Lyle W. Ostrow MD PhD
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lyleostrow.bsky.social
Lyle W. Ostrow MD PhD
@lyleostrow.bsky.social
570 followers 320 following 51 posts
Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.
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Reposted by Lyle W. Ostrow MD PhD
I'm so excited to see this Perspective with @jasonsynaptic.bsky.social out in Neuron! About 8% of our genome is made up of the remnants of LTR-containing retroelements - here, Jason and I explore the activities of retroTEs in neurological health and disease!
authors.elsevier.com/c/1lzTx3BtfH...
authors.elsevier.com
While it wouldn't seem surprising if this is happening, the recent Nikkei "investigation" article about it (below) is un-sourced and filled with anonymous quotes. I tried searching myself and only found those same couple papers on arxiv, none on medrxiv or biorxiv. asia.nikkei.com/Business/Tec...
'Positive review only': Researchers hide AI prompts in papers
Instructions in preprints from 14 universities highlight controversy on AI in peer review
asia.nikkei.com
Listener effort measures clinically meaningful change of dysarthria in amyotrophic lateral sclerosis url:https://academic.oup.com/braincomms/article/doi/10.1093/braincomms/fcaf232/8161195 #BetterTogether #EndALS
Reposted by Lyle W. Ostrow MD PhD
we're crowd-sourcing a searchable repository of tangible benefits stemming from federally-funded research. Come enjoy the great stories; or send in an idea; or volunteer to join the team.

publicusaresearchbenefits.com

please share and re-share so we get more great stories in there!
Searchable database of tangible benefits that federally-funded research gave us.
A crowd-sourced site. Health and Well-being. National Security. Prosperity.
publicusaresearchbenefits.com
Reposted by Lyle W. Ostrow MD PhD
When you join the National ALS Registry, you can also join the National ALS Biorepository. Joining is a meaningful way for people with ALS to help in the search for answers. For more information visit cdc.gov/als

#ALSRegistry
#ALSBiorepository
#ALS
Reposted by Lyle W. Ostrow MD PhD
Nonprofit agencies that assist ALS patients and support research sent a letter to the bipartisan ALS Congressional Caucus after a leaked proposed budget memo from the Health and Human Services Department called for defunding the registry and a biorepository with thousands of lab specimens.
Proposal would defund ALS registry for disease that afflicts veterans at higher rate than general public
Advocates for patients with amyotrophic lateral sclerosis — a fatal condition known as Lou Gehrig’s disease — urged lawmakers to keep funding the National ALS Registry that serves as a centralized dat...
www.stripes.com
This exciting resolution from Rutgers University Senate is exactly the kind of model I think higher ed needs: a mutual defense pact of, in this case, Big 10 schools. They call for member institutions to create a joint defense fund and make resources available to any member institution under attack.
We own several games from www.neurdgames.com and love them all. I just ordered 2 copies of this new one and can't wait to play!
I just checked the wayback machine. It looks like that goofy icon of a flag with the wrong number of white "stars" and stripes has actually been used on these websites for many years. Still seems wrong though.
Reposted by Lyle W. Ostrow MD PhD
URGENT: Protect #ALS Research Funding! Congress may slash CDMRP funding in the CR, halting critical ALS research. ALS cases could rise 70% by 2030, & veterans face 2x the risk. We must act NOW! Tell your Senators to protect funding! als-ny.org/the-threat-t... #ALSResearch
Reposted by Lyle W. Ostrow MD PhD
We are very concerned about the proposed budget cuts at the NIH and the DOD that could impact ALS research. Our Board of Trustees and staff are taking to Capitol Hill on Wednesday to urge Congress to continue to fund ALS research.
Reposted by Lyle W. Ostrow MD PhD
Thank you for the quick response! He comes home next Friday for Spring Break and will be in touch and send you his CV then.
Do you have Summer internships for university students? Our son is an Environmental Geoscience major, in his 3rd year at College of Wooster.
Here is a screengrab from Research!America with some of the same info. www.researchamerica.org/marys-letter...
Entire CDMRP FY25 budget may be in jeopardy. Please see below and spread the word. bsky.app/profile/alsa...
@lyleostrow.bsky.social
Lyle Ostrow on fb has spelled out a real and imminent threat to DOD CDMRP research funding for ALS (a big deal). Please read and act. Nobody knows more about this program and the good it does than Lyle.
Please read this if you want to understand more about how indirect rates are set, and why indirect costs are critical to research. Then, sign the petition linked in the article. #ScienceMatters #BetterTogether