Sarcoma Foundation of America (SFA)
@curesarcoma.bsky.social
Official Bluesky account for Sarcoma Foundation of America (SFA)
www.curesarcoma.org
www.curesarcoma.org
This Thanksgiving, we are feeling extra grateful for our #sarcoma community. Your resilience, hope, and support mean so much. Thank you for helping us push research forward. We hope you have a warm and restful holiday.
#curesarcoma
#curesarcoma
November 27, 2025 at 3:04 PM
This Thanksgiving, we are feeling extra grateful for our #sarcoma community. Your resilience, hope, and support mean so much. Thank you for helping us push research forward. We hope you have a warm and restful holiday.
#curesarcoma
#curesarcoma
Save time at the stores this black Friday and give the gift of hope. We are one week away from Giving Tuesday, but you don’t have to wait. When you give through SFA, you are helping advance lifesaving research and bringing comfort and hope to families facing the unimaginable.
November 26, 2025 at 6:00 PM
Save time at the stores this black Friday and give the gift of hope. We are one week away from Giving Tuesday, but you don’t have to wait. When you give through SFA, you are helping advance lifesaving research and bringing comfort and hope to families facing the unimaginable.
A new Sarcoma Stories episode has just been released, and it's our first international guest! We sit down with Carol Haslam of Sarcoma Cancer Ireland as she shares her diagnosis, navigating care in Ireland, and the origin story of Sarcoma Cancer Ireland.
rss.com/podcasts/sfa...
rss.com/podcasts/sfa...
November 26, 2025 at 2:05 PM
A new Sarcoma Stories episode has just been released, and it's our first international guest! We sit down with Carol Haslam of Sarcoma Cancer Ireland as she shares her diagnosis, navigating care in Ireland, and the origin story of Sarcoma Cancer Ireland.
rss.com/podcasts/sfa...
rss.com/podcasts/sfa...
Care partners are a vital part of the #sarcoma community. Raym and Delmon show how love can guide families through hard moments and daily challenges. Thank you to those who stay present, offer comfort, and help hold things together. Your compassion is at the heart of this community.
#CaregiversMonth
#CaregiversMonth
November 25, 2025 at 4:30 PM
Care partners are a vital part of the #sarcoma community. Raym and Delmon show how love can guide families through hard moments and daily challenges. Thank you to those who stay present, offer comfort, and help hold things together. Your compassion is at the heart of this community.
#CaregiversMonth
#CaregiversMonth
San Francisco 49er and dermatofibrosarcoma protuberans (DFSP) survivor @trentwilliams71 is representing SFA today with custom cleats for the NFL’s #MyCauseMyCleats. Tune in and cheer him on as the 49ers take on the Panthers.
mycausemycleats.org/player/trent...
#sarcoma #CureSarcoma
mycausemycleats.org/player/trent...
#sarcoma #CureSarcoma
November 24, 2025 at 3:31 PM
San Francisco 49er and dermatofibrosarcoma protuberans (DFSP) survivor @trentwilliams71 is representing SFA today with custom cleats for the NFL’s #MyCauseMyCleats. Tune in and cheer him on as the 49ers take on the Panthers.
mycausemycleats.org/player/trent...
#sarcoma #CureSarcoma
mycausemycleats.org/player/trent...
#sarcoma #CureSarcoma
Las Vegas Raiders linebacker Brennan Jackson is representing SFA this afternoon with custom cleats in honor of his cousin, who passed away from synovial sarcoma, for the NFL's #MyCauseMyCleats! Tune in to Raiders v. Browns to cheer him on.
mycausemycleats.org/player/brenn...
#sarcoma #CureSarcoma
mycausemycleats.org/player/brenn...
#sarcoma #CureSarcoma
November 23, 2025 at 2:00 PM
Las Vegas Raiders linebacker Brennan Jackson is representing SFA this afternoon with custom cleats in honor of his cousin, who passed away from synovial sarcoma, for the NFL's #MyCauseMyCleats! Tune in to Raiders v. Browns to cheer him on.
mycausemycleats.org/player/brenn...
#sarcoma #CureSarcoma
mycausemycleats.org/player/brenn...
#sarcoma #CureSarcoma
Patients taking nirogacestat for up to 4 years saw ongoing tumor shrinkage, with 46% having a major reduction or disappearance. Pain and quality-of-life benefits stayed strong, and side effects lessened over time. These findings help clarify its long-term value.
