Author | Lightnews

Betty Roggenkamp @bettyroggenkamp.bsky.social · Jul 16

I use mostly LinkedIn for posting, learning. Looked at X this week, after months not, surprised to find good content there. I look at Bluesky every week-ish, sometimes post. Had hope for bsky replacing X, but it's not the same. I use Instagram to learn from AYAs / younger people diagnosed. #AYACSM

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Betty Roggenkamp @bettyroggenkamp.bsky.social · May 21

This 👇🏾 is for every #oncology clinician who treats #AYA.

Seriously actionable practical education and care offered in this piece. BRAVO @lailaagrawalmd.bsky.social et. al

#AYACSM #sexualhealth #lateandlongterm

American Society of Clinical Oncology @ascocancer.bsky.social · May 20

Sexual health concerns after cancer are common, but too often go unaddressed. Authors discuss for #ASCOEdBook: brnw.ch/21wSNMs

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Betty Roggenkamp @bettyroggenkamp.bsky.social · May 12

Cancer and its treatment can financially can produce side effects that result in the inability to work or work at a level once had.

Health insurance is imperative to surviving #cancer.

#AYACSM

American Society of Clinical Oncology @ascocancer.bsky.social · May 9

Congress is considering cuts to Medicaid during its budget reconciliation process. 70 million ppl receive health coverage under Medicaid, including those w/ cancer. We must #ProtectMedicaid! #ASCOAdvocacy

Urge members of congress to safeguard Medicaid➡️ brnw.ch/21wSxGD

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Apr 11

#AYACSM #healthinsurance #AYA #AYAware #financialtoxicity

Betty Roggenkamp @bettyroggenkamp.bsky.social · Apr 9

If you don't know, how can you prepare?
#AYAware
#AYACSM
#FinancialToxicity
#cancerisforeverasayoungadult

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Apr 8

#AYACSM #AYAcancer #cancerisforever #lateandlongterm #financialtoxicity

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Apr 7

#AYAWARE #AYACSM #Cancersucks #oncsky #financialtoxicity

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Mar 25

Hoping there's many more on Adolescents and Young Adults this time around 🤞🏼 #AYACSM

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Mar 20

In my city, with my people! Thursday April 3, 2025, 6-9pm

If you know of anyone diagnosed with cancer, 15 - 39 years of age...they should come to 👇🏾

#cancer #AYACSM #Chicago #oncology #oncsky

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Feb 4

Have #AYA, young adult, people w/ #Cancer in your community / private #oncology practice? Of course you do.

Do these #AYAs have #mentalhealth needs exacerbated by cancer? Of course you do.

Register👇🏻.
us02web.zoom.us/meeting/regi...

#supponc #oncsky #medsky #supponcsky

Welcome! You are invited to join a meeting: Meeting the Mental Health Needs of Adolescents and Young Adults (AYAs) with Cancer. After registering, you will receive a confirmation email about joining t...

A live internet webinar for Private Practice and Mental Health Clinicians. Free registration and Continuing Education Credits! See flyer for details about CEU management and information. Studies sh...

us02web.zoom.us

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Jan 29

Brilliant visual story telling! Very effective #communication to grasping the #cancer experience.

#AYACSM #cancerstinks #oncology #treatmentisnotenough #supportiveonocology

ThanksCancer @thankscancer.bsky.social · Jan 28

Tell me your cancer story in emojis.

Here’s mine:

🏩👩🏽‍⚕️🕵🏽‍♀️ 🩻🩻🩻❓❔❓❔💉🏩 😳😖😫😭
💉💉💉🪺🪺🪺 💊💊
🧪☠️💊💊🤮 🧪☠️💊💊🤮 🧪☠️💊💊🤮 🧪☠️💊💊🤮 🧪☠️💊💊🤮 🧪☠️💊💊🤮 🧪☠️💊💊🤮 🧪☠️💊💊🤮
🪚🥥🤕
☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️
💊💊💊💊
🪚🍈
🛌
👌❤️‍🩹 🤷🏻‍♀️
💊💊💊💊
🥹🙃😶‍🌫️🫠🫥

#cansky #oncsky #oncosky

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Jan 27

Best explanation of financial issues & barriers to care access due to being dx'd with #cancer as a young adult, right here👇🏻.
An existing intervention is low cost single payor health insurance for life, w/ all providers in network: #AYA Medicare-esque right?

ascopubs.org/doi/10.1200/...
#AYACSM

Business of Health Care and the Personal Cost of Cancer Care | JCO Oncology Practice

ascopubs.org

Betty Roggenkamp @bettyroggenkamp.bsky.social · Jan 27

and growing it here even bigger. We encourage AYAs to connect, we need to do that for ourselves as well. #AYACSM

Betty Roggenkamp @bettyroggenkamp.bsky.social · Jan 19

With uptick #AYAs diagnosed w/ #cancer, #clinicaltrials need to include <40 as a population within and have its own data be accessible.

That shouldn't be that hard to do in 2025.

I know a lot of people who need this to be so.

#AYACSM

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Jan 14

😣 we often talk about transitions for people diagnosed with cancer. One of the hardest could be transitioning from one health insurance to another on New Year's Eve. This fact in the US is NOT patient centered care and is about money.

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Jan 14

Just read your & Dr. Nipp's Series Intro. Fin Tox is a challenging conundrum for both pts & providers because so much is out of their hands. I love this intervention. Pt can educate the provider what their real costs are even w/ insurance. Max OOP annually + reduced income(s) = Fin Tox. Period.

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Jan 11

Offering if a cancer clinician uses this “c” word, needs to be precluded or followed with additional explanation. That word alone often in a patient‘s head means “gone, forever gone, and no lingering affects be present”. All of us know in this cancer space that cancer lingers in one way or many…

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Jan 6

A picture, or graph, says so much...

Thanks @wsj.com for this article on #AYA #cancer

lnkd.in/gxVPCccB

#AYACSM

Betty Roggenkamp @bettyroggenkamp.bsky.social · Jan 6

This sounds interesting, congratulations. Wouldn’t it be great if navigation was the first Rx with a cancer dx?

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Jan 6

Stay present like this pup. They handled that wave sitting down, staying in the moment soundly.

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Jan 3

💯

Betty Roggenkamp @bettyroggenkamp.bsky.social · Jan 2

It's 2025, EHRs need to be designed for quick id of pt/dx/tx and work up. info graphic? Dashboard? better ux for the current state???

i.e. when III3c cancer 2nd opinion is sought, disease specific consulted oncologist, staring at the EHR, should not need to start with "what are you here for?".

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Jan 2

or unnecessary

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Jan 2

It's my go to always. We don't have time for complicated.

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Betty Roggenkamp @bettyroggenkamp.bsky.social · Jan 2

Know any women w/ sex life issues post #cancer diagnosis? Any clinicians want to/need to learn more about women's sex life issues post cancer dx/tx?
Who else needs to/should learn on this topic?

Agenda is impressive.
events.lifewithcancer.org/class/106239

#AYACSM @inovahealth.bsky.social

Women's Sexual Health Series - Managing Medically Induced Menopause After Cancer - Life With Cancer Events

Throughout the series, hear from expert speakers from around the country on various topics of cancer and sexual health.

events.lifewithcancer.org