Lupus UK
@lupusuk.bsky.social
The national registered charity supporting people with #lupus
If you're a Lupus UK member, you'll receive your membership renewal letter soon (if you haven't already)!
Alternatively, you can renew your membership online at https://lupusuk.org.uk/join-lupus-uk/ 📱💻
Alternatively, you can renew your membership online at https://lupusuk.org.uk/join-lupus-uk/ 📱💻
December 13, 2025 at 11:01 AM
If you're a Lupus UK member, you'll receive your membership renewal letter soon (if you haven't already)!
Alternatively, you can renew your membership online at https://lupusuk.org.uk/join-lupus-uk/ 📱💻
Alternatively, you can renew your membership online at https://lupusuk.org.uk/join-lupus-uk/ 📱💻
One Mission, 5 aims & 10 Year Goals. Read about your new Lupus UK Strategy at https://lupusuk.org.uk/strategy/
December 12, 2025 at 4:30 PM
One Mission, 5 aims & 10 Year Goals. Read about your new Lupus UK Strategy at https://lupusuk.org.uk/strategy/
Looking to purchase from our shop? Please place any orders by Thursday 18th December. Orders placed after 2pm on this date will be sent out on Friday 2nd January 2026.
Our mystery pack of 5 Christmas Cards are still available for purchase!
Visit https://lupusuk.org.uk/store/ for more
Thank you 💜
Our mystery pack of 5 Christmas Cards are still available for purchase!
Visit https://lupusuk.org.uk/store/ for more
Thank you 💜
December 12, 2025 at 2:03 PM
Looking to purchase from our shop? Please place any orders by Thursday 18th December. Orders placed after 2pm on this date will be sent out on Friday 2nd January 2026.
Our mystery pack of 5 Christmas Cards are still available for purchase!
Visit https://lupusuk.org.uk/store/ for more
Thank you 💜
Our mystery pack of 5 Christmas Cards are still available for purchase!
Visit https://lupusuk.org.uk/store/ for more
Thank you 💜
Lupus UK Head Office will be closed from 24th December - 2nd January 2026.
Helpline and support services will resume from 5th January.
You can still find information at www.lupusuk.org.uk, or please contact 111 or 999 If you require immediate support during this time.
Enjoy the festive period! 💜
Helpline and support services will resume from 5th January.
You can still find information at www.lupusuk.org.uk, or please contact 111 or 999 If you require immediate support during this time.
Enjoy the festive period! 💜
December 11, 2025 at 3:30 PM
Lupus UK Head Office will be closed from 24th December - 2nd January 2026.
Helpline and support services will resume from 5th January.
You can still find information at www.lupusuk.org.uk, or please contact 111 or 999 If you require immediate support during this time.
Enjoy the festive period! 💜
Helpline and support services will resume from 5th January.
You can still find information at www.lupusuk.org.uk, or please contact 111 or 999 If you require immediate support during this time.
Enjoy the festive period! 💜
This #InternationalVolunteerDay, we would like to say a massive THANK YOU to all our amazing volunteers who dedicate their time to help our work supporting people with #lupus. 💜
December 5, 2025 at 5:10 PM
This #InternationalVolunteerDay, we would like to say a massive THANK YOU to all our amazing volunteers who dedicate their time to help our work supporting people with #lupus. 💜
Did you know, we provide ReciteMe accessibility and language support online?
You can access a customisable toolbar on our website to read and understand content in a way that suits your needs.
You can access a customisable toolbar on our website to read and understand content in a way that suits your needs.
December 4, 2025 at 2:30 PM
Did you know, we provide ReciteMe accessibility and language support online?
You can access a customisable toolbar on our website to read and understand content in a way that suits your needs.
You can access a customisable toolbar on our website to read and understand content in a way that suits your needs.
Have you seen our birthday video celebrating 35 Years of Lupus UK? 💜
Watch the full video on our YouTube channel here: https://youtu.be/F432b3u4Ju8?si=fKukFsNYrusg6Rz9
Watch the full video on our YouTube channel here: https://youtu.be/F432b3u4Ju8?si=fKukFsNYrusg6Rz9
December 1, 2025 at 2:30 PM
Have you seen our birthday video celebrating 35 Years of Lupus UK? 💜
Watch the full video on our YouTube channel here: https://youtu.be/F432b3u4Ju8?si=fKukFsNYrusg6Rz9
Watch the full video on our YouTube channel here: https://youtu.be/F432b3u4Ju8?si=fKukFsNYrusg6Rz9
Thank you to the wonderful team at Guy's Hospital for holding an awareness stand during Lupus Awareness Month last month! 💜
November 28, 2025 at 4:45 PM
Thank you to the wonderful team at Guy's Hospital for holding an awareness stand during Lupus Awareness Month last month! 💜
During the colder months, viruses like flu, COVID-19, and respiratory syncytial virus (RSV) circulate more widely.
The NHS is offering free vaccines this winter to help protect those most at risk.
For more information on winter vaccinations, read our article at: https://bit.ly/4impV1O
The NHS is offering free vaccines this winter to help protect those most at risk.
