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Choroideremia Research Foundation @curechm.bsky.social · 7h

Stay connected with us beyond BlueSky! Follow the Choroideremia Research Foundation on LinkedIn for the latest research updates, events, and more: www.linkedin.com/company/cure...

Choroideremia Research Foundation - Cure CHM | LinkedIn

Choroideremia Research Foundation - Cure CHM | 1,758 followers on LinkedIn. Saving Sight is our Vision! | The Choroideremia Research Foundation is an international nonprofit organization that raises r...

www.linkedin.com

Choroideremia Research Foundation @curechm.bsky.social · 5d

When his son was diagnosed with Choroideremia, Dr. Tom Barker, UVA professor & CRF Research Committee Member, redirected his lab’s focus. He’s not waiting for a miracle; he’s working now to slow the disease’s progression & buy his son more time.

news.virginia.edu/content/diag...

Diagnosed with an incurable disease: How a UVA professor is fighting for his son

Thirteen-year-old Leo Barker’s father, Tom, upended his research to stall a rare genetic illness that strikes 1 in 50,000 people.

news.virginia.edu

Choroideremia Research Foundation @curechm.bsky.social · 6d

Choroideremia Research Foundation Awards Alice Y. Zhang, MD, the 6th Annual Randy Wheelock Research Award

www.einpresswire.com/article/8602...

Choroideremia Research Foundation Awards Alice Y. Zhang, MD, the 6th Annual Randy Wheelock Research Award

CRF honors Dr. Alice Y. Zhang with the 6th Annual Randy Wheelock Research Award for advancing patient-focused outcomes in choroideremia research.

www.einpresswire.com

Choroideremia Research Foundation @curechm.bsky.social · 7d

A huge thank you to Tara Andrus Nordgren & her family for organizing the Nordgren Family 5K in Weiser, ID! Your dedication & hard work, along with the amazing support of your community, helped raise over $10,000 for the Choroideremia Research Foundation (CRF).

Over 100 community members of Weiser, Idaho come together to support the CRF at the Nordgren Family 5K.

Choroideremia Research Foundation @curechm.bsky.social · 7d

Join CRF’s Eric Hartman on Oct 23 to learn how patient advocacy drives research, legislation & support for the global Choroideremia community! Click the link to register.
curechm.salsalabs.org/patientadvoc...

Patient Advocacy: Why It Matters for the Choroideremia Community

What is patient advocacy and why is it important for the Choroideremia global community? Come join Eric Hartman, the CRF’s director of advocacy, to discuss his role for advancing our foundation's miss...

curechm.salsalabs.org

Choroideremia Research Foundation @curechm.bsky.social · 11d

CRF proudly presents the 6th Annual Randy Wheelock Research Award to Dr. Alice Y. Zhang of UNC–Chapel Hill for advancing research in choroideremia (CHM).

Neal Bench, CRF President, awarding Alice Zhang, MD the 2025 Randy Wheelock Award. They are posing with three men from the UNC Ophthalmology team.

Choroideremia Research Foundation @curechm.bsky.social · 12d

Course to a Cure Cole Schroeder golf outing was a huge success! ⛳ 12 volunteers & 84 golfers at Westchester GC raised $6,200+ for CHM research! #Choroideremia #GolfForACause

Group of 84 golfers who attended Course to a Cure fundraiser.

Group of four guys raising their drinks and giving cheers on the golf course.

Cole Schroeder Golf Outing Est. 2025 Course to a Cure Saving Sight - Building Hope Banner

Choroideremia Research Foundation @curechm.bsky.social · 13d

October 15th marks White Cane Safety Day—celebrating independence, mobility, and confidence for people with vision loss.

#WhiteCaneSafetyDay #Accessibility #CureCHM #VisionLossAwareness #Choroideremia

An image of a crosswalk with Cory MacDonald posing with his white cane. Text that says October 15, 2025 White Cane Safety Day. Celebrating independence, awareness, and mobility for people who are blind or visually impaired.

