Brain Support Network
@brainsupportnet.bsky.social
We have helped over 1,500 families donate a loved ones brain we can help your family too. #atypicalparkinsons #braindonation #lbd #psp #msa #cbd
Thank you for your compassion and guidance through this difficult time... My cousin recommended Brain Support Network to me for help with my mother's brain donation.
Karleen W.
10/31/2025
Karleen W.
10/31/2025
November 26, 2025 at 5:47 PM
Thank you for your compassion and guidance through this difficult time... My cousin recommended Brain Support Network to me for help with my mother's brain donation.
Karleen W.
10/31/2025
Karleen W.
10/31/2025
Becoming a Care Partner PDF from @apdaparkinsons.bsky.social
What exactly is PD? This supplement offers tips on being a care partner for a person with PD and taking care of yourself.
View and download the PDF: www.apdaparkinson.org/wp-content/u...
What exactly is PD? This supplement offers tips on being a care partner for a person with PD and taking care of yourself.
View and download the PDF: www.apdaparkinson.org/wp-content/u...
November 25, 2025 at 6:05 PM
Becoming a Care Partner PDF from @apdaparkinsons.bsky.social
What exactly is PD? This supplement offers tips on being a care partner for a person with PD and taking care of yourself.
View and download the PDF: www.apdaparkinson.org/wp-content/u...
What exactly is PD? This supplement offers tips on being a care partner for a person with PD and taking care of yourself.
View and download the PDF: www.apdaparkinson.org/wp-content/u...
“The additional support from a palliative care team (doctor, nurse, social worker, and chaplain) will change your life. It is NOT the same as hospice.”
– Local Support Group Member
#caregiving
– Local Support Group Member
#caregiving
November 24, 2025 at 6:47 PM
“The additional support from a palliative care team (doctor, nurse, social worker, and chaplain) will change your life. It is NOT the same as hospice.”
– Local Support Group Member
#caregiving
– Local Support Group Member
#caregiving
LBDA Research: Spotlight on Caregiving
If you or someone you provide care for is participating in a clinical trial, you already know that care partners play a key role in research studies.
Read more: www.lbda.org/research-spo...
#LBD #LewyBodyDementia
If you or someone you provide care for is participating in a clinical trial, you already know that care partners play a key role in research studies.
Read more: www.lbda.org/research-spo...
#LBD #LewyBodyDementia
November 24, 2025 at 6:46 PM
LBDA Research: Spotlight on Caregiving
If you or someone you provide care for is participating in a clinical trial, you already know that care partners play a key role in research studies.
Read more: www.lbda.org/research-spo...
#LBD #LewyBodyDementia
If you or someone you provide care for is participating in a clinical trial, you already know that care partners play a key role in research studies.
Read more: www.lbda.org/research-spo...
#LBD #LewyBodyDementia
MDS-PAS Genetics of Movement Disorders
Start Date: Mon, Dec 1, 2025
REGISTRATION DEADLINE: Thursday, November 27, 2025
education.movementdisorders.org/Detail/1008/...
Start Date: Mon, Dec 1, 2025
REGISTRATION DEADLINE: Thursday, November 27, 2025
education.movementdisorders.org/Detail/1008/...
November 24, 2025 at 6:44 PM
MDS-PAS Genetics of Movement Disorders
Start Date: Mon, Dec 1, 2025
REGISTRATION DEADLINE: Thursday, November 27, 2025
education.movementdisorders.org/Detail/1008/...
Start Date: Mon, Dec 1, 2025
REGISTRATION DEADLINE: Thursday, November 27, 2025
education.movementdisorders.org/Detail/1008/...
Our family was glad to have found Brian Support Network at the last minute. Brain donation was a hard decision at first. However we will appreciate the knowledge gained into this debilitating disease. "Good deeds, good words, good work!"
Paul G.
10/20/2025
#braindonation
Paul G.
