Author | Lightnews

Lupus Europe @lupuseurope.bsky.social · 19h

🌟 The study, co-led by first authors Dr @go-daniel.bsky.social & Zoe Karakikla-Mitsakou (patient & General Secretary of Lupus Europe), with 🔝 Prof Laurent Arnaud & Lena Koskina, shows what’s possible when patients and doctors work together as equals

📚Read it www.sciencedirect.com/science/arti...

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Lupus Europe @lupuseurope.bsky.social · 19h

4️⃣ How SDH affect lupus outcomes

SDH influence not only how lupus begins, but also how it evolves over time.

Low income, low education, limited access to care, & lower socioeconomic backgrounds are linked to ⬆️ disease activity, more flares & greater organ damage

#1Month1Study

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Lupus Europe @lupuseurope.bsky.social · 19h

3️⃣ SDH & prognosis

Low income & unemployment are linked to more severe manifestations & ⬆️ damage.

Also limit access to 💊, appointments & follow-up, leading to ⬆️ disease activity, flares & ⬆️damage.

Financial stress, unemployment, & social isolation can affect mental health

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Lupus Europe @lupuseurope.bsky.social · 19h

2️⃣ How SDH affect lupus management

Low income, limited health literacy, language barriers or caregiving responsibilities (affects mainly women) can reduce access to medication, appointments, and follow-up, leading to irregular treatment & worse disease control.

#1Month1Study

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Lupus Europe @lupuseurope.bsky.social · 19h

1️⃣ SDH 🆚 presentation & diagnosis (example)

Patients from ⬇️income or minority backgrounds often face delays in diagnosis due to limited access to specialists, low health literacy or stigma.

As a result, lupus may be more severe, with organ damage, at diagnosis

#1Month1Study

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Lupus Europe @lupuseurope.bsky.social · 19h

🧵 THREAD

📢 Our latest study, co-led by Dr @go-daniel.bsky.social & Zoe Karakikla-Mitsakou, takes a comprehensive look at how SDH shape every stage of the patient pathway.

💎 It also proposes practical solutions to improve health equity & outcomes.

t.co/OXq9YGUddD

#1month1study

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Lupus Europe @lupuseurope.bsky.social · 2d

At our #LupusConvention, our Czech member organisation impressed us with an inspiring poster showcasing their wide range of initiatives for people with lupus. From psychological support to exercise, they cover it all!

Congratulations, & keep it up!

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Lupus Europe @lupuseurope.bsky.social · 4d

✅ Do you want to know more about topics like fatigue or CAR-T cells?

🎥 Find them all on our website!

🌟 Expert talks, patient perspectives, research updates, event highlights... Our video section has it all so you can watch it anytime!

https://www.lupus-europe.org/videos-on-demand/

Lupus Europe @lupuseurope.bsky.social · 5d

🚨Attention lupus researchers!

Last chance to register for the €500 Lupus Europe Poster Award at #Lupus2026!

Registration closes on the 20th Oct!

During the submission process, you will be asked to indicate whether you would like to run for the award.

Lupus 2026 - Abstract

Choose between oral or e-poster presentation. Visit the website for more information about the deadline, the structure and notification of acceptance.

www.sleuromeeting.eu

Lupus Europe @lupuseurope.bsky.social · 5d

✅ Great news!

🙌 New @eular.org 2025 recommendations for the management of SLE with kidney Involvement have just been published in @ard.eular.org.

Congrats to all authors for this amazing work!

https://ard.eular.org/article/S0003-4967(25)04412-7/fulltext

Lupus Europe @lupuseurope.bsky.social · 6d

🦋 What’s the purpose behind Lupus Europe attending scientific meetings?

🌈 It’s about staying informed & informing the lupus community, building projects & more.

We tell you all about it out here!👇

www.facebook.com/LupusEurope/...

www.instagram.com/p/DP1tilwjYxG/

www.linkedin.com/posts/lupus-...

Lupus Europe @lupuseurope.bsky.social · 8d

🚨Due to exceptional circumstances, 2 spots have become available!

If you’re a man living with lupus in Europe, don’t miss this chance to join this unique initiative!

