@crpsguru.bsky.social
It was such an honour to receive Leader of the Year at the She Inspires Awards! 🧡✨
Grateful for my husband, family, our volunteers, staff, trustees and everyone in the #CRPS community. Feeling proud, humbled and inspired to keep pushing for better support & awareness 🧡
Grateful for my husband, family, our volunteers, staff, trustees and everyone in the #CRPS community. Feeling proud, humbled and inspired to keep pushing for better support & awareness 🧡
November 21, 2025 at 8:19 PM
It was such an honour to receive Leader of the Year at the She Inspires Awards! 🧡✨
Grateful for my husband, family, our volunteers, staff, trustees and everyone in the #CRPS community. Feeling proud, humbled and inspired to keep pushing for better support & awareness 🧡
Grateful for my husband, family, our volunteers, staff, trustees and everyone in the #CRPS community. Feeling proud, humbled and inspired to keep pushing for better support & awareness 🧡
Reposted
This video is worth a watch
📽️ @DrAmirKhanGP breaks down chronic pain:
– What causes it
– Why it’s misunderstood
– The role of trauma & gender
– And why better understanding is essential
Watch & share youtu.be/_OBix59DnW0
📽️ @DrAmirKhanGP breaks down chronic pain:
– What causes it
– Why it’s misunderstood
– The role of trauma & gender
– And why better understanding is essential
Watch & share youtu.be/_OBix59DnW0
Chronic Pain Clinic: Side Effects & Everything You Need To Know | Lorraine
YouTube video by Lorraine
youtu.be
August 1, 2025 at 2:31 PM
This video is worth a watch
📽️ @DrAmirKhanGP breaks down chronic pain:
– What causes it
– Why it’s misunderstood
– The role of trauma & gender
– And why better understanding is essential
Watch & share youtu.be/_OBix59DnW0
📽️ @DrAmirKhanGP breaks down chronic pain:
– What causes it
– Why it’s misunderstood
– The role of trauma & gender
– And why better understanding is essential
Watch & share youtu.be/_OBix59DnW0
Reposted
Some of y’all #spoonies #chronicpainsky #spoonsky might find this useful, and everyone else might find it… enlightening.
(Have also long joked that they also need to ask, after getting your pain scale number is, “and.. have you ever given birth without epidural? Ok. I see.”
(Have also long joked that they also need to ask, after getting your pain scale number is, “and.. have you ever given birth without epidural? Ok. I see.”
July 13, 2025 at 6:26 PM
Some of y’all #spoonies #chronicpainsky #spoonsky might find this useful, and everyone else might find it… enlightening.
(Have also long joked that they also need to ask, after getting your pain scale number is, “and.. have you ever given birth without epidural? Ok. I see.”
(Have also long joked that they also need to ask, after getting your pain scale number is, “and.. have you ever given birth without epidural? Ok. I see.”
Reposted
Why Breaking Tasks Into Small Steps Makes Life Easier! youtu.be/vtctQMG6LOk?... #CRPS #painmanagement #pacing #rehabilitation #neuroplasticity #energybudgeting #gradedexposure #flaremanagement #chronicpainstrategies #occupationaltherapy #physiotherapy #painpsychology
Why Breaking Tasks Into Small Steps Makes Life Easier!
YouTube video by The Long Pain - Mamaenga Roa
youtu.be
July 13, 2025 at 7:57 PM
Why Breaking Tasks Into Small Steps Makes Life Easier! youtu.be/vtctQMG6LOk?... #CRPS #painmanagement #pacing #rehabilitation #neuroplasticity #energybudgeting #gradedexposure #flaremanagement #chronicpainstrategies #occupationaltherapy #physiotherapy #painpsychology
Reposted
“In my head I am still independent… then it hits me. I can’t even make it through a grocery trip without the burning #CRPS nerve pain… My body’s not the same… I didn’t want to accept this… I wanted to fight it.” #Compassion to a Body in #ChronicPain https://buff.ly/aypGMQ1
July 14, 2025 at 4:23 AM
“In my head I am still independent… then it hits me. I can’t even make it through a grocery trip without the burning #CRPS nerve pain… My body’s not the same… I didn’t want to accept this… I wanted to fight it.” #Compassion to a Body in #ChronicPain https://buff.ly/aypGMQ1
Reposted
“#CRPS—a fine line exists between pushing past breaking point—between the freedom of mobility & reality that I could send myself into a downward spiral/flare that lasts days/weeks/months.” https://themighty.com/topic/complex-regional-pain-syndrome/avoiding-overexertion-complex-regional-pain-syndrome
June 15, 2025 at 12:08 PM
“#CRPS—a fine line exists between pushing past breaking point—between the freedom of mobility & reality that I could send myself into a downward spiral/flare that lasts days/weeks/months.” https://themighty.com/topic/complex-regional-pain-syndrome/avoiding-overexertion-complex-regional-pain-syndrome
Reposted
Complex regional pain syndrome (CRPS) goes along with secondary #hyperparathyroidism. Our group was the first to describe this. The mechanism leading to #sHPT is unclear, but it may contribute to the loss of bone substance in #CRPS.
