Author | Lightnews

Claire Webster @clairetheqsw.bsky.social · May 29

📢It's here - Get Me To Hospital

www.scie.org.uk/mca/practice...

A guide for people, families and practitioners when supporting someone to go to hospital who is deemed as unable to make the decision and is refusing.

Co-produced with The Stop People Dying Too Young Group.

Share away.

#NHS #MCA

Get me to hospital - SCIE

When and how to use the Mental Capacity Act to convey a person to hospital for physical health treatment. Download PDF.

www.scie.org.uk

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Claire Webster @clairetheqsw.bsky.social · Apr 28

I haven't been this excited since the time I sat in a room with Lady Hale and Mr Justice Hayden.

Will likely devour this later and report back.

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Claire Webster @clairetheqsw.bsky.social · Mar 12

Rather pleased to see this in my personal medical notes today.

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Reposted by Claire Webster

Stay Up Late @gigbuddies.bsky.social · Mar 11

Can you choose your bedtime?

We want to know how adults with learning disabilities &/or autistic adults spend their evenings & if they can choose their bedtimes!

If you have lived experience/support someone who does – please fill in our survey (online or easy read): stayuplate.org/the-stay-up-...

A bed that has "#No Bedtime" spray painted on it.

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Reposted by Claire Webster

Dr Dawn Cavanagh @dawnc05.bsky.social · Mar 4

It is not a tragedy that people with learning disabilities and autistic people spend much of their lives locked up in hospitals. This isn’t bad fortune. It is deliberate state sanctioned harm.

www.bbc.co.uk/news/article...

Autistic woman wrongly locked up in mental health hospital for 45 years

“Kasibba”, who is non-verbal and had no family to speak for her, was one of hundreds wrongly detained.

www.bbc.co.uk

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Reposted by Claire Webster

Alex Ruck Keene @capacitylaw.bsky.social · Feb 20

Terminally Ill Adults (End of Life) Bill: Questions on the amendments to the High Court approval requirement: www.mentalcapacitylawandpolicy.org.uk/terminally-i...

Terminally Ill Adults (End of Life) Bill: Questions on the amendments to the High Court approval requirement

Having (several) day jobs, I simply don’t have time to try to ask questions of all the amendments that are being put forward for consideration at the Public Bill Committee, but given the subs…

www.mentalcapacitylawandpolicy.org.uk

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Claire Webster @clairetheqsw.bsky.social · Feb 20

Get Me to Hospital

We are working towards a final draft of guidance and discussion on supporting people determined as lacking the capacity to decide to be conveyed to hospital and refusing - using The Mental Capacity Act.

Huge thanks to everyone involved. Hope to share the outputs with you all.

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The King's Fund @thekingsfund.bsky.social · Feb 20

Would the public rather the government prioritise spending on access to care in the community, or hospitals? Polling by @ipsosintheuk.bsky.social and @healthfoundation.bsky.social said they'd rather community services. Read more public opinions of the plans for health & care. https://buff.ly/4kbdQNd

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Claire Webster @clairetheqsw.bsky.social · Feb 19

If the solutions don't lie in a clinical approach or system then it should not be ruled or driven by a clinical approach or system.

A thought I've been pondering all day.

Reposted by Claire Webster

Learning Disabilities & Autism at Manchester Met @learningmet.bsky.social · Feb 11

Check out the varied range of resources available via the SAAIL website in relation to supporting autistic adults’ intimate lives 👇🏻

#AutRes #AutismResearch #ActuallyAutistic #AcademicSmy

SAAIL: Supporting Autistic Adults' Intimate Lives @autlives.bsky.social · Feb 10

Supporting Autistic Adults' Intimate Lives (SAAIL) have a range of outputs from videos, to toolkits, to podcasts. You can find them all there www.autlives.com/outputs

Outputs | SAAIL: Supporting Autistic Adults' Intimate Lives

Supporting Autistic Adults' Intimate Lives outputs

www.autlives.com

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Reposted by Claire Webster

Ian McCreath @ianmccreath.bsky.social · Feb 11

Whatever your view on assisted dying, the fact the approach voted through can fundamentally be changed in just two weeks- moving from a court to expert panel-does not calm concerns.

If society wants to make a change, it should do so knowing that safeguards can -and will- be changed over time.

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Alex Ruck Keene @capacitylaw.bsky.social · Feb 8

Terminally Ill Adults (End of Life) Bill resources page updated - www.mentalcapacitylawandpolicy.org.uk/terminally-i...

Terminally Ill Adults (End of Life) Bill resources

This page contains resources relating to the Terminally Ill Adults (End of Life) Bill introduced as a Private Member’s Bill by Kim Leadbeater MP. The Bill can be found here, as can details o…

www.mentalcapacitylawandpolicy.org.uk

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Reposted by Claire Webster

Celia Kitzinger @kitzingercelia.bsky.social · Feb 5

New blog post from the Open Justice Court of Protection Project. Hayden J approves experimental treatment requested by woman with anorexia.

openjusticecourtofprotection.org/2025/02/03/j...

Judge approves use of esketamine in anorexia case: Re CC

By Elissa Novak, 3rd February 2025 Despite her own best efforts, and the support of her family and those involved in her care, a 21-year-old autistic woman diagnosed with depression and anorex…

openjusticecourtofprotection.org

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Claire Webster @clairetheqsw.bsky.social · Feb 5

Who else is watching the CoA live stream - looking at DoL for children!?

