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rebeccamil.bsky.social
Becca Miller PhD
@rebeccamil.bsky.social
1.6K followers 5K following 590 posts
🌈💙🐌 Team Snail founder, Clinical Psychologist, Living with #yopd Young Onset #Parkinsons Disease since age 27, dx 2013. #DBS in 2021 & 2024. MJFF Patient Council member, SMC, love lemons www.rebeccamillerphd.com
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Nov 14
Here's a #parkinsons starter pack with a #yopd focus - please drop suggestions in comments and I''ll add to the pack!
go.bsky.app/R25na6o
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Aug 20
New podcast from Mjff on #relationships with #parkinsons www.michaeljfox.org/podcast/ask-...
Ask Us Anything About Parkinson’s and Relationships
How do I tell my children about my Parkinson’s disease (PD) diagnosis? How do I explain a tremor to my grandkids? How can I support my parent with Parkinson’s from a distance? How can my spouse and I ...
www.michaeljfox.org
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Aug 15
My latest writing about my experience with #mentalillness and #recovery #psychology #psychiatry

academic.oup.com/schizophreni...
Knitting Together Recovery: Weaving Together a Life
Knit one purl one, the rhythm of the looping and tugging of yarn as it twists and wraps to make a garment. Soft in my fingers, and the rounded tips of my f
academic.oup.com
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Aug 13
My latest- academic.oup.com/schizophreni...
Knitting Together Recovery: Weaving Together a Life
Knit one purl one, the rhythm of the looping and tugging of yarn as it twists and wraps to make a garment. Soft in my fingers, and the rounded tips of my f
academic.oup.com
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Aug 12
Excited to read this #yopd #parkinsons
Book cover of Jonny Achesons book when your neurons dance a story of a doctor with Parkinson’s disease
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Reposted by Becca Miller PhD
parkinsondotorg.bsky.social
The Parkinson's Foundation @parkinsondotorg.bsky.social · Jul 22
The Parkinson’s Foundation is deeply saddened by the passing of music legend Ozzy Osbourne, just weeks after his farewell show. Since his Parkinson’s disease diagnosis in 2019, Osbourne publicly shared his journey and brought greater awareness to the challenges of living with PD.

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Reposted by Becca Miller PhD
dailybunnies.bsky.social
daily bunnies 🐇✨ @dailybunnies.bsky.social · Jul 2
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Jul 1
Excited about this paper just published in #movementdisorders clinical practice on demoralization as an underappreciated phenomenon in #parkinsons disease. @drisubramanian.bsky.social Dr. Bradley McDaniels, Dr. Soania Mathur, Dr. Greg Pontone movementdisorders.onlinelibrary.wiley.com/doi/epdf/10....
From Hopelessness to Hope: Addressing Demoralization in Parkinson's Disease
Background Demoralization is a pervasive yet under-recognized syndrome that manifests as profound hopelessness, helplessness, loss of motivation and purpose, and impaired coping capacity. Affecting ...
movementdisorders.onlinelibrary.wiley.com
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · May 2
It is very disconcerting to think that I may be smelling smells again #parkinsons #yopd
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Apr 30
Great op-ed to cap off #parkinsons awareness month by @drisubramanian.bsky.social healthydebate.ca/2025/04/topi...
More than just words: Record-setting speech gives hope to Parkinson’s community - Healthy Debate
As a neurologist specializing in Parkinson’s disease, I was profoundly touched by Sen. Cory Booker’s emotional, record-setting speech to the U.S. Senate on March 31.
healthydebate.ca
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Apr 23
A great FREE offering from @worldpdcongress.bsky.social coming up TOMORROW!
worldpdcongress.bsky.social World Parkinson Congress @worldpdcongress.bsky.social · Apr 3
📢 Save the date & Register!

CarePartner Webinar on Children and #Parkinsons.

🔷When: Thursday, April 24, 2025, 12PM – 5PM ET
🔷Where: Online
🔷Cost: Free, but registration is required
🔷Learn More & Register: www.worldpdcoalition.org/4thcarepartner
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Apr 23
This is a great opportunity to attend the WPC 2026! And the volunteer team is such an amazing group of people. @worldpdcongress.bsky.social
worldpdcongress.bsky.social World Parkinson Congress @worldpdcongress.bsky.social · Apr 8
Call for Volunteers! 📢
Volunteer Applications for the 7th World Parkinson Congress are NOW OPEN!
Learn more here: wpc2026.org/Volunteers

