Audrey Vernick
@audreyvernick.bsky.social
Epilepsy surgery mom, patient & family advocate, dog person. Former teacher and journalist. I support access to healthcare, equal rights, and a safe, clean environment. I love my family most of all. 🐶🏂🚴♂️🎭 (posts are my opinion only)
Reposted by Audrey Vernick
Our theme for Day 24 of #NationalEpilepsyAwarenessMonth (or #NEAM) is "Neurosurgery". -- Have you considered it? Why did it make (or didn't) sense for you? -- Listen to our founder's neurosurgery story:
brainablaze.com/the-brain-ab...
brainablaze.com/the-brain-ab...
019: The Surgery - The Brain Ablaze Epilepsy Podcast
This episode walks through the events leading up to our host's neurosurgery in 2017.
brainablaze.com
November 24, 2025 at 4:20 PM
Our theme for Day 24 of #NationalEpilepsyAwarenessMonth (or #NEAM) is "Neurosurgery". -- Have you considered it? Why did it make (or didn't) sense for you? -- Listen to our founder's neurosurgery story:
brainablaze.com/the-brain-ab...
brainablaze.com/the-brain-ab...
Reposted by Audrey Vernick
Our theme for day 28 of #NationalEpilepsyAwarenessMonth (or #NEAM) is "Status Epilepticus". -- Do you know why an ambulance should be called if a seizure lasts more than 5 minutes? Have you had an SE event? #EpilepsyAwareness
More on Status:
brainablaze.com/the-brain-ab...
More on Status:
brainablaze.com/the-brain-ab...
012: Status Epilepticus - The Brain Ablaze Epilepsy Podcast
Do you know the warning signs of Status Epilepticus? Our host, David Clifford, walks through his experience with a Status Epilepticus event he experienced in 2015.
brainablaze.com
November 28, 2025 at 4:18 PM
Our theme for day 28 of #NationalEpilepsyAwarenessMonth (or #NEAM) is "Status Epilepticus". -- Do you know why an ambulance should be called if a seizure lasts more than 5 minutes? Have you had an SE event? #EpilepsyAwareness
More on Status:
brainablaze.com/the-brain-ab...
More on Status:
brainablaze.com/the-brain-ab...
Reposted by Audrey Vernick
1 in 26 people in the US will develop #epilepsy in their lifetime.
You can help change their future. 🌟
Support innovative epilepsy research this November during #epilepsyawareness month:
👉 my.aesnet.org/aes-donate-n...
#EndEpilepsy
You can help change their future. 🌟
Support innovative epilepsy research this November during #epilepsyawareness month:
👉 my.aesnet.org/aes-donate-n...
#EndEpilepsy
November 15, 2025 at 12:00 AM
1 in 26 people in the US will develop #epilepsy in their lifetime.
You can help change their future. 🌟
Support innovative epilepsy research this November during #epilepsyawareness month:
👉 my.aesnet.org/aes-donate-n...
#EndEpilepsy
You can help change their future. 🌟
Support innovative epilepsy research this November during #epilepsyawareness month:
👉 my.aesnet.org/aes-donate-n...
#EndEpilepsy
Reposted by Audrey Vernick
Medicaid-funded services are their lifeline—and make their work possible. But the Trump cuts to the program could change it all.
Meet Audrey and Jeremy, who went viral for talking about how the GOP's Medicaid cuts could devastate their everyday.
Meet Audrey and Jeremy, who went viral for talking about how the GOP's Medicaid cuts could devastate their everyday.
What Trump's Medicaid cuts mean for two podcasters with Down syndrome
Medicaid-funded services are their lifeline—and make their work possible.
www.motherjones.com
November 15, 2025 at 12:34 AM
Medicaid-funded services are their lifeline—and make their work possible. But the Trump cuts to the program could change it all.
Meet Audrey and Jeremy, who went viral for talking about how the GOP's Medicaid cuts could devastate their everyday.
Meet Audrey and Jeremy, who went viral for talking about how the GOP's Medicaid cuts could devastate their everyday.
Reposted by Audrey Vernick
i am saddled with the thought of how different our world would be if we believed women.
November 13, 2025 at 7:35 PM
i am saddled with the thought of how different our world would be if we believed women.
Reposted by Audrey Vernick
I’ve never seen an American elected official fight so hard to starve people.
