🔑 Cellular & molecular mechanisms of ETMR decoded:
Researchers from #MedUniVienna and @danafarber.bsky.social have identified potential targets for therapy of this #braintumour in children. ⬇️
📰 @natcancer.nature.com
Researchers from #MedUniVienna and @danafarber.bsky.social have identified potential targets for therapy of this #braintumour in children. ⬇️
📰 @natcancer.nature.com
New insights into rare type of brain tumour in children
More about the study!
www.meduniwien.ac.at
October 24, 2025 at 1:12 PM
🔑 Cellular & molecular mechanisms of ETMR decoded:
Researchers from #MedUniVienna and @danafarber.bsky.social have identified potential targets for therapy of this #braintumour in children. ⬇️
📰 @natcancer.nature.com
Researchers from #MedUniVienna and @danafarber.bsky.social have identified potential targets for therapy of this #braintumour in children. ⬇️
📰 @natcancer.nature.com
www.thebraintumourcharity.org/get-involved...
The BrainTumour Charity’s Scotland Steering Committee is seeking volunteer members. I’m proud to be a member. Would you consider joining us??
The BrainTumour Charity’s Scotland Steering Committee is seeking volunteer members. I’m proud to be a member. Would you consider joining us??
Volunteer from home
Explore our flexible digital volunteer opportunities that can be done from home, in your own time.
www.thebraintumourcharity.org
June 13, 2025 at 12:36 PM
www.thebraintumourcharity.org/get-involved...
The BrainTumour Charity’s Scotland Steering Committee is seeking volunteer members. I’m proud to be a member. Would you consider joining us??
The BrainTumour Charity’s Scotland Steering Committee is seeking volunteer members. I’m proud to be a member. Would you consider joining us??
In 2020, Nicolette faced sudden shock of a glioblastoma diagnosis from which she never recovered. 2 weeks later, she passed away, leaving behind her partner Austen & their daughter, Isabella. 💔
Watch Nicolette’s story.
#BrainTumour #BrainTumourResearch #TogetherWeWillFindACure
Watch Nicolette’s story.
#BrainTumour #BrainTumourResearch #TogetherWeWillFindACure
May 8, 2025 at 12:56 PM
In 2020, Nicolette faced sudden shock of a glioblastoma diagnosis from which she never recovered. 2 weeks later, she passed away, leaving behind her partner Austen & their daughter, Isabella. 💔
Watch Nicolette’s story.
#BrainTumour #BrainTumourResearch #TogetherWeWillFindACure
Watch Nicolette’s story.
#BrainTumour #BrainTumourResearch #TogetherWeWillFindACure
Its Charity Tuesday 🐕
A donation from each sale of handmade Mighty Maisie keyrings & bag charms goes to Brain Tumour Charity Mighty Maisie 🎁 Currently with 15% off at misheleneous.etsy.com
Founder Amy's real life #Cockalier dog (pictured) is the #Charity mascot
#Etsy #BrainTumour #Dogs #Bsnm
A donation from each sale of handmade Mighty Maisie keyrings & bag charms goes to Brain Tumour Charity Mighty Maisie 🎁 Currently with 15% off at misheleneous.etsy.com
Founder Amy's real life #Cockalier dog (pictured) is the #Charity mascot
#Etsy #BrainTumour #Dogs #Bsnm
August 26, 2025 at 6:14 PM
Its Charity Tuesday 🐕
A donation from each sale of handmade Mighty Maisie keyrings & bag charms goes to Brain Tumour Charity Mighty Maisie 🎁 Currently with 15% off at misheleneous.etsy.com
Founder Amy's real life #Cockalier dog (pictured) is the #Charity mascot
#Etsy #BrainTumour #Dogs #Bsnm
A donation from each sale of handmade Mighty Maisie keyrings & bag charms goes to Brain Tumour Charity Mighty Maisie 🎁 Currently with 15% off at misheleneous.etsy.com
Founder Amy's real life #Cockalier dog (pictured) is the #Charity mascot
#Etsy #BrainTumour #Dogs #Bsnm
🚨Paper alert🚨“What is this brain’s story?”
#HCP provide diverse support in managing #BrainTumour related personality & behaviour change. We need interventions to be formulation-driven, individual care, & focus on patient-carer dyad. url:https://academic.oup.com/nop/article-abstract/12/3/437/7959517
#HCP provide diverse support in managing #BrainTumour related personality & behaviour change. We need interventions to be formulation-driven, individual care, & focus on patient-carer dyad. url:https://academic.oup.com/nop/article-abstract/12/3/437/7959517
June 7, 2025 at 9:45 PM
🚨Paper alert🚨“What is this brain’s story?”