For more information on winter vaccinations, read our article at: https://bit.ly/4impV1O
November 21, 2025 at 2:02 PM
During the colder months, viruses like flu, COVID-19, and respiratory syncytial virus (RSV) circulate more widely.
The NHS is offering free vaccines this winter to help protect those most at risk.
For more information on winter vaccinations, read our article at: https://bit.ly/4impV1O
The NHS is offering free vaccines this winter to help protect those most at risk.
For more information on winter vaccinations, read our article at: https://bit.ly/4impV1O
The 2026 Edgar Stene Essay Prize is open now! Participate to share your story of family life with lupus.
You can find the competition theme, rules, and how to enter on our website here: https://lupusuk.org.uk/2025/11/20/edgar-stene-prize/
You can find the competition theme, rules, and how to enter on our website here: https://lupusuk.org.uk/2025/11/20/edgar-stene-prize/
November 20, 2025 at 5:30 PM
The 2026 Edgar Stene Essay Prize is open now! Participate to share your story of family life with lupus.
You can find the competition theme, rules, and how to enter on our website here: https://lupusuk.org.uk/2025/11/20/edgar-stene-prize/
You can find the competition theme, rules, and how to enter on our website here: https://lupusuk.org.uk/2025/11/20/edgar-stene-prize/
Aged 11-18 years and in full-time mainstream education? Living with a long-term health condition like Lupus?
Complete the INSCHOOL Needs Assessment survey to help improve the school lives of other young people with health conditions - and be entered to win a £50 GiftPay voucher!
Complete the INSCHOOL Needs Assessment survey to help improve the school lives of other young people with health conditions - and be entered to win a £50 GiftPay voucher!
November 19, 2025 at 4:08 PM
Aged 11-18 years and in full-time mainstream education? Living with a long-term health condition like Lupus?
Complete the INSCHOOL Needs Assessment survey to help improve the school lives of other young people with health conditions - and be entered to win a £50 GiftPay voucher!
Complete the INSCHOOL Needs Assessment survey to help improve the school lives of other young people with health conditions - and be entered to win a £50 GiftPay voucher!
This year for our 35th Birthday, we are asking you to Pick & Mix our fundraising campaigns and support us by raising vital funds for EVERYONE in our community living with lupus or waiting for a diagnosis. 💜
November 15, 2025 at 12:01 PM
This year for our 35th Birthday, we are asking you to Pick & Mix our fundraising campaigns and support us by raising vital funds for EVERYONE in our community living with lupus or waiting for a diagnosis. 💜
November 14, 2025 at 12:20 PM
Dr Yuzaiful Yusof, Associate Professor and Consultant Rheumatologist, is taking on the ultimate challenge of The Great World Race (7 Marathons, 7 Continents, 7 days) to raise vital funds for Lupus UK and Sjögren’s UK! 🌍
Support Dr Yusof here: https://gvwhl.com/VZWJS 💜
Support Dr Yusof here: https://gvwhl.com/VZWJS 💜
Rheumatologist tackling the Great World Race (7 Marathons on 7 Continents in One Week) for Lupus UK and Sjogren’s UK
Hello. My name is Yuz. I am Associate Professor and Consultant Rheumatologist at University of Leeds and Leeds Teaching Hospitals NHS Trust, United Kingdo…
gvwhl.com
November 8, 2025 at 2:02 PM
Dr Yuzaiful Yusof, Associate Professor and Consultant Rheumatologist, is taking on the ultimate challenge of The Great World Race (7 Marathons, 7 Continents, 7 days) to raise vital funds for Lupus UK and Sjögren’s UK! 🌍
Support Dr Yusof here: https://gvwhl.com/VZWJS 💜
Support Dr Yusof here: https://gvwhl.com/VZWJS 💜
For one year only, you can purchase 5 mystery packs of #Christmas cards for £10 over on our shop!
Get yours now at https://lupusuk.org.uk/store/Mystery-Pack-of-5-Christmas-Cards-p779456958 💜
Order before December 12th to receive your packs on time and avoid disappointment! ✉️
#ChristmasCards
Get yours now at https://lupusuk.org.uk/store/Mystery-Pack-of-5-Christmas-Cards-p779456958 💜
Order before December 12th to receive your packs on time and avoid disappointment! ✉️
#ChristmasCards
November 7, 2025 at 12:30 PM
For one year only, you can purchase 5 mystery packs of #Christmas cards for £10 over on our shop!
Get yours now at https://lupusuk.org.uk/store/Mystery-Pack-of-5-Christmas-Cards-p779456958 💜
Order before December 12th to receive your packs on time and avoid disappointment! ✉️
#ChristmasCards
Get yours now at https://lupusuk.org.uk/store/Mystery-Pack-of-5-Christmas-Cards-p779456958 💜
Order before December 12th to receive your packs on time and avoid disappointment! ✉️
#ChristmasCards
Come and join the Leeds Lupus Group for our next Coffee and Chat meeting on Saturday 8th November from 12:00pm to 2:00pm.
