AMEND UK
@amenduk.bsky.social
Informing, supporting, and advocating for the multiple endocrine neoplasia and inherited phaeochromocytoma / paraganglioma syndromes and adrenocortical cancer patient communities. Visit our website www.amend.org.uk.
#endosky #PPGL #MEN1 #MEN2 #MEN3 #ACC
#endosky #PPGL #MEN1 #MEN2 #MEN3 #ACC
AMEND Patient Webinar on Medullary Thyroid Cancer (endorsed by the BTA). Expert talks, and a live Q&A from 19:00-20:30 on Wednesday 19th November. Registration essential:
zoom.us/webinar/regi...
#MTC #MedullaryThyroidCancer #sporadicMTC #medullarythyroidcancer #thyroidcancer
zoom.us/webinar/regi...
#MTC #MedullaryThyroidCancer #sporadicMTC #medullarythyroidcancer #thyroidcancer
October 16, 2025 at 12:09 PM
AMEND Patient Webinar on Medullary Thyroid Cancer (endorsed by the BTA). Expert talks, and a live Q&A from 19:00-20:30 on Wednesday 19th November. Registration essential:
zoom.us/webinar/regi...
#MTC #MedullaryThyroidCancer #sporadicMTC #medullarythyroidcancer #thyroidcancer
zoom.us/webinar/regi...
#MTC #MedullaryThyroidCancer #sporadicMTC #medullarythyroidcancer #thyroidcancer
Here at #ESE/ESPE2025 in the patient experience zone and always happy to chat. We even have video today! @esendocrinology.bsky.social
May 12, 2025 at 9:32 AM
Here at #ESE/ESPE2025 in the patient experience zone and always happy to chat. We even have video today! @esendocrinology.bsky.social
Just one week left to book FREE 2025 Annual Patient Information Day tickets! Central London, Saturday 31st May. Check out our website for programme and bookings.
www.amend.org.uk/patients/sup...
#MEN1 #MEN2 #MEN2A #MEN2B #PPGL #phaeopara #pheopara #ACC #adrenocorticalcancer #patientinformation
www.amend.org.uk/patients/sup...
#MEN1 #MEN2 #MEN2A #MEN2B #PPGL #phaeopara #pheopara #ACC #adrenocorticalcancer #patientinformation
May 7, 2025 at 1:05 PM
Just one week left to book FREE 2025 Annual Patient Information Day tickets! Central London, Saturday 31st May. Check out our website for programme and bookings.
www.amend.org.uk/patients/sup...
#MEN1 #MEN2 #MEN2A #MEN2B #PPGL #phaeopara #pheopara #ACC #adrenocorticalcancer #patientinformation
www.amend.org.uk/patients/sup...
#MEN1 #MEN2 #MEN2A #MEN2B #PPGL #phaeopara #pheopara #ACC #adrenocorticalcancer #patientinformation
AMEND is pleased to offer this FREE webinar for anyone affected by sporadic #MedullaryThyroidCancer from 19:00-20:30 on 18 June with two premiere medical experts from The Royal Marsden. Register via the following link: shorturl.at/CyFOg
#MTC #patienteducation
#MTC #patienteducation
April 30, 2025 at 7:04 PM
AMEND is pleased to offer this FREE webinar for anyone affected by sporadic #MedullaryThyroidCancer from 19:00-20:30 on 18 June with two premiere medical experts from The Royal Marsden. Register via the following link: shorturl.at/CyFOg
#MTC #patienteducation
#MTC #patienteducation
‼️ Just one month to go until our 2025 Annual Patient Information Day! FREE event for patients with multiple endocrine neoplasia, inherited paraganglioma syndromes and adrenocortical cancer. 💛
www.amend.org.uk/patients/sup...
#MEN #PPGL #ACC #patienteducation
www.amend.org.uk/patients/sup...
#MEN #PPGL #ACC #patienteducation
April 28, 2025 at 7:03 PM
‼️ Just one month to go until our 2025 Annual Patient Information Day! FREE event for patients with multiple endocrine neoplasia, inherited paraganglioma syndromes and adrenocortical cancer. 💛
www.amend.org.uk/patients/sup...
#MEN #PPGL #ACC #patienteducation
www.amend.org.uk/patients/sup...
