Belasco
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belasco.bsky.social
Belasco
@belasco.bsky.social
Queer disabled nerd trapped in Texas
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It was suggested I do an intro post:
I’m a disabled middle-aged nonbinary queer liberal, happily married to my best friend since ‘95, & a parent of 4 adults.
I’m a gamer, LOVE learning, Episcopalian, & open to questions/convo.
DMs are open w/a no creep/crypto/maga policy
I ❤️ the block feature!
I’m going to try to walk unaided into our dining room to see the Christmas village that’s being erected.
Send thoughts & prayers.
December 1, 2025 at 5:04 AM
I’m in bed trying to stave off the worst of a me/cfs crash while listening to my family sing along w/carols & laugh as they decorate. Spouse floated in a bit ago & decked out one of the art pieces in our room w/lights, & a moment ago I was offered hot cocoa.
The whole vibe is pretty wonderful 🎅
December 1, 2025 at 3:02 AM
I finally get to share what I expect will be a long, mostly* joyful period in our lives.

Our eldest & their partner came down to help care for me, but it turned out that was just their cover story. After some incredibly adorable machinations, our eldest is now engaged!

We’re over the moon ❤️

*⬇️
November 30, 2025 at 7:47 PM
I left the house yesterday, carefully w/lots of planning & help, to do a fun thing instead of see a dr for once.

Today my ears think I’m on a boat & there’s a loud high pitched screeching. My legs agree w/the boat theory & are also both mostly asleep.

It’s going to be an interesting day!
#neisvoid
November 30, 2025 at 6:49 PM
Reposted by Belasco
Artist: Brumley
November 30, 2025 at 4:31 PM
Reposted by Belasco
This can be confusing if you have #MECFS or #LongCovid

Many resources, guides, experts say post exertional malaise (PEM) = post exertional symptom exacerbation (PESE)

I actually prefer the way Davenport separates them 🧵
November 29, 2025 at 11:58 PM
Family traditions #2 achieved!
Our little town has a traditional town square w/a county courthouse in the middle where they do a huge holiday celebration every year w/parades, vendors, food, rides, etc. that runs all weekend. It’s a whole thing. I’m grateful I was able to go, & very glad to be home!
November 30, 2025 at 1:38 AM
Reposted by Belasco
Our 25yr old son has definitely crossed into full adult mode.
He’s been excited about getting a particular vacuum cleaner for our house, but waited for it to go on sale where he works so he could add his employee discount to the sale price.
He brought it home tonight like a war trophy! 😄
November 29, 2025 at 3:05 AM
My house is full of the sounds of people playing D&D. Both older kids are playing online games w/different groups & in Discord calls in different rooms, but I can hear them & there’s something about listening to our adult kids solidly yes-anding that warms the cockles of this theater major’s heart 🥰
November 29, 2025 at 1:49 AM
I did the same thing, twice. First a year after my ME diagnosis, & again 20yrs later, soon after I was diagnosed with long covid.

As Ginger says, it’s a story many of us know intimately.

Much like the author’s wife my spouse is unflinchingly by my side, but I’d understand if he couldn’t be.
About a year into my sickness I sat down with my spouse and said, “I’m giving you permission to leave. I don’t want to ruin your life.”

When Phillip Hoover writes I feel like he’s telling mine and so many other’s story as he tells his own.

www.nytimes.com/2025/01/31/s...
I Love You. Please Find Someone Else.
www.nytimes.com
November 28, 2025 at 11:09 PM
Reposted by Belasco
Being a caregiver often means putting another person’s needs first. @emergeaustralia.bsky.social's Self-Care for Carers guide offers strategies to help protect and balance their own wellbeing.

🩵 Read it here 👉 https://bit.ly/47xsysl

#mecfs #caregiverawarenessmonth #unitedforme
November 28, 2025 at 9:19 PM
I’m grateful to see this making the rounds in chronic illness communities, but I would very much like to see this out in the wider world where it’s needed far more urgently.
The message that many of us, ill or otherwise, long to be seen & acknowledged is timely.

thesicktimes.org/2025/11/28/y...
You know someone with Long COVID. They need you to ask about it genuinely. - The Sick Times
If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.
thesicktimes.org
November 28, 2025 at 8:37 PM
Reposted by Belasco
November 28, 2025 at 4:41 PM
We had a lovely Thanksgiving meal w/almost all of our favorite people.
My day ended w/an upsetting MCAS reaction to the pie Eldest made, but I’m very grateful I got to eat w/our family.

I hope my fellow #pwme & #pwlc who celebrated today were able to get good moments & I wish us all a PEM pass 🧡
November 28, 2025 at 3:41 AM
Ack!
Spouse just informed me that the oven isn’t hitting temp so the turkey is no where near done. We expected it would need 3.5-4hrs, it’s been 4hrs & we’ve already turned the temp up once.
An upside of being so ill is we’re only hosting close family, so there’s no pressure beyond growling stomachs
November 27, 2025 at 9:50 PM
Got the first 2 big family traditions done! Helped make our family’s dressing recipe (via giving instructions & tasting) then promptly had that for breakfast w/my mom who came over in her pjs, as is tradition. Then put on Alice’s Restaurant & all sang along.
Going to try to get a bit of down time 🦃
November 27, 2025 at 8:22 PM
MCAS sucks & I did not invite it to Thanksgiving, but it barged in anyway.

I haven’t had a reaction apples or any of the spices that go into an apple pie - until tonight when I had the audacity to eat two bits of apple that didn’t make it into the pie

Incredibly rude 🤬

#neisvoid
November 27, 2025 at 2:29 AM
Reposted by Belasco
Just a reminder that anyone who posts about “fixing”, “solving” or “curing” their MECFS or Long Covid is full of shit and trying to scam you.

If you have the spoons call them out on this. We need these post capitalistic hyper individualistic snake oil scams called out.
November 26, 2025 at 8:27 PM
I’m a bit miffed that I’m feeling mostly okay on the me/cfs pre-Thanksgiving day of required rest.
There are 2 days worth of family traditions I’m hoping to get to at least sample, followed by the opportunity to decorate for Xmas w/our eldest for the 1st time in years.
So, bed & Netflix it is!
November 26, 2025 at 11:56 PM
Reposted by Belasco
Happy Rest and Save Energy Day to all my fellow #spoonies who celebrate Thanksgiving, as we prepare for tomorrow's stressors
November 26, 2025 at 7:54 PM
This one hits close to home 😅
Nothing like having a 99yr old great aunt who went on a cruise around the world a couple of years ago where she played host to multiple family members & went hiking. And she’s hardly an exception in my family.

I’m the exception that proves the we-have-great-genes rule.
November 26, 2025 at 7:10 PM
Reposted by Belasco
November 26, 2025 at 1:08 PM
Reposted by Belasco
November 26, 2025 at 1:03 PM
Reposted by Belasco
Today on youtube I’m answering a viewer question about the categorization of color in Old Norse. Full, longer video with links in the comments to my published peer-reviewed work on this subject: youtu.be/XuAOdF91YEg
November 26, 2025 at 6:27 PM