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
November 4, 2025 at 10:01 AM
Come and join the Leeds Lupus Group for our next Coffee and Chat meeting on Saturday 8th November from 12:00pm to 2:00pm.
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
Celebrating 35 Years of Lupus UK. 💜
Full video out 14.11.25
Full video out 14.11.25
November 3, 2025 at 4:14 PM
Celebrating 35 Years of Lupus UK. 💜
Full video out 14.11.25
Full video out 14.11.25
Today marks the final day of #LupusAwarenessMonth
Thank you to everyone who took part, whether by learning about #lupus, fundraising, resharing content or showing support, your involvement has made a real difference. 💜
Thank you to everyone who took part, whether by learning about #lupus, fundraising, resharing content or showing support, your involvement has made a real difference. 💜
October 31, 2025 at 5:30 PM
Today marks the final day of #LupusAwarenessMonth
Thank you to everyone who took part, whether by learning about #lupus, fundraising, resharing content or showing support, your involvement has made a real difference. 💜
Thank you to everyone who took part, whether by learning about #lupus, fundraising, resharing content or showing support, your involvement has made a real difference. 💜
You may have seen “CAR-T cell therapy” in the news recently as a potential new treatment for lupus. Want to learn more? Watch our 3-part series over on YouTube!
- What is lupus?
- What Is CAR T-Cell Therapy?
- Clinical Trials with CAR T-Cell Therapy
Watch here: http://bit.ly/3Wh6rRX
#Lupus #CarT
- What is lupus?
- What Is CAR T-Cell Therapy?
- Clinical Trials with CAR T-Cell Therapy
Watch here: http://bit.ly/3Wh6rRX
#Lupus #CarT
October 26, 2025 at 12:01 PM
You may have seen “CAR-T cell therapy” in the news recently as a potential new treatment for lupus. Want to learn more? Watch our 3-part series over on YouTube!
- What is lupus?
- What Is CAR T-Cell Therapy?
- Clinical Trials with CAR T-Cell Therapy
Watch here: http://bit.ly/3Wh6rRX
#Lupus #CarT
- What is lupus?
- What Is CAR T-Cell Therapy?
- Clinical Trials with CAR T-Cell Therapy
Watch here: http://bit.ly/3Wh6rRX
#Lupus #CarT
Invisible disabilities are conditions not immediately obvious to others and can often go unnoticed. Even though you might not see them, they can significantly impact a person's life.
October 25, 2025 at 6:02 PM
Invisible disabilities are conditions not immediately obvious to others and can often go unnoticed. Even though you might not see them, they can significantly impact a person's life.
Did you know that 35% of people with #lupus report symptoms of hairloss?
For more information on symptoms of lupus, visit www.lupusuk.org.uk/the-symptoms/
Do you experience hairloss?
#LupusAwarenessMonth #KnowLupus #MakeLupusVisible #SLE #Hairloss
For more information on symptoms of lupus, visit www.lupusuk.org.uk/the-symptoms/
Do you experience hairloss?
#LupusAwarenessMonth #KnowLupus #MakeLupusVisible #SLE #Hairloss
October 23, 2025 at 3:30 PM
Did you know that 35% of people with #lupus report symptoms of hairloss?
For more information on symptoms of lupus, visit www.lupusuk.org.uk/the-symptoms/
Do you experience hairloss?
#LupusAwarenessMonth #KnowLupus #MakeLupusVisible #SLE #Hairloss
For more information on symptoms of lupus, visit www.lupusuk.org.uk/the-symptoms/
Do you experience hairloss?
#LupusAwarenessMonth #KnowLupus #MakeLupusVisible #SLE #Hairloss
Come and join the Leeds Lupus Group for our next Coffee and Chat meeting on Saturday 8th November from 12:00pm to 2:00pm.
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
October 23, 2025 at 9:01 AM
Come and join the Leeds Lupus Group for our next Coffee and Chat meeting on Saturday 8th November from 12:00pm to 2:00pm.
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
ENCA, the Global foundation for Children, and families, with Juvenile rheumatic diseases, is hosting a free online event on important topics for patients and families affected by juvenile rheumatic conditions.
For more information and to sign up, visit www.encanetwork.org/event
For more information and to sign up, visit www.encanetwork.org/event
October 21, 2025 at 11:02 AM
ENCA, the Global foundation for Children, and families, with Juvenile rheumatic diseases, is hosting a free online event on important topics for patients and families affected by juvenile rheumatic conditions.
For more information and to sign up, visit www.encanetwork.org/event
For more information and to sign up, visit www.encanetwork.org/event
#Musculoskeletal (MSK) conditions like #lupus affect people at every age and hit hardest in the most deprived communities. (1/3)
October 20, 2025 at 2:31 PM
#Musculoskeletal (MSK) conditions like #lupus affect people at every age and hit hardest in the most deprived communities. (1/3)
Come and join the Leeds Lupus Group for our next Coffee and Chat meeting on Saturday 8th November from 12:00pm to 2:00pm.
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
October 18, 2025 at 9:01 AM
Come and join the Leeds Lupus Group for our next Coffee and Chat meeting on Saturday 8th November from 12:00pm to 2:00pm.
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