TLDR: Apparently "presume competence" only applies to them, not all us rando illiterate unwashed peasants.

#Moms #Mothers #Caregivers #KinshipCare #RelativeCaregivers #MomLife #Parenting #WhiteSaviorism #Ableism #DisabledChildren #MedicallyFragile #MedicallyComplex

www.tiktok.com/@stephrunshe...

Look at my new hat! 😍

A wonderful deaf/blind creator from IG made it for me.

IG: @blindlove.woodburning

#advocate #blind #deaf #medicallycomplex #nystagmus

3. If you do have a major medical event, you can pay a lot out of pocket even with great full coverage.
4. Not everything that is needed is covered, you will pay out of pocket AND have it not count towards your maximum.

I know because all of these things happen to me every year.
#medicallycomplex

The kiddo wasn't scheduled to perform, but decided she fancied it, so she negotiated herself a last-minute signing spot for the last song! #camdenmusicfestival #bsl #Camden #deaf #inclusion #tracheostomy #proudmama #medicallycomplex #deafgirl #bslchoir #signlanguage ##royalalberthall #rah

January 27th, we will celebrate Leilani Reign. To honor her, we ask that you join us & wear your favorite Tiara and help bring awarenesss to the dangers of Pediatric Traumatic Brain Injury.

#inclusivity #Accessability #support #TBI #MedicallyComplex #SPED #accessability4all

Still inpatient and having a #swallowstudy early Monday morning 🩻 🗣️

Then, this #medicalmom predicts, the big #NPO talk 😫with the #SpeechLanguagePathologist and her doctors before 🏥 discharge on full #jtubefeeding

#medicallycomplex
#familycare
#homecare
#dysphagia
#22q11

Maybe it's all the coffee I drink during Zoom trainings but I swear I get out of these sessions feeling so optimistic, rejuvenated, and re-committed to #CommunityCare and #CommunityBuilding through supporting #Families of #MedicallyFragile #MedicallyComplex, and #DIsabledChildren.

Every parent wants to help their child be their best, regardless of their abilities. However, the education system and the process of setting #IEP goals can feel defeating when a child is #medicallycomplex.

courageousparentsnetwork.org/blog/please-...

Foreign trip 15 with our trachy daughter Freya. #Stargazing in the #desert #sharmelsheikh #Egypt #trachy #tracheostomy #bsl #signlanguage #medicallycomplextravel #trach #medicallycomplex #deaf #deafgirl #deaftravel

Who else has a thicc chart? Likes and shares are always welcome on this design, as well as the other items in my shop! www.etsy.com/listing/4304... Thank you so much for the support! #Disabled #Disability #ChronicallyIll #ChronicIllness #CancerSurvivor #MedicallyComplex

one of my most popular stickers, inspired by being NPO/tube fed for over 6 mo. in 2021 recovering from an esophageal-aortic fistula. No purchase needed, giving it a like on my shop is enough! #disabled #disability #tubie #zebra #medicallycomplex #ehlersdanlos #eds #heds www.etsy.com/listing/1739...

I prioritize my daughter's needs differently depending on who and what my listener generally relates to most.

Health care in medical, community and home settings is always at the top of her needs.

#disability #medicallycomplex

Replying to a comment: long story short, when the monthly budget doesn’t add up and certain meds cost more for one month than a full years salary… then it’s time to get both creative with your budget and patient with red tape in the systems. #medicallycomplex #caregiver

Well, kidney surgery recovery was ok until Wednesday. I’m in urgent care with what looks like a kidney infection. Waiting on the rest of the labs to see, and then I’ll get meds. Not the news I was hoping for, but it explains my symptoms. #immunosuppressed #medicallycomplex #zebra #chronicallyill

#MoyaMoyaDisease #Aloha #StrokeAwareness #BrainHealth #music #healing #medicallycomplex #Anuhea #aphasia #raredisease #neurology #Hawaii #Anuhea #lotus #musicishealing #brain #neurovasular #neurosurgery #sandiego #stanford

Early morning surgery
- fingers crossed🤞

If successful, we'll be doing this procedure every few months

#Dysphagia
#Botox #Collagen

#MedicallyComplex
#22q11

Pssst .... Update your/your child(ren)'s #MedicAlert bracelets, #EmergencyApp, #EmergencyContacts, etc. & back up your #MedicalRecords ( #DigitalCopies #Smart911 #PersonalFiles #PersonalDocuments)

#ChildrenWithDisabilities #DisabilityCommunity #SupportNeeds #MedicallyComplex #MedicallyFragile