Full Study: buff.ly/sIQoyg5
Full Study: buff.ly/sIQoyg5
November 21, 2025 at 3:30 PM
Patients taking nirogacestat for up to 4 years saw ongoing tumor shrinkage, with 46% having a major reduction or disappearance. Pain and quality-of-life benefits stayed strong, and side effects lessened over time. These findings help clarify its long-term value.
Full Study: buff.ly/sIQoyg5
Full Study: buff.ly/sIQoyg5
This year, we raised over $1.2 million with 7624 RTCS participants!
Thank you to everyone who showed up, donated, ran, walked, volunteered, or cheered.
Our 2026 dates are officially live! Want to join the fun? Visit curesarcoma.org/race-to-cure-sarcoma to find a race near you.
Thank you to everyone who showed up, donated, ran, walked, volunteered, or cheered.
Our 2026 dates are officially live! Want to join the fun? Visit curesarcoma.org/race-to-cure-sarcoma to find a race near you.
November 20, 2025 at 3:45 PM
This year, we raised over $1.2 million with 7624 RTCS participants!
Thank you to everyone who showed up, donated, ran, walked, volunteered, or cheered.
Our 2026 dates are officially live! Want to join the fun? Visit curesarcoma.org/race-to-cure-sarcoma to find a race near you.
Thank you to everyone who showed up, donated, ran, walked, volunteered, or cheered.
Our 2026 dates are officially live! Want to join the fun? Visit curesarcoma.org/race-to-cure-sarcoma to find a race near you.
The Brenneman family shares their powerful story of love enduring after the loss of husband/father, David, to alveolar rhabdomyosarcoma. They discuss raising young kids during his treatment and walking the Camino de Santiago in his honor. Listen now: rss.com/podcasts/sfa... (Content Warning: death)
November 18, 2025 at 3:00 PM
The Brenneman family shares their powerful story of love enduring after the loss of husband/father, David, to alveolar rhabdomyosarcoma. They discuss raising young kids during his treatment and walking the Camino de Santiago in his honor. Listen now: rss.com/podcasts/sfa... (Content Warning: death)
Care partners lift, steady, and strengthen. Emily and Carrie’s stories remind us of the power of unwavering support. To the care partners who sit through every appointment, shoulder fears, and hold their families together, thank you. Your strength shapes this community in the most meaningful ways.
November 17, 2025 at 3:00 PM
Care partners lift, steady, and strengthen. Emily and Carrie’s stories remind us of the power of unwavering support. To the care partners who sit through every appointment, shoulder fears, and hold their families together, thank you. Your strength shapes this community in the most meaningful ways.
Joel and Amanda Stetler share their journey with low-grade fibromyxoid sarcoma, from a long path to diagnosis to raising three kids, navigating careers, and embracing honest conversations. Through it all, they continue to live loudly, even in life’s most uncertain moments.
November 14, 2025 at 3:15 PM
Joel and Amanda Stetler share their journey with low-grade fibromyxoid sarcoma, from a long path to diagnosis to raising three kids, navigating careers, and embracing honest conversations. Through it all, they continue to live loudly, even in life’s most uncertain moments.
The SFA team is at the Connective Tissue Oncology Society (CTOS) Annual Meeting making meaningful connections, forging strategic partnerships, and discussing progress in #sarcoma research. We are also presenting a poster highlighting our Sarcoma Community Data Project.
#curesarcoma #CTOS
#curesarcoma #CTOS
November 13, 2025 at 9:53 PM
The SFA team is at the Connective Tissue Oncology Society (CTOS) Annual Meeting making meaningful connections, forging strategic partnerships, and discussing progress in #sarcoma research. We are also presenting a poster highlighting our Sarcoma Community Data Project.
#curesarcoma #CTOS
#curesarcoma #CTOS
We are deeply saddened by the loss of Dr. Brian Van Tine, a valued member of SFA’s Medical Advisory Board. A world-renowned sarcoma expert and steadfast supporter of SFA, Brian’s legacy lies in his unwavering dedication to his patients. His loss is felt deeply across the community.
November 13, 2025 at 6:52 PM
We are deeply saddened by the loss of Dr. Brian Van Tine, a valued member of SFA’s Medical Advisory Board. A world-renowned sarcoma expert and steadfast supporter of SFA, Brian’s legacy lies in his unwavering dedication to his patients. His loss is felt deeply across the community.
This month, we’re highlighting stories from sarcoma care partners. Sarcoma care partners are advocates, supporters, and sources of strength, helping their loved ones navigate appointments, treatment decisions, and the emotional ups and downs of a #sarcoma diagnosis.
