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Eve

Eve

@evenicholls.bsky.social

1.4K followers 210 following 8.4K posts

Queer disabled quilter. She/her. Free Palestine. Neurodivergent? Queer? Joint pain? Go and read up on Ehlers Danlos Syndrome. Yes, even if you're not all that flexible these days. Even if it's not you, it's probably some of your friends.

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Eve @evenicholls.bsky.social · 2h

I'd want to see the dose, too. A lot of those supplements are incredibly high dose.

I know someone taking half a 3mg tablet (the whole one knocked him into the middle of next week), and is doing a hell of a lot better on that than on clonazepam, which is what the sleep clinic had him on for years.

Eve @evenicholls.bsky.social · 3h

Vincent Price is Louis Mazzini and Alec Guinness is the rest of the D'Ascoyne family (including a suffragette) in Kind Hearts and Coronets, thank you very much.

Eve @evenicholls.bsky.social · 3h

Where he looked weirdly like a young Richard Gere in that wig!

Eve @evenicholls.bsky.social · 3h

They're great together in Kind Hearts and Coronets.

Eve @evenicholls.bsky.social · 15h

Does anyone know which other countries have historically deliberately starved their own population like this?

Sending anger and solidarity.

Eve @evenicholls.bsky.social · 15h

I've been tipped out of my wheelchair by the bad cobbling in George Square. The uni said it's the council's responsibility, and the council said it's the uni's.

Completely unrelatedly, I got far too little disability support when I was studying here, deteriorated, and was thrown out for being ill.

Eve @evenicholls.bsky.social · 16h

It's still giggling over, "Yeah, it could’ve been worse, but only if there were caltrops in the street, tbh." Utterly fair.

Eve @evenicholls.bsky.social · 18h

I've considered getting one, but Edinburgh is hard enough with a relatively nippy little manual wheelchair. While it would be lovely if my partner didn't have to push me, my ability to notice oncoming cars is awful, I can't cross roads safely.

Eve @evenicholls.bsky.social · 19h

I was requesting things like contrasting strips on some death trap steps. They refused for years, telling me I should spend ten minutes walking around the block instead. Then they painted low-contrast strips on one small corner, in maroon which quickly wore off.

Eve @evenicholls.bsky.social · 19h

Most residential accommodation isn't accessible. A lot of commercial accommodation isn't either, as lifts aren't use much here. The council will just say "listed building" or "conservation area" to get out of adding features. The uni blew me off a lot when I was a student.

Eve @evenicholls.bsky.social · 19h

Admittedly I haven't travelled much either, and it's notable that I stopped visiting London many years ago, because it's a nightmare. But the older parts of Edinburgh are pretty bad. It's hilly, you get uneven steps up to shops, and there are a number of cobbled streets, some very badly maintained.

Eve @evenicholls.bsky.social · 1d

Thank you.

Eve @evenicholls.bsky.social · 1d

Huh. Interesting. I'm on a couple of photosensitising meds, but I only take them occasionally.

The GP said it's common after a new major illness, and often settles, so I'm hoping it does.

Eve @evenicholls.bsky.social · 1d

If it's the uni, I'm right by George Square. There's a lovely garden in there where we walk the cat. It's got a little labyrinth!

The cobbling in George Square can be a bit hazardous, mind.

Photo of my partner Robin, a white man with long dark hair in his forties, walking a small black cat on a harness and lead, in a labyrinth inside a park. He's walking one of the outer curves, looking up at the blue sky. The park is full of trees, the labyrinth is surrounded by a yew hedge, and some autumn leaves have fallen onto the ground.

Eve @evenicholls.bsky.social · 1d

Yay! I apologise on behalf of my city for the accessibility, it's not good. How did you find it? Old Town is probably the worst. Will you be in any particular areas?

Eve @evenicholls.bsky.social · 1d

Yay, glad you're having fun! If you visit again and want to meet up, do let me know. Hopefully it won't be too long until I've recovered enough after the covid, and we have some nice parks.

Eve @evenicholls.bsky.social · 1d

It's thin rather than gone, but it's a bit of a shock. I used to have amazing thigh length, glossy hair. It's in a bob these days because I'm too disabled to manage it, and that's fun too. But I didn't realise how thin it had got until I took photos from the side when trying on glasses.

Eve @evenicholls.bsky.social · 1d

Thank you, but please use alt text next time!

I wonder how soon it happens. The iron panel is because my hair has been thinning, and *that* may be because I developed T1 diabetes this year, likely triggered by suspected covid at the start of last year. And I've been disabled since flu in 1997. Ach.

Eve @evenicholls.bsky.social · 1d

*searches* Looks like it, yep, and they think it could be a factor in developing long covid. Good thing I've got an iron panel booked for next week, as I've unfortunately just had covid, despite pretty good mitigations.

I wish they'd stop blaming other conditions when they're all up *due to* covid!

Eve @evenicholls.bsky.social · 1d

Out of curiosity, does covid trigger anaemia?

Eve @evenicholls.bsky.social · 1d

I had multiple mitigations, including FFP3s, but ME/CFS causes cognitive dysfunction. I'd forgotten that air purifiers need to have their filters changed, and I forgot my usual practice of vacating the room afterwards while it aired.

I'm trying not to think about what this infection could do to me.

Eve @evenicholls.bsky.social · 1d

I developed type 1 diabetes a year after suspected covid, and some of that time will have been the asymptomatic stage, so I think it was the trigger. On top of being disabled with ME/CFS for the last 28 years (after flu).

And now I've just had covid again, caught from the mobile vet.

Eve @evenicholls.bsky.social · 2d

She said she went in with an open mind, to find out if any kind of intimacy could be possible, but didn't so much as want to make out with them. Unsurprisingly.

She went on two dates with a man who'd sent her repeated death threats. It's a very odd article.

Reposted by Eve

The Midnight Society @midnightpals.bsky.social · 3d

The pride is back, baby! Submitted for the Approval of the Midnight Pals: The Podcast is BACK, with a special Halloween treat -- the pals finally get back at those bullies over at Clarion West! midnight-pals.simplecast.com/episodes/the...

The Tale of Those Bullies at Clarion West | Submitted for the Approval of the Midnight Pals

Those stuck-up snobs at the most privileged literary circle of all, Clarion West, have perpetrated a despicable prank on the Midnight Pals involving a paper bag full of dog poop, a match, and Steve's ...

midnight-pals.simplecast.com

Eve @evenicholls.bsky.social · 2d

Yeah, I'm losing weight because my pancreas gave up on life this spring. Turns out that when I have to log everything I eat, and inject insulin for most of it, and have to deal with annoying alarms and calculations if I eat a big meal, then the ADHD snacking magically vanishes. It's too much effort!