After a TIA I got seizures & this posture dozens of times a day, bad enough to injure bones
I received no medical care. I tried for the embolisms but was thrown out before even getting to this
2y I was choking, extreme tachycardia, & this ^ daily
Didnt stop until I fled birth place + got baclofen

I feel like we're generally more pro-medicine than europe. Our whole system is obviously terrible, but we're not scared to keep a big bucket of advil on hand for headaches. I like that about us

The EU shouldve but they didnt.
They have plenty of people of the same [criminal] ideology.
The exact same as that guy & his government.
Some are imo worse as they are "polite" about it, acting like its just "policy" because we cant afford care "at home", while both could be done, but neither is

Hopefully, I would hate for people to get a crippling, potentially deadly illness, right when they need help most.

Just like other illnesses that happen worldwide, but are not typically called a pandemic, let alone "the pandemic".
Hundred thousands of people worldwide impacted by Lyme, ME/CFS, etc, that share similar horrific symptoms.
It matters that every illness is named, every victim/survivor honored.

Careful if you have disease, that could maybe be passed on that way.

*malignant hyperthermia
en.wikipedia.org/wiki/Maligna...
en.wikipedia.org/wiki/Rhabdom...

The amount of costs, both monetarily & physically for me, due to lack of tap water [going on 3 months] are huge.
I got hurt hauling water last Sunday {10x my weight limit + way above safe lifting limits by law] and been immobilized on couch since. Weather: 16-38F / -9 to 3C & below.

Rhabdomyolysis can cause rapid dissemination of blood clots, while most of my herbs are already to make sure I dont clot too much.
Withdrawal can also cause fainting/lack of consciousness, as well as paradoxical inability to sleep due to symptoms & inflammation of the brain.

Baclofen withdrawal is deadly.
Malignant hypothermia sets in within hours, dont need that after hypothermia.
Rhabdomyolysis breaks down muscles, including the heart & via that the kidneys.
I already live with heart injury & only just overcome my kidneys shutting down completely from hypothermia.

I remember when you showed me this song.
How meaningful it is to you.
How meaningful it became to me.
And how I fell in love with you that evening.
February 2019.

True! I had to pick just one disease to name as bluesky has a letter limit :( I dont like letter limits and I dont do well with them.
Diphteria used to kill so many young children.

Im very cautious about side effects, I understand hesitancy.
Diff. cultures also play a part, as well as diff. govs offer diff. ones at diff. points in time.
But lets please keep polio away
I had shingles at age 7. Unheard of so young.
No vax available back then
Lets please keep shingles away too.

I dont have the energy to detail everything that went wrong, + bluesky limits letters sadly.
My feet are messed up again too and that is very worrying in this kind of weather.

I love it here but my body cant keep doing the inhumane amount of tasks of dealing with life without tap water {10 weeks and counting}, especially not in 11F / -13C weather.
Nor can anyone deal with lack of electricity in this kind of weather, when that is the only working utility.

It was so cold in the room today I could see my breath at some points even with the heater on.
I had to plug the heater into an outlet that stinks of smoke since the outage yesterday, but it was that or freeze to death today already.

The electricity has been unstable.
Is a seizure risk.
I need light to function.
Electricity: pc charging, internet, electric heater, microwave, crucial accessibility items
If the weather turns the electric off while all my weather preparations are fucked, I will likely freeze to death in silence

Next to it being dangerously demoralizing:
I am out of energy, out of stuff, out of electric to complete the tasks not just yesterday but also now.
There is no more way for me to get it done.
My muscles are too fucked up to breathe.
No way to access any hot water, clean clothes & bedding

I deeply empathize and relate.
Yes stuff for a few days, only lasts a few days.