10/20/2025
#braindonation
November 24, 2025 at 6:39 PM
Our family was glad to have found Brian Support Network at the last minute. Brain donation was a hard decision at first. However we will appreciate the knowledge gained into this debilitating disease. "Good deeds, good words, good work!"
Paul G.
10/20/2025
#braindonation
Paul G.
10/20/2025
#braindonation
Brain Support Network FAQs
2.4. What are common motivations for brain donation?
FInd out at: www.brainsupportnetwork.org/brain-donati...
#braindonation #ftd #msa #psp #lbd
2.4. What are common motivations for brain donation?
FInd out at: www.brainsupportnetwork.org/brain-donati...
#braindonation #ftd #msa #psp #lbd
November 20, 2025 at 6:16 PM
Brain Support Network FAQs
2.4. What are common motivations for brain donation?
FInd out at: www.brainsupportnetwork.org/brain-donati...
#braindonation #ftd #msa #psp #lbd
2.4. What are common motivations for brain donation?
FInd out at: www.brainsupportnetwork.org/brain-donati...
#braindonation #ftd #msa #psp #lbd
CurePSP - Ask the Expert: Expanding Access to Care
Dec 9, 2025 12:00 PM
Access to timely and quality healthcare can be difficult to find for people with PSP, CBD and MSA.
Host: CurePSP
Register: us02web.zoom.us/webinar/regi...
Dec 9, 2025 12:00 PM
Access to timely and quality healthcare can be difficult to find for people with PSP, CBD and MSA.
Host: CurePSP
Register: us02web.zoom.us/webinar/regi...
November 20, 2025 at 6:05 PM
CurePSP - Ask the Expert: Expanding Access to Care
Dec 9, 2025 12:00 PM
Access to timely and quality healthcare can be difficult to find for people with PSP, CBD and MSA.
Host: CurePSP
Register: us02web.zoom.us/webinar/regi...
Dec 9, 2025 12:00 PM
Access to timely and quality healthcare can be difficult to find for people with PSP, CBD and MSA.
Host: CurePSP
Register: us02web.zoom.us/webinar/regi...
This entire experience with Brain Support Network has been exceedingly positive. Working with you directly on the day of my father's passing was a huge relief.
Angela L.
10/20/2025
Angela L.
10/20/2025
November 19, 2025 at 5:32 PM
This entire experience with Brain Support Network has been exceedingly positive. Working with you directly on the day of my father's passing was a huge relief.
Angela L.
10/20/2025
Angela L.
10/20/2025
Don’t miss the Rare Disease Day 2026 Launch Webinar
Thursday, Nov. 20 at 12:00 p.m. ET
Rare Disease Day is more than a single day of awareness. It’s an international movement that connects and inspires people across generations and professions.
rarediseases.zoom.us/webinar/regi...
Thursday, Nov. 20 at 12:00 p.m. ET
Rare Disease Day is more than a single day of awareness. It’s an international movement that connects and inspires people across generations and professions.
rarediseases.zoom.us/webinar/regi...
November 18, 2025 at 5:48 PM
Don’t miss the Rare Disease Day 2026 Launch Webinar
Thursday, Nov. 20 at 12:00 p.m. ET
Rare Disease Day is more than a single day of awareness. It’s an international movement that connects and inspires people across generations and professions.
rarediseases.zoom.us/webinar/regi...
Thursday, Nov. 20 at 12:00 p.m. ET
Rare Disease Day is more than a single day of awareness. It’s an international movement that connects and inspires people across generations and professions.
rarediseases.zoom.us/webinar/regi...
“There are several non-medication approaches to manage neurogenic orthostatic hypotension (nOH) / low blood pressure when standing. Sometimes, you have to do them all at once. It’s a lot…”
– Local Support Group Member
#caregiving
– Local Support Group Member
#caregiving
November 17, 2025 at 5:43 PM
“There are several non-medication approaches to manage neurogenic orthostatic hypotension (nOH) / low blood pressure when standing. Sometimes, you have to do them all at once. It’s a lot…”
– Local Support Group Member
#caregiving
– Local Support Group Member
#caregiving
BSN Brain Donation Process:
The Pathology Specialist
The pathology specialist (pathologist’s assistant, pathology technician, autopsy technician, or diener) performs the actual brain recovery. Sometimes, a pathologist might perform this work.
