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Donald Thomas, MD @lupusencyclopedia.bsky.social · 3d

Meeting with like-minded people to improve lives of patients at @ACRheum #ACR25 is wonderful #Sjogrens #lupus #SLE

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Tiffany @tiffanyandlupus.bsky.social · 3d

Absolutely adore @ireneblanco.bsky.social, such an amazing person and one of my favorite rheumatologists. Thank you for stopping by & bringing your mentee who also happens to be my old rheumy by the lupus community booth at #ACR25!

#LADAorg #LupudChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social

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Tiffany @tiffanyandlupus.bsky.social · 3d

So excited about Dr. Daniel Whibley’s presentation at #ACR25 on Cognitive Dysfunction and how it Manifests in those living w/Fibromyalgia. He shared several ways to conduct baseline cognitive tests.

cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat

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Tiffany @tiffanyandlupus.bsky.social · 3d

Absolutely thrilled to catch this #ACR25 session on the Cognitive Function in Rheumatic Diseases. The first presentation was given by, patient advocate, Mary Alore sharing her experience with brain fog.

Cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat

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Tiffany @tiffanyandlupus.bsky.social · 3d

Dr. Jillian Rose also shared some great analogies for what NOT talking about sex health is like!

🔸…it’s like treating half the disease.
🔸…is like measuring function without asking about QoL (quality of life)

See images for reference ↴ #ACR25

cc: @ladaorg.bsky.social @lupuschat.bsky.social

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Tiffany @tiffanyandlupus.bsky.social · 4d

Surprise @lupuschat.bsky.social spotting in Dr. Martha Delgado’s #ACR25 session! An FYI, #LupusChat gave a presentation at the NIH NIAMS annual clinical research event in both 2019 and 2024 on the importance of utilizing digital tools to build communities and advance health literacy. #LADAorg

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Rheum Cat @rheumcat.bsky.social · 4d

Can’t get better than this start to your plenary:

“Lupus nephritis is bad.”

#ACR25

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Tiffany @tiffanyandlupus.bsky.social · 4d

Up early at #ACR25 sitting in on sessions about sexual & reproductive health and rheumatic conditions. Sessions are being led by Dr. Lisa Sammaritano, Dr. Jillian Rose, and Patient Advocate extraordinaire, Monique Gore-Massy. #LADAorg #LupusChat

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Tiffany @tiffanyandlupus.bsky.social · 4d

Patient experience researcher & advocate extraordinaire, Monique Gore-Massy gave a great presentation at #ACR25 on the importance of sexual health being an essential part of patient care! #LADAorg #LupusChat

cc: @ladaorg.bsky.social @lupuschat.bsky.social

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Tiffany @tiffanyandlupus.bsky.social · 4d

Dr. Jillian Rose is giving a remarkably informative presentation on Sexual Health & Rheumatic conditions.

🔹 90% of women w/SLE have reduced arousal

🔹56% of women w/Sjogren’s experience vaginal dryness

🔹89% of men w/Systemic Sclerosis experience erectile dysfunction

#ACR25 #LADAorg #LupusChat

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Tiffany @tiffanyandlupus.bsky.social · 4d

If you see me at #ACR25 ask me for a #LupusChat sticker!

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Tiffany @tiffanyandlupus.bsky.social · 4d

Dr. Martha Delgado gave a great #ACR25 presentation focused on improving patient participation in clinical trials in Latino communities. She shared barriers for both patients & providers as well current efforts to remove barriers.

cc: @ladaorg.bsky.social #LADAorg @lupuschat.bsky.social #LupusChat

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Tiffany @tiffanyandlupus.bsky.social · 5d

Spending some time in the Poster Hall at #ACR25! I’m excited to see the results of several studies as well as the Patient Prospectives posters.
#LADAorg #LupusChat

@ladaorg.bsky.social
@lupuschat.bsky.social

A multicolored archway designating a Hall of Posters. There are people walking under it

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 4d

#LADAorg is appreciative of our strong partnerships with our patient advocacy colleagues at the #Lupus Community Booth #2121 at #ACR2025. Kudos for collaborating to improve lives! @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @infusioncenter.bsky.social