Will we get any clearer answers on Lieven's challenge to Cheshire West?

Probably unlikely but still good background nerd fodder.

www.youtube.com/watch?v=m43e...

#DoLS #DoL #Health #SocialCare

www.youtube.com

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Lucy Series @thesmallplaces.bsky.social · Feb 5

Reigniting debate - researchers, self-advocates and family carers have produced this grim timeline of failed promises to Transform Care since Winterbourne View bpb-eu-w2.wpmucdn.com/blogs.bristo...

bpb-eu-w2.wpmucdn.com

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Reposted by Claire Webster

Alex Ruck Keene @capacitylaw.bsky.social · Feb 5

39 Essex Chambers February 2025 Mental Capacity Report and Walkthrough: www.mentalcapacitylawandpolicy.org.uk/39-essex-cha...

39 Essex Chambers February 2025 Mental Capacity Report and Walkthrough

The February 2025 Mental Capacity Report is now out. Highlights this month include: (1) In the Health, Welfare and Deprivation of Liberty Report: myth-busting about DoLS and strong words about ass…

www.mentalcapacitylawandpolicy.org.uk

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Claire Webster @clairetheqsw.bsky.social · Feb 5

Really important blog and discussion here about the (lack of) evidence.

Michael Brown OBE 🌍 @mentalhealthcop.bsky.social · Feb 5

NEW BLOG - "No Evaluation"

We need to start talking accurately, openly and honestly about RCRP and to understand it simply hasn't been evaluated properly.

mentalhealthcop.wordpress.com/2025/02/05/n...

No Evaluation

We need more honesty about where we are with Right Care, Right Person. Not least because this is yet another major programme in policing and mental health which is proceeding to be rolled out, enti…

mentalhealthcop.wordpress.com

Reposted by Claire Webster

Longhouseman @longhouseman.bsky.social · Jan 31

Please share 1st of 3 coproduced workshops developing a guide on supporting young adults with a learning disability or autism

www.ticketsource.co.uk/curators-of-...

@angelacat.bsky.social @mroutled.bsky.social @martinwalkersds.bsky.social @learningdiseng.bsky.social @oonaghsmyth.bsky.social

"Moving from children’s services to adult support - Focus on workers in the services" at Online

Tickets are now available for Moving from children’s services to adult support - Focus on workers in the services at Online, Online on Thursday 13th February 2025 at 1:00PM. Click the link for further information and to secure your tickets now!

www.ticketsource.co.uk

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Claire Webster @clairetheqsw.bsky.social · Jan 29

👍

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Bev Clough @bevclough.bsky.social · Jan 28

Come and do a fully funded PhD with me and brilliant colleagues @moniquehuy.bsky.social and @suecaton.bsky.social at MMU on Navigating the Mental Capacity Act to support Sexual Decision-Making for People with Learning Disabilities www.findaphd.com/phds/project...

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Saba Salman @sabasalman.com · Jan 27

1 in 100 inquests lead to a prevention of future death report. In 2023, 2 of 569 reports concerned learning disabled and/or autistic people. And many echo the same problems.

Vital explainer by @georgejulian.bsky.social

Remembering lives of Mia Gauci-Lamport and Peter Seaby.

#LearningDisability

Community Living Magazine @communitylivingmagazine.com · Jan 23

Coroners issue prevention of future deaths reports to inform organisations about risks they could manage to reduce needless fatalities.
@georgejulian.bsky.social looks at how effective these are.

communitylivingmagazine.com/reducing-ris...

Reducing risks of further deaths

Coroners issue prevention of future deaths reports to inform organisations about risks they could manage to reduce needless fatalities. George Julian looks at how effective these are

communitylivingmagazine.com

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Reposted by Claire Webster

Auschwitz Memorial @auschwitzmemorial.bsky.social · Jan 27

Auschwitz was at the end of a long process. It did not start from gas chambers.

This hatred was gradually developed by humans. From ideas, words, stereotypes & prejudice through legal exclusion, dehumanization & escalating violence... to systematic and industrial murder.

Auschwitz took time.

A bird's-eye view of a former Auschwitz II-Birkenau camp showing a wide dirt pathway flanked by parallel rows of barbed-wire fences. Groups of visitors walk along the path, surrounded by the remnants of brick structures and barracks, now reduced to foundations. Green grass contrasts with the somber history of the site, as the path leads toward a guard tower in the distance.

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Claire Webster @clairetheqsw.bsky.social · Jan 27

I don't have any words. It's with this story and many others in my mind that I do everything I can to address the health inequalities and deaths faced by autistic people and people with learning disabilities.

BBC News - Coroner raises concerns over vulnerable man's death
www.bbc.com/news/article...

Coroner raises concerns over vulnerable man's Hull hospital death

An inquest in Hull finds that David Lodge died of "natural causes contributed to by neglect".

www.bbc.com

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Claire Webster @clairetheqsw.bsky.social · Jan 23

Sounds like someone who will leave many a lasting mark, thinking of you and his family.

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Claire Webster @clairetheqsw.bsky.social · Jan 21

Yep, this one from NMCF?

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