AMEND UK
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amenduk.bsky.social
AMEND UK
@amenduk.bsky.social
Informing, supporting, and advocating for the multiple endocrine neoplasia and inherited phaeochromocytoma / paraganglioma syndromes and adrenocortical cancer patient communities. Visit our website www.amend.org.uk.

#endosky #PPGL #MEN1 #MEN2 #MEN3 #ACC
📣 Introducing a new collaboration between NCUK and AMEND to tackle the biggest challenges in our communities: 🔎 Diagnostic Delays, 📍 Lack of pathways to UK CoEs, 💊 Access to new treatments/therapies, 🧪 lack of research/clinical trials, 🧠 Psych Support. 🌐 www.amend.org.uk
April 28, 2025 at 9:06 AM
Today we launch a new collaboration with Neuroendocrine Cancer UK (NCUK): the Neuroendocrine Life Alliance! With time and resources still challenging, we will work together to address several common aims. shorturl.at/iE8BM
#neuroendocrinecancer #neuroendocrineneoplasia #neuroendocrinelifealliance
April 21, 2025 at 8:09 AM