Helen
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helenld.bsky.social
Helen
@helenld.bsky.social
330 followers 560 following 170 posts
Jeweller 💍 Scientific Illustrator 👩🏼‍🎨 Graphic Designer 👩‍💻 I ♥️ dogs🐕 rats🐀 nature🍃 bugs🐞 skulls💀 water💦 flowers🌸 music🎶 first wave #LongCovid 🌊 Team member @longcovidsos 🛟
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helenld.bsky.social
Helen @helenld.bsky.social · Jan 25
#LongCovid
A black and white image of a blurry London Underground tube train speeding through a station Text reads “JANUARY 25TH 2020 WAS 5 YEARS AGO TODAY. On January 25th 2020 on the tube, someone wearing a mask under their chin coughed on me. January 25th 2020 was 60 months ago January 25th 2020 was 261 weeks ago January 25th 2020 was 1827 days ago January 25th 2020 was 43,834 hours ago January 25th 2020 was 2,630,048 mins ago January 25th 2020 was 157,802,902 secs ago January 25th 2020 was a lifetime ago”
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Reposted by Helen
longcovidsos.bsky.social
Long Covid SOS @longcovidsos.bsky.social · 7h
Protecting others protects us all

With #Covid currently circulating there are steps we can take to prevent ongoing transmission

🏠 Stay at home
😷 Mask up
🧪 Test for Covid
🗣️ Tell others
A teal and green infographic from Long Covid SOS titled “Protecting others protects us all.” It features four sections with icons: 1. A house icon with the text “If you feel ill, stay home – it’s one of the simplest ways to protect others and recover quicker.” 2. A mask icon labelled “N95” with the text “Wear a high quality mask – wear a well-fitting mask, stay away from others and tell people you are ill.” 3. A test icon with the text “Take a Covid test – if symptoms last, a positive result can help you access Long Covid support.” 4. A window icon with the text “Keep indoor air fresh – ventilate by opening windows and using air filters where you can.” At the bottom: “For more information visit www.longcovidsos.org” with the Long Covid SOS logo.
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Reposted by Helen
bhanlon15.bsky.social
Billy Hanlon @bhanlon15.bsky.social · 22d
Press & Journal UK: “Westhill mum of long Covid girl invites SNP health chief to see suffering for himself”

‘Helen Goss says her daughter Anna, 12, is one of the “forgotten children” who deserve better’

www.pressandjournal.co.uk/fp/politics/...
Westhill mum of long Covid girl invites SNP health chief to see suffering for himself
Helen Goss says her daughter Anna, 12, is one of the “forgotten children” who deserve better.
www.pressandjournal.co.uk
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binitakane.bsky.social
Binita Kane @binitakane.bsky.social · 24d
Brilliant article by a teacher highlighting the current dire situation for teachers and kids every winter when it comes to infection risk and spread. We continue to fight for our kids to have the right to breathe clean air.

stevebheadteacher.wordpress.com/2025/09/30/d...
Dear Bridget Phillipson, Please Can We Talk About Health?
Dear Bridget Phillipson, Please can we talk about health? It’s autumn 2025. We’re one month into the school year, in England. Two of my children are ill, again.With Covid, again.It&#821…
stevebheadteacher.wordpress.com
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bhanlon15.bsky.social
Billy Hanlon @bhanlon15.bsky.social · 24d
Croakey: 'Closure of long COVID clinic leaves patients without tailored support and care'

'For patients, long COVID means disrupted futures, stigma and disbelief. For carers, it means shouldering invisible burdens in a system not built for us.'

www.croakey.org/closure-of-l...
Closure of long COVID clinic leaves patients without tailored support and care
Introduction by Croakey: At the end of September, St Vincent's Long COVID Service in Sydney closed, leaving many patients without
www.croakey.org
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Reposted by Helen
bhanlon15.bsky.social
Billy Hanlon @bhanlon15.bsky.social · 24d
PsyPost: 'This is the devastating, long-term reality for hundreds of thousands after COVID'

www.psypost.org/this-is-the-...
This is the devastating, long-term reality for hundreds of thousands after COVID
New research demonstrates that long COVID can be a severely disabling condition. A recent study found individuals with lasting symptoms report worse daily function than 98% of the general population, ...
www.psypost.org
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longcovidsos.bsky.social
Long Covid SOS @longcovidsos.bsky.social · 24d
2/2:

