Dr. Jeanine van Klink researches the long-term neurodevelopmental impact of TAPS. Survivors face higher risks of cognitive delays, speech and motor difficulties, and learning and behavioral issues.Watch the video: youtube.com/shorts/KPEWe4Ur...
#TAPSDAY #ITD2025 #NotJustTTTS
#TAPSDAY #ITD2025 #NotJustTTTS
March 7, 2025 at 4:00 PM
Dr. Jeanine van Klink researches the long-term neurodevelopmental impact of TAPS. Survivors face higher risks of cognitive delays, speech and motor difficulties, and learning and behavioral issues.Watch the video: youtube.com/shorts/KPEWe4Ur...
#TAPSDAY #ITD2025 #NotJustTTTS
#TAPSDAY #ITD2025 #NotJustTTTS
TAPS twins can climb mountains! Filip and Dumitru (R) were born at 29 weeks, diagnosed with spontaneous TAPS at 26 weeks, and treated with laser surgery. He has cerebral palsy and developmental delays due to a stroke in utero but continues to make progress. #TAPSTwins #TAPSDAY #ITD2025 #NotJustTTTS
March 7, 2025 at 12:00 PM
TAPS twins can climb mountains! Filip and Dumitru (R) were born at 29 weeks, diagnosed with spontaneous TAPS at 26 weeks, and treated with laser surgery. He has cerebral palsy and developmental delays due to a stroke in utero but continues to make progress. #TAPSTwins #TAPSDAY #ITD2025 #NotJustTTTS
Post-laser TAPS and spontaneous TAPS differ in long-term effects. Donor twins in spontaneous TAPS face higher risks of NDI and cognitive delays. Long-term follow-up is key for proper development. Learn more at www.tapssupport.com/the-lon... #TAPSTwins #TAPSDAY #ITD2025 #NotJustTTTS
March 7, 2025 at 8:00 AM
Post-laser TAPS and spontaneous TAPS differ in long-term effects. Donor twins in spontaneous TAPS face higher risks of NDI and cognitive delays. Long-term follow-up is key for proper development. Learn more at www.tapssupport.com/the-lon... #TAPSTwins #TAPSDAY #ITD2025 #NotJustTTTS
Abby’s story: We couldn’t confirm, but our MFM later said the girls likely had TAPS. Diagnosed with sIUGR, inpatient at 26 weeks, delivered at 28+4. 92 days in NICU. Grateful for the community for helping me become an advocate. #TAPSTwins #InternationalTAPSDay #TAPSDAY #ITD2025 #NotJustTTTS
March 6, 2025 at 12:00 PM
Abby’s story: We couldn’t confirm, but our MFM later said the girls likely had TAPS. Diagnosed with sIUGR, inpatient at 26 weeks, delivered at 28+4. 92 days in NICU. Grateful for the community for helping me become an advocate. #TAPSTwins #InternationalTAPSDay #TAPSDAY #ITD2025 #NotJustTTTS
Marni from the Gold Coast had in utero transfusions (IUT) after her twins were diagnosed with TAPS. Thanks to early detection and an incredible medical team, Poppy and Billie are now healthy little girls.
Watch her story: youtu.be/9-1zcvMRGv8?si=Yct...
#NotJustTTTS #TAPSTwins #TAPSDAY
Watch her story: youtu.be/9-1zcvMRGv8?si=Yct...
#NotJustTTTS #TAPSTwins #TAPSDAY
March 5, 2025 at 12:00 PM
Marni from the Gold Coast had in utero transfusions (IUT) after her twins were diagnosed with TAPS. Thanks to early detection and an incredible medical team, Poppy and Billie are now healthy little girls.
Watch her story: youtu.be/9-1zcvMRGv8?si=Yct...
#NotJustTTTS #TAPSTwins #TAPSDAY
Watch her story: youtu.be/9-1zcvMRGv8?si=Yct...
#NotJustTTTS #TAPSTwins #TAPSDAY
Recognizing TAPS screening in monochorionic twins is a major step, but the real work begins now. As Dr. Jena Miller explains, collaboration is key to optimizing treatment and improving outcomes: sbee.link/kuv4ahn6te
#InternationalTAPSDay #TAPSDay #ITD2025 #NotJustTTTS
#InternationalTAPSDay #TAPSDay #ITD2025 #NotJustTTTS
March 3, 2025 at 9:00 PM
Recognizing TAPS screening in monochorionic twins is a major step, but the real work begins now. As Dr. Jena Miller explains, collaboration is key to optimizing treatment and improving outcomes: sbee.link/kuv4ahn6te
#InternationalTAPSDay #TAPSDay #ITD2025 #NotJustTTTS
#InternationalTAPSDay #TAPSDay #ITD2025 #NotJustTTTS
Today marks 19 years since TAPS was first named in a published paper. It’s still misunderstood and misdiagnosed. TAPS is not TTTS: it’s a distinct disease with serious risks. Watch Prof. Lopriore’s message: sbee.link/ad63t7jwu8
#TAPSDay #ITD2025 #NotJustTTTS
#TAPSDay #ITD2025 #NotJustTTTS
March 3, 2025 at 9:00 AM
Today marks 19 years since TAPS was first named in a published paper. It’s still misunderstood and misdiagnosed. TAPS is not TTTS: it’s a distinct disease with serious risks. Watch Prof. Lopriore’s message: sbee.link/ad63t7jwu8
#TAPSDay #ITD2025 #NotJustTTTS
#TAPSDay #ITD2025 #NotJustTTTS
On March 3rd, 2006, TAPS was officially named by Lopriore et al., marking 19 years since its recognition. This rare condition causes one twin to become anemic and the other polycythemic. Early diagnosis is key.
