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🚀 Sharing the story of healthcare, one open note at a time.
🌐 Transparency, trust, and teamwork in healthcare.
📖 Advocates for patient access to their medical records.
💡 #OpenNotes | 🩺 #MedSky | 🌟 Join the movement for open healthcare conversations!
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A patient who reads notes? ✔️
A researcher who studies transparency in clinical documentation? ✔️
Let us know so we can add you to the #OpenNotes starter pack! 💥

#medsky

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#cansky

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Happy holidays! (From our director's dog in a Christmas sweater to yours.)

#Medsky
December 24, 2025 at 1:02 PM
Hear from our cofounder about where it all began.

Tom Delbanco, MD recounts his 55-year journey to transform primary care. This Grandberg Lecture was part of Beth Israel Deaconess Medical Center's Grand Rounds.

Watch the whole lecture: buff.ly/ReWYQhC

#Medsky
OpenNotes Cofounder Tom Delbanco's Grand Rounds Lecture
Watch the recording of Tom Delbanco's Grandberg Lecture—where he reflected on his 55-year journey to transform primary care. From listening more deeply to patients to launching a global transparency…
buff.ly
December 22, 2025 at 1:02 PM
We want people who speak any language and come from any background to access their medical notes.

This study looked at how ethnicity, race, and language impacted who was opening their notes. Read more from researchers at @mskcancercenter.bsky.social (paywalled 🔒 ) : ascopubs.org/doi/10.1200/...
December 18, 2025 at 1:24 PM
Reposted by OpenNotes
Such an honor to attend Dr. Delbanco’s Grandberg lecture and celebration of his career.
As we gather with loved ones for the holidays, we think back fondly to gathering the OpenNotes team together in October for Tom Delbanco's Grandberg Dinner at the Harvard Club of Boston.

We guarantee that @cait-desroches.bsky.social's roast of Tom was better than your holiday roast!

#MedSky
December 4, 2025 at 7:47 PM
Reposted by OpenNotes
NEW: Solutions for Increased Adoption of #PatientPortal Shared Access: A Human-Centered Design Approach Using the Double Diamond Model www.thieme-connect.de/products/ejo...

#MedSky #HumanCenteredDesign #HCI #usability @thelizarmy.bsky.social @cait-desroches.bsky.social @opennotes.org
December 7, 2025 at 4:07 PM
Happy #NationalViolinDay! Did you know our cofounder, Tom Delbanco, MD, is a violinist and music enthusiast?

A professional musician, William Fedkenheuer, played violin in honor of Tom's Grandberg Symposium in Boston.

Will spoke of how he grew closer to Tom while navigating our health system.
December 13, 2025 at 1:01 PM
Reposted by OpenNotes
At @s4pm.bsky.social Collaboration is the Best Medicine.
Nurses are integral to our vision of healthcare where patients and families are considered equal partners on the care team.

Nurses get it!

They are trained to notice the subtle changes that could be important.
#nursesareprofessionals
November 26, 2025 at 7:35 PM
Reposted by OpenNotes
Collaboration is the best medicine. Patients and providers working together leads to better outcomes.

Nurses are critical to connecting with patients. They listen. They translate. They advise. They keep two-way communication flowing.

#nursesareprofessional
December 11, 2025 at 1:03 PM
OpenNotes is recruiting for a new project on an AI Personal Health Assistant. Help co-design a study of a patient-facing scribe/chat tool.

👉 Apply to the OpenNotes Insight Panel: buff.ly/TIDvY65

#PatientAdvocacy #HealthEquity #AIinHealthcare #OpenNotes #MedSky
December 9, 2025 at 1:01 PM
As we gather with loved ones for the holidays, we think back fondly to gathering the OpenNotes team together in October for Tom Delbanco's Grandberg Dinner at the Harvard Club of Boston.

We guarantee that @cait-desroches.bsky.social's roast of Tom was better than your holiday roast!

#MedSky
December 4, 2025 at 1:02 PM
This Thanksgiving, we are thankful for our cofounder Tom Delbanco, MD and his 55 years of transforming primary care by looking "through the patient's eyes."

On October 16th, we honored his illustrious career with a Beth Israel Deaconess Medical Center symposium on the future of general medicine.
November 25, 2025 at 2:03 PM
In this essay in @jama.com, a nephrologist calls for better communication with patients...even when the news is bad.

We wish it were freely available to read, but it is paywalled: www.opennotes.org/research/sli...

#Medsky
Sliver of Hope - Open Notes
In this narrative medicine essay, a transplant nephrologist relates how his reticence to tell a patient that her worsening health status rendered her ineligible for a transplant strengthened his…
www.opennotes.org
November 20, 2025 at 2:02 PM
Last month, OpenNotes partnered with an innovative retirement community based in Massachusetts: Loomis Lakeside at Reeds Landing.

