COVID-19 Longhauler Advocacy Project
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project
@c19lap.bsky.social
3K followers 3.8K following 170 posts
A U.S. based #grassroots, #patientled, all-volunteer 501(c)(3) #nonprofit organization advancing the understanding of & expediting solutions for #LongCOVID. #FBLC #IACC #Disability #PublicHealth https://www.longhauler-advocacy.org
www.longhauler-advocacy.org
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 19h
- Call your Members of Congress and ask for a meeting.
- Share your story, or that of a loved one, about how Long COVID has impacted your life.
- Urge them to take bipartisan action to address Long COVID and rebuild our public health response.
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 19h
We’re beginning to see bipartisan recognition of the crisis from HHS Secretary Kennedy, Senator Young, Senator Marshall, and Congressman Bergman, and support continuing from members of congress who have previously supported Long COVID initiitves.
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 19h
More than 60 million people in the U.S. are living with Long COVID. This is not a partisan issue, it’s a national public health crisis that affects every community, every state, and every political district.
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 19h
C19LAP is urging all Long COVID patients, caregivers, advocates, and allies to contact your Senators and Representatives today to discuss the urgent need for Congressional action on Long COVID and COVID-19.
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 19h
Call to Action

With the government currently shut down, many Members of Congress are back in their home districts, and that means now is the perfect time to reach out and request meetings.

• www.congress.gov/members/find...

• Action Network: actionnetwork.org/letters/4aee...
www.congress.gov
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 19d
REMINDER: 3pm est tomorrow 10/8

us06web.zoom.us/webinar/regi...
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 27d
Join us for a free #LongCOVID #Disability webinar on October 8th at 3pm ET!

The webinar will discuss the confusing & frustrating insurance system, understanding your rights, preparing stronger claims, & knowing what to do if benefits are denied.

Register here:
us06web.zoom.us/webinar/regi...
Promotional graphic for a free educational forum titled “Navigating Long COVID and Disability Insurance: What Patients Need to Know.” Event date: Wednesday, October 8, 2025, at 12:00 PM PDT / 3:00 PM EDT. Discussion led by Karyn Bishof, Founder and President of the COVID-19 Longhauler Advocacy Project, with a presentation by Andrew Kantor, Senior Partner at Kantor & Kantor, LLP. Logos for Kantor & Kantor and the COVID-19 Longhauler Advocacy Project are at the top. On the right side of the image, a woman sits on a couch with her head in her hand, appearing fatigued and distressed, with a blurred double image effect suggesting dizziness or brain fog.
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Sep 26
Read our full statement here: www.longhauler-advocacy.org/_files/ugd/8...
www.longhauler-advocacy.org
c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Sep 26
With genuine patient inclusion, clear and accurate messaging, bipartisan support, and adequate long-term funding, we can move from talk to treatment, help people reclaim their lives from Long COVID.

With gratitude, strength, and determination,

The COVID-19 Longhauler Advocacy Project (C19LAP)

