MaryGR65
@marygr65.bsky.social
Retired RN & Qualified Social Worker. #LongCovid since March 2020 Advocate
FBLC
Adult son, 3 grandchildren and 4 cats
A bit preoccupied after serious house fire on 15/10/24, living in temporary accommodation while they rebuild
https://gofund.me/99cc079b
Pinned
MaryGR65
@marygr65.bsky.social
· Nov 12
Donate to Help Mary Rebuild After a Devastating House Fire, organized by Faye Chapman
I’m reaching out to ask for your support in helping Mary, who has experi… Faye Chapman needs your support for Help Mary Rebuild After a Devastating House Fire
gofund.me
Havent been able to engage with the #bluesky community as I would like too bc of my current situation
Glad Ive found so many of my old #LongCovid followers and have made some new ones. I will try and be more proactive Could I ask people to share this for me, would be so grateful
gofund.me/95993090
Glad Ive found so many of my old #LongCovid followers and have made some new ones. I will try and be more proactive Could I ask people to share this for me, would be so grateful
gofund.me/95993090
Reposted by MaryGR65
🚨 Mythbusting #LongCovid with Dr Amir Khan🚨
Long Covid is real. It’s serious. And it’s affecting millions.
On #LongCovidAwarenessDay, #DrAmirKhan joins us to bust harmful myths.
Watch, learn, and share—because the more we talk about Long Covid, the harder it is to ignore.
Long Covid is real. It’s serious. And it’s affecting millions.
On #LongCovidAwarenessDay, #DrAmirKhan joins us to bust harmful myths.
Watch, learn, and share—because the more we talk about Long Covid, the harder it is to ignore.
March 15, 2025 at 9:12 AM
🚨 Mythbusting #LongCovid with Dr Amir Khan🚨
Long Covid is real. It’s serious. And it’s affecting millions.
On #LongCovidAwarenessDay, #DrAmirKhan joins us to bust harmful myths.
Watch, learn, and share—because the more we talk about Long Covid, the harder it is to ignore.
Long Covid is real. It’s serious. And it’s affecting millions.
On #LongCovidAwarenessDay, #DrAmirKhan joins us to bust harmful myths.
Watch, learn, and share—because the more we talk about Long Covid, the harder it is to ignore.
Reposted by MaryGR65
A new study links long COVID to a threefold increase in cognitive difficulties, highlighting the need for more research on the disease’s impacts on brain health.
www.beingpatient.com/long-covid-c...
www.beingpatient.com/long-covid-c...
STUDY: Long COVID Appeared to Triple Cognitive Impairment Risk
A new study links long COVID to a threefold increase in cognitive difficulties, highlighting the need for more research on the disease’s impacts on brain health.
www.beingpatient.com
March 11, 2025 at 6:17 AM
A new study links long COVID to a threefold increase in cognitive difficulties, highlighting the need for more research on the disease’s impacts on brain health.
www.beingpatient.com/long-covid-c...
www.beingpatient.com/long-covid-c...
Reposted by MaryGR65
Elon Musk can now access millions of Americans’ Social Security and payment info.
Who does this help? Not the families struggling to put food on the table.
Who does this help? Not the families struggling to put food on the table.
Elon Musk's DOGE commission gains access to sensitive Treasury payment systems: AP sources
The move by DOGE means it could have wide leeway to access important taxpayer data, among other things.
apnews.com
February 3, 2025 at 3:36 PM
Elon Musk can now access millions of Americans’ Social Security and payment info.
Who does this help? Not the families struggling to put food on the table.
Who does this help? Not the families struggling to put food on the table.
Reposted by MaryGR65
Welcome to the Dark Ages.
February 2, 2025 at 9:02 PM
Welcome to the Dark Ages.
Reposted by MaryGR65
A vital piece from a civil servant on the horrific and incredibly dangerous Trump/Musk smash-and-grab of government happening before our eyes:
slate.com/news-and-pol...
slate.com/news-and-pol...
I’m a Federal Worker. People Don’t Understand the Level of Heist Elon Musk Is Perpetrating.
Things are bleak.
slate.com
February 3, 2025 at 3:58 PM
A vital piece from a civil servant on the horrific and incredibly dangerous Trump/Musk smash-and-grab of government happening before our eyes:
slate.com/news-and-pol...
slate.com/news-and-pol...
Reposted by MaryGR65
This is a reminder for anyone who needs it today: wanting to protect yourself from a virus that has the ability to disable you is not selfish
February 1, 2025 at 5:09 PM
This is a reminder for anyone who needs it today: wanting to protect yourself from a virus that has the ability to disable you is not selfish
Reposted by MaryGR65
The Bylines Cymru Austerity Project: origins, impacts, outlooks – and remembrance
Austerity has been reported on piecemeal but our community will focus on it through February and beyond. And we need your help.
Art by kind permission of @martinrowson.bsky.social
bylines.cymru/politics-and...
Austerity has been reported on piecemeal but our community will focus on it through February and beyond. And we need your help.
Art by kind permission of @martinrowson.bsky.social
bylines.cymru/politics-and...
