Ever heard a hepatologist call themselves a bile duct plumber? 🛠️
Dr Deepak Joshi uses this analogy to explain biliary sludge — what it is, what it can cause, and how it’s treated.
From our Ask the Expert webinar, Jan 2023.
#LetsBeatPSC #BileDucts #PSC
Dr Deepak Joshi uses this analogy to explain biliary sludge — what it is, what it can cause, and how it’s treated.
From our Ask the Expert webinar, Jan 2023.
#LetsBeatPSC #BileDucts #PSC
June 11, 2025 at 10:03 AM
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Raise FREE donations for PSC Support EVERY time you shop online using @easyuk. Over 8,000 retailers will donate including all the big names like eBay, ASOS, Expedia, M&S, Just Eat, Uswitch and more! ➡️ www.easyfundraising.org.uk/causes/pscsu... #LetsBeatPSC
August 3, 2025 at 9:01 AM
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Just a totally normal day for Mark — casually strolling through a giant colon, snuggling up to a polyp, and chatting with gastroenterologists, hepatologists, researchers, nurses, & charities #BSG2025 this week. Nothing to see here… 👀💩 #LetsBeatPSC @gutscharityuk.bsky.social
June 25, 2025 at 8:01 AM
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Ever been to Paris in the spring? 🥐🌸 We can help make this dream a reality… all you have to do is train, fundraise, and run 26.2 miles! ➡️ runforcharity.com/psc-support/...
#LetsBeatPSC @ParisMarathon
#LetsBeatPSC @ParisMarathon
September 6, 2025 at 8:00 AM
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We've become aware that of a national shortage of #Rifampicin. If you take Rifampicin for #PSCitch, contact your liver specialist to discuss options.
👉 buff.ly/Lya4eGR
#PSCSupport #MedicationUpdate #LetsBeatPSC
👉 buff.ly/Lya4eGR
#PSCSupport #MedicationUpdate #LetsBeatPSC
September 4, 2025 at 6:30 PM
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Sometimes a liver biopsy is needed to understand what's happening inside your liver. But what does that involve? 🤔 Katie shares her first ever liver biopsy experience in her own words.
➡️ pscsupport.org.uk/psc-and-me/k... #PatientVoices #LiverBiopsy #PatientExperience #LetsBeatPSC
➡️ pscsupport.org.uk/psc-and-me/k... #PatientVoices #LiverBiopsy #PatientExperience #LetsBeatPSC
October 16, 2025 at 9:01 AM
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“Clinical research isn’t just medicine - it's hope.” Varda refused to let #PSC define her. Joining a clinical trial gave her strength, control, & belief in a brighter future for everyone with PSC. #PSCAwarenessDay #PatientVoices #LetsBeatPSC @EuropeLiver @Leverpatienten
October 24, 2025 at 1:04 PM
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🧪 Promising research breakthrough! A simple blood test could help detect bile duct cancer (#CCA) earlier in people with #PSC. This non-invasive test showed 100% accuracy in distinguishing CCA from PSC in a recent study.
🔗https://pscsupport.org.uk/blood-test-to-detect-bile-duct-cancer/
#LetsBeatPSC
🔗https://pscsupport.org.uk/blood-test-to-detect-bile-duct-cancer/
#LetsBeatPSC
May 17, 2025 at 8:02 AM
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🗓 Join a virtual discussion – 16 Apr, 4-5.30pm
🎁 Shopping vouchers for attendees
📩 Email Erin to take part: [email protected]
#LiverHealth #MedicalResearch #PatientVoices #LetsBeatPSC (2 of 2)
🎁 Shopping vouchers for attendees
📩 Email Erin to take part: [email protected]
#LiverHealth #MedicalResearch #PatientVoices #LetsBeatPSC (2 of 2)
April 7, 2025 at 9:01 AM
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Missed our Newport Information Day? Catch up now!
We’ve shared all the presentations online—including the latest PSC research, managing symptoms, clinic tips, and more.
👉 View here: pscsupport.org.uk/newport-2025...
#PSCsupport #PSCresearch #LetsBeatPSC #RareDisease
We’ve shared all the presentations online—including the latest PSC research, managing symptoms, clinic tips, and more.
👉 View here: pscsupport.org.uk/newport-2025...
#PSCsupport #PSCresearch #LetsBeatPSC #RareDisease
May 31, 2025 at 8:07 AM
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That means faster answers, less anxiety, and earlier support for people living with PSC.
If you can, please consider becoming a regular donor or fundraising for #PSCSupport.
➡️ pscsupport.org.uk/donate/ #PSCDiagnosis #LetsBeatPSC (3/3)
If you can, please consider becoming a regular donor or fundraising for #PSCSupport.
➡️ pscsupport.org.uk/donate/ #PSCDiagnosis #LetsBeatPSC (3/3)
Donate – PSC Support
Donate
buff.ly
September 11, 2025 at 8:00 AM
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Could YOU complete our #20KYourWay Challenge this April? Run, walk, swim or cycle 20 kilometres. Or get creative: knit & sell 20 items, do 20 acts of kindness, or 20 kangaroo jumps a day!🦘 There's no wrong way—just YOUR way!
