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Stripy Lightbulb CIC

@stripylightcic.bsky.social

300 followers 490 following 220 posts

Award-winning #SocialEnterprise working to improve the lives of people living with #MEcfs by educating professionals who have a duty of care. CPD accredited online training courses. www.stripylightbulb.com

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Stripy Lightbulb CIC @stripylightcic.bsky.social · Nov 14

Please share widely.

The 'M.E-Friendly Hospital Charter' and all associated content can now be found in one place on our website!

Check it out and get involved! www.stripylightbulb.com/me-friendly-...

#NhS #Healthcare #pwME #SevereME

M.E. Friendly Hospital Charter | Stripy Lightbulb CIC

It's intended to relieve M.E. patients of self-advocacy burdens by ensuring hospitals adhere to compassionate and M.E. appropriate care standards.

www.stripylightbulb.com

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 3d

Remote care for severe M.E patients is vital, but clinicians face real challenges. Help shape safer, more equitable care by sharing your anonymous insights in our 4-min survey. Deadline: Tues 29 Oct, 12pm.

More info - www.stripylightbulb.com/2025/10/16/c...

#NHS #HCP #Healthcare

Call for Input: Reconciling Safety in Remote Care for Severe M.E. | Stripy Lightbulb CIC

Reconciling Safety in Remote Care for Severe ME We are inviting healthcare professionals to anonymously share their insights via a short survey.

www.stripylightbulb.com

Stripy Lightbulb CIC @stripylightcic.bsky.social · 4d

We’re shifting the focus from awareness to action, and we’ll be sharing more details very soon.

Stay tuned! 💡

#BEDforSevereME #SevereME #PJsAndProtocol #MEcfs #NHS

Stripy Lightbulb CIC @stripylightcic.bsky.social · 4d

📣 This year, as part of our BED for Severe ME campaign, Stripy Lightbulb CIC won’t be hosting an educational webinar. Instead, we’re inviting healthcare professionals to help shape solutions to a real-world problem affecting the care of those with severe ME.
#pwME
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Stripy Lightbulb CIC @stripylightcic.bsky.social · 12d

M.E./C.F.S. means cognitive dysfunction, exhaustion & often pain, but it’s often misunderstood. Teachers who learn about it can spot the signs, adapt lessons & change lives. Knowledge is power. Compassion is impact. #Teachers

Stripy Lightbulb CIC @stripylightcic.bsky.social · 14d

We are thrilled to announce..... 👇

See our Board of Directors here - www.stripylightbulb.com/about/people/

#pwME #SocialEnterprise #Governance

Statement written on a white square background with pale yellow brush marks across the centre. Statement says - We’re delighted to welcome John Miller to the Board of Directors at Stripy Lightbulb CIC.

John brings a wealth of experience in governance, risk management, and organisational culture, with a career spanning operational leadership, compliance, and digital transformation. From serving in the British Army’s Royal Tank Regiment to leading large-scale NHS projects at Synertec and overseeing operations at Quiddity Health, John’s track record of stakeholder engagement and business transformation is second to none.

His belief that 'health, support, and opportunity should be accessible to all, without exception' aligns powerfully with our mission.

At Stripy Lightbulb CIC, we work to improve understanding and support for the M.E./C.F.S. community through industry-specific online training for professionals in hashtag#healthcare and hashtag#education, and hashtag#employers. Our goal is to reduce stigma, improve care, and fund desperately needed research.
John’s expertise will help us strengthen our impact, scale our reach, and ensure our governance remains as robust as our purpose.

💡 Welcome aboard, John, we’re thrilled to have you with us as we continue to challenge misconceptions and drive change for the M.E./C.F.S. community.

Stripy Lightbulb CIC @stripylightcic.bsky.social · 14d

Stripy Lightbulb CIC offers e-learning for professionals supporting M.E./C.F.S. and Long Covid patients. Same symptoms, same needs, same responsibility to care. 💬 #CPD

Stripy Lightbulb CIC @stripylightcic.bsky.social · 16d

M.E./C.F.S. and Long Covid share symptoms, and support needs. Stripy Lightbulb CIC’s e-learning helps #healthcare, #education & #employers provide informed care and support. Let’s stop the struggle. Start learning. 🌟 #CPD

Stripy Lightbulb CIC @stripylightcic.bsky.social · 17d

Stripy Lightbulb CIC stands with those left behind. No treatment, no support, no recognition. M.E./C.F.S. patients deserve better. Let’s fight stigma with education. 💡 #CPD

Stripy Lightbulb CIC @stripylightcic.bsky.social · 17d

M.E./C.F.S. patients feel abandoned. No treatment, little support, suicide risk is much higher than national average. NICE guidelines exist, but NHS adherence is minimal. We must do better. #MEcfs #Healthcare

Stripy Lightbulb CIC @stripylightcic.bsky.social · 18d

The economic impact of M.E./C.F.S. is huge, but ignored. People are dropping out of work & school, wrongly denied benefits, and left to struggle. Education on the illness isn’t optional, it’s survival. #Disability

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 18d

Students with M.E./C.F.S. are dropping out. Why? Educators don’t know how to support them. It’s not ‘just tiredness’, it’s a disabling condition. #InclusiveEducation

Stripy Lightbulb CIC @stripylightcic.bsky.social · 19d

Professionals with a duty of care, learn how to support those with M.E./C.F.S.(and Long Covid). Stripy Lightbulb CIC’s e-learning gives you the tools to do better. Improved knowledge saves energy. Literally. 💡 #ELearning #Training #CPD

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 19d

Many with ‘mild’ M.E./C.F.S. could work, if workplaces were flexible. Instead, they’re forced out, denied disability support & left in financial crisis. #Disability #WorkplaceInclusion

Stripy Lightbulb CIC @stripylightcic.bsky.social · 20d

Teachers: understanding M.E./C.F.S. isn’t optional, it’s essential. One of your students may be silently battling this condition. Your improved knowledgebase = empathy, support & better outcomes. Let’s make classrooms inclusive for all 💡 #Education #Learning

Stripy Lightbulb CIC @stripylightcic.bsky.social · 20d

Behind every M.E./C.F.S. diagnosis is a person fighting to be believed. Stigma isolates. Education empowers. Join Stripy Lightbulb CIC in changing the narrative. 💬 #MEcfs #EndTheStigma #CPD

stripylightbulb.com

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 26d

Get posting #pwME.