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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Sep 26
We are encouraged to see Long COVID discussions and planning back in motion and hope to see additional stakeholders added to the conversation. C19LAP stands ready to partner to expeditiously deliver tangible help and solutions. 3/
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Sep 26
In recent months, we saw the programs we attempted to build and scale for our community over the last 5 yrs be dismantled in a matter of weeks. Cross-sector collaborators withdrew from the space in fear, & the chill across the community was unmistakable, & the sense of abandonment overwhelming. 2/
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Sep 26
We want to thank HHS Secretary Kennedy and fellow hosts for convening last week's #LongCOVID roundtable. The COVID-19 Longhauler Advocacy Project’s (C19LAP) leadership watched with great interest.
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www.longhauler-advocacy.org
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Jul 7
You can learn more about our team and our mission at
longhauler-advocacy.org/team-community
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A graphic with a teal gradient background and white text that reads: “Learn more about our team at longhauler-advocacy.org/team-community.” The C19LAP logo is repeated at the bottom of the image on a white background.
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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Jul 7
She has shared her family’s story across media platforms, panel discussions, and conferences, and recently collaborated with the North Carolina Department of Health and Human Services on two public service announcements (PSA’s) about Long COVID.
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Jul 7
Brooke Keaton is a December 2020 Longhauler, former early childhood educator, and dedicated mother to two daughters, one of whom also has Long COVID. Brooke brings her passion for education, child health, and equity to her advocacy for underserved communities affected by Long COVID.
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A professional headshot of Brooke Keaton, a middle-aged black woman smiling in front of a light-colored background. She is wearing glasses and a teal collared shirt. The bottom banner includes the C19LAP logo on the left and her name “Brooke Keaton” in teal on the right, with a white background and teal border.
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Jul 7
Tammy has shared her Long COVID journey through national media outlets, expert panels, and public health conferences, using her voice to advance awareness and change.
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Jul 7
a social media moderator, administrator, and Division lead. She is a passionate advocate for clinician education and for expanding healthcare accessibility in rural communities like her own.
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Jul 7
Tammy Wilshire is a first-wave March 2020 Longhauler with a professional background in nursing, social services, and nonprofit work, as well as experience leading support groups. A long-standing volunteer with the COVID-19 Longhauler Advocacy Project (C19LAP), Tammy has served as ...
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A professional headshot of Tammy Wilshire, a middle-aged white woman smiling in front of a neutral background. She has shoulder-length curly brown hair and is wearing a patterned blouse. The bottom banner includes the C19LAP logo on the left and her name “Tammy Wilshire” in teal on the right, with a white background and teal border.
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Jul 7
Please join the COVID-19 Longhauler Advocacy Project in proudly welcoming our newest Board of Directors, Tammy Wilshire and Brooke Keaton. We’re honored to have their leadership, expertise, and unwavering commitment as part of our team. Learn more about them below!
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A graphic with a teal gradient background and white text. At the top, the COVID-19 Longhauler Advocacy Project (C19LAP) logo appears in black and red. Below, large white script text reads “Welcome.” Underneath, bold white text says: “The COVID-19 Longhauler Advocacy Project is proud to welcome Tammy Wilshire and Brooke Keaton to our Board of Directors.”
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Jun 28
-Use employer matching programs
-Give through a Donor Advised Fund (DAF)
-Host a Birthday Fundraiser on social media
-Share this message and encourage others to give
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Jun 28
Please consider support our work. We would not be here without the support of our community. Thank you.

-Donate online (paypal.com/donate/?host...) or by check to: COVID-19 Longhauler Advocacy Project, Inc., 7491 N Federal Hwy C5, P.O. Box 305 Boca Raton, FL, 33487
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Donate to COVID-19 Longhauler Advocacy Project, Inc
Help support COVID-19 Longhauler Advocacy Project, Inc by donating or sharing with your friends.
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Jun 28
Together, we can continue fighting for the hundreds of millions of people who are impacted by Long COVID, and continue working to prevent others from getting Long COVID.

We’re not done. We’re just getting started.
#C19LAP #5YearsStrong #LongCOVID #DisabilityJustice #PublicHealth #AdvocacyMatters
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Jun 28
We are a pro public health organization focused on solutions, science, and patient empowerment. The need for our work has never been greater, and the burden has never been heavier for those living with Long COVID.
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Jun 28
C19LAP’s leadership has directly shaped some of the most significant Long COVID initiatives to date.

C19LAP develops strategic, community developed resources through collaboration w/ clinicians, agencies, employers, schools, insurers, disability organizations, & others.
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c19lap.bsky.social
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Jun 28
What began as a place to connect, validate, & survive quickly evolved into a national movement. C19LAP became a platform for truth-telling, a driver of change, & a relentless force for accountability, demanding recognition, access to care, & research that centers those most impacted.
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