Learn more: www.brainsupportnetwork.org/brain-donati...
The Pathology Specialist
The pathology specialist (pathologist’s assistant, pathology technician, autopsy technician, or diener) performs the actual brain recovery. Sometimes, a pathologist might perform this work.
Learn more: www.brainsupportnetwork.org/brain-donati...
November 13, 2025 at 5:44 PM
BSN Brain Donation Process:
The Pathology Specialist
The pathology specialist (pathologist’s assistant, pathology technician, autopsy technician, or diener) performs the actual brain recovery. Sometimes, a pathologist might perform this work.
Learn more: www.brainsupportnetwork.org/brain-donati...
The Pathology Specialist
The pathology specialist (pathologist’s assistant, pathology technician, autopsy technician, or diener) performs the actual brain recovery. Sometimes, a pathologist might perform this work.
Learn more: www.brainsupportnetwork.org/brain-donati...
NextAvenue: A Global Study To Find a Cure for Parkinson's Disease
The Parkinson’s Progression Markers Initiative (PPMI) is collecting data from thousands of volunteers to learn more about the disease's origins to lead to new treatments.
www.nextavenue.org/a-global-stu...
The Parkinson’s Progression Markers Initiative (PPMI) is collecting data from thousands of volunteers to learn more about the disease's origins to lead to new treatments.
www.nextavenue.org/a-global-stu...
November 13, 2025 at 5:39 PM
NextAvenue: A Global Study To Find a Cure for Parkinson's Disease
The Parkinson’s Progression Markers Initiative (PPMI) is collecting data from thousands of volunteers to learn more about the disease's origins to lead to new treatments.
www.nextavenue.org/a-global-stu...
The Parkinson’s Progression Markers Initiative (PPMI) is collecting data from thousands of volunteers to learn more about the disease's origins to lead to new treatments.
www.nextavenue.org/a-global-stu...
We had heard that the logopenic variant of primary progressive aphasia was mostly related to AD pathology, so we weren't surprised when my dad's brain donation report came back as AD, rather than FTD. My dad's brother died of ALS so perhaps that was just a crazy coincidence.
Cathryn S.
10/29/25
Cathryn S.
10/29/25
November 12, 2025 at 6:59 PM
We had heard that the logopenic variant of primary progressive aphasia was mostly related to AD pathology, so we weren't surprised when my dad's brain donation report came back as AD, rather than FTD. My dad's brother died of ALS so perhaps that was just a crazy coincidence.
Cathryn S.
10/29/25
Cathryn S.
10/29/25
BSN Case Study: RICHARD KEMMERER
Rich was a smart, kind, funny, and loving man. He was a PhD chemist and a company executive. Rich loved to travel and try new foods. He was an avid golfer and runner.
Read more: www.brainsupportnetwork.org/brain-donati...
#FTD #frontotemporaldementia
Rich was a smart, kind, funny, and loving man. He was a PhD chemist and a company executive. Rich loved to travel and try new foods. He was an avid golfer and runner.
Read more: www.brainsupportnetwork.org/brain-donati...
#FTD #frontotemporaldementia
November 12, 2025 at 6:55 PM
BSN Case Study: RICHARD KEMMERER
Rich was a smart, kind, funny, and loving man. He was a PhD chemist and a company executive. Rich loved to travel and try new foods. He was an avid golfer and runner.
Read more: www.brainsupportnetwork.org/brain-donati...
#FTD #frontotemporaldementia
Rich was a smart, kind, funny, and loving man. He was a PhD chemist and a company executive. Rich loved to travel and try new foods. He was an avid golfer and runner.
Read more: www.brainsupportnetwork.org/brain-donati...