➡️ buff.ly/ULypQ2a
#LetsBeatPSC #PSCSupport
➡️ buff.ly/ULypQ2a
#LetsBeatPSC #PSCSupport
March 5, 2025 at 12:28 PM
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When you’re living with an invisible illness, sometimes silence can feel heavier than the illness itself. You don’t need the perfect words, just any words that show you care.
Lead with kindness. Be present. Your support matters more than you know.
#InvisibleIllness #LetsBeatPSC #PSC
Lead with kindness. Be present. Your support matters more than you know.
#InvisibleIllness #LetsBeatPSC #PSC
August 17, 2025 at 9:02 AM
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Does PSC affect bone health?
#letsbeatpsc #bonehealth #strongbones #psc #liverdisease #skeletonsquad #halloweenhealth #fracturefree #boneaware #spookyseason
#letsbeatpsc #bonehealth #strongbones #psc #liverdisease #skeletonsquad #halloweenhealth #fracturefree #boneaware #spookyseason
October 21, 2025 at 10:00 AM
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Tom’s 2021 liver transplant for PSC gave him back energy & normality. 💗
As #OrganDonationWeek ends, have you registered your wishes?
👉 buff.ly/XfSzxPg
#ODW25 #LetsBeatPSC
As #OrganDonationWeek ends, have you registered your wishes?
👉 buff.ly/XfSzxPg
#ODW25 #LetsBeatPSC
September 28, 2025 at 5:03 PM
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We're working with a leading #PSCresearcher to plan an international clinical trial to assess #vancomycin in people with PSC. Share your views and experience of clinical trials and vancomycin? 2-3 mins will help us plan the right research the right way.
www.surveymonkey.com/r/VPSC2005sm #LetsBeatPSC
www.surveymonkey.com/r/VPSC2005sm #LetsBeatPSC
October 8, 2025 at 8:01 AM
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Hope knows no borders 🌍
#HopeInAction #GlobalPSCAwarenessDay #LetsBeatPSC #PSCAwareness
ℹ️ pscsupport.org.uk/global-psc-a...
#HopeInAction #GlobalPSCAwarenessDay #LetsBeatPSC #PSCAwareness
ℹ️ pscsupport.org.uk/global-psc-a...
October 26, 2025 at 8:33 AM
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If you are a friend or family member of someone with PSC, we're here for you too. PSC stands for primary sclerosing cholangitis but there’s more to PSC than a long name.
👉 pscsupport.org.uk/know-someone... #LetsBeatPSC #PSCCommunity #PSC
👉 pscsupport.org.uk/know-someone... #LetsBeatPSC #PSCCommunity #PSC
March 23, 2025 at 10:00 AM
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Although PSC is a liver disease, it is not caused by alcohol. #PSCFacts #LetsBeatPSC #LiverDisease #PSC #PSCInfo
July 28, 2025 at 6:01 PM
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Apparently you have to be called James in order to be one of our FB group moderators 😆 Ok, you don't really but as chance would have it we've announced James R and James L as our newest moderators. No one should have to face PSC alone.
➡️ www.facebook.com/groups/pscsu...
#LetsBeatPSC
➡️ www.facebook.com/groups/pscsu...
#LetsBeatPSC
August 16, 2025 at 9:02 AM
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IPSCSG Young Investigators Workshop 2025
22 to 23 September
www.ipscsg.org/meetings-and...
#letsbeatPSC
22 to 23 September
www.ipscsg.org/meetings-and...
#letsbeatPSC
Meetings and Workshops
www.ipscsg.org
May 20, 2025 at 6:36 PM
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Running for her Grandad. Running for a cure. "My Grandad. My Hero. My Grandfather Clock. My weatherman. My best friend." Erena prepares to take on her 4th @great_run, raising vital awareness, funds and hope for the PSC community.
➡️ ajbellgreatnorthrun2025.enthuse.com/pf/erena-tun... #LetsBeatPSC
➡️ ajbellgreatnorthrun2025.enthuse.com/pf/erena-tun... #LetsBeatPSC
August 27, 2025 at 8:53 AM
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September 19, 2025 at 2:23 PM
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October is Free Wills Month - an opportunity to write or update a simple will for free. There’s no obligation to leave a gift, but any legacy you choose to leave helps us provide vital support, information, and research.
👉 Learn more: pscsupport.org.uk/wills #LetsBeatPSC
👉 Learn more: pscsupport.org.uk/wills #LetsBeatPSC
October 6, 2025 at 10:15 AM
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Football legend & PSC patient Kieron Dyer shares the emotional reality of liver transplant and the urgent need for organ donors, research & a cure for #PSC.
🎥 Full interview: buff.ly/HMbjWEN
⚠️ Trigger warning: this content may be distressing. #LetsBeatPSC #KieronDyer #OrganDonation
🎥 Full interview: buff.ly/HMbjWEN
⚠️ Trigger warning: this content may be distressing. #LetsBeatPSC #KieronDyer #OrganDonation
May 9, 2025 at 7:37 AM
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