disappears.
Your contribution helps build the response families need.
Donate and start a campaign: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
Your contribution helps build the response families need.
Donate and start a campaign: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact
C19LAP's reporting on disability prevalence & economic cost of #LongCOVID lead to the memorandum that formed the majority of Long COVID federal efforts. Now abandoned, C19LAP is stepping in but we need your support this #GivingTuesday! https://bit.ly/FR4LC26
#SystemsChange #PublicHealth #Donate
#SystemsChange #PublicHealth #Donate
December 3, 2025 at 12:30 AM
C19LAP's reporting on disability prevalence & economic cost of #LongCOVID lead to the memorandum that formed the majority of Long COVID federal efforts. Now abandoned, C19LAP is stepping in but we need your support this #GivingTuesday! https://bit.ly/FR4LC26
#SystemsChange #PublicHealth #Donate
#SystemsChange #PublicHealth #Donate
Help C19LAP lead the #LongCOVID response millions need this #GivingTuesday! #Donate, #Give, #Spreadtheword, and create your own individual or team campaign today! bit.ly/FR4L ✅
Email ⬇️ (video too long to post but embedded within)
longhauler-advocacy.org/so/07PhWIS7S...
Email ⬇️ (video too long to post but embedded within)
longhauler-advocacy.org/so/07PhWIS7S...
bit.ly
December 2, 2025 at 10:23 PM
Help C19LAP lead the #LongCOVID response millions need this #GivingTuesday! #Donate, #Give, #Spreadtheword, and create your own individual or team campaign today! bit.ly/FR4L ✅
Email ⬇️ (video too long to post but embedded within)
longhauler-advocacy.org/so/07PhWIS7S...
Email ⬇️ (video too long to post but embedded within)
longhauler-advocacy.org/so/07PhWIS7S...