I’m a disabled middle-aged nonbinary queer liberal, happily married to my best friend since ‘95, & a parent of 4 adults.
I’m a gamer, LOVE learning, Episcopalian, & open to questions/convo.
DMs are open w/a no creep/crypto/maga policy
I ❤️ the block feature!
Send thoughts & prayers.
Send thoughts & prayers.
The whole vibe is pretty wonderful 🎅
The whole vibe is pretty wonderful 🎅
Our eldest & their partner came down to help care for me, but it turned out that was just their cover story. After some incredibly adorable machinations, our eldest is now engaged!
We’re over the moon ❤️
*⬇️
Our eldest & their partner came down to help care for me, but it turned out that was just their cover story. After some incredibly adorable machinations, our eldest is now engaged!
We’re over the moon ❤️
*⬇️
Today my ears think I’m on a boat & there’s a loud high pitched screeching. My legs agree w/the boat theory & are also both mostly asleep.
It’s going to be an interesting day!
#neisvoid
Today my ears think I’m on a boat & there’s a loud high pitched screeching. My legs agree w/the boat theory & are also both mostly asleep.
It’s going to be an interesting day!
#neisvoid
Many resources, guides, experts say post exertional malaise (PEM) = post exertional symptom exacerbation (PESE)
I actually prefer the way Davenport separates them 🧵
Many resources, guides, experts say post exertional malaise (PEM) = post exertional symptom exacerbation (PESE)
I actually prefer the way Davenport separates them 🧵
Our little town has a traditional town square w/a county courthouse in the middle where they do a huge holiday celebration every year w/parades, vendors, food, rides, etc. that runs all weekend. It’s a whole thing. I’m grateful I was able to go, & very glad to be home!
Our little town has a traditional town square w/a county courthouse in the middle where they do a huge holiday celebration every year w/parades, vendors, food, rides, etc. that runs all weekend. It’s a whole thing. I’m grateful I was able to go, & very glad to be home!
He’s been excited about getting a particular vacuum cleaner for our house, but waited for it to go on sale where he works so he could add his employee discount to the sale price.
He brought it home tonight like a war trophy! 😄
He’s been excited about getting a particular vacuum cleaner for our house, but waited for it to go on sale where he works so he could add his employee discount to the sale price.
He brought it home tonight like a war trophy! 😄
As Ginger says, it’s a story many of us know intimately.
Much like the author’s wife my spouse is unflinchingly by my side, but I’d understand if he couldn’t be.
When Phillip Hoover writes I feel like he’s telling mine and so many other’s story as he tells his own.
www.nytimes.com/2025/01/31/s...
As Ginger says, it’s a story many of us know intimately.
Much like the author’s wife my spouse is unflinchingly by my side, but I’d understand if he couldn’t be.
🩵 Read it here 👉 https://bit.ly/47xsysl
#mecfs #caregiverawarenessmonth #unitedforme
🩵 Read it here 👉 https://bit.ly/47xsysl
#mecfs #caregiverawarenessmonth #unitedforme
The message that many of us, ill or otherwise, long to be seen & acknowledged is timely.
thesicktimes.org/2025/11/28/y...
The message that many of us, ill or otherwise, long to be seen & acknowledged is timely.
thesicktimes.org/2025/11/28/y...
My day ended w/an upsetting MCAS reaction to the pie Eldest made, but I’m very grateful I got to eat w/our family.
I hope my fellow #pwme & #pwlc who celebrated today were able to get good moments & I wish us all a PEM pass 🧡
Spouse just informed me that the oven isn’t hitting temp so the turkey is no where near done. We expected it would need 3.5-4hrs, it’s been 4hrs & we’ve already turned the temp up once.
An upside of being so ill is we’re only hosting close family, so there’s no pressure beyond growling stomachs
Spouse just informed me that the oven isn’t hitting temp so the turkey is no where near done. We expected it would need 3.5-4hrs, it’s been 4hrs & we’ve already turned the temp up once.
An upside of being so ill is we’re only hosting close family, so there’s no pressure beyond growling stomachs
Going to try to get a bit of down time 🦃
Going to try to get a bit of down time 🦃
I haven’t had a reaction apples or any of the spices that go into an apple pie - until tonight when I had the audacity to eat two bits of apple that didn’t make it into the pie
Incredibly rude 🤬
#neisvoid
I haven’t had a reaction apples or any of the spices that go into an apple pie - until tonight when I had the audacity to eat two bits of apple that didn’t make it into the pie
Incredibly rude 🤬
#neisvoid
If you have the spoons call them out on this. We need these post capitalistic hyper individualistic snake oil scams called out.
If you have the spoons call them out on this. We need these post capitalistic hyper individualistic snake oil scams called out.
There are 2 days worth of family traditions I’m hoping to get to at least sample, followed by the opportunity to decorate for Xmas w/our eldest for the 1st time in years.
So, bed & Netflix it is!
There are 2 days worth of family traditions I’m hoping to get to at least sample, followed by the opportunity to decorate for Xmas w/our eldest for the 1st time in years.
So, bed & Netflix it is!
Nothing like having a 99yr old great aunt who went on a cruise around the world a couple of years ago where she played host to multiple family members & went hiking. And she’s hardly an exception in my family.
I’m the exception that proves the we-have-great-genes rule.
Nothing like having a 99yr old great aunt who went on a cruise around the world a couple of years ago where she played host to multiple family members & went hiking. And she’s hardly an exception in my family.
I’m the exception that proves the we-have-great-genes rule.