November 8, 2025 at 12:23 AM
I’ve never seen an American elected official fight so hard to starve people.
Reposted by Audrey Vernick
November 7, 2025 at 11:26 PM
Reposted by Audrey Vernick
Millions of Americans are already learning that their health insurance costs for 2026 are going way up.
I want to hear from you so we can make this impossible for the GOP to ignore the consequences of their policies.
If your premiums are going up, reply below and please share your story.
I want to hear from you so we can make this impossible for the GOP to ignore the consequences of their policies.
If your premiums are going up, reply below and please share your story.
October 27, 2025 at 8:27 PM
Millions of Americans are already learning that their health insurance costs for 2026 are going way up.
I want to hear from you so we can make this impossible for the GOP to ignore the consequences of their policies.
If your premiums are going up, reply below and please share your story.
I want to hear from you so we can make this impossible for the GOP to ignore the consequences of their policies.
If your premiums are going up, reply below and please share your story.
Reposted by Audrey Vernick
🔥PLEASE REPOST🔥
🚨If ACA tax credits are NOT extended, premium payments will increase by more than 100% for many of the 24M Americans who buy their own coverage & it's on top of rising food & housing costs among other inflationary pressures that are adding major STRESS.🚨
www.kff.org/from-drew-al...
🚨If ACA tax credits are NOT extended, premium payments will increase by more than 100% for many of the 24M Americans who buy their own coverage & it's on top of rising food & housing costs among other inflationary pressures that are adding major STRESS.🚨
www.kff.org/from-drew-al...
How an ACA Premium Spike Will Affect Family Budgets, and Voters
In his latest column, President and CEO Dr. Drew Altman shows how spiking premiums, which may come if the enhanced ACA tax credits are not extended, will hit people in the context of their family budg...
www.kff.org
September 26, 2025 at 4:12 PM
🔥PLEASE REPOST🔥
🚨If ACA tax credits are NOT extended, premium payments will increase by more than 100% for many of the 24M Americans who buy their own coverage & it's on top of rising food & housing costs among other inflationary pressures that are adding major STRESS.🚨
www.kff.org/from-drew-al...
🚨If ACA tax credits are NOT extended, premium payments will increase by more than 100% for many of the 24M Americans who buy their own coverage & it's on top of rising food & housing costs among other inflationary pressures that are adding major STRESS.🚨
www.kff.org/from-drew-al...
Reposted by Audrey Vernick
This is why gutting support for mRNA will compromise such remarkable progress vs autoimmune diseases
And cancer
And genome editing for rare disease
And cancer
And genome editing for rare disease
September 17, 2025 at 10:16 PM
This is why gutting support for mRNA will compromise such remarkable progress vs autoimmune diseases
And cancer
And genome editing for rare disease
And cancer
And genome editing for rare disease
Reposted by Audrey Vernick
"We will never know what diseases might have been cured or what advances in technology might have been invented had the lights not gone out in the labs."
www.nytimes.com/2025/09/08/o...
www.nytimes.com/2025/09/08/o...
Opinion | We Are Watching a Scientific Superpower Destroy Itself
www.nytimes.com
September 13, 2025 at 5:58 PM
"We will never know what diseases might have been cured or what advances in technology might have been invented had the lights not gone out in the labs."
www.nytimes.com/2025/09/08/o...
www.nytimes.com/2025/09/08/o...
Reposted by Audrey Vernick
Child cognition, behavior, and treatment complexity are key predictors of parental stress, beyond seizure-related factors alone.
doi.org/10.1111/epi....
#epilepsy #epilepsia #ILAE #behavioralproblems #caregiverburden #cognitiveimpairment #drugresistant #parentingstress #pediatric
doi.org/10.1111/epi....
#epilepsy #epilepsia #ILAE #behavioralproblems #caregiverburden #cognitiveimpairment #drugresistant #parentingstress #pediatric
August 25, 2025 at 3:58 PM
Child cognition, behavior, and treatment complexity are key predictors of parental stress, beyond seizure-related factors alone.
doi.org/10.1111/epi....
#epilepsy #epilepsia #ILAE #behavioralproblems #caregiverburden #cognitiveimpairment #drugresistant #parentingstress #pediatric
doi.org/10.1111/epi....
