#MEAwarenessMonth
Prepare for AWESOMENESS

Foggy did KARAOKE! #BucketList!

CW - Muted disco lights in this video

www.instagram.com/reel/C6hEx3C...

Foggy would LOVE his Followers to show how much they love his angelic singing voice with a donation!

www.justgiving.com/page/mefoggy...

#pwME #MEcfs #MEAwarenessMonth
May 3, 2024 at 6:47 PM Everybody can reply
1 likes
We're in the last week of #MEAwarenessMonth and the last week of my match! Remember that I am *double-matching* the donations you make as part of my fundraiser. So far we've raised a grand total of $1707 for MEAction and $406 for OMF = $6339 total with match!! Can we show OMF some love?! 💙
eha.sh e. hashman @eha.sh · May 12
There is no limit to my match this month!! So I've created fundraisers for:

@openmedf.bsky.social: openmedicinefoundation.crowdchange.co/50084
@meactnet.bsky.social: meaction.funraise.org/fundraiser/e...

But I will match any donations to ME-supporting 501c3s with a receipt.
May 27, 2025 at 10:58 PM Everybody can reply
6 reposts 2 likes
1/2 #ONLINE arte Mediathek I arte YouTube Kanal
Dokumentation, 92 Minuten
#ChronischKrank - #ChronischIgnoriert

Würde mich freuen, wenn Ihr zum #MEAwarenessMonth #EDSAwarenessMonth ##LymeAwarenessMonth nochmals auf die 92 Minuten Dokumentation aufmerksam macht 🙏

www.youtube.com/watch?v=YnnD...
Chronisch krank, chronisch ignoriert | Doku HD | ARTE
YouTube video by ARTEde
www.youtube.com
May 6, 2025 at 12:08 PM Everybody can reply
16 reposts 21 likes
This form is really easy to fill out in order to submit letters and make calls to your congressional reps in the US! It's just a few clicks! #DoSomething #MEAwarenessMonth
🔗 Take action now: solvecfs.quorum.us/campaign/124...
Deadline is Friday at noon (12 pm ET)!

Together, we can make sure Congress hears us loud and clear. Your story truly makes a difference! 💙
#SaveCDCCFSProgram #MECFS #Advocacy #pwME #YourVoiceMatters
🚨 Help Protect ME/CFS Research—Take Action Now!
Dear Colleague Letters Ciculating Now - Deadline is Friday at Noon!
solvecfs.quorum.us
May 15, 2025 at 10:11 PM Everybody can reply
1 reposts 2 likes
Vorfreude!

Heute findet die 3. Internationale ME/CFS-Forschungskonferenz der Charité in Berlin statt!
Die Teilnahme ist kostenlos – Anmeldung noch möglich!

events.mecfs-research.org/de/events/co...

#MECFS #Charité #Forschung #MEAwarenessMonth #MEAwarenessDay
May 12, 2025 at 5:08 AM Everybody can reply
34 reposts 100 likes
#MEAwarenessMonth – Day 3

1988, the CDC recognise that it’s not a new illness and it’s most commonly referred to as ME, but decide on a new name: Chronic Fatigue Syndrome. Dr. Anthony Komaroff, who is part of the group that coins the name, later admits this was a “big mistake”
May 3, 2025 at 6:13 AM Everybody can reply
13 reposts 2 quotes 26 likes
Research,
care and awareness:
#MECFS connects – scientifically, personally, and across disciplines.
It was a pleasure to reconnect and exchange with Christian Puta at the ME/CFS Conference in Berlin.
#PEM
#MEAwareness #MillionsMissing #MEAwarenessMonth
May 14, 2025 at 6:43 PM Everybody can reply
2 reposts 1 quotes 27 likes
Nicht verpassen!
#MedSky #Medizin

Mit #UniteToFight2024 haben #LongCOVID- und #MECFS- Betroffene und Unterstützende eine internationale Konferenz organisiert, die wirklich ihresgleichen sucht.

unitetofight2024.world

Jetzt kostenfrei anmelden für Tag 2 morgen.

#MEAwarenessHour #MEAwarenessMonth
UniteToFight2024 – Long Covid and ME/CFS conference
The first and biggest community-driven ME/CFS and Long COVID conference
unitetofight2024.world
May 15, 2024 at 8:26 PM Everybody can reply
3 reposts 12 likes
In a kinder more understanding world it wouldn’t be so hard. Self care would be supported and reinforced for people with chronic illness. Instead of self care being seen as a reward for productivity. #pwME #millionsmissing #MEawarenessmonth
May 9, 2025 at 10:55 PM Everybody can reply
5 likes
1) OMG we did it‼️‼️

In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before.

They speak candidly about their experiences

youtu.be/J0ywwLIfH_w?...
Doctors as Patients (with subtitles)
YouTube video by Anil about ME
youtu.be
May 12, 2025 at 6:41 AM Everybody can reply
1 likes
due to an 'unwise decision' being made.

Please DM or email if you have experience of this and consent to me using your lived experience as an example.

[email protected]

#pwME #MEAwarenessMonth #MEcfs
May 1, 2025 at 3:51 PM Everybody can reply
1) OMG we did it‼️‼️

In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before.

They speak candidly about their experiences

youtu.be/J0ywwLIfH_w?...
Doctors as Patients (with subtitles)
YouTube video by Anil about ME
youtu.be
May 5, 2025 at 8:11 AM Everybody can reply
1 reposts
4) are subtitles in different languages included, and there will be more to follow. Don't forget to share! 🙏👍♥️

Groetjes,

Anil

#MEawarenessMonth
#MEawarenessWeek
#MEawarenessday (which is tomorrow)

#pwme #myalgicE #millionsmissing #severeME #MECFS #MEcvs

youtu.be/yLRateIQdzc?...
The prison of M.E.
Having #severeME and being homebound often feels like a prison. You're locked up in your home and your body, away from society, your loved ones, from the life you desperately yearn to live. Most years, I see maybe one or two people, and many years I didn't see anyone at all. I often get the question how do I get by and how do I get help, even though I don't really see or communicate with anyone. My health has somewhat stabilized since moving to a new and quiet place, and I can therefore do a bit more (hence the filming), but other than these changes, I'm still very much imprisoned by ME. So, like last year, I decided to document my life locked up in my home by ME to give a unique insight into my life with ME and how I spend the last year(s).  I hope you'll enjoy watching it. There are subtitles in different languages included, and there will be more to follow. Don't forget to share! 🙏👍♥️ Groetjes,  Anil  #MEawarenessMonth #MEawarenessday (which is tomorrow) #pwme #myalgicE #millionsmissing Subtitles: NL: Rob Wijbenga IT: Chiara Ginestra ENG: Anil van der Zee
youtu.be
May 11, 2024 at 12:32 PM Everybody can reply
8 reposts 1 quotes 19 likes
Last day.

We've now exceeded the original target. Thank you to all who have donated.

Funds that exceed the target will be put in a separate pot towards future events 💙🙏

www.crowdfunder.co.uk/p/supporting...

#MEAwarenessMonth #pwME #MEcfs
www.crowdfunder.co
May 13, 2025 at 7:13 AM Everybody can reply
2 likes
We’re sending out a #DisabilitySOS to @colmandomingo.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth
May 23, 2025 at 9:26 PM Everybody can reply
3 reposts 1 quotes 5 likes
We’re sending out a #DisabilitySOS to @ronnychieng.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth
May 28, 2025 at 10:51 PM Everybody can reply
2 reposts 1 quotes 9 likes