APS Foundation of America
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APS Foundation of America
@apsfaorg.bsky.social
APS Foundation of America (#APSFA) is the only US org spreading #Antiphospholipid Syndrome #APS & #Lupus #Awareness! #DVT #PE #Stroke #APS #miscarriage
Pinned
August 8, 2025 at 12:36 AM
August 5, 2025 at 8:20 PM
Credit to @apsfa APS Magnet

Yes, FB cropped the picture.

100% of the proceeds go to the APSFA. Only 100 in stock. They will ship by USPS without tracking.

They fit in my palm.

To order: www.paypal.com/ncp/payment/...
July 26, 2025 at 10:25 PM
Reposted by APS Foundation of America
✨ August Issue✨| Comment article on the risks and benefits of immunosuppressant withdrawal in systemic lupus erythematosus

bit.ly/45kkdIK

#Rheumsky #Medsky
Risks and benefits of immunosuppressant withdrawal in systemic lupus erythematosus - Nature Reviews Rheumatology
Withdrawing immunosuppressive treatment in systemic lupus erythematosus offers reduced toxicity and improved quality of life for patients in remission but carries a risk of disease reactivation. Emerg...
bit.ly
July 25, 2025 at 8:53 AM
Truth.
July 25, 2025 at 3:39 PM
July 24, 2025 at 7:58 PM
APS Magnet

Yes, FB cropped the picture.

100% of the proceeds go to the APSFA. Only 100 in stock. They will ship by USPS without tracking.

They fit in my palm.

To order: www.paypal.com/ncp/payment/...
July 17, 2025 at 7:30 PM
The end of the month is here!

Today's the day when we take a moment to say THANK YOU to everyone who has liked, commented on, and especially to those who shared our graphics all month long! Awareness begins with YOU. Get your story out there! Share your experiences! We can
July 1, 2025 at 11:11 AM
Whose got a similar collection? Raise your hand.

✋️
June 30, 2025 at 3:47 PM
Today, we bring you some tips on coping with #APS.

How do you #cope with APS?

Do you see a #therapist?

Do you #journal?

Share with others how you cope with APS. In the end, remember you are not alone, and you can join our private support group here on Facebook if you need to vent.
June 29, 2025 at 7:29 PM
Getting a diagnosis of Antiphospholipid Syndrome (#APS) can feel overwhelming, but take a deep breath. You are not alone, and there are resources, support, and treatments to help you live well.

Find a Knowledgeable Doctor
Ideally, a rheumatologist or hematologist with APS experience.
June 29, 2025 at 1:45 PM
Reposted by APS Foundation of America
Clinicians — are you looking for a trusted place to stay sharp on anticoagulation care? Expert anticoagulation education awaits at AC University!

New:National Conference Bundles (7.25 CE), Boot Camp (14.5 CE), & CARE AF/VTE.

Plus, free modules, resources, recaps & tools.
Join us: www.acforum.org
June 27, 2025 at 3:01 PM
Living with Antiphospholipid Syndrome (APS) can bring fatigue, joint pain, swelling, and a higher risk of blood clots. While intense workouts may feel out of reach, gentle, simple exercises can play a powerful role in maintaining your health and well-being.
June 29, 2025 at 1:16 AM
#Swelling and #pain can be common and serious symptoms in people with Antiphospholipid Syndrome (APS). These symptoms often result from blood clots, #inflammation, or related complications.

If you are not doing better in a timely fashion or it is an emergency, please consult your doctor
June 28, 2025 at 6:44 PM
Did you know there was such a thing? Do you get them?

Today, we bring you the symptoms of an #APS Flare!

For those who have #Lupus, you'll notice that these are very similar to a Lupus #flare.

#AntiphospholipidSyndrome
June 28, 2025 at 12:35 PM
Myth: Only older or sick people get blood clots

Fact: Anyone can get a blood clot, even if they are young - that includes children and healthy people.

When did you first start clotting?

#AntiphospholipidSyndrome #APSAwareness #apsawarenessmonth #apsresearch #WTD25 #raredisease #APS
June 27, 2025 at 7:54 PM
Reposted by APS Foundation of America
Just a few days left to register! Don’t miss this important conversation on a shift in Medicare policy.

Join us June 27 for a webinar on how Medicare’s new drug pricing power will impact access to heart meds. Hear from national experts on what prescribers need to know.

🔗 Register: bit.ly/444KZTs
June 25, 2025 at 3:01 PM
Today, we bring you information about Pulmonary Embolism or PE.

As #APS patients, you are at risk for clots, and #PE is a type of clot so it's important to know the symptoms.

Have you had a PE before? Care to share?

Please do so in the comments below.
June 27, 2025 at 12:47 PM
#Lupus (Systemic Lupus Erythematosus, or #SLE) is an #autoimmune disease that often doesn't appear alone. It can "cluster" with other autoimmune diseases or symptoms in the same person, family, or community. This is known as #disease #clustering.
June 26, 2025 at 6:42 PM
Today's message is a simple one. #APS and #Lupus are sometimes referred to as "sister" diseases.

Up to 40% of people who have Lupus are also believed to have APS.

Are you one of them?

It's really helping to get the word out and is
June 26, 2025 at 3:00 PM
Catastrophic #Antiphospholipid Syndrome or #CAPS is a complication of #APS.

CAPS is very rare, and in about half of the cases, the APS patient does not survive.

Has anyone survived CAPS?

Have you lost a loved one due to #CAPS?
June 25, 2025 at 6:15 PM
Formerly known as Seronegative APS or #SNAPS.

Basically, it's having symptoms of APS without the numbers. It can be challenging to get a positive APS diagnosis and, therefore, difficult to receive necessary treatment.

Being diagnosed with SNAPS can be frustrating because
June 25, 2025 at 1:50 PM
Formerly known as Seronegative APS or #SNAPS.

Basically, it's having symptoms of APS w/o the numbers. It can be challenging to get a positive APS diagnosis &, therefore, difficult to receive necessary treatment.

Being diagnosed with SNAPS can be frustrating because it is not widely recognized.
June 25, 2025 at 1:38 PM
Leg cramps are a common occurrence that most of us have felt before. Regular muscle cramps will go away pretty quickly by stretching or walking. Crampy feelings in the legs that won't go away or worsen over time are symptoms of DVT.
June 24, 2025 at 6:24 PM