#epilepsy #epilepsia #ILAE #behavioralproblems #caregiverburden #cognitiveimpairment #drugresistant #parentingstress #pediatric
Reposted by Audrey Vernick
At #AGBTPH25, @hcmefford.bsky.social of @stjuderesearch.bsky.social shared how gene replacement and antisense therapies are advancing treatments for rare pediatric epilepsies and neurological diseases — bringing new hope to patients and families.
#PrecisionHealth #Genomics #RareDisease #Epilepsy
#PrecisionHealth #Genomics #RareDisease #Epilepsy
September 10, 2025 at 10:16 PM
At #AGBTPH25, @hcmefford.bsky.social of @stjuderesearch.bsky.social shared how gene replacement and antisense therapies are advancing treatments for rare pediatric epilepsies and neurological diseases — bringing new hope to patients and families.
#PrecisionHealth #Genomics #RareDisease #Epilepsy
#PrecisionHealth #Genomics #RareDisease #Epilepsy
Reposted by Audrey Vernick
Awake craniotomy appears feasible and safe in patients with medically drug-resistant focal epilepsy.
doi.org/10.1111/epi....
#epilepsy #ILAE #epilepsia #awakesurgery #drugresistantfocalepilepsy #feasibility #safety
doi.org/10.1111/epi....
#epilepsy #ILAE #epilepsia #awakesurgery #drugresistantfocalepilepsy #feasibility #safety
September 12, 2025 at 8:50 PM
Awake craniotomy appears feasible and safe in patients with medically drug-resistant focal epilepsy.
doi.org/10.1111/epi....
#epilepsy #ILAE #epilepsia #awakesurgery #drugresistantfocalepilepsy #feasibility #safety
doi.org/10.1111/epi....
#epilepsy #ILAE #epilepsia #awakesurgery #drugresistantfocalepilepsy #feasibility #safety
Reposted by Audrey Vernick
This study assessed neurologists' practices and barriers to epilepsy genetic testing/counseling compared to guidelines published in 2022.
doi.org/10.1002/epi4...
#epilepsy #ILAE #epilepsiaopen #adultneurologists #bestpractices #genomics #unexplainedepilepsy
doi.org/10.1002/epi4...
#epilepsy #ILAE #epilepsiaopen #adultneurologists #bestpractices #genomics #unexplainedepilepsy
September 12, 2025 at 8:53 PM
This study assessed neurologists' practices and barriers to epilepsy genetic testing/counseling compared to guidelines published in 2022.
doi.org/10.1002/epi4...
#epilepsy #ILAE #epilepsiaopen #adultneurologists #bestpractices #genomics #unexplainedepilepsy
doi.org/10.1002/epi4...
#epilepsy #ILAE #epilepsiaopen #adultneurologists #bestpractices #genomics #unexplainedepilepsy
Reposted by Audrey Vernick
Citing concerns about DEI, the Department of Education has halted funding for programs that support students with combined hearing and vision loss in eight states.
“How low can you go?” one advocate asked. “How can you do this to children?”
By @jodiscohen.bsky.social @jsmithrichards.bsky.social
“How low can you go?” one advocate asked. “How can you do this to children?”
By @jodiscohen.bsky.social @jsmithrichards.bsky.social
Programs for Students With Hearing and Vision Loss Harmed by Trump’s Anti-Diversity Push
Citing concerns about DEI, the U.S. Department of Education has halted funding for programs that support students with combined hearing and vision loss in eight states. “How low can you go?” one advoc...
www.propublica.org
September 12, 2025 at 12:15 AM
Citing concerns about DEI, the Department of Education has halted funding for programs that support students with combined hearing and vision loss in eight states.
“How low can you go?” one advocate asked. “How can you do this to children?”
By @jodiscohen.bsky.social @jsmithrichards.bsky.social
“How low can you go?” one advocate asked. “How can you do this to children?”
By @jodiscohen.bsky.social @jsmithrichards.bsky.social
Reposted by Audrey Vernick
"How low can you go?"
"How can you do this to children?"
Education Dept. Halts Funds to Programs for Deafblind Students Over DEI Concerns, by @jodiscohen.bsky.social @jsmithrichards.bsky.social
"How can you do this to children?"
Education Dept. Halts Funds to Programs for Deafblind Students Over DEI Concerns, by @jodiscohen.bsky.social @jsmithrichards.bsky.social
Programs for Students With Hearing and Vision Loss Harmed by Trump’s Anti-Diversity Push
Citing concerns about DEI, the U.S. Department of Education has halted funding for programs that support students with combined hearing and vision loss in eight states. “How low can you go?” one advoc...
www.propublica.org
September 10, 2025 at 5:31 PM
"How low can you go?"
