Lupus UK
@lupusuk.bsky.social
83 followers 27 following 140 posts
The national registered charity supporting people with #lupus
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Please consider giving what you can this #LupusAwarenessMonth and donate to our JustGiving page, or make a donation through our website.

We are grateful for your support! 🫶

JustGiving: http://bit.ly/4ok2yHR
Online Donation Form:
Online Donation form | Lupus UK
bit.ly
#Lupus is an unpredictable condition that can turn everyday life into a challenge, but together, we can make sure nobody faces it alone. 

Every donation to Lupus UK helps fund research, provide support, and brings hope to thousands of families. 💜
Did you know that 50% of people with #lupus report symptoms of headaches or migraines?

For more information on symptoms of lupus, visit www.lupusuk.org.uk/the-symptoms/

Do you experience headaches or migraines?  

#LupusAwarenessMonth #KnowLupus #MakeLupusVisible #SLE
#Headaches #Migraines
Reposted by Lupus UK
From Wales to Australia! 🌍 We were thrilled to have Chloe Bayliss join our group meeting and share her inspiring #lupus journey 💜 Her story featured in our report for @lupusuk.bsky.social’s magazine — and now she has a copy all the way in Australia! 🇦🇺 So exciting! #Cardiff
You can read the full article here: https://lupusuk.org.uk/2025/10/13/my-lupus-story-by-steph/

Thank you, Steph for sharing your story this #LupusAwarenessMonth!

#Lupus #SLE
“While I wouldn’t wish this experience on anyone, lupus taught me a powerful lesson: even on my weakest days, I am stronger than I ever imagined."

This #LupusAwarenessMonth, Steph has shared her #lupus story, expressing the difficulty she experienced receiving a lupus diagnosis.
Come and join the Dorset Lupus Group for our next Coffee and Chat meeting on Saturday 11th October from 10:30am to 12:00pm.

We are meeting at Haskins Garden Centre, Longham, Ferndown BH22 9DG

Everyone is welcome to join! 💜
Thank you so much!! 💜💜🙌
Reposted by Lupus UK
We’ve only gone and done it!? We’ve raised over £1000 in just 5 streams for @lupusuk.bsky.social with 14 more streams to go!

Thank you @strakerplays.bsky.social for collab streaming with me today. I appreciate you so much!

www.justgiving.com/page/lupusaw...
Whether you're newly diagnosed, managing a flare, or supporting a loved one, you are not alone. We encourage you to:

• Join a regional group
• Share your story to help others feel seen and heard
• Explore resources and consider accessing support from Mind, YoungMinds, Samaritans and SANE.

#LupusUK
Living with #lupus can mean navigating uncertainty, pain, fatigue, and often invisibility. These challenges can lead to anxiety, depression, and emotional distress.
Today is #WorldMentalHealthDay, which raises awareness about mental health and considers how, together, we can help improve everyone's #MentalHealth.
📣Scotland, we want to hear from you!

If you live in Scotland and have Rheumatoid Arthritis, Psoriatic Arthritis/Psoriasis, Lupus, Axial Spondyloarthritis, or Inflammatory Bowel Disease, please take part in NRAS new survey to help shape better care and services. 💜

👉 nras.org.uk/scottishsurvey
To mark #LupusAwarenessMonth, the Wellcome Collection are holding a free drop-in event 'Out of the Stores: Lupus Uncovered.'

The event will take place on Saturday 11th October, 1:30pm – 3:30pm at Viewing Room, Wellcome Collection (183 Euston Road, London NW1 2BE). 

Everyone is welcome! 💜
For one year only, you can get 5 mystery packs of Christmas cards for £10!

Get yours now at lupusuk.org.uk/store/Myster... 💜
Did you know that 77% of people with #lupus report symptoms of joint pain?

For more information on the symptoms of lupus, visit www.lupusuk.org.uk/the-symptoms/

Do you experience joint pain?  

#LupusAwarenessMonth #KnowLupus #JointPain #Autoimmune #SLE #LupusUK
We are pleased to announce guest speaker Professor Ian Bruce, who will be talking about the latest information and developments in lupus, and Occupational Therapist Emma Henry, who will be talking about Occupational therapy and lupus with a focus on self-management and fatigue.
Less than a week to go until our Lupus Information Day in Belfast, and tickets are going fast! 

You can register for your free ticket by visiting https://www.eventbrite.co.uk/e/lupus-information-day-2025-belfast-tickets-1581665587349

If you have any questions, please contact [email protected]
This #LupusAwarenessMonth, CJ has shared his experience receiving a diagnosis of #lupus as a child, and the impact it has had on his organs. 

You can read CJ's full article here: https://lupusuk.org.uk/2025/10/03/my-lupus-experience-cj/

Thank you CJ, for sharing your story! 💜
Whatever you decide, be sure to tag our socials or email photos and videos to [email protected]

What activities will you be doing? 💜
Wear purple throughout the month to raise awareness and spark conversation about lupus.
Complete some mindfulness colouring and share your artwork with us on social media!
Share your story with us to help raise awareness, or spread awareness by resharing our content.
Pre order some physical copies of our Lupus Awareness Month poster for 2025 and help spread the word around your local community!

💜https://lupusuk.org.uk/order-awareness-supplies/
Complete any fundraising challenge, such as Lunch 4 Lupus.

💜 https://lupusuk.org.uk/lunch4lupus/