The Bylines Cymru Austerity Project: origins, impacts, outlooks – and remembrance
Austerity continues to impact lives and communities. It’s been reported on piecemeal but the Bylines Cymru community will focus on it in February and beyond
bylines.cymru
February 1, 2025 at 5:50 PM
The Bylines Cymru Austerity Project: origins, impacts, outlooks – and remembrance
Austerity has been reported on piecemeal but our community will focus on it through February and beyond. And we need your help.
Art by kind permission of @martinrowson.bsky.social
bylines.cymru/politics-and...
Austerity has been reported on piecemeal but our community will focus on it through February and beyond. And we need your help.
Art by kind permission of @martinrowson.bsky.social
bylines.cymru/politics-and...
Reposted by MaryGR65
Reposted by MaryGR65
A thread for eleven #MECFS, #LongCovid, and related research papers from w/c 20th January 2025.
Links are to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion does not equal recommendation.
1/12
Links are to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion does not equal recommendation.
1/12
January 27, 2025 at 10:00 AM
A thread for eleven #MECFS, #LongCovid, and related research papers from w/c 20th January 2025.
Links are to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion does not equal recommendation.
1/12
Links are to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion does not equal recommendation.
1/12
Reposted by MaryGR65
I feel very much adrift on here. My posts rarely get answered. l know I dont always have the capacity to reply but trying to make the effort to help create a community so we can all feel ready to leave the other place for good
Here feels heavy on people getting follows & not following back
#FBLC
Here feels heavy on people getting follows & not following back
#FBLC
January 25, 2025 at 11:15 AM
I feel very much adrift on here. My posts rarely get answered. l know I dont always have the capacity to reply but trying to make the effort to help create a community so we can all feel ready to leave the other place for good
Here feels heavy on people getting follows & not following back
#FBLC
Here feels heavy on people getting follows & not following back
#FBLC
Reposted by MaryGR65
#CancerCare in U.K. any examples please where healthcare workers protect patients undergoing chemo from harm eg mitigate against #CovidIsAirborne
#MasksWork #FFP2/3
#MasksWork #FFP2/3
January 25, 2025 at 10:54 AM
#CancerCare in U.K. any examples please where healthcare workers protect patients undergoing chemo from harm eg mitigate against #CovidIsAirborne
#MasksWork #FFP2/3
#MasksWork #FFP2/3
Reposted by MaryGR65
Not just some people, but all people—on Earth—must watch this video and share it as widely as possible.
Every word of it is true, and it confirms that Elon Musk is a white supremacist leader stoking violence around the world.
His two televised Nazi salutes were exactly what you thought they were.
Every word of it is true, and it confirms that Elon Musk is a white supremacist leader stoking violence around the world.
His two televised Nazi salutes were exactly what you thought they were.
Heil Tesla
YouTube video by Led By Donkeys
youtu.be
January 23, 2025 at 5:53 PM
Not just some people, but all people—on Earth—must watch this video and share it as widely as possible.
Every word of it is true, and it confirms that Elon Musk is a white supremacist leader stoking violence around the world.
His two televised Nazi salutes were exactly what you thought they were.
Every word of it is true, and it confirms that Elon Musk is a white supremacist leader stoking violence around the world.
His two televised Nazi salutes were exactly what you thought they were.
#FBLC Follow Back Long Covid where are you all x @jamesglen.bsky.social
January 21, 2025 at 8:40 PM
#FBLC Follow Back Long Covid where are you all x @jamesglen.bsky.social
Reposted by MaryGR65
January 21, 2025 at 8:11 PM
Reposted by MaryGR65
Burnout, shame & nurses crushed. A shocking & heartbreaking report from @sonia-sodha.bsky.social
www.theguardian.com/commentisfre...
www.theguardian.com/commentisfre...
Burnout, shame, heartbreak: nurses are being crushed by our broken NHS | Sonia Sodha
A shocking Royal College of Nursing report reveals the toll chronic underfunding has taken on staff, and rings alarm bells for the future
www.theguardian.com
January 19, 2025 at 9:31 AM
Burnout, shame & nurses crushed. A shocking & heartbreaking report from @sonia-sodha.bsky.social
www.theguardian.com/commentisfre...
www.theguardian.com/commentisfre...
