#TurnerSyndrome
If you've had to go through TFMR, you are still allowed to grieve. You have still lost a child. And if nobody else will listen and understand, my DMs are open. #PregnancyLossAwarenessWeek #PregnancyLoss #TFMR #ChildLoss #TurnerSyndrome
October 10, 2025 at 8:57 PM Everybody can reply
6 likes
I'll be speaking at GSC this year virtually on a panel about working in Game Audio with disabilities. #GameAudio #Lupus #NVLD #TurnerSyndrome
October 7, 2025 at 1:34 AM Everybody can reply
2 likes
Learn more about how Henry Turner describes a previously unrecognized set of symptoms in females, including a lack of physical and sexual development, infertility, and webbed neck, among others.
embryo.asu.edu/pages/syndro...

#hpbio #philsci #histstm #histsci #philbio #hbio #hps #turnersyndrome
September 5, 2025 at 11:11 PM Everybody can reply
3 likes
Missing Link between Turner Syndrome and Congenital Heart Disease Patterns?
embryo.asu.edu/pages/congen...

#hpbio #philsci #histstm #histsci #philbio #hbio #sts #hps
#encyclopedia #turnersyndrome
September 1, 2025 at 6:10 PM Everybody can reply
4 likes
En el Dia Mundial de la Síndrome de Turner vull fer un reconeixement a totes les persones que la pateixen per la seva lluita diària i a @astturnercat per la feina que feu. 💪🏼🌸#DiaMundialSíndromeTurner #MalaltiesMinoritàries
#TurnerSyndrome
August 28, 2025 at 5:16 PM Everybody can reply
Living with Turner Syndrome can be hard, but you just have to take one day at a time? #TurnerSyndrome #TurnerSyndromeAwareness
June 21, 2025 at 2:33 PM Everybody can reply
It's #TurnerSyndromeag/TurnerSyndromeAwarenessDay" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#TurnerSyndromeAwarenessDay 🦋

#TurnerSyndrome is a genetic condition that affects only girls/women.

It is caused by a change in the chromosomes resulting in 1 of the X chromosomes to be missing completely or partially.

1/3
June 21, 2025 at 9:31 AM Everybody can reply
I was invited to sit on an advisory board for a clinical trial. Thank you @biomarinpharma.bsky.social for embracing the patient voice for treatment of skeletal conditions. Delighted to meet the dedicated BioMarin team & fellow advocates in the #noonansyndrome & #turnersyndrome communities. #pedsky
May 5, 2025 at 4:25 PM Everybody can reply
1 reposts 2 likes
www.wfsb.com/2025/04/11/g...
⬆️🔗⬆️

www.nichd.nih.gov/health/topic...
⬆️⚕️⬆️
The decedent whose remains were found in a suitcase, next to the bus stop, at the entrance to a cemetery, in #Groton,CT most likely had #TurnerSyndrome.
This is not a common condition.
Someone loved & misses her.
Thank you.
April 25, 2025 at 7:49 PM Everybody can reply
1 reposts 1 quotes 1 likes
patch.com/connecticut/...
#Killingly,CT #Foster,RI
#Groton,CT
Both sets of human remains found in CT are still unidentified.
Please see post & reply below re:
Groton, CT victim
#TurnerSyndrome
Thank you.
April 17, 2025 at 8:31 PM Everybody can reply
1 reposts 1 likes
Turner Syndrome is a rare chromosomal disorder in females, caused by the absence of one X chromosome, leading to developmental and medical challenges.

More Info: turnersyndromefoundation.org #turnersyndrome

You may be rare, but you are not alone!
#rareDisease #rareDiseaseAwareness
March 24, 2025 at 2:00 PM Everybody can reply
I have a rare disease (#turnersyndrome) and I lost both of my brothers to an ultra-rare disease (#barthsyndrome). My mom was one of those RD advocates in D.C. this week planning to meet with the FDA & NIH. Thank you, Senator Klobuchar, for bringing attention to this.
March 2, 2025 at 2:55 AM Everybody can reply
7 likes
Rare is beautiful, and we see you. This #RareDiseaseDay we are honored to serve those in our community with rare diagnoses. Through research as well as the Lumia wearable, our mission is to improve lives and illuminate #invisibleillness.
#dysautonomia #msa #aag #PAF #veds #marfan & more! #wearlumia
February 28, 2025 at 9:47 PM Everybody can reply
4 reposts 7 likes
Today is #RareDiseaseDay. I have #TurnerSyndrome, a #raredisease, and I lost 2 brothers to #barthsyndrome, an ultra-rare disease affecting 300 people worldwide. Rare diseases affect an estimated 1 in 10 in the United States - over 25 million people, and nearly half of those patients are children.
February 28, 2025 at 3:31 PM Everybody can reply
2 likes
Happy Rare Disease Month! Let's highlight Turner Syndrome: a rare chromosomal condition affecting approximately 1 in 2,500 AFAB (assigned female at birth) individuals worldwide. It also happens to be an inters-x variation. 

#TurnerSyndrome #ShowYourStripes #RareDiseaseDay #RareDiseaseMonth
February 27, 2025 at 6:02 PM Everybody can reply
2 likes
The writers in Kaleidoscope #RareDisease Stories show strength, courage, creativity, &, even through fear, hope.
~🦋
https://a.co/d/3HxjJ6P
Proceeds donated to NORD
#CREST #sarcoidosis #FAP #ShortBowelSyndrome #TurnerSyndrome #PustularPsoriasis
#ChronicIllness #Rare #SpoonieSky #ZebraStrong
February 20, 2025 at 5:43 PM Everybody can reply
1 likes
Happy #turnersyndrome awareness month!!!!! Sincerely, trans guy who was diagnosed with this years ago
February 1, 2025 at 2:46 PM Everybody can reply
1 likes
When I was in grad school in 1994, I saw Maya Angelou speak and recite her poetry. I was able to meet her and tell her that she was an inspiration to women with #turnersyndrome like me, because of facing adversity in her own life. She signed my copy of her poem. She said “Strength and laughter.”
January 23, 2025 at 3:43 AM Everybody can reply
5 likes