👀 youtube.com/shorts/ERPYv...

Copious amounts of private emails/letters are not working.

Constructive responses from DWP and/or DHSC would be very welcome.

Blog with info - stripylightbulb.com/2025/07/21/c...

FYI @georgemonbiot.bsky.social

#pwME #MEcfs #Politics

Get Posting pwME!

YouTube video by Stripy Lightbulb CIC

youtube.com

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Stripy Lightbulb CIC @stripylightcic.bsky.social · Sep 18

Teachers, employers, HR leaders - ME/CFS affects your people too.
Stripy Lightbulb CIC’s training isn’t just for doctors.
It’s for anyone with a duty of care.
💡 Learn how to adapt, support, and lead with empathy.
🔗 stripylightbulb.com

#Learn #Training

M.E./C.F.S. Training for Professionals - Stripy Lightbulb CIC

We offer CPD Accredited courses about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to professionals. Our training is also Long Covid Relevant.

stripylightbulb.com

Stripy Lightbulb CIC @stripylightcic.bsky.social · Sep 17

Healthcare professionals:
Would you treat a heart condition without training?
Then why guess with ME/CFS?
Stripy Lightbulb CIC offers a CPD-accredited course designed to help you support patients with dignity and honesty.
💬 Sign up. Make a difference.
📲 stripylightbulb.com

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Stripy Lightbulb CIC @stripylightcic.bsky.social · Sep 17

We are very happy to have signed this letter and fully support this Chronic Living Therapy campaign.

chroniclivingtherapy.com/open-letter-...

#pwME

Open Letter to BACP magazine, Therapy Today - Chronic Living Therapy

A recent article in the magazine for members of the British Association of Counselling & Psychotherapy (BACP) has highlighted again the need for research, factual investigation and informed debate abo...

chroniclivingtherapy.com

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Stripy Lightbulb CIC @stripylightcic.bsky.social · Sep 16

ME/CFS is NOT “just tiredness.”
It’s a global health crisis, a neurological condition, and one of the most misunderstood illnesses in healthcare.
Stripy Lightbulb CIC’s training helps professionals get it right.
🎓 Learn. Understand. Support.
🔗 stripylightbulb.com

M.E./C.F.S. Training for Professionals - Stripy Lightbulb CIC

We offer CPD Accredited courses about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to professionals. Our training is also Long Covid Relevant.

stripylightbulb.com

Stripy Lightbulb CIC @stripylightcic.bsky.social · Sep 16

Stripy Lightbulb CIC is campaigning for people living with ME/CFS who are too often ignored.
🛏️ #BEDforSevereME highlights the 25% who are bedbound.
📢 #DWPCampaigns fight for fairer support.
Be part of the change: stripylightbulb.com
#MEcfs #DisabilityRights #InvisibleIllness

Stripy Lightbulb CIC @stripylightcic.bsky.social · Sep 15

Professionals: Are you equipped to support people with ME/CFS?

There is a knowledge gap.

Stripy Lightbulb CIC’s CPD-accredited course fills that gap, with real insight, practical solutions, and compassion.
👉 Sign up today and earn your badge of understanding: stripylightbulb.com

M.E./C.F.S. Training for Professionals - Stripy Lightbulb CIC

We offer CPD Accredited courses about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to professionals. Our training is also Long Covid Relevant.

stripylightbulb.com

Stripy Lightbulb CIC @stripylightcic.bsky.social · Sep 15

ME/CFS patients deserve better.
Better understanding. Better care. Better outcomes.
Stripy Lightbulb CIC’s training empowers professionals to be part of that change.
💪 Be the ally patients need.
🎓 Enroll now: stripylightbulb.com

Stripy Lightbulb CIC @stripylightcic.bsky.social · Sep 15

Healthwatch is being scrapped. For the M.E. community, that means one less way to be heard.
“In house” solutions won’t work unless the NHS becomes truly patient-centred, before the closure
Don’t silence the patient voice.
📢 localdemocracyandhealth.com/2025/09/14/d...
#Healthwatch #PatientVoice #PwME

Don’t Silence the Patient Voice: Why Abolishing Healthwatch is a Mistake

Abolishing local Healthwatch is NOT a foregone conclusion – now is the time for MPs and national and local allies to defend independent public voice in health and care The NHS 10 year plan fl…

localdemocracyandhealth.com

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Stripy Lightbulb CIC @stripylightcic.bsky.social · Sep 11

'Stripy Lightbulb CIC exists to educate, advocate, and innovate. If we were in Government, we’d lead with compassion, science, and pragmatism. Because investing in health is investing in the future.'

www.stripylightbulb.com/2025/09/09/c...

#Politics #UK

Confronting the Cost of Chronic Illness and Rebuilding a Healthier, Fairer UK | Stripy Lightbulb CIC

Confronting the cost of chronic illness is key to rebuilding a healthier, fairer UK. The nation's crisis is a symptom of systemic failure post-COVID.