Yesterday, Loomis Lakeside was featured on NPR for their work humanizing all of their residents, including people who live with dementia:
Dementia housing without locked wards? It's a small but growing movement
Some senior living communities are caring for people with dementia alongside other residents, not segregated behind locked doors.
www.npr.org
November 18, 2025 at 2:03 PM
We talk about how few minutes patients spend with providers...and forget how long patients spend taking care of themselves.

One patient spent roughly 8,760 hours annually managing her health versus just ONE hour with clinicians.

Read more from @cait-desroches.bsky.social and team: buff.ly/UmeOXOL
November 13, 2025 at 2:21 PM
If you live in the United States, there's a good chance that you are a care partner.

In honor of #HospiceAndPalliativeCareMonth, read the latest study from @cait-desroches.bsky.social and team: bmcprimcare.biomedcentral.com/articles/10....
November 11, 2025 at 8:47 PM
Reading medical records can be unsettling—especially when the language feels biased or doesn't seem to match what you think happened.

Read what OpenNoters @cait-desroches.bsky.social and Steve O'Neill recommend when this happens: lnkd.in/eDuxcPc4

www.opennotes.org/research/who...

#MedSky
Whom Should We Regard as a Legitimate Stakeholder in the Accuracy of Information in a Patient’s EHR? - Open Notes
This case describes a care partner who was distressed by bias and inaccuracies in a loved one's medical notes. Steve O'Neill LICSW, BCD, JD and Catherine M. DesRoches, DrPH, MSc offer guidance on how ...
www.opennotes.org
November 11, 2025 at 6:37 PM
The process by which patients are evaluated for life-saving organ transplants must become more transparent and inclusive of patient voices.

Read more of our co-founder Tom Delbanco's recently co-authored paper in @jama.com Viewpoint: www.opennotes.org/research/whi...

#MedSky #PalliativeCare
November 10, 2025 at 4:36 PM
Reposted by OpenNotes
Want to know what's new at OpenNotes? Get to know the OpenNotes Lab.

We are hosting a free webinar featuring some of your favorite OpenNoters: @thelizarmy.bsky.social @cait-desroches.bsky.social @chethan.bsky.social and Amanda!

📅 October 29, 2025
⏰ 12pm Eastern
🎟️ Register today: lnkd.in/eucesbGY
October 22, 2025 at 7:37 PM
Want to know what's new at OpenNotes? Get to know the OpenNotes Lab.

We are hosting a free webinar featuring some of your favorite OpenNoters: @thelizarmy.bsky.social @cait-desroches.bsky.social @chethan.bsky.social and Amanda!

📅 October 29, 2025
⏰ 12pm Eastern
🎟️ Register today: lnkd.in/eucesbGY
October 22, 2025 at 7:37 PM
Join DiMe, Google, and leading experts for the launch of The Playbook: Implementing AI in Healthcare, a practical guide designed to help health systems adopt AI responsibly and effectively.

🚨 Launch webinar TODAY at 11am ET: zoom.us/webinar/regi...
October 7, 2025 at 1:21 PM
We are proud to be a partner on The Playbook: Implementing AI in Healthcare, launching October 8!

📅 Wednesday, October 8 | 11:00 am ET

🔗 Register for the launch webinar with Danton Char, Abhishek Khowala,Jen McKay, MD MS and @gracecordovano.bsky.social: zoom.us/webinar/regi...

#PatientsUseAI
October 6, 2025 at 8:55 PM
"The evidence shows that the more a patient gets involved in their own care, the better the outcomes,” Tom Delbanco told @wsj.com.

Read more on DIY health trends such as wearables and AI from experts like @hugooc.bsky.social @annawexler.bsky.social

lnkd.in/e9cSRzvk

#MedSky #PatientsUseAI #MedAI
Patients Are Diagnosing Themselves With Home Tests, Devices and Chatbots
Patients increasingly take on their own healthcare amid long waits for doctors’ appointments and a rise in self-care options
www.wsj.com
October 1, 2025 at 5:00 PM
If you've known OpenNotes since the beginning, you know Tom Delbanco, MD.

For 55 years, he has been transforming primary care.

Register for his upcoming Grand Rounds Lecture: bit.ly/46HXlT2

📅 Thursday, October 16th
⏰ 8am to 9am Eastern
📽️ Recording available
🎟️ Free

#MedSky #WhyInformatics
October 1, 2025 at 4:38 PM
If you're a chronic patient, you've probably had the experience of updating your medication list again and again.

This #WorldPharmacistDay, read about how open notes help patients manage medications and keep these med lists up to date.

www.acpjournals.org/doi/10.7326/...

#MedSky #WhyInformatics
September 25, 2025 at 2:17 PM