More: sbee.link/pqvdh6jyb8
#TAPSDay #ITD2025 #NotJustTTTS
More: sbee.link/pqvdh6jyb8
#TAPSDay #ITD2025 #NotJustTTTS
March 3, 2025 at 6:00 AM
On March 3rd, 2006, TAPS was officially named by Lopriore et al., marking 19 years since its recognition. This rare condition causes one twin to become anemic and the other polycythemic. Early diagnosis is key.
More: sbee.link/pqvdh6jyb8
#TAPSDay #ITD2025 #NotJustTTTS
More: sbee.link/pqvdh6jyb8
#TAPSDay #ITD2025 #NotJustTTTS
Too many still believe TAPS is just a form of TTTS. It has different causes, risks, and diagnostic criteria. Without proper screening, TAPS can lead to serious complications like hearing loss and developmental delays. Today is International TAPS Day.
#TAPSDay #ITD2025 #NotJustTTTS
#TAPSDay #ITD2025 #NotJustTTTS
March 3, 2025 at 3:00 AM
Too many still believe TAPS is just a form of TTTS. It has different causes, risks, and diagnostic criteria. Without proper screening, TAPS can lead to serious complications like hearing loss and developmental delays. Today is International TAPS Day.
#TAPSDay #ITD2025 #NotJustTTTS
#TAPSDay #ITD2025 #NotJustTTTS
My twins were born at 34 weeks, but we didn’t know TAPS was the cause. Our recipient recovered quickly, but our donor needed transfusions, respiratory support, and was diagnosed with hearing loss. Read more: bit.ly/3F087tC
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
March 2, 2025 at 4:00 PM
My twins were born at 34 weeks, but we didn’t know TAPS was the cause. Our recipient recovered quickly, but our donor needed transfusions, respiratory support, and was diagnosed with hearing loss. Read more: bit.ly/3F087tC
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
Thank you to Prof. Asma Khalil, Prof. Enrico Lopriore, and Assoc. Prof. Jena Miller for an insightful TAPS Day webinar. The recording will be available soon via GEFOG.
For Stephanie Ernst’s talk and resources: sbee.link/cg4jbwudna
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
For Stephanie Ernst’s talk and resources: sbee.link/cg4jbwudna
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
March 2, 2025 at 1:42 PM
Thank you to Prof. Asma Khalil, Prof. Enrico Lopriore, and Assoc. Prof. Jena Miller for an insightful TAPS Day webinar. The recording will be available soon via GEFOG.
For Stephanie Ernst’s talk and resources: sbee.link/cg4jbwudna
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
For Stephanie Ernst’s talk and resources: sbee.link/cg4jbwudna
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
Thank you to Prof. Asma Khalil, Prof. Enrico Lopriore, and Assoc. Prof. Jena Miller for an insightful TAPS Day webinar. Speaking on the role of patients in research was a privilege. We need more collaboration to drive progress.
tinyurl.com/tapsdaywebinar
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
tinyurl.com/tapsdaywebinar
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
TAPS day webinar
sbee.link
March 2, 2025 at 1:30 PM
Thank you to Prof. Asma Khalil, Prof. Enrico Lopriore, and Assoc. Prof. Jena Miller for an insightful TAPS Day webinar. Speaking on the role of patients in research was a privilege. We need more collaboration to drive progress.
tinyurl.com/tapsdaywebinar
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
tinyurl.com/tapsdaywebinar
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
Kicking off our awareness week with the team at Buzzi Children’s Hospital in Milan. Stefano Faiola, Daniela Casati, Arianna Laoreti, and Mariano Lanna explain why TAPS is not just TTTS.
Watch: youtu.be/0x39B1sgufM
#TAPSDay #ITD2025 #InternationalTAPSDay #TAPSTwins #NotJustTTTS
Watch: youtu.be/0x39B1sgufM
#TAPSDay #ITD2025 #InternationalTAPSDay #TAPSTwins #NotJustTTTS
March 2, 2025 at 8:00 AM
Kicking off our awareness week with the team at Buzzi Children’s Hospital in Milan. Stefano Faiola, Daniela Casati, Arianna Laoreti, and Mariano Lanna explain why TAPS is not just TTTS.