🛟 wear the best mask you can
🛟 stay home and isolate if ill
🛟 test if you have symptoms
🛟 ventilate or meet outside

Visit our website to learn more, sign up for our newsletter, & donate so we can continue our vital work: longcovidsos.org

Please share & stay safe
Long Covid SOS Charity | Recognition Research Rehabilitation
Long Covid SOS is the voice of the thousands of Long Covid sufferers in the UK. We are throwing a lifeline to all those who are living with the debilitating impact of Covid-19: Long Covid
longcovidsos.org
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longcovidsos.bsky.social
Long Covid SOS @longcovidsos.bsky.social · 24d
Covid infections are climbing again. the only way to prevent #LongCovid is to avoid catching Covid.

There is no cure for Long Covid and repeated infections can make LC worse. Protect yourself & others by reducing your risk of infection. 1/2

Longcovidsos.org
Long Covid SOS infographic titled “The only way to prevent Long Covid is to avoid Covid.” Five teal boxes with orange warning-style icons: mask (N95), house, face with thermometer, ventilation fan, and crossed-out medical cross. Messages: wear a good mask, isolate if ill, test with symptoms, ventilate or meet outside, and remember Long Covid has no cure. Footer: website link and Long Covid SOS logo.
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kspink.bsky.social
KarrieS @kspink.bsky.social · 24d
@drjoepajak.bsky.social October is #DysautonomiaAwarenessMonth

For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more

We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
longcovidsos.bsky.social Long Covid SOS @longcovidsos.bsky.social · 26d
October is #DysautonomiaAwarenessMonth

For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more

We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October

#POTS #Dysautonomia #invisibleillness
Turquoise background with overlapping blue circles. In the centre, a simple illustration of a person with turquoise hair. Text around the person reads: “Dysautonomia Awareness Month.” Circles highlight symptoms: gastrointestinal issues, PoTS, heart palpitations, fatigue, shortness of breath, dizziness, cognitive issues, temperature dysregulation. Fainter circles in the background say and many many many more Long Covid SOS logo at the bottom left in white
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Reposted by Helen
longcovidsos.bsky.social
Long Covid SOS @longcovidsos.bsky.social · 26d
October is #DysautonomiaAwarenessMonth

For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more

We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October

#POTS #Dysautonomia #invisibleillness
Turquoise background with overlapping blue circles. In the centre, a simple illustration of a person with turquoise hair. Text around the person reads: “Dysautonomia Awareness Month.” Circles highlight symptoms: gastrointestinal issues, PoTS, heart palpitations, fatigue, shortness of breath, dizziness, cognitive issues, temperature dysregulation. Fainter circles in the background say and many many many more Long Covid SOS logo at the bottom left in white
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Reposted by Helen
seekingboston.bsky.social
Seeking Boston Marathon @seekingboston.bsky.social · 27d
Can I get a ❤️ and a repost for my cancer journey podcast? The Butterfly Pavilion Podcast, "Finding light in darkness" along my stage IV #cancer journey co-hosted with my amazing daughter.
open.spotify.com/show/5YPniI4...
Man and his daughter wearing hats. The Butterfly Pavilion Podcast. Dad, daughter conversations, stage IV cancer.
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barackobama.bsky.social
Barack Obama @barackobama.bsky.social · 27d
The arc of the moral universe is long, but it bends towards justice. Except it doesn’t bend on its own—it bends because we pull it in the direction of justice. What keeps me hopeful during times like these is being surrounded by people who are doing just that.
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kegel7.bsky.social
Kegel @kegel7.bsky.social · 28d
@longcovidsupport.bsky.social @longcovidkids.bsky.social @helenld.bsky.social
jackamatica.bsky.social Jack - amatica health @jackamatica.bsky.social · Aug 19
🔬Interesting new brainstem and cerebellum study in Long COVID - new imaging findings