#curesarcoma #carepartner
#curesarcoma #carepartner
November 11, 2025 at 3:15 PM
This month, we’re highlighting stories from sarcoma care partners. Sarcoma care partners are advocates, supporters, and sources of strength, helping their loved ones navigate appointments, treatment decisions, and the emotional ups and downs of a #sarcoma diagnosis.
#curesarcoma #carepartner
#curesarcoma #carepartner
Sarcoma affects more than just the person diagnosed.
To better support those who care for someone with sarcoma, SFA has created a private Facebook group for care partners, a space for support, discussion, and community.
Join our Caregiver Sarcoma Connect Group at www.facebook.com/groups/13429...
To better support those who care for someone with sarcoma, SFA has created a private Facebook group for care partners, a space for support, discussion, and community.
Join our Caregiver Sarcoma Connect Group at www.facebook.com/groups/13429...
November 10, 2025 at 3:00 PM
Sarcoma affects more than just the person diagnosed.
To better support those who care for someone with sarcoma, SFA has created a private Facebook group for care partners, a space for support, discussion, and community.
Join our Caregiver Sarcoma Connect Group at www.facebook.com/groups/13429...
To better support those who care for someone with sarcoma, SFA has created a private Facebook group for care partners, a space for support, discussion, and community.
Join our Caregiver Sarcoma Connect Group at www.facebook.com/groups/13429...
Researchers from the Children's Oncology Group identified molecular features of localized Ewing sarcoma linked to relapse. Patients with STAG2 mutations faced a higher relapse risk, potentially aiding physicians in strategizing treatment for high-risk patients.
pubmed.ncbi.nlm.nih.gov/41183255/
pubmed.ncbi.nlm.nih.gov/41183255/
Molecular Characterization Informs Prognosis in Patients With Localized Ewing Sarcoma: A Report From the Children's Oncology Group - PubMed
This is a prospective validation of the molecular prognostic features of patients with localized EWS receiving standard-of-care therapy on therapeutic clinical trials. Building on previous work,…
pubmed.ncbi.nlm.nih.gov
November 7, 2025 at 3:00 PM
Researchers from the Children's Oncology Group identified molecular features of localized Ewing sarcoma linked to relapse. Patients with STAG2 mutations faced a higher relapse risk, potentially aiding physicians in strategizing treatment for high-risk patients.
pubmed.ncbi.nlm.nih.gov/41183255/
pubmed.ncbi.nlm.nih.gov/41183255/
In case you missed “Understanding ctDNA in Sarcomas: Live with the Experts,” the recording is now available! Hear from Dr. David Schulman, Dr. Herbert Loong, and Dr. Edwin Choy discuss what ctDNA is and how this emerging science could shape the future of sarcoma research and care.
tr.ee/LnTnpR
tr.ee/LnTnpR
November 6, 2025 at 3:02 PM
In case you missed “Understanding ctDNA in Sarcomas: Live with the Experts,” the recording is now available! Hear from Dr. David Schulman, Dr. Herbert Loong, and Dr. Edwin Choy discuss what ctDNA is and how this emerging science could shape the future of sarcoma research and care.
tr.ee/LnTnpR
tr.ee/LnTnpR
In this episode, we speak with Chris Barry from the Bay Area. Diagnosed as a teen with FAP and later a desmoid tumor, Chris has faced significant medical challenges. Despite these, he advocates for others and discusses the reality of living with desmoid tumors, often misunderstood as “benign.”
November 4, 2025 at 3:29 PM
In this episode, we speak with Chris Barry from the Bay Area. Diagnosed as a teen with FAP and later a desmoid tumor, Chris has faced significant medical challenges. Despite these, he advocates for others and discusses the reality of living with desmoid tumors, often misunderstood as “benign.”
November is National Family Caregivers Month! If you’re a caregiver/care partner, or if you’d like to thank someone who has cared for you or your loved one, we’d love to hear from you. Email us at [email protected] to share your story so we can highlight it this month.
November 3, 2025 at 3:15 PM
November is National Family Caregivers Month! If you’re a caregiver/care partner, or if you’d like to thank someone who has cared for you or your loved one, we’d love to hear from you. Email us at [email protected] to share your story so we can highlight it this month.
Emma Mayer is currently undergoing treatment for Undifferentiated Pleomorphic Sarcoma. Despite the challenges of her diagnosis, she continues to show incredible strength and courage, raising awareness and hope by joining us at RTCS Los Angeles.