"How can you do this to children?"
Education Dept. Halts Funds to Programs for Deafblind Students Over DEI Concerns, by @jodiscohen.bsky.social @jsmithrichards.bsky.social
"How can you do this to children?"
Education Dept. Halts Funds to Programs for Deafblind Students Over DEI Concerns, by @jodiscohen.bsky.social @jsmithrichards.bsky.social
Reposted by Audrey Vernick
Few OB-GYNs get disability training—and their disabled patients are far likelier to die.
Pregnancy is a minefield when you're disabled
Few OB-GYNs get disability training—and their disabled patients are far likelier to die.
www.motherjones.com
September 1, 2025 at 4:05 PM
Few OB-GYNs get disability training—and their disabled patients are far likelier to die.
Reposted by Audrey Vernick
An idea:
August 20, 2025 at 12:29 AM
An idea:
Reposted by Audrey Vernick
Findings support earlier surgical referral and long-term risk stratification in drug-resistant epilepsy.
doi.org/10.1111/epi....
#epilepsy #epilepsia #ILAE #mortality #SUDEP #surgery #survival
doi.org/10.1111/epi....
#epilepsy #epilepsia #ILAE #mortality #SUDEP #surgery #survival
August 13, 2025 at 7:43 PM
Findings support earlier surgical referral and long-term risk stratification in drug-resistant epilepsy.
doi.org/10.1111/epi....
#epilepsy #epilepsia #ILAE #mortality #SUDEP #surgery #survival
doi.org/10.1111/epi....
#epilepsy #epilepsia #ILAE #mortality #SUDEP #surgery #survival
Reposted by Audrey Vernick
An under-the-scalp implant can improve monitoring of a person’s #epilepsy, giving doctors data they need to improve control over seizures, a new pilot study says.
www.healthday.com/health-news/...
www.healthday.com/health-news/...
Scalp Implant Improves Real-World Epilepsy Tracking
THURSDAY, Aug. 14, 2025 (HealthDay News) — An under-the-scalp implant can improve monitoring of a person’s epilepsy, giving doctors data they need to improve co
www.healthday.com
August 14, 2025 at 4:17 PM
An under-the-scalp implant can improve monitoring of a person’s #epilepsy, giving doctors data they need to improve control over seizures, a new pilot study says.
www.healthday.com/health-news/...
www.healthday.com/health-news/...
Reposted by Audrey Vernick
Some day explorers from another galaxy will happen upon Earth and sift through the bizarre wreckage. In whatever language they use, one will say to another: “Amazing. These creatures did something called ‘voting,’ and 77 million of them voted to destroy themselves and everyone else on the planet.”
August 12, 2025 at 12:50 AM
Some day explorers from another galaxy will happen upon Earth and sift through the bizarre wreckage. In whatever language they use, one will say to another: “Amazing. These creatures did something called ‘voting,’ and 77 million of them voted to destroy themselves and everyone else on the planet.”
Reposted by Audrey Vernick
Overall, 55.4% of patients with LGS achieved ≥50% seizure reduction with neuromodulation therapies.
doi.org/10.1111/epi....
#epilepsy #Epilepsia #ILAE #adverseeffects #DEE #drugresistant #neurostimulation #qualityoflife #treatment
doi.org/10.1111/epi....
#epilepsy #Epilepsia #ILAE #adverseeffects #DEE #drugresistant #neurostimulation #qualityoflife #treatment
August 1, 2025 at 3:21 PM
Overall, 55.4% of patients with LGS achieved ≥50% seizure reduction with neuromodulation therapies.
doi.org/10.1111/epi....
#epilepsy #Epilepsia #ILAE #adverseeffects #DEE #drugresistant #neurostimulation #qualityoflife #treatment
doi.org/10.1111/epi....
#epilepsy #Epilepsia #ILAE #adverseeffects #DEE #drugresistant #neurostimulation #qualityoflife #treatment
Reposted by Audrey Vernick
everything is terrible so here's the Muppets channeling the Beastie Boys
July 27, 2025 at 10:33 PM
everything is terrible so here's the Muppets channeling the Beastie Boys