Amber - About IBD
aboutibd.bsky.social
Amber - About IBD
@aboutibd.bsky.social
#UC '89, #jpouch '99. Creating evidence-based #IBD patient education to help you know more about IBD. Find #AboutIBDPodcast in any podcast app.
See episode 189 of #AboutIBDPodcast to get more perspective on this topic and how the #gastroparesis and #IBD communities can support one another. In your podcast app, on YouTube, or use my episode homepage for easy access to everything here: bit.ly/AIBD189
November 22, 2025 at 8:14 PM
5. Find Community Support

Support groups, both online and in-person, can help you feel less isolated and give you resources, tips, and a social connection with people who understand your experience.
November 22, 2025 at 8:14 PM
4. Don’t Compare to Others

People with gastroparesis or IBD have individual journeys, so comparing symptoms, treatments, or eating plans with others can lead to frustration.
November 22, 2025 at 8:14 PM
3. Prioritize Quality of Life

It’s okay to advocate for symptom management, like treating nausea, even without a diagnosis. Medications, lifestyle support, or nutritional advice can make a big difference in symptoms.
November 22, 2025 at 8:14 PM
2. Recognizing Overlapping Symptoms

Gastroparesis, other motility disorders, and IBD have similar symptoms. If your symptoms aren’t explained by your diagnosis, talk to your team about other potential causes.
November 22, 2025 at 8:14 PM
1. Advocating for Yourself

If you’re not being heard, seek another opinion. You deserve to be taken seriously and to find providers who listens to your concerns.
November 22, 2025 at 8:14 PM
Take care of yourself, Brian. 💜
September 11, 2025 at 12:25 AM
Be careful! I’ll be mad at you if you get heat stroke. 😂 It’s cooler up here tomorrow.
July 18, 2025 at 2:41 AM
You can hear our conversation on About IBD in your podcast app (Spotify, Apple Podcasts, Overcast, and all the rest). You can also listen, get all the details, a transcript, and links at: bit.ly/AIBD177
July 10, 2025 at 3:13 PM
Tip 5
🥗 Pair Breathwork With Nutrition
Combine breathwork with a focus on diet. Consider working with a practitioner to get specific advice.
July 10, 2025 at 3:13 PM