#MEN #PPGL #ACC #patienteducation
💚 We would like to introduce the new ACC Support UK website which is now; ▶️ Easier to navigate, ♿️ More accessible, ℹ Contains info on adrenal tumours in children. Thanks to the family/friends of the late Sally Zelenczuk for making this possible. 📲 accsupport.org.uk
#adrenocorticalcancer #ACC
#adrenocorticalcancer #ACC
April 28, 2025 at 2:32 PM
💚 We would like to introduce the new ACC Support UK website which is now; ▶️ Easier to navigate, ♿️ More accessible, ℹ Contains info on adrenal tumours in children. Thanks to the family/friends of the late Sally Zelenczuk for making this possible. 📲 accsupport.org.uk
#adrenocorticalcancer #ACC
#adrenocorticalcancer #ACC
📣 Introducing a new collaboration between NCUK and AMEND to tackle the biggest challenges in our communities: 🔎 Diagnostic Delays, 📍 Lack of pathways to UK CoEs, 💊 Access to new treatments/therapies, 🧪 lack of research/clinical trials, 🧠 Psych Support. 🌐 www.amend.org.uk
April 28, 2025 at 9:06 AM
📣 Introducing a new collaboration between NCUK and AMEND to tackle the biggest challenges in our communities: 🔎 Diagnostic Delays, 📍 Lack of pathways to UK CoEs, 💊 Access to new treatments/therapies, 🧪 lack of research/clinical trials, 🧠 Psych Support. 🌐 www.amend.org.uk
💛 AMEND Annual Patient Information Day 2025 extras! Adrenal insufficiency workshop, benefits helpdesk, information tables, and free lunch and refreshments for networking. FREE event for patients, Sat 28 May, London
📲 www.amend.org.uk/patients/sup...
#MENsyndromes #PPGL #ACC #patienteducation
📲 www.amend.org.uk/patients/sup...
#MENsyndromes #PPGL #ACC #patienteducation
April 26, 2025 at 7:02 PM
💛 AMEND Annual Patient Information Day 2025 extras! Adrenal insufficiency workshop, benefits helpdesk, information tables, and free lunch and refreshments for networking. FREE event for patients, Sat 28 May, London
📲 www.amend.org.uk/patients/sup...
#MENsyndromes #PPGL #ACC #patienteducation
📲 www.amend.org.uk/patients/sup...
#MENsyndromes #PPGL #ACC #patienteducation
Today is World Hormone Day! Get involved to highlight the importance of hormones, and the recommendations for good hormone health 📲 www.amend.org.uk/world-hormon...
#worldhormoneday2025 #endocrinediseases #MEN1 #MEN2 #MEN2A #MEN2B #PPGL #MTC #ACC #neuroendocrinecancer #rarediseases
#worldhormoneday2025 #endocrinediseases #MEN1 #MEN2 #MEN2A #MEN2B #PPGL #MTC #ACC #neuroendocrinecancer #rarediseases
April 24, 2025 at 8:40 AM
Today is World Hormone Day! Get involved to highlight the importance of hormones, and the recommendations for good hormone health 📲 www.amend.org.uk/world-hormon...
#worldhormoneday2025 #endocrinediseases #MEN1 #MEN2 #MEN2A #MEN2B #PPGL #MTC #ACC #neuroendocrinecancer #rarediseases
#worldhormoneday2025 #endocrinediseases #MEN1 #MEN2 #MEN2A #MEN2B #PPGL #MTC #ACC #neuroendocrinecancer #rarediseases
💛 AMEND Annual Patient Information Day 2025 superb experts in endocrine and head and neck paraganglioma surgery, speaking just after lunch. FREE event for patients, Sat 28 May, London, for MEN, PPGL and ACC.
www.amend.org.uk/patients/sup...
#MENsyndromes #PPGL #ACC
www.amend.org.uk/patients/sup...
#MENsyndromes #PPGL #ACC
April 23, 2025 at 7:03 PM
💛 AMEND Annual Patient Information Day 2025 superb experts in endocrine and head and neck paraganglioma surgery, speaking just after lunch. FREE event for patients, Sat 28 May, London, for MEN, PPGL and ACC.
www.amend.org.uk/patients/sup...
#MENsyndromes #PPGL #ACC
www.amend.org.uk/patients/sup...
