🧡🍊 FSHD: Arretaz ikertzen den gaixotasun genetiko bat
Gaur, #FSHD|renMunduEgunean, #Biogipuzkoaren #DiagnostikoMolekularra|ren Plataformaren lana azpimarratu nahi dugu, distrofia #fazioeskapulohumerala ikertzen duena.
📰 https://f.mtr.cool/svthfvmsnv
#cureFSHD #WorldFSHDDay
Gaur, #FSHD|renMunduEgunean, #Biogipuzkoaren #DiagnostikoMolekularra|ren Plataformaren lana azpimarratu nahi dugu, distrofia #fazioeskapulohumerala ikertzen duena.
📰 https://f.mtr.cool/svthfvmsnv
#cureFSHD #WorldFSHDDay
June 20, 2025 at 8:24 AM
Everybody can reply
1 reposts
2 likes
November 27, 2024 at 1:25 AM
Everybody can reply
🧡 #20J | Día Mundial de la Distrofia Muscular Facioescapulohumeral #FSHD
📢 Desde los mupis digitales junto al Ayuntamiento, la asociación @fshd_spain nos acerca esta enfermedad minoritaria, genética, degenerativa y sin cura, con su campaña #SalvaNuestraSonrisa
#WorldFSHDDay
📢 Desde los mupis digitales junto al Ayuntamiento, la asociación @fshd_spain nos acerca esta enfermedad minoritaria, genética, degenerativa y sin cura, con su campaña #SalvaNuestraSonrisa
#WorldFSHDDay
June 20, 2025 at 8:26 AM
Everybody can reply
1 likes
🧡🍊 Hoy 20 de junio, #DíaMundialFSHD: destacamos la investigación de la Plataforma de #DiagnósticoMolecular de #Biogipuzkoa. sobre la distrofia #facioescapulohumeral 🧬
📰 https://f.mtr.cool/jxluoahelp
#FSHD #OrangeSliceChallenge #cureFSHD #SalvaNuestraSonrisa #WorldFSHDDay @FSHDSociety
📰 https://f.mtr.cool/jxluoahelp
#FSHD #OrangeSliceChallenge #cureFSHD #SalvaNuestraSonrisa #WorldFSHDDay @FSHDSociety
June 20, 2025 at 8:05 AM
Everybody can reply
1 reposts
2 likes
It’s #WorldFSHDDay.
One of the most common but least understood types of muscular dystrophy.
It’s what I have.
One of the most common but least understood types of muscular dystrophy.
It’s what I have.
June 20, 2025 at 4:47 AM
Everybody can reply
2 likes
We were fortunate to attend the @fshdsociety.bsky.social International Research Congress and FSHD Europe Patient Connect meetings last week.
These fantastic events brought together the FSHD community across Europe to make new connections and share research advancements #WorldFSHDday
These fantastic events brought together the FSHD community across Europe to make new connections and share research advancements #WorldFSHDday
June 20, 2025 at 12:58 PM
Everybody can reply
2 reposts
4 likes
Join us for the FSHD Engagement Day in Newcastle on 25 Sept 2025! Connect with others, hear from experts & explore key aspects of life with FSHD.
Book your place: rb.gy/gabmw7
#FSHD #FSHDUK #FSHDEurope #WorldFSHDDay
Book your place: rb.gy/gabmw7
#FSHD #FSHDUK #FSHDEurope #WorldFSHDDay
June 20, 2025 at 2:24 PM
Everybody can reply
1 quotes
2 likes
Now for our big news... I'm delighted to announce that the UK FSHD Patient Registry has now 🌟 RELAUNCHED 🌟 onto our new bespoke registry platform, with improved questionnaires and features!
Visit our website to learn more and sign up today!
👀 www.fshd-registry.org.uk 👀
#FSHD #WorldFSHDday
Visit our website to learn more and sign up today!
👀 www.fshd-registry.org.uk 👀
#FSHD #WorldFSHDday
June 20, 2025 at 1:01 PM
Everybody can reply
3 reposts
4 likes
Sign up to our second local FSHD awareness day using the link below. This event was a smash hit last year and we can't wait to run it again! #WorldFSHDday #RareDisease
Join us for the FSHD Engagement Day in Newcastle on 25 Sept 2025! Connect with others, hear from experts & explore key aspects of life with FSHD.
Book your place: rb.gy/gabmw7
#FSHD #FSHDUK #FSHDEurope #WorldFSHDDay
Book your place: rb.gy/gabmw7
#FSHD #FSHDUK #FSHDEurope #WorldFSHDDay
June 20, 2025 at 2:28 PM
Everybody can reply
1 reposts
5 likes
Bluesky's Top 10 Trending Words from the Past 10 Minutes:
💨x1* - ukraine 🔓
💨x1* - gaza 🔓
💨x19 - 1﹐462
💨x1* - democracy 🔓
💨x15 - juneteenth
💨x10 - midsommar
💨x10 - hyvää
💨x10 - acciona
💨x8 - märchenhaft
💨x8 - login
(tap to see all posts w/ the word! ANDROID: long-press©)
#ListenToBlackVoices
![Emoji Legend
💨x# | "Increased Trending Rate" for a Word (meaningful value; "💨x8 - burger" will mean "burger" is trending at 8 times its own normal rate for this time of day)
🔓 | "Unlocked" Ongoing Emergency Word (such words are not weighted down by their own previous usage; their *ongoing* increased usage--weeks, months, years--would otherwise move them down the list.)
[PREVIOUSLY USED]
⚠️💨# | "Trend Strength Rating"
⚠️🌀💨 | "Trend Strength Rating" (see above)
⚠️🌀 CAT. # | [same; "CAT." = Category, like hurricane]
💬# | 10min Post Count
🆎# | 10min Word Count
🙂# | 10min Emoji Count](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:mcb6n67plnrlx4lg35natk2b/bafkreigp6bgag3jzkool6uxrujpcrwtn6zkd7cbfrmevhaxaqhhewgolmu@jpeg)
June 20, 2025 at 8:30 AM
Everybody can reply
2 likes