Reposted by MaryGR65
Thought Id show running saga of my feet(pun not intended) First pic corpse feet taken in first months of #LongCovid in 2020. Stayed like that until 2nd pic when I got #Covid and started #nicotinetest both in Feb 2024 and stopped most supplements. 3/4 pic waiting for vascular surgery Now I cant walk
December 1, 2024 at 2:45 PM
Thought Id show running saga of my feet(pun not intended) First pic corpse feet taken in first months of #LongCovid in 2020. Stayed like that until 2nd pic when I got #Covid and started #nicotinetest both in Feb 2024 and stopped most supplements. 3/4 pic waiting for vascular surgery Now I cant walk
Finally a reply from Vascular Consultant. They think trying conservative treatment will help because surgery is too risky for someone as deconditioned as me! Good grief I cant feel my foot, so cant leave the house, bet theyll suggest exercise 👍
Lack of medic understanding sucks
So bl**dy angry 🤯
Lack of medic understanding sucks
So bl**dy angry 🤯
January 18, 2025 at 10:41 AM
Finally a reply from Vascular Consultant. They think trying conservative treatment will help because surgery is too risky for someone as deconditioned as me! Good grief I cant feel my foot, so cant leave the house, bet theyll suggest exercise 👍
Lack of medic understanding sucks
So bl**dy angry 🤯
Lack of medic understanding sucks
So bl**dy angry 🤯
Reposted by MaryGR65
Merci! @apresj20.bsky.social and @millionsmissingfr.bsky.social were already included in my starter-pack for the patient community. Added the other three (split up between the researchers pack and the patients pack).
go.bsky.app/LciucLP
go.bsky.app/LciucLP
November 14, 2024 at 10:36 AM
Merci! @apresj20.bsky.social and @millionsmissingfr.bsky.social were already included in my starter-pack for the patient community. Added the other three (split up between the researchers pack and the patients pack).
go.bsky.app/LciucLP
go.bsky.app/LciucLP
Bought a cat tower to replace the Christmas tree when it came down, however the base board had a broken corner. Didn't really affect the structure, and Id got it for £28 in the sales. They sent me a new one, told me to keep the broken one so built a jungle, happy Cats, happy Mama
January 11, 2025 at 6:15 PM
Bought a cat tower to replace the Christmas tree when it came down, however the base board had a broken corner. Didn't really affect the structure, and Id got it for £28 in the sales. They sent me a new one, told me to keep the broken one so built a jungle, happy Cats, happy Mama
4 very happy and content cats stopping what little blood I have getting to my feet 😹😻
January 9, 2025 at 11:32 PM
4 very happy and content cats stopping what little blood I have getting to my feet 😹😻
Since I moved Ive felt sorry for the cats and they scratch at the doors and carpets 🤦♀️ so Ive been letting them into my bedroom, dont normally. After first spreading themselves out on my kingsize bed, stopping me from tossing and turning theyve found a spot beside my bed. They still come up to visit
January 5, 2025 at 9:10 AM
Since I moved Ive felt sorry for the cats and they scratch at the doors and carpets 🤦♀️ so Ive been letting them into my bedroom, dont normally. After first spreading themselves out on my kingsize bed, stopping me from tossing and turning theyve found a spot beside my bed. They still come up to visit
Morning from snow covered Wales. Its stopped now but the sky is full of it 😱. Keep warm everyone. I woke up and couldnt feel my right foot, nearly fell over when I stood up. My 11 yo has just been dropped off, Dad at work and is already outside building a snowman! Oh to be young.
January 5, 2025 at 8:52 AM
Morning from snow covered Wales. Its stopped now but the sky is full of it 😱. Keep warm everyone. I woke up and couldnt feel my right foot, nearly fell over when I stood up. My 11 yo has just been dropped off, Dad at work and is already outside building a snowman! Oh to be young.
Reposted by MaryGR65
Elon Musk has posted ***300 TIMES*** about UK "grooming gangs" in the last ten days.
Including: Calling for UK government officials to be hanged and jailed; demanding the removal of Keir Starmer as UK prime minister; suggesting Tommy Robinson be released from prison.
www.wired.com/story/elon-m...
Including: Calling for UK government officials to be hanged and jailed; demanding the removal of Keir Starmer as UK prime minister; suggesting Tommy Robinson be released from prison.
www.wired.com/story/elon-m...
Elon Musk Is Posting Nonstop Falsehoods About 'Grooming Gangs'
Musk’s posts, which have racked up hundreds of millions of views on X, are his latest effort at inserting himself into UK politics.
www.wired.com
January 3, 2025 at 5:34 PM
Elon Musk has posted ***300 TIMES*** about UK "grooming gangs" in the last ten days.
Including: Calling for UK government officials to be hanged and jailed; demanding the removal of Keir Starmer as UK prime minister; suggesting Tommy Robinson be released from prison.
www.wired.com/story/elon-m...
Including: Calling for UK government officials to be hanged and jailed; demanding the removal of Keir Starmer as UK prime minister; suggesting Tommy Robinson be released from prison.
www.wired.com/story/elon-m...
Happy New Year everyone
January 1, 2025 at 11:15 AM
Happy New Year everyone
Reposted by MaryGR65
Books for Year 2 children aged 6-7 - 40 exciting texts by Clotilde Perrin, C.K. Smouha, Richard O'Neill, Louise Fatio, Michael Rosen & more.
Year 2 books for children aged 6-7 in KS1
Books for Year 2 children aged 6-7 with a diverse range of new books, classics, picture books and chapter books.
schoolreadinglist.co.uk
December 20, 2024 at 4:07 PM
Books for Year 2 children aged 6-7 - 40 exciting texts by Clotilde Perrin, C.K. Smouha, Richard O'Neill, Louise Fatio, Michael Rosen & more.