#curesarcoma #RTCSLA #sarcoma
#curesarcoma #RTCSLA #sarcoma
October 31, 2025 at 2:15 PM
Emma Mayer is currently undergoing treatment for Undifferentiated Pleomorphic Sarcoma. Despite the challenges of her diagnosis, she continues to show incredible strength and courage, raising awareness and hope by joining us at RTCS Los Angeles.
#curesarcoma #RTCSLA #sarcoma
#curesarcoma #RTCSLA #sarcoma
Research shows that pediatric patients with superficial CIC-DUX4 sarcomas may experience better outcomes than those with deep-seated tumors or adult cases. More research is needed to understand these differences and improve care for children with rare sarcomas.
pubmed.ncbi.nlm.nih.gov/41053525/
pubmed.ncbi.nlm.nih.gov/41053525/
Superficially located CIC::DUX4-rearranged sarcomas in children: insights from a long-term survival case series - PubMed
Soft tissue sarcomas account for approximately 10% of all cancers in the pediatric population, with undifferentiated round cell sarcomas-historically referred to as Ewing-like sarcomas-forming a…
pubmed.ncbi.nlm.nih.gov
October 28, 2025 at 7:01 PM
Research shows that pediatric patients with superficial CIC-DUX4 sarcomas may experience better outcomes than those with deep-seated tumors or adult cases. More research is needed to understand these differences and improve care for children with rare sarcomas.
pubmed.ncbi.nlm.nih.gov/41053525/
pubmed.ncbi.nlm.nih.gov/41053525/
Join us Monday, November 3, at 9:00 AM ET for an expert-led discussion on circulating tumor DNA (ctDNA) in sarcomas.
Submit your questions in advance or use the Q&A feature during the event. You can also share questions anytime using #SFAResearchRoundup.
Register now: tr.ee/rWyatv
#curesarcoma
Submit your questions in advance or use the Q&A feature during the event. You can also share questions anytime using #SFAResearchRoundup.
Register now: tr.ee/rWyatv
#curesarcoma
October 28, 2025 at 2:45 PM
Join us Monday, November 3, at 9:00 AM ET for an expert-led discussion on circulating tumor DNA (ctDNA) in sarcomas.
Submit your questions in advance or use the Q&A feature during the event. You can also share questions anytime using #SFAResearchRoundup.
Register now: tr.ee/rWyatv
#curesarcoma
Submit your questions in advance or use the Q&A feature during the event. You can also share questions anytime using #SFAResearchRoundup.
Register now: tr.ee/rWyatv
#curesarcoma
Natasha’s warmth, humor, and courage inspired everyone she met, both in person and through her online community.
In honor of her life and legacy, please consider contributing to Natasha’s Research Fund to advance sarcoma research and continue the impact she began.
curesarcoma.org/ways-to-help...
In honor of her life and legacy, please consider contributing to Natasha’s Research Fund to advance sarcoma research and continue the impact she began.
curesarcoma.org/ways-to-help...
October 23, 2025 at 6:26 PM
Natasha’s warmth, humor, and courage inspired everyone she met, both in person and through her online community.
In honor of her life and legacy, please consider contributing to Natasha’s Research Fund to advance sarcoma research and continue the impact she began.
curesarcoma.org/ways-to-help...
In honor of her life and legacy, please consider contributing to Natasha’s Research Fund to advance sarcoma research and continue the impact she began.
curesarcoma.org/ways-to-help...
For 25 years, SFA has invested $27 million+ in research, funding 240+ projects at leading cancer centers. These investments have advanced treatment, improved patient care, and brought us closer to finding a cure for sarcoma.
You can help SFA continue to fund lifesaving research at curesarcoma.org
You can help SFA continue to fund lifesaving research at curesarcoma.org
October 20, 2025 at 2:45 PM
For 25 years, SFA has invested $27 million+ in research, funding 240+ projects at leading cancer centers. These investments have advanced treatment, improved patient care, and brought us closer to finding a cure for sarcoma.
You can help SFA continue to fund lifesaving research at curesarcoma.org
You can help SFA continue to fund lifesaving research at curesarcoma.org
On Saturday, October 25, 2025, the Mass General Cancer Center is hosting the Sarcoma Innovations Forum, open to anyone interested. Hear from renowned medical professionals in the sarcoma space about cutting-edge diagnostics and treatments, as well as comprehensive support for patients and families.
October 16, 2025 at 2:30 PM
On Saturday, October 25, 2025, the Mass General Cancer Center is hosting the Sarcoma Innovations Forum, open to anyone interested. Hear from renowned medical professionals in the sarcoma space about cutting-edge diagnostics and treatments, as well as comprehensive support for patients and families.