Amy Beumer
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amybeumer.bsky.social
Amy Beumer
@amybeumer.bsky.social
470 followers 120 following 52 posts
MBC advocate and patient, microbiologist, educator, nature lover, gardener, reader, and feminist. She/her/hers.
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Miss Gwen so much. Was just thinking of her yesterday and our chat.
Today would have been Gwen’s birthday. She was stolen from us by MBC.
One year ago, on a sunny afternoon before the last session of #SABCS23, I stood on this balcony chatting with patient and advocate Gwen Manchion, who was stolen by MBC in the interim. This is why we do what we do.
Reposted by Amy Beumer
It's that time of the month again!
Do you love mail...fun mail?! Sign ups are open TODAY for our September Sunshine & Rainbows. 🌈

RSVP through the link in our bio 💌

#mbc #stage4needsmore #bcsm #busylivingwithmets #bccww
Reposted by Amy Beumer
non-Governmental research funding is becoming more important every day. @metavivor.bsky.social received almost double the usual number of letters of intent last week. We need our supporters to be generous this year so we can fund promising research!
Echoing what Stacey said.
Very concerned. And with the removal of information on health disparities and anything on health of the LGBTQ community.
As an editor and as an author this concerns me greatly. We should all be concerned.
Reposted by Amy Beumer
REMINDER: ACE Meeting on cancer vaccines today 1pmPT / 4pmET. Join us to hear from advocate & ACE member Judy Fitzgerald as she shares her experience as an advocate on current vaccine trials. As always presentation will be short so bulk of the time can be spent on Q&A / discussion #OncoSky #Advocacy
Tumor board Tuesday!! HR+ MBC! Looking forward to it @dr-rshatsky.bsky.social! #bcsm
Hello all, wanted to let you know about a fantastic interactive learning opportunity! This Tuesday the 14th my lovely fellow and I will be presenting Tumor board Tuesday #TBT about new developments in HR+ MBC! It will be 5pm pacific, 8pm eastern! #bcsm #OncSky #CanSky #MedSky #breastcancer #MBC
Reposted by Amy Beumer
Happy solstice ☀️
Reposted by Amy Beumer
It’s a privilege to be part of this meaningful work!
The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project.
@therightdose.bsky.social
@oncoalert.bsky.social
#bcsm
#DoseOptimization
#QoL
Thank you- just an other worldly view, hard to take a bad picture heh.
Home sweet home and an awesome sunset in flight.
Reposted by Amy Beumer
To build on the progress shared at #SABCS24 for triple-positive MBC ( #PATINA), when treatments stop working, is it the HER2 or HR component driving resistance? Need a biomarker! Patients want the most mileage from every treatment!

PS: Finally, +++ is being treated differently from HER2+/HR–.
Reposted by Amy Beumer
Was great to talk to @janicetnbcmets.bsky.social about this a couple days ago —> higher doses are not always better
✨ figuring out the best fit for our pts benefits those who experience a cancer diagnosis, oncologists, as well as pharma companies. Everyone wins with this knowledge!

#bcsm #SABCS24
We patient advocates, who are volunteering our limited time (heck, we all have life shortening MBC!) CAN make a difference. But we need to oncology research community to get on board and helps! @The_Right_Dose #SABCS24 #bcsm
I did not hear anyone say “grade 5 adverse event” and for that I am grateful.
Reposted by Amy Beumer
Hot of the press from @proteuspros - an infographic explaining the value of PROs!
Note - they need to start as parr of the clinical encounter to benefit patients and society.
tinyurl.com/3m594fhk
Reposted by Amy Beumer
Spent 90 mins on the #SABCS24 stage, interjecting the advocacy perspective in "From the Trenches" yesterday. It was these voices, and so many others not pictured, that I channeled. Grateful to have them by my side literally & figuratively 💗
Love when MBC, the kind of breast cancer that kills, gets 12 minutes in a 90 minute presentation on what to bring back to the clinic. We’re flying and skipping audience questions. #bcsm #SABCS24
There is no “good risk” only lower risk. There is no good DCIS. Need to talk about absolute risk as well. @coffeemommy.bsky.social #bcsm
@coffeemommy.bsky.social giving nuance to a conversation about patient treatment on Monday morning. Patients do not live in a utopia and we are not a monolith! #bcsm #sabcs24