Watch: youtu.be/0x39B1sgufM
#TAPSDay #ITD2025 #InternationalTAPSDay #TAPSTwins #NotJustTTTS
Watch: youtu.be/0x39B1sgufM
#TAPSDay #ITD2025 #InternationalTAPSDay #TAPSTwins #NotJustTTTS
Time is running out to register for this free webinar kicking off the awareness week for International TAPS Day. Join leading experts as we explore the latest in TAPS research, care, and advocacy. Spots are limited. Register now: sbee.link/ptr634hjyv
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
March 1, 2025 at 10:22 AM
Time is running out to register for this free webinar kicking off the awareness week for International TAPS Day. Join leading experts as we explore the latest in TAPS research, care, and advocacy. Spots are limited. Register now: sbee.link/ptr634hjyv
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
An MCA Doppler can detect TAPS early, but without it, many cases are missed. It’s the most reliable test, with a staging system using a delta MCA-PSV difference of 0.5. Other signs help, but 14% of cases show only discordant Dopplers. 6 days until #TAPSDay bit.ly/3eEbupp #NotJustTTTS
February 25, 2025 at 12:00 PM
An MCA Doppler can detect TAPS early, but without it, many cases are missed. It’s the most reliable test, with a staging system using a delta MCA-PSV difference of 0.5. Other signs help, but 14% of cases show only discordant Dopplers. 6 days until #TAPSDay bit.ly/3eEbupp #NotJustTTTS
An MCA Doppler can detect TAPS early, but without it, many cases are missed. It’s the most reliable test, with a staging system using a delta MCA-PSV difference of 0.5. Other signs help, but 14% of cases show only discordant Dopplers. 6 days until #TAPSDay bit.ly/3eEbupp #NotJustTTTS
February 25, 2025 at 12:00 PM
An MCA Doppler can detect TAPS early, but without it, many cases are missed. It’s the most reliable test, with a staging system using a delta MCA-PSV difference of 0.5. Other signs help, but 14% of cases show only discordant Dopplers. 6 days until #TAPSDay bit.ly/3eEbupp #NotJustTTTS
An MCA Doppler can detect TAPS early, but without it, many cases are missed. It’s the most reliable test, with a staging system using a delta MCA-PSV difference of 0.5. Other signs help, but 14% of cases show only discordant Dopplers. 6 days until #TAPSDay bit.ly/3eEbupp #NotJustTTTS
February 25, 2025 at 12:00 PM
An MCA Doppler can detect TAPS early, but without it, many cases are missed. It’s the most reliable test, with a staging system using a delta MCA-PSV difference of 0.5. Other signs help, but 14% of cases show only discordant Dopplers. 6 days until #TAPSDay bit.ly/3eEbupp #NotJustTTTS
TAPS is often diagnosed after birth because routine screenings aren’t always done. Around 40-63% of cases are missed during pregnancy. It’s time to recognize TAPS - 7 days till #TAPSDay. Learn more: bit.ly/3eEbupp #NotJustTTTS
February 24, 2025 at 12:00 PM
TAPS is often diagnosed after birth because routine screenings aren’t always done. Around 40-63% of cases are missed during pregnancy. It’s time to recognize TAPS - 7 days till #TAPSDay. Learn more: bit.ly/3eEbupp #NotJustTTTS
TAPS is not the same as TTTS. It’s a separate disease caused by tiny placental connections. They can co-exist, but they have different criteria, outcomes, and treatments. It’s time to recognize TAPS. Learn more: bit.ly/3eEbupp Just 8 days until International #TAPSDay #NotJustTTTS
February 23, 2025 at 6:17 PM
TAPS is not the same as TTTS. It’s a separate disease caused by tiny placental connections. They can co-exist, but they have different criteria, outcomes, and treatments. It’s time to recognize TAPS. Learn more: bit.ly/3eEbupp Just 8 days until International #TAPSDay #NotJustTTTS
TAPS is a rare disease that is often misdiagnosed. Families face challenges due to a lack of awareness. Help raise awareness on March 3rd by contacting [email protected] or visiting bit.ly/3eEbupp to get involved.
#NotJustTTTS #TAPSDay #ITD2025 #TAPSawareness
#NotJustTTTS #TAPSDay #ITD2025 #TAPSawareness
February 21, 2025 at 11:51 AM
TAPS is a rare disease that is often misdiagnosed. Families face challenges due to a lack of awareness. Help raise awareness on March 3rd by contacting [email protected] or visiting bit.ly/3eEbupp to get involved.
#NotJustTTTS #TAPSDay #ITD2025 #TAPSawareness
#NotJustTTTS #TAPSDay #ITD2025 #TAPSawareness