#MENsyndromes #PPGL #ACC
Today we launch a new collaboration with Neuroendocrine Cancer UK (NCUK): the Neuroendocrine Life Alliance! With time and resources still challenging, we will work together to address several common aims. shorturl.at/iE8BM
#neuroendocrinecancer #neuroendocrineneoplasia #neuroendocrinelifealliance
#neuroendocrinecancer #neuroendocrineneoplasia #neuroendocrinelifealliance
April 21, 2025 at 8:09 AM
Today we launch a new collaboration with Neuroendocrine Cancer UK (NCUK): the Neuroendocrine Life Alliance! With time and resources still challenging, we will work together to address several common aims. shorturl.at/iE8BM
#neuroendocrinecancer #neuroendocrineneoplasia #neuroendocrinelifealliance
#neuroendocrinecancer #neuroendocrineneoplasia #neuroendocrinelifealliance
‼⏰ On Thursday, 24 April, the global endocrine community will unite on the first World Hormone Day to raise awareness of the vital role of hormones in health and disease. www.amend.org.uk/world-hormon...
#worldhormoneday #worldhormoneday2025 #becausehormonesmatter #multipleendocrineneoplasia
#worldhormoneday #worldhormoneday2025 #becausehormonesmatter #multipleendocrineneoplasia
April 17, 2025 at 6:15 PM
‼⏰ On Thursday, 24 April, the global endocrine community will unite on the first World Hormone Day to raise awareness of the vital role of hormones in health and disease. www.amend.org.uk/world-hormon...
#worldhormoneday #worldhormoneday2025 #becausehormonesmatter #multipleendocrineneoplasia
#worldhormoneday #worldhormoneday2025 #becausehormonesmatter #multipleendocrineneoplasia
Lovely article on RET @ 30 in Endocrine Related Cancer by Prof Bruce Ponder and Mr Tom Kurzawinski
erc.bioscientifica.com/view/journal...
#RETgene #MEN2 #MEN2A #MEN2B #multipleendocrineneoplasia #genetics
erc.bioscientifica.com/view/journal...
#RETgene #MEN2 #MEN2A #MEN2B #multipleendocrineneoplasia #genetics
April 3, 2025 at 2:22 PM
Lovely article on RET @ 30 in Endocrine Related Cancer by Prof Bruce Ponder and Mr Tom Kurzawinski
erc.bioscientifica.com/view/journal...
#RETgene #MEN2 #MEN2A #MEN2B #multipleendocrineneoplasia #genetics
erc.bioscientifica.com/view/journal...
#RETgene #MEN2 #MEN2A #MEN2B #multipleendocrineneoplasia #genetics
What a wonderful #sfeBES2025 we had! Thanks to all those who visited our stand. See you at next years BES for at #ECE/ESPE in May!
March 12, 2025 at 4:34 PM
What a wonderful #sfeBES2025 we had! Thanks to all those who visited our stand. See you at next years BES for at #ECE/ESPE in May!
Jo (MEM2A) and Gill (MEN1) from AMEND are here and happy to speak with you. Let us show you how we help your patients. #sfeBES2025 @socendocrinology.bsky.social #multipleendocrineneoplasia #paraganglioma #adrenocorticalcancer
March 10, 2025 at 2:08 PM
Jo (MEM2A) and Gill (MEN1) from AMEND are here and happy to speak with you. Let us show you how we help your patients. #sfeBES2025 @socendocrinology.bsky.social #multipleendocrineneoplasia #paraganglioma #adrenocorticalcancer
For those UK centres interested, here is the link for more info on the National Registry of Adrenal Tumours #sfeBES2025 #NRAT #Adrenalregistry @socendocrinology.bsky.social
March 10, 2025 at 1:48 PM
For those UK centres interested, here is the link for more info on the National Registry of Adrenal Tumours #sfeBES2025 #NRAT #Adrenalregistry @socendocrinology.bsky.social
Get ready for #RareDiseaseDay on Friday 28 February, but be quick! Merch delivery 48-72 hours. We are celebrating our Rare Disease Warriors!
Merch - 📲 amend.teemill.com/awareness/
Donate - 📲 www.amend.org.uk/fundraisers-...
#rarediseasewarrior #showyourstripes #supportasmallcharity #AMENDTeeshop
Merch - 📲 amend.teemill.com/awareness/
Donate - 📲 www.amend.org.uk/fundraisers-...