#FTD #frontotemporaldementia
Get REAL Compassion: Building Sustainable Skills of Compassion and Presence
Register Today: events.zoom.us/ev/AkzTgvgEi...
#lewybodydementia #lbd #caregiving
Register Today: events.zoom.us/ev/AkzTgvgEi...
#lewybodydementia #lbd #caregiving
November 11, 2025 at 5:33 PM
Get REAL Compassion: Building Sustainable Skills of Compassion and Presence
Register Today: events.zoom.us/ev/AkzTgvgEi...
#lewybodydementia #lbd #caregiving
Register Today: events.zoom.us/ev/AkzTgvgEi...
#lewybodydementia #lbd #caregiving
Thank you, Veterans! We honor you and your service.
- Brain Support Network
- Brain Support Network
November 11, 2025 at 5:27 PM
Thank you, Veterans! We honor you and your service.
- Brain Support Network
- Brain Support Network
ALZForum: Taking Steps to Ward Off Tangles
Dust off those walking shoes. According to a paper in Nature Medicine on November 3, treading upwards of 7,500 steps per day may slow progression of #Alzheimer’s disease.
www.alzforum.org/news/researc...
Dust off those walking shoes. According to a paper in Nature Medicine on November 3, treading upwards of 7,500 steps per day may slow progression of #Alzheimer’s disease.
www.alzforum.org/news/researc...
November 11, 2025 at 5:23 PM
ALZForum: Taking Steps to Ward Off Tangles
Dust off those walking shoes. According to a paper in Nature Medicine on November 3, treading upwards of 7,500 steps per day may slow progression of #Alzheimer’s disease.
www.alzforum.org/news/researc...
Dust off those walking shoes. According to a paper in Nature Medicine on November 3, treading upwards of 7,500 steps per day may slow progression of #Alzheimer’s disease.
www.alzforum.org/news/researc...
“More help = more self care.”
– Local Support Group Member
– Local Support Group Member
November 10, 2025 at 6:24 PM
“More help = more self care.”
– Local Support Group Member
– Local Support Group Member
This Friday, Nov. 14: AFA Fireside Chat
Sundown Syndrome:
Signs, Symptoms, and Steps to Help
Friday, November 14 | 1 PM ET
alzfdn.org/event/sundow...
#dementia
Sundown Syndrome:
Signs, Symptoms, and Steps to Help
Friday, November 14 | 1 PM ET
alzfdn.org/event/sundow...
#dementia
November 10, 2025 at 6:13 PM
This Friday, Nov. 14: AFA Fireside Chat
Sundown Syndrome:
Signs, Symptoms, and Steps to Help
Friday, November 14 | 1 PM ET
alzfdn.org/event/sundow...
#dementia
Sundown Syndrome:
Signs, Symptoms, and Steps to Help
Friday, November 14 | 1 PM ET
alzfdn.org/event/sundow...
#dementia
BSN's Third Mission: Caregiver Support Group
We convene semi-quarterly caregiver support group meetings in Northern California. These meetings are for family #caregivers only and focus on the four Atypical Parkinsonisms (LBD, PSP, MSA, CBD).
Learn more: www.brainsupportnetwork.org/about-bsn/mi...
We convene semi-quarterly caregiver support group meetings in Northern California. These meetings are for family #caregivers only and focus on the four Atypical Parkinsonisms (LBD, PSP, MSA, CBD).
Learn more: www.brainsupportnetwork.org/about-bsn/mi...
November 6, 2025 at 5:35 PM
BSN's Third Mission: Caregiver Support Group
We convene semi-quarterly caregiver support group meetings in Northern California. These meetings are for family #caregivers only and focus on the four Atypical Parkinsonisms (LBD, PSP, MSA, CBD).
Learn more: www.brainsupportnetwork.org/about-bsn/mi...
We convene semi-quarterly caregiver support group meetings in Northern California. These meetings are for family #caregivers only and focus on the four Atypical Parkinsonisms (LBD, PSP, MSA, CBD).