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Mithu Maheswaranathan, MD @mithurheum.bsky.social · 5d

🆕 ACR 2025 Guidelines for Treatment of Systemic Lupus Erythematosus 🦋

#ACR25 #Lupus #RheumSky

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Tiffany @tiffanyandlupus.bsky.social · 5d

Representing @lupuschat.bsky.social at the lupus community booth at #ACR25 with @ladaorg.bsky.social! Stay tuned as I share updates on new and intriguing studies on lupus and rheumatic conditions!

Please visit our community booth in the Exhibit Hall at booth 2121! #LADAorg #LupusChat #ACR25

Two ladies standing in front of a lupus community booth

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 11d

We are excited to attend #ACR25 to network, learn and share our resources. Visit us at the #Lupus Community Booth # 2121. #PatientVoice
@lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @acr25.bsky.social @rheumepi.bsky.social @rheumcat.bsky.social

#LADAorg

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#LupusChat @lupuschat.bsky.social · Aug 28

Hey #LupusChat fam, please join us is wishing our Founder & CEO @tiffanyandlupus.bsky.social a very Happy Birthday!!! We are forever grateful for all you do for the community. You are a beacon of light and we appreciate you. We hope you have THE BEST day! 🎉🎂

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#LupusChat @lupuschat.bsky.social · Aug 25

🎂💜 Happy Birthday to our colleague & #LupusChat co-host @syncenerdcarly.bsky.social! 🥳 Thank you for advancing lupus research & always showing up for the community. We celebrate you today & every day! 🎉

a cartoon character from bob 's burgers is celebrating her birthday with her hands on her head .

Alt: a cartoon character from bob 's burgers is celebrating her birthday with her hands on her head .

media.tenor.com

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#LupusChat @lupuschat.bsky.social · Aug 4

Got SLE? 💜 Been on a biologic?
You could earn $150 for sharing your experience in a 90-min online lupus research interview!

Ages 21–55, no Lupus Nephritis.

Apply by TODAY Aug 8 👉 shorturl.at/GfJk5 #LupusChat

#LupusChat @lupuschat.bsky.social · Jun 15

Please join us in celebrating all the wonderful Dads and Father figures in our community and across the world. Happy Father's Day to you all!!

~The #LupusChat Team 💜

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Silvia Aguilera @silvia-aps.bsky.social · Jun 14

Michael #Highlights #LupusGPT developed by @lupuseurope.bsky.social, a new AI tool aimed for patients, who just won the PFMD “Made with Patients” award. Congratulations! 🥳
Find it here: lupusgpt.org

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Dr Rasu Shrestha @rasushrestha.bsky.social · Jun 14

✅ Meaningful patient collaboration X GenAI = real impact

Congratulations to #LupusGPT on winning the #MadeWithPatients Award 🏆 at #EULAR25

🔊LISTEN IN 👇🏽

@lupuseurope.bsky.social @lupuschat.bsky.social @lupusdnadoc.bsky.social @lupuswarrior69.bsky.social @lupus.org @disorderlupus.bsky.social

Lupus Europe @lupuseurope.bsky.social · Jun 12

🏆We’re thrilled to announce that hashtag

#LupusGPT has won the #MadeWithPatients Award 2025!

🌍A huge moment for Lupus Europe & the #lupus community —proving what’s possible through true patient collaboration.

Celebrating at #EULAR2025! Come join us at booth O15!

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Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · May 31

We need crosssector collaborations, public-private partnerships and robust basic, clinical and translational projects to identify biomarkers, better clinical trial methodologies, prevent complications, develop better dx measures and safer, >effective #lupus drugs and cures. @lupuschat.bsky.social

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Kristen Young @kristenyoung.bsky.social · May 26

Thrilled to have the opportunity to present our early research on identifying stereotypes for patients with SLE at #LUPUS2025 in Toronto. Leaving inspired and grateful for this outstanding community of scientists, clinicians, and patient partners.

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