wpc2026 #Parkinsons
Reposted by Becca Miller PhD
parkinsondotorg.bsky.social
The Parkinson's Foundation @parkinsondotorg.bsky.social · Apr 5
🎥 Today for Parkinson’s Awareness Month, watch this short video to learn the basics of Parkinson’s disease:
What is Parkinson's Disease? | Parkinson's Foundation
For more information on this topic, visit: https://www.parkinson.org/understanding-parkinsons There is a lot to know about Parkinson's disease (PD). Learn ab...
www.youtube.com
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Apr 2
Thanks for reading the article!
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Apr 2
Yes - I closed it and am in the process of analyzing the data. I’ll delete the link in a few but wanted to respond to you first. I’ll post the results when they are published.
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Apr 2
It is so challenging - I definitely thought I wouldn't have the same problems, being educated, and advocating, and yet still these problems happened to me...it is a very helpless feeling. We need more systemic change!
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Apr 2
Hospital care for people with #parkinsons is a dangerous thing. Read about it here, published by a great org, #womensparkinsonsproject #yopd #hospital #dbs:
www.womensparkinsonsproject.com/stories/hosp...
Hospitals Should Be a Place of Healing — Women's Parkinson's Project
Hospitals and DBS surgery
www.womensparkinsonsproject.com
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Apr 2
Take a minute to write a thank you to @booker.senate.gov for his bravery in the face of the new administration. I’m especially grateful for him speaking out about Parkinson’s disease, which his father died of. www.booker.senate.gov/contact/writ...
Write to Cory | U.S. Senator Cory Booker of New Jersey
The Official U.S. Senate website of Senator Cory Booker of New Jersey
www.booker.senate.gov
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Apr 2
Senator Booker talking about #parkinsons disease during his marathon 25 hour speech yesterday. His dad had #pd Thank you Senator. www.youtube.com/watch?v=BPZj...
Sen. Cory Booker gets emotional talking about his late father's experience with Parkinson's
YouTube video by NBC News
www.youtube.com
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Reposted by Becca Miller PhD
salsbergmathews.bsky.social
Barbara Salsberg Mathews @salsbergmathews.bsky.social · Apr 1
Here's an article I was interviewed for: 'Paying it forward with Parkinson's Disease'.
www.healthing.ca/parkinsons-d...
What it feels like: Paying it forward with Parkinson’s disease
www.healthing.ca
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Apr 1
@parkinsoncanada.bsky.social added you to the pack!
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Apr 1
Today is the first day of April, aka #Parkinsonsdisease awareness month. Ever wondered what it's like to live with #parkinsons? Here's my take, although the experience is constantly changing #yopd #chronicillness
www.worldpdcongress.org/home/2025/1/...
Life with Parkinson’s: A cupcake, a pillow, and a table — WPC Blog
by Rebecca Miller, PhD
www.worldpdcongress.org
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Apr 1
On this first day of #Parkinsonsdisease awareness month, posting an article about an important risk for people with #PD to be aware of - contraindicated medications, and one hack to try and avoid them #yopd #parkinsons
kevinmd.com/2024/10/the-...
The hidden medication putting Parkinson's patients at risk
People with Parkinson's disease should list Haldol as an allergy in their medical records to avoid severe complications from this contraindicated medication.
kevinmd.com
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Apr 1
Down with PD awareness! Up up with a cure! I almost thought of that as an April fool's joke (that the cure was here) but seemed excessively cruel...At least April is also Poetry Month here in the US.
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Apr 1
It's #Parkinsonsdisease awareness month, no foolin'. Here's an important article talking about #Pd care in the #hospital. Sadly still relevant. #yopd @pfresearchteam.bsky.social kevinmd.com/2022/10/its-...
It's not brain surgery: People with Parkinson's need better care in the hospital
My brain surgery was a success; I am grateful to be apple-picking with my daughter this year. And yet, I think of others with PD in the hospital and know we must do better.
kevinmd.com
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rebeccamil.bsky.social
Becca Miller PhD @rebeccamil.bsky.social · Apr 1
Happy Unhappy Parkinson's awareness month. One month lasts 12 for me, for the last 12 years since my diagnosis at age 39. April is the cruelest month. visiblemagazine.com/not-your-gra...
Not your Grandfather’s Parkinson’s Disease by Rebecca Miller - VISIBLE Magazine
The discovery of a biomarker that is 90% accurate in the diagnosis of Parkinson’s Disease makes this a transformative Parkinson’s Awareness month. Awareness months for diseases are a chance for the ge...
visiblemagazine.com
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