Disabled* ♿️ & Neurodiverse ♾️
Christian Pagan ✝️
Writer & Blogger 👩💻
www.aspiraldance.com
*ME/CFS, Fibro, hEDS, Migraine, Dysautonomia, Endo, Asthma, Anxiety, OCD... the list goes on.
And just at the point I did, Billy Boyd's The Last Goodbye (from the Lord of the Rings) came on Youtube randomly.
I guess we're doing it that way then.
And just at the point I did, Billy Boyd's The Last Goodbye (from the Lord of the Rings) came on Youtube randomly.
I guess we're doing it that way then.
I am very excited to get to know these characters and their stories too 🥰 anyone want to hear about them when I do?
I am very excited to get to know these characters and their stories too 🥰 anyone want to hear about them when I do?
It's like the gods said, "it's not enough that they bleed, have cramps, headaches, sore boobs, nausea, and feel like they're going insane, we just *have* to add this in too!" 😈
It's like the gods said, "it's not enough that they bleed, have cramps, headaches, sore boobs, nausea, and feel like they're going insane, we just *have* to add this in too!" 😈
Can anyone in the UK let me know which option >£100 from cex has the right capabilities for this? I don't want to get the wrong one! Thanks ☺️
Can anyone in the UK let me know which option >£100 from cex has the right capabilities for this? I don't want to get the wrong one! Thanks ☺️
Anyone else struggle with this? Other than moisturising as much as possible, have you found anything that helps?
Anyone else struggle with this? Other than moisturising as much as possible, have you found anything that helps?
@sashadevlin.bsky.social has told me in the past that people do yarn swaps on Ravelry, but etsy has yarn, too.
@sashadevlin.bsky.social has told me in the past that people do yarn swaps on Ravelry, but etsy has yarn, too.
Why is this not a thing? It's quite rude that you have to be cold both sides of said bath (or shower).
Why is this not a thing? It's quite rude that you have to be cold both sides of said bath (or shower).
For months I've been struggling to read small print on packaging and asking @theajane.bsky.social to tell me what it says. I've also been ignoring the reminders to get my vision checked 😳
Just remembered I have glasses. Popped them on and everything became more readable 🙃
For months I've been struggling to read small print on packaging and asking @theajane.bsky.social to tell me what it says. I've also been ignoring the reminders to get my vision checked 😳
Just remembered I have glasses. Popped them on and everything became more readable 🙃
Today I almost puked as my body revolted to my refusal to pace and rest. Currently laying down, trying not to retch 🤢
Today I almost puked as my body revolted to my refusal to pace and rest. Currently laying down, trying not to retch 🤢
We recently took my 14 yo for an xray - his first ever. And it blew my mind 🤯 Because as someone who's always had health issues, I have had so many xrays over the years.
Well my GP today agrees with the other GP and reckons it could be a stress fracture, so is sending me for an xray 🙃 directly this time though.
We recently took my 14 yo for an xray - his first ever. And it blew my mind 🤯 Because as someone who's always had health issues, I have had so many xrays over the years.
How precious it is that we will still be able to find his voice woven through the books he left us with.
I've known Matt for years. He was a warm, gentle, generous, all-weather friend. I miss him.
How precious it is that we will still be able to find his voice woven through the books he left us with.
www.justgiving.com/page/mattmas...
www.justgiving.com/page/mattmas...
Well my GP today agrees with the other GP and reckons it could be a stress fracture, so is sending me for an xray 🙃 directly this time though.
Well my GP today agrees with the other GP and reckons it could be a stress fracture, so is sending me for an xray 🙃 directly this time though.
Not only did he deal with the 5 things on my list, he also gave @theajane.bsky.social a flu vaccine when I mentioned she still hadn't had hers.
He treats me like an equal partner in my care *and* understands how complex my health is ☺️
I see my GP every 4-6 weeks at this point, and each time I have a list of 4-5 things we need to discuss. That isn't everything, it's just the most urgent. (He gives me a double appt every time, thankfully).
Not only did he deal with the 5 things on my list, he also gave @theajane.bsky.social a flu vaccine when I mentioned she still hadn't had hers.
He treats me like an equal partner in my care *and* understands how complex my health is ☺️
I see my GP every 4-6 weeks at this point, and each time I have a list of 4-5 things we need to discuss. That isn't everything, it's just the most urgent. (He gives me a double appt every time, thankfully).
I see my GP every 4-6 weeks at this point, and each time I have a list of 4-5 things we need to discuss. That isn't everything, it's just the most urgent. (He gives me a double appt every time, thankfully).
Me this morning: yep, there it is 😫
PEM sucks. ME/CFS sucks.
Me this morning: yep, there it is 😫
PEM sucks. ME/CFS sucks.
My full review is on goodreads and Storygraph, but just know I highly recommend this one.
My full review is on goodreads and Storygraph, but just know I highly recommend this one.
(Ignore the mess - we're behind on laundry & just got back from shopping!)
Video description: a reindeer dressed in a Santa suit is dancing on a kitchen table as music plays. He has quite the hip wiggle going on.
(Ignore the mess - we're behind on laundry & just got back from shopping!)
Video description: a reindeer dressed in a Santa suit is dancing on a kitchen table as music plays. He has quite the hip wiggle going on.
Probably explains why I've had daily migraines and an upset stomach since the end of last week.
Already have appt with GP on Friday, so will keep up the doxycycline until then.
Probably explains why I've had daily migraines and an upset stomach since the end of last week.
Already have appt with GP on Friday, so will keep up the doxycycline until then.
We’re kicking things off with a special message from #PrueLeith, #GaryLineker and #ImeldaStaunton.
Explore the charities now: https://bit.ly/CC25-Social
Details from last week's Westminster Hall debate on ME in quotes covering research funding, support for those with severe ME and the government's response - tinyurl.com/mw5nek48
#MECFS #PwME #CFS
Details from last week's Westminster Hall debate on ME in quotes covering research funding, support for those with severe ME and the government's response - tinyurl.com/mw5nek48
#MECFS #PwME #CFS
I was 13, and so it became an integral part of Christmas for me very quickly.
I still listen to it, now via a playlist on my phone. So I thought I'd share, in case you'd fancy some older songs too ☺️
music.youtube.com/playlist?lis...
I was 13, and so it became an integral part of Christmas for me very quickly.
I still listen to it, now via a playlist on my phone. So I thought I'd share, in case you'd fancy some older songs too ☺️
music.youtube.com/playlist?lis...
Thea asked what I want for Christmas, and I really want cute clothing & accessories that reflect my identity.
I'd particularly like to support disabled & spoonie run small businesses here in the UK, so feel free to tag your favourites (self recs are more than welcome).
Thea asked what I want for Christmas, and I really want cute clothing & accessories that reflect my identity.
I'd particularly like to support disabled & spoonie run small businesses here in the UK, so feel free to tag your favourites (self recs are more than welcome).