publications.aap.org/hospitalpedi... #CSHCN #CCI #Research

journals.lww.com/pccmjournal/... #PedsICU #CSHCN #CCI more understanding to help families and providers with #perioperative care and planning

Every child with special health care needs (CSHCN*) deserves family-centered, consistent, high qualityhealth care.

#CYSHCN #MedicalHome
#Resources #FVAL

familyvoicesal.org/resources-do...

For family members who continue working, health insurance often keeps them in their jobs. An estimated 18% of California CSHCN and 14% nationwide had someone in their family who avoided changing jobs in the previous year due to concerns about maintaining coverage.
www.kidsdata.org/blog/?p=11313

PRB @prbdata.bsky.social

Nationwide, >60% of children with special health care needs have conditions that regularly affect their ability to do the same things as other kids.

Our new @kidsdata.bsky.social blog provides crucial insights on daily life for #CSHCN & their families: bit.ly/3Gp9Rh2

The share of California CSHCN who missed 11 or more school days in the previous year due to illness or injury was 19%—around 5.5 times higher than the share of children without special health care needs.

Learn more in our June blog: www.kidsdata.org/blog/?p=11313

State leaders are reimagining long-term care – from rural access to family caregiving support.

At #NASHPCONF2025, don’t miss sessions on:
– Aging, Disability & CSHCN
– Home- and Community-Based Services
– Health in Rural America

📅 Sept. 8–10 | 🌐 nashp.org/conference

10.1007/s10882-023-09936-2
Dr. Sobotka a great #CCI / #CSHCN #advocate highlighting complex #MedicalParenting

Thrilled that we could highlight #CCI / #CMC / #CSHCN and the role the #PedsICU has in improving care and outcomes for these children and their families.

publications.aap.org/pediatrics/a... Need for more #research and #support #CSHCN #CMC See Dr. Foster's work as a foundation and to generate ideas.

Although a vast majority of children with special health care needs (CSHCN) in CA (96%) were consistently insured in 2022—meaning they were covered during all 12 months of the prior year—only 59% of CSHCN had *adequate* health insurance, compared w 71% of children without special health care needs.

When sick, California CSHCN covered only by public health insurance were more likely to use the emergency room or to have no usual source of care (25%) than those w private insurance (14%). Privately insured CSHCN are more likely to have a doctor’s office or usual source of care to turn to when ill.

Mental health conditions are common among children with special health care needs (CSHCN).
According to 2022 data, 51% of CA CSHCN ages 3-17 had 1+ diagnosed mental health conditions—ADHD, anxiety, behavior/conduct problems, or depression—compared w ~5% of their peers.
www.kidsdata.org/blog/?p=11068

Children w special health care needs (CSHCN) are more likely to have multiple adverse childhood experiences (ACEs) than their peers. The share of CSHCN who have experienced 4+ ACEs is more than 5X that of children without special health care needs.
www.kidsdata.org/blog/?p=11068

In a series starting this month, KidsData News is examining the data on CSHCN and their families to understand who they are, their strengths, and the challenges they face.
Read Part 1 here:

In California & across the US, around 1 in 5 children with special health care needs (CSHCN) with health visits in the previous year did not receive family-centered care, according to recent data.
Read more here:
www.kidsdata.org/blog/?p=11056

Telemedicine effective in care for children with special healthcare needs - FierceHealthIT: #CSHCN...