Author | Lightnews

Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 1h

Worth clarifying that there is no cure. The treatments (which can be hard to access & are mostly non PBS) help with symptoms for things like POTS (dysautonomia), MCAS but there is nothing to return us to the way we were before.

Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 9h

Australia: Nurse among patients calling for better access to long COVID treatment

Former ICU nurse Julie Mirtschen, 43, from Port Macquarie, developed long COVID after back-to-back flu and COVID infections in March 2020.

Researchers say she’s among up to 870,000 Australians living with long COVID.

Long COVID patients seeking help 'let down by the system'

Patients are calling for better access to long COVID care after the closure of one of the country's last public clinics.

www.abc.net.au

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Reposted by Liz (TheLongCovidNurse)

Patti Olivier EPSTEIN FILES NEVER FORGET @patti3333.bsky.social · 9h

Halloween from
Down Under

I love Kangaroos
Just had to share
(sound up) 🎃🤣

100 590 1.5K

Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 2h

I’m lucky that my GP believed me from D1, we’ve learned together & she’s never pushed exercise other than my EP plan. She was v tenacious & got me into a POTS specialist (privately) who saw me within a month of my long covid symptoms starting. Without the 2 of them, my position would be much worse.

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 3h

Absolutely but the lack of help for people who can’t afford private care is criminal.

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 19h

My exercise physiologist said that was the advice ~15 months ago (my last infection). But there is no awareness of this amongst most of the public thanks to the ‘just a cold’ forced narrative.

Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 22h

Some of the articles in this thread still mention the dreaded CBT but at least there is caution against exercise & activity.

Long Covid Kids @longcovidkids.bsky.social · 1d

‘Guidance from the NHS emphasises that your symptoms could worsen if you've been under stress or if you're more physically active. It adds that people battling long-Covid should "not start exercising again before talking to a GP or specialist"’

www.dailyrecord.co.uk/lifestyle/he...

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 1d

I think that’s being kind. They must be awful now with less chocolate in them.

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 1d

I grew up with penguins but eating a Tim Tam means that penguins are never the same again, they are below ordinary in comparison.

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 1d

Larry wins

Larry the Cat @number10cat.bsky.social · 1d

The pariah formerly known as Prince

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 1d

The two of them are dreadful & are welcome to spend time with each other but NOT at the taxpayers expense.

Twang 🍉 @twangmaker.bsky.social · 2d

It's a sad day that corrupt politicians are now allowed to fly to Gina Rinehart's lavish birthday party, and then claim it as a travel expense.

Pauline Hanson was a special guest of Gina.

We can only assume that Gina must be supporting One Nation.

www.theguardian.com/australia-ne... #auspol

Watchdog clears Pauline Hanson’s use of taxpayer funds to attend Gina Rinehart’s birthday party

Hanson’s office cites meetings with industry representatives and a One Nation party executive who later changed his name to Aussie Trump

www.theguardian.com

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 1d

Oh that’s no good! Perhaps you’ll be able to find a good one 2nd hand?

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 1d

Ooh haven’t heard of that.

Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 2d

B*stards make it difficult. I’m hoping Tidal will be good, planning on giving it a try at some point. Meanwhile I have CDs 😁

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 2d

Unsurprising that it’s these two countries.

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 2d

No one with credibility agrees with Dr Oz

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 2d

Beautiful picture of my home tow-un. Rarely does it look so good.

Jay Banbrooke @nbeliza.bsky.social · 17d

Currently moored in Kidderminster on the Staffordshire and Worcestershire canal. Anyone who’s travelled here will recognise this view, but with these wonderful autumn colours I just couldn’t resist!
#photography #boatlife
#ukcanals #canal #narrowboat
#KeepCanalsAlive

Kidderminster parish church reflection in canal water surrounded by autumnal colours

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 2d

Kidderminster must be the most obscure venue for an Australian best.

Hypocaust @hypocaust.bsky.social · 6d

Best ODI figures by an Australian woman:

7-18 Alana King v SA at Indore, today
7-22 Ellyse Perry v ENG at Canterbury, 2019
7-24 Shelley Nitschke v ENG at Kidderminster, 2005

#CWC25
icc-cricket.com/tournaments/...

Australia vs. South Africa | ICC

icc-cricket.com

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 2d

There is very little clinical care available unless you can afford to pay for it. Even less care available to those with severe & very severe illness. The people most ill get least help.

Emerge Australia @emergeaustralia.bsky.social · 2d

Mark: The critical importance of high quality research and translation to clinical care.

Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 2d

Thanks for taking the time to write such an informative thread @emergeaustralia.bsky.social I definitely check out the recording when it’s available!

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 2d

Epic & essential thread for those navigating 🪫🪫🪫 MECFS, long covid & associated conditions in Australia ⬇️

Emerge Australia @emergeaustralia.bsky.social · 2d

Welcome to Emerge Australia’s #mecfs and #longCOVID Action Forum event in Parliament House, Canberra, today. Our event, “From stigma to science: educating for change” is live streamed. You can register here: us02web.zoom.us/meeting/regi...

We will be live posting on this thread. 🧵

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 2d

I’m fortunate that income protection (for now) means I don’t have to apply for DSP, it is however not much more than DSP & things are tight. NDIS would probably help my quality of life but cognitively I don’t have capacity to complete the forms.

Emerge Australia @emergeaustralia.bsky.social · 2d

The NDIS and DSP are not designed to be navigated by people with energy limited conditions. The paperwork and decision making is often insurmountable.

Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 5d

Connections
Puzzle #869 FAIL
🟪🟨🟨🟨
🟩🟩🟩🟩
🟪🟨🟨🟨
🟪🟦🟨🟨
🟨🟨🟨🟪

As much as I enjoy Connections it takes inspiration from one of my favourites Only Connect hosted by the superb @vcorenmitchell.bsky.social & here is the proof.

Top line of words from NYT Connections
Words in four boxes reading Only Connect Olive Branch

Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 8d

But yes generally smart devices aren’t much help to most, although for some they do help with accessibility more than older forms of automation.

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 8d

My bedroom AC was connected to my modem until NBN upgrade & it was great because I could switch on AC when I left work & room was cool by the time I got home. Post NBN couldn’t make it connect to the new modem & currently I’m not working anyway so the remote does exactly what I need it to.

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 8d

I spent ages trying to connect my air fryer to the internet until I realised it (connection not the air fryer) didn’t serve any purpose!

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