#learnfromme
On Aug. 8, we mark #SevereMEDay & raise awareness by elevating the experiences of those impacted. We also share free educational resources to help people understand the impact of #SevereME.

Learn more here:
ow.ly/KBjQ50WCcMh

#UnitedForME #LearnFromME
August 8, 2025 at 6:05 PM
On #SevereMEDay, we commit to making the hidden visible.

💡We amplify their reality.
💡We speak because many can’t.
💡 We share their stories.

Be the light. 🕯

#UnitedForME #LearnFromME
August 8, 2025 at 3:55 PM
For those living with severe ME, the isolation and loneliness can be devastating.

As well as causing extreme pain, fatigue and sensory dysfunction, severe ME takes away a person's ability to work, study, socialise or even leave their house or bed.
August 8, 2025 at 12:03 PM
In honor of #SevereMEDay (Aug. 8), we’re launching #UnitedForME, a shared hashtag to amplify stories, art & education from the Severe ME community. Join us in uplifting voices that need to be heard.
#SevereME #LearnFromME @batemanhornecenter.bsky.social @openmedf.bsky.social @meactnet.bsky.social
August 7, 2025 at 5:46 PM
I have been missing from life since 2000. So many #PwME are just existing, not living.
It is a much misunderstood, cruel, often mocked illness.
#MEawarenessDay #LearnFromME #BelieveME #MyalgicE #PwME #MillionsMissing
#StillTheSaME #WorldMEday #MEawarenessWeek #MEnotCFS
May 12, 2025 at 10:11 PM
I have been missing from life since 2000. So many #PwME are just existing, not living.
It is a much misunderstood, cruel, often mocked illness.
#MEawarenessDay #LearnFromME #BelieveME #MyalgicE #PwME #MillionsMissing
#StillTheSaME #WorldMEday #MEawarenessWeek #MEnotCFS
May 11, 2025 at 11:14 PM
I have been missing from: School, Work,Friendship,Teenage Years,All of my 20s,30s & I will soon be in my 40s,socialising,dating,life in general.I have been ill for over 25 years.
#MEawarenessDay #LearnFromME #BelieveME #MyalgicE #PwME #MillionsMissing
#StillTheSaME #WorldMEday #MEawarenessWeek
May 11, 2025 at 11:11 PM
Stop being upset over things you can’t control, otherwise your tïts and bálls will sag 3 miles due to stress.

#learnfromme
November 25, 2024 at 8:25 PM
That's twice this month that I've been saved by emergency pre-cooked #bacon in the freezer. #learnfromme
December 2, 2024 at 12:58 PM