A new brain imaging study of Long COVID patients reveals major damage in key parts of the brain responsible for movement, balance, and automatic body functions like heart rate and sleep

Let’s break it down🧵
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helenld.bsky.social
Helen @helenld.bsky.social · 29d
Missing the Mini
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luckytran.com
Dr. Lucky Tran @luckytran.com · Sep 25
The organizers of the UN event for healthy indoor air used a canary on all their materials and gave everyone canary pins.

Why? Canaries detect dangerous substances in the air of coal mines. We all need to be like canaries and warn about the dangers of unhealthy indoor air due to COVID and climate.
canary pins on the lapel of a suit
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longcovidsos.bsky.social
Long Covid SOS @longcovidsos.bsky.social · Sep 25
We're at a turning point. Since losing Co-Founder Ondine Sherwood in March ‘25, we need your help to continue our vital work. We’ve launched a funding appeal to hire our first paid team member to keep fighting for those with #LongCovid. Can you help secure our future?
Donate today: shorturl.at/J5aan
Orange background with teal abstract shapes. White bold text reads: “We need your help to keep fighting for those with Long Covid.” At the bottom is the Long Covid SOS logo.
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luckytran.com
Dr. Lucky Tran @luckytran.com · Sep 23
“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.”

Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
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longcovidsos.bsky.social
Long Covid SOS @longcovidsos.bsky.social · Sep 23
📣Your voice matters. Help shape our future - what brought you to Long Covid SOS? What matters to you now?

Just two minutes could help shape our future:

form.typeform.com/to/WKRgCwn7
Four people sit on chairs against a green wall, each holding a colourful paper speech bubble in front of their face. The bubbles spell out the phrase “Help shape our future.” Above them, a large white speech bubble with the Long Covid SOS logo reads “Your voice matters!” At the bottom, text says “2 minutes to share your thoughts”
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helenld.bsky.social
Helen @helenld.bsky.social · Sep 18
That’s bonkers!
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helenld.bsky.social
Helen @helenld.bsky.social · Sep 18
Even if you’re paying for it?
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longcovidsos.bsky.social
Long Covid SOS @longcovidsos.bsky.social · Sep 18
Thank you for being part of the Long Covid SOS community. A volunteer-led charity founded by people with #LongCovid, we've been fighting for recognition, research & real support since day one. 4 years on our mission is more vital than ever.

Follow us and watch this space for news & updates…
A gradient teal to dark green background with white text in the centre that reads: “We won’t let those with Long Covid be left behind.” Beneath this, the Long Covid SOS logo appears with the tagline “a lifeline since day one.”
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helenld.bsky.social
Helen @helenld.bsky.social · Sep 16
The boys Patrick and Sunday enjoying my breakfast in bed! #Pets #Rats #PetRats #RatsOfBluesky #CuteAnimals #PetPhotography #RatCompanions #RatLove #SnackTime #BerryThieves #BreakfastBuddies
Two pet rats, the left a black black hooded and the right a grey rat , leaning over a patterned bowl of yogurt topped with fresh berries, including strawberries, raspberries, and blueberries, on a bed with a blanket in the background.
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helenld.bsky.social
Helen @helenld.bsky.social · Sep 16
Cosy!
a black and white photo of a vampire with long claws .
Alt: black and white image of a vampire with long claws rising slowly from his coffin
media.tenor.com
helenld.bsky.social
Helen @helenld.bsky.social · Sep 10
You make a difference to me ♥️
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helenld.bsky.social
Helen @helenld.bsky.social · Aug 15
And please can all visitors wear masks because of asymptomatic infection. Easy as that.
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helenld.bsky.social
Helen @helenld.bsky.social · Aug 13
Really interesting thank you! Loved the pics 🧛🏻