✈️Reasonable travel expenses & accommodation covered.

📩Just email [email protected] & let us know!

Lupus Europe @lupuseurope.bsky.social · 9d

💜 What an inspiring poster by Andri, from CYLPER, at the #LupusConvention!

🗣️ “My Voice Has Space” creates a safe environment for people with lupus to share their experiences freely.

💡 “My Voice Becomes Action” turns those voices into creation, connection & mobilisation.

Lupus Europe @lupuseurope.bsky.social · 12d

🚨Today is #WorldMentalHealthDay.

☝️Do you know that #lupus patients are at high risk of anxiety and #depression?

Always talk to your physician about how you feel. Addressing mental health problems promptly is key.

🦋 Know more. Visit #LupusGPT

https://lupusgpt.org/

Lupus Europe @lupuseurope.bsky.social · 13d

📍 We’re in the 6th #3TR Meeting!

😄 At Lupus Europe, we’re proud to have four patient representatives in the Patient Advisory Committee, making sure that the voices & experiences of people living with lupus are included.

Thank you for involving patients in research!

Lupus Europe @lupuseurope.bsky.social · 16d

💬 The message can be good, but it gets lost if communication isn’t clear or focused.

✨ Our Organisation Coach, Alain Cornet, delivers the last session of our #LupusConvention to show how message tracks help keep our communication focused, collaborative and impactful

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Lupus Europe @lupuseurope.bsky.social · 16d

Factors like diagnosis delay, organ damage, age, disease activity, flares & socioeconomic status can have an impact on direct costs of lupus.

Economic evaluation should include direct, indirect & intangible costs, according to Giuseppe Turchetti from ERN ReCONNET

#LupusConvention

Lupus Europe @lupuseurope.bsky.social · 16d

💜Last day of our #LupusConvention!

Giuseppe Turchetti from ERN ReCONNET joins us to discuss the ongoing collaboration with Lupus Europe to build a more structured, coordinated, patient-centred approach to lupus care, & a joint project on the economic cost of lupus.

😃Stay tuned!

Lupus Europe @lupuseurope.bsky.social · 17d

🦋 Dr @go-daniel.bsky.social has just finished an amazing Meet the Doctor session full of great questions and discussions!

💜 A huge thank you to Dr Daniel Guimarães de Oliveira for his outstanding support and full dedication throughout our #LupusConvention. You went the extra mile!

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Lupus Europe @lupuseurope.bsky.social · 17d

🌳 Yesterday, our tree showed Lupus Europe’s achievements.

🌈 Today, our members added theirs — and it’s now full of life.

✨ What a beautiful symbol of everything we can achieve together as one strong, connected lupus community across Europe!

#LupusConvention

Lupus Europe @lupuseurope.bsky.social · 17d

💜 In a #LupusConvention themed “Every Voice Matters,” our Youth Group couldn’t be missing!

🙌 During their session, they shared key challenges that call for a youth-specific space and showed how young voices can bring fresh perspectives and drive change into lupus care

Lupus Europe @lupuseurope.bsky.social · 18d

‼️ Men with lupus face unique challenges that deserve attention.

Andreas Panteli presents a poster on Men and Lupus, highlighting the importance of recognising their specific needs and experiences.

👀 Stay tuned for our upcoming Patient Panel for Men!

#LupusConvention

Lupus Europe @lupuseurope.bsky.social · 18d

💜 We are so proud of our members!

This Poster Tour at our #LupusConvention shows the creativity, commitment & synergies of our national member groups.

🦋 From running events to patient education projects, this session is proof of the incredible potential of patient advocates!

Lupus Europe @lupuseurope.bsky.social · 18d

🖼️ The Poster Tour begins at our #LupusConvention!

💜 Our members showcase their projects, sharing ideas and experiences from across Europe — and our Youth Group presents a thought-provoking poster on Sex & Lupus

Lupus Europe @lupuseurope.bsky.social · 18d

🚨 We all have biases.

🌟 At #LupusConvention, Andreas Panteli from Lupus Suisse invites us to recognise them — and to step beyond them, so we can better understand, represent and support the lupus community.

🌈 What an amazing session!