Learn more: www.brainsupportnetwork.org/about-bsn/mi...
Expert Briefing: Complementary Therapies & Functional Medicine in Parkinson's Care
Wednesday, November 12, 10am
Speaker: Britt A. Stone, MD, Vanderbilt University Medical Center, Nashville, TN
Host: @parkinsondotorg.bsky.social
secure.parkinson.org/site/Calenda...
#parkinsons
Wednesday, November 12, 10am
Speaker: Britt A. Stone, MD, Vanderbilt University Medical Center, Nashville, TN
Host: @parkinsondotorg.bsky.social
secure.parkinson.org/site/Calenda...
#parkinsons
November 6, 2025 at 5:33 PM
Expert Briefing: Complementary Therapies & Functional Medicine in Parkinson's Care
Wednesday, November 12, 10am
Speaker: Britt A. Stone, MD, Vanderbilt University Medical Center, Nashville, TN
Host: @parkinsondotorg.bsky.social
secure.parkinson.org/site/Calenda...
#parkinsons
Wednesday, November 12, 10am
Speaker: Britt A. Stone, MD, Vanderbilt University Medical Center, Nashville, TN
Host: @parkinsondotorg.bsky.social
secure.parkinson.org/site/Calenda...
#parkinsons
I read about Brain Support Network in Emma Heming Willis's new book about caregiving for her husband Bruce Willis. I didn't know that brain donation was possible even though my husband hasn't participated in any research. Thank you for helping us put plans in writing.
Sharon L.
10/26/25
Sharon L.
10/26/25
November 5, 2025 at 6:20 PM
I read about Brain Support Network in Emma Heming Willis's new book about caregiving for her husband Bruce Willis. I didn't know that brain donation was possible even though my husband hasn't participated in any research. Thank you for helping us put plans in writing.
Sharon L.
10/26/25
Sharon L.
10/26/25
Music and Parkinson’s
Tuesday, November 11, 4pm
Part of the “Conversations with a Doc” quarterly speaker series.
Speaker: Alexander Pantelyat, MD, Johns Hopkins, Baltimore, MD
Host: Maryland Association for Parkinson Support (MAPS)
www.marylandparkinsonsupport.org/events/conve...
#parkinsons
Tuesday, November 11, 4pm
Part of the “Conversations with a Doc” quarterly speaker series.
Speaker: Alexander Pantelyat, MD, Johns Hopkins, Baltimore, MD
Host: Maryland Association for Parkinson Support (MAPS)
www.marylandparkinsonsupport.org/events/conve...
#parkinsons
November 5, 2025 at 6:15 PM
Music and Parkinson’s
Tuesday, November 11, 4pm
Part of the “Conversations with a Doc” quarterly speaker series.
Speaker: Alexander Pantelyat, MD, Johns Hopkins, Baltimore, MD
Host: Maryland Association for Parkinson Support (MAPS)
www.marylandparkinsonsupport.org/events/conve...
#parkinsons
Tuesday, November 11, 4pm
Part of the “Conversations with a Doc” quarterly speaker series.
Speaker: Alexander Pantelyat, MD, Johns Hopkins, Baltimore, MD
Host: Maryland Association for Parkinson Support (MAPS)
www.marylandparkinsonsupport.org/events/conve...
#parkinsons
National Caregivers Month is celebrated every November to recognize #caregivers and raise awareness about caregiving, education, issues, and support for those who provide care for clients, family, friends, and neighbors.
Learn about BSN's Support Groups: www.brainsupportnetwork.org/support-group/
Learn about BSN's Support Groups: www.brainsupportnetwork.org/support-group/
November 4, 2025 at 6:10 PM
National Caregivers Month is celebrated every November to recognize #caregivers and raise awareness about caregiving, education, issues, and support for those who provide care for clients, family, friends, and neighbors.
Learn about BSN's Support Groups: www.brainsupportnetwork.org/support-group/
Learn about BSN's Support Groups: www.brainsupportnetwork.org/support-group/