#rarediseasewarrior #showyourstripes #supportasmallcharity #AMENDTeeshop
February 20, 2025 at 4:55 PM
Get ready for #RareDiseaseDay on Friday 28 February, but be quick! Merch delivery 48-72 hours. We are celebrating our Rare Disease Warriors!
Merch - 📲 amend.teemill.com/awareness/
Donate - 📲 www.amend.org.uk/fundraisers-...
#rarediseasewarrior #showyourstripes #supportasmallcharity #AMENDTeeshop
Merch - 📲 amend.teemill.com/awareness/
Donate - 📲 www.amend.org.uk/fundraisers-...
#rarediseasewarrior #showyourstripes #supportasmallcharity #AMENDTeeshop
Sorry I couldn’t be there. But also a little not sorry 😉
February 7, 2025 at 9:34 AM
Sorry I couldn’t be there. But also a little not sorry 😉
It's a FREEPOST weekend at our charity store, where our exclusive Valentine's Day gifts are available. There's even a money-saving bundle offer! Get over there fast and make your 'other half' smile this Valentine's Day! #valentinesdaygifts #teemill #valentine
📲 amend.teemill.com/collection/g...
📲 amend.teemill.com/collection/g...
January 30, 2025 at 7:04 PM
It's a FREEPOST weekend at our charity store, where our exclusive Valentine's Day gifts are available. There's even a money-saving bundle offer! Get over there fast and make your 'other half' smile this Valentine's Day! #valentinesdaygifts #teemill #valentine
📲 amend.teemill.com/collection/g...
📲 amend.teemill.com/collection/g...
Coming this Friday 24th January, our latest Webcast - All About Guidelines! Tune in at 19:30.
📲 www.amend.org.uk/patients/sup...
#guidelines #medicalguidelines #patientinformation
📲 www.amend.org.uk/patients/sup...
#guidelines #medicalguidelines #patientinformation
January 22, 2025 at 9:22 PM
Coming this Friday 24th January, our latest Webcast - All About Guidelines! Tune in at 19:30.
📲 www.amend.org.uk/patients/sup...
#guidelines #medicalguidelines #patientinformation
📲 www.amend.org.uk/patients/sup...
#guidelines #medicalguidelines #patientinformation
Membership of AMEND is free to anyone affected by MEN or PPGL syndromes, MTC and ACC, as well as to health professionals: www.amend.org.uk/patients/joi...
#MEN1 #MEN2 #MEN3 #MEN2A #MEN2B #PPGL #paraganglioma #phaeochromocytoma #Adrenocorticalcancer #ACC #MTC #medullarythyroidancer
#MEN1 #MEN2 #MEN3 #MEN2A #MEN2B #PPGL #paraganglioma #phaeochromocytoma #Adrenocorticalcancer #ACC #MTC #medullarythyroidancer
January 22, 2025 at 2:03 PM
Membership of AMEND is free to anyone affected by MEN or PPGL syndromes, MTC and ACC, as well as to health professionals: www.amend.org.uk/patients/joi...
#MEN1 #MEN2 #MEN3 #MEN2A #MEN2B #PPGL #paraganglioma #phaeochromocytoma #Adrenocorticalcancer #ACC #MTC #medullarythyroidancer
#MEN1 #MEN2 #MEN3 #MEN2A #MEN2B #PPGL #paraganglioma #phaeochromocytoma #Adrenocorticalcancer #ACC #MTC #medullarythyroidancer
Our AMEND BlueSky account now includes all our communities: multiple endocrine neoplasia syndromes, phaeochromocytoma and paraganglioma syndromes, medullary thyroid cancer, and adrenocortical cancer. Our separate accounts for PPGL and ACC have been deactivated.
#MEN1 #MEN2 #MEN3 #ACC #PPGL
#MEN1 #MEN2 #MEN3 #ACC #PPGL
January 22, 2025 at 1:37 PM
Yoga and gym bags available on our charity TeeShop. Profits support our work.
amend.teemill.com/collection/g...
#charitymerchandise #charitystore
amend.teemill.com/collection/g...
#charitymerchandise #charitystore
January 9, 2025 at 3:16 PM
Yoga and gym bags available on our charity TeeShop. Profits support our work.
amend.teemill.com/collection/g...
#charitymerchandise #charitystore
amend.teemill.com/collection/g...
#charitymerchandise #charitystore