Choroideremia Research Foundation @curechm.bsky.social · 14d

Huge thanks to Michelle Holbrook & family for their CHM FUNdraiser #6! Amazing turnout, energy, & generosity supporting the CHM community. #CureCHM

Group of 30 people who attended the fundraiser to work out at Good Movement Studio in Park City, Utah. The group is standing outside with mountains in the background.

Michelle, Damon, and Brixton Holbrook posing together by the juice and coffee station.

Choroideremia Research Foundation @curechm.bsky.social · 18d

Save the date! The CRF International Conference is coming June 23–26, 2027 at the Drury Plaza Hotel, Orlando Disney Springs!

Text: Save the date! CRF International Conference at the Drury Plaza Hotel, Orlando Disney Springs. June 23–26, 2027. Pictured: Kathi Wagner, CRF Executive Director, and Drury Hotel Team Members, including CHMer, Patrick Heafner.

Choroideremia Research Foundation @curechm.bsky.social · 19d

🌍 World Sight Day 2025! CHM research needs your support to fund labs, trials & breakthroughs. No cure yet—but hope drives progress. 💙 Donate: curechm.salsalabs.org/donate/index...

Choroideremia Research Foundation @curechm.bsky.social · 20d

Accessing Local Disability Services with Corbb O'Connor, National Federation of the Blind of MN

youtu.be/XP44tL_Qa2Q?...

Accessing Local Disability Services with Corbb O’Connor | 2025 CRF International Conference

YouTube video by Choroideremia Research Foundation - Cure CHM

youtu.be

Choroideremia Research Foundation @curechm.bsky.social · 20d

CRF Research Spotlight: Panel Discussion / Q&A with Ben Shaberman, Dr. Kathleen Boesze-Battaglia, Dr. Malia Edwards, Dr. Joseph Porter, and Dr. Ian MacDonald

youtu.be/zMHmjDUiiNE?...

CRF Research Spotlight: Panel Discussion & Q&A | 2025 CRF International Conference

YouTube video by Choroideremia Research Foundation - Cure CHM

youtu.be

Choroideremia Research Foundation @curechm.bsky.social · 21d

Navigating Your Ophthalmology Visit with Dr. Rachel Huckfeldt

youtu.be/NHPiL0hT_2Y?...

Navigating Your Ophthalmology Visit with Dr. Rachel Huckfeldt | 2025 CRF International Conference

YouTube video by Choroideremia Research Foundation - Cure CHM

youtu.be

Choroideremia Research Foundation @curechm.bsky.social · 21d

Female Carriers of Choroideremia with Dr. Sena Gocuk

youtu.be/KE5N0MW7LT8?...

Female Carriers of Choroideremia with Dr. Sena Gocuk | 2025 CRF International Conference

YouTube video by Choroideremia Research Foundation - Cure CHM

youtu.be

Choroideremia Research Foundation @curechm.bsky.social · 21d

Gene Therapy Updates with Dr. Robert MacLaren
youtu.be/eMwmEXs3FtE?...

Gene Therapy Updates with Dr. Robert MacLaren | 2025 CRF International Conference

YouTube video by Choroideremia Research Foundation - Cure CHM

youtu.be

Choroideremia Research Foundation @curechm.bsky.social · 22d

October is World Blindness Awareness Month! At the CRF, we are committed to helping those affected by choroideremia (CHM) through research, patient support, and community initiatives.

Support our mission: curechm.salsalabs.org/donate

#WorldBlindnessAwarenessMonth #CureCHM

Choroideremia Research Foundation @curechm.bsky.social · 27d

Are you a person living with an Inherited Retinal Degeneration?

Please help Retina International by completing an online survey that aims to understand the mental and emotional impact of IRDs. This survey will close on 15th November 2025.

retina-international.org/survey/

Retina International

retina-international.org

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Choroideremia Research Foundation @curechm.bsky.social · 29d

Huge thanks to Jess Thompson and his cardiac practice for sponsoring the Mesa Sprint Tri and sharing these great shots! Grateful for your support and for helping spread CHM awareness.

#TeamCHM #MesaSprintTri #CureCHM