pubmed.ncbi.nlm.nih.gov/30747906/
doi.org/10.1097/j.pa...
pubmed.ncbi.nlm.nih.gov/30747906/
doi.org/10.1097/j.pa...
July 6, 2025 at 6:35 PM
Complex regional pain syndrome (CRPS) goes along with secondary #hyperparathyroidism. Our group was the first to describe this. The mechanism leading to #sHPT is unclear, but it may contribute to the loss of bone substance in #CRPS.
pubmed.ncbi.nlm.nih.gov/30747906/
doi.org/10.1097/j.pa...
pubmed.ncbi.nlm.nih.gov/30747906/
doi.org/10.1097/j.pa...
Reposted
Recent study: Local CBD 🌿 reduces pain in Complex Regional Pain Syndrome Type I (CRPS-I) in mice 🦵🔥 via CB1 & TRPM8 targets. Promising for neuropathic pain treatment!
doi.org/10.1089/can....
#CRPS #CBD #PainRelief #Cannabinoids
doi.org/10.1089/can....
#CRPS #CBD #PainRelief #Cannabinoids
July 7, 2025 at 12:02 PM
Recent study: Local CBD 🌿 reduces pain in Complex Regional Pain Syndrome Type I (CRPS-I) in mice 🦵🔥 via CB1 & TRPM8 targets. Promising for neuropathic pain treatment!
doi.org/10.1089/can....
#CRPS #CBD #PainRelief #Cannabinoids
doi.org/10.1089/can....
#CRPS #CBD #PainRelief #Cannabinoids
Reposted
Thank you Deb. Yes, you would "get it" totally.
I also wrote about the pain scale, if you are interested.
I also wrote about the pain scale, if you are interested.
That Darn Pain Measurement Scale
We can quantify temperature and blood pressure. But not pain. Modern MRIs, CT scanners and ultrasounds let clinicians assess things their predecessors could only dream about imaging 100 years ago. …
limberation.com
July 11, 2025 at 12:37 PM
Thank you Deb. Yes, you would "get it" totally.
I also wrote about the pain scale, if you are interested.
I also wrote about the pain scale, if you are interested.
Reposted
Das Complex Regional Pain Syndrome (CRPS) ist eine seltene und oft schwer zu diagnostizierende Erkrankung. Betroffene sind häufig auf kompetente medizinische Betreuung angewiesen, doch nicht immer ist das Krankheitsbild ausreichend bekannt.
March 6, 2025 at 6:52 PM
Das Complex Regional Pain Syndrome (CRPS) ist eine seltene und oft schwer zu diagnostizierende Erkrankung. Betroffene sind häufig auf kompetente medizinische Betreuung angewiesen, doch nicht immer ist das Krankheitsbild ausreichend bekannt.
Reposted
Talented PhD student Dolores Huang presenting her poster on hypothalamic and brainstem activation in people with Complex Regional Pain Syndrome at #AusPainSoc. These findings were made possible by ultrahigh resolution MRI and highlight CNS circuits that may contribute to autonomic symptoms in CRPS
April 24, 2025 at 2:24 AM
Talented PhD student Dolores Huang presenting her poster on hypothalamic and brainstem activation in people with Complex Regional Pain Syndrome at #AusPainSoc. These findings were made possible by ultrahigh resolution MRI and highlight CNS circuits that may contribute to autonomic symptoms in CRPS