#HCP provide diverse support in managing #BrainTumour related personality & behaviour change. We need interventions to be formulation-driven, individual care, & focus on patient-carer dyad. url:https://academic.oup.com/nop/article-abstract/12/3/437/7959517
#HCP provide diverse support in managing #BrainTumour related personality & behaviour change. We need interventions to be formulation-driven, individual care, & focus on patient-carer dyad. url:https://academic.oup.com/nop/article-abstract/12/3/437/7959517
Drew this 2 years ago
Nathaniel Mendez-Laing
Pastel on Paper
A3 Size
Derby County Community Trust Derby County NSPCC Children's Brain Tumour Research Centre
#DCFC #DCFCFamily #BrainTumour #KeepSmilingTilly
Nathaniel Mendez-Laing
Pastel on Paper
A3 Size
Derby County Community Trust Derby County NSPCC Children's Brain Tumour Research Centre
#DCFC #DCFCFamily #BrainTumour #KeepSmilingTilly
January 27, 2025 at 7:36 PM
Drew this 2 years ago
Nathaniel Mendez-Laing
Pastel on Paper
A3 Size
Derby County Community Trust Derby County NSPCC Children's Brain Tumour Research Centre
#DCFC #DCFCFamily #BrainTumour #KeepSmilingTilly
Nathaniel Mendez-Laing
Pastel on Paper
A3 Size
Derby County Community Trust Derby County NSPCC Children's Brain Tumour Research Centre
#DCFC #DCFCFamily #BrainTumour #KeepSmilingTilly
The latest instalment of my wife’s road to recovery post brain-op and post chemo detailing her progress one step at a time
#braintumour
A cracking if not cheery read
bombinmybrain.wordpress.com/2025/06/08/a...
#braintumour
A cracking if not cheery read
bombinmybrain.wordpress.com/2025/06/08/a...
A Marathon not a Sprint
June 2025 I’ve not posted or even thought about doing so in about doing so in the last couple of years and I’m not entirely sure why. Perhaps it was the hideousness of the PIP process. It left me …
bombinmybrain.wordpress.com
June 9, 2025 at 10:38 AM
The latest instalment of my wife’s road to recovery post brain-op and post chemo detailing her progress one step at a time
#braintumour
A cracking if not cheery read
bombinmybrain.wordpress.com/2025/06/08/a...
#braintumour
A cracking if not cheery read
bombinmybrain.wordpress.com/2025/06/08/a...
Today’s the 8th anniversary of my surgery to remove my 🧠 tumour.
I am so lucky to still be here.
It is why I tirelessly try to raise awareness and help others.
I hope I’m a voice for the many less fortunate who are no longer with us ❤️
#braintumour #volunteer
I am so lucky to still be here.
It is why I tirelessly try to raise awareness and help others.
I hope I’m a voice for the many less fortunate who are no longer with us ❤️
#braintumour #volunteer
February 16, 2025 at 2:44 PM
Today’s the 8th anniversary of my surgery to remove my 🧠 tumour.
I am so lucky to still be here.
It is why I tirelessly try to raise awareness and help others.
I hope I’m a voice for the many less fortunate who are no longer with us ❤️
#braintumour #volunteer
I am so lucky to still be here.
It is why I tirelessly try to raise awareness and help others.
I hope I’m a voice for the many less fortunate who are no longer with us ❤️
#braintumour #volunteer
Kevin O’Neill joins The Convex Conversation to talk about Davina's brain surgery.
Next week, his co-founder, & our Trustee, Wendy Fulcher, whose late husband John died from a #BrainTumour, will share her story.
Listen now ➡️ spoti.fi/4djX4Zo
#BrainTumourResearch
Next week, his co-founder, & our Trustee, Wendy Fulcher, whose late husband John died from a #BrainTumour, will share her story.
Listen now ➡️ spoti.fi/4djX4Zo
#BrainTumourResearch
Neurosurgeon Kevin O’Neill – the Man Davina McCall Says Saved Her
The Convex Conversation · Episode
spoti.fi
May 13, 2025 at 9:52 AM
Kevin O’Neill joins The Convex Conversation to talk about Davina's brain surgery.
Next week, his co-founder, & our Trustee, Wendy Fulcher, whose late husband John died from a #BrainTumour, will share her story.
Listen now ➡️ spoti.fi/4djX4Zo
#BrainTumourResearch
Next week, his co-founder, & our Trustee, Wendy Fulcher, whose late husband John died from a #BrainTumour, will share her story.
Listen now ➡️ spoti.fi/4djX4Zo
#BrainTumourResearch
This #FactualFriday we wanted to highlight the many different kinds of brain tumours out there? 💡
#Fact #Cancer #BrainTumour #Tumour #HopeSpring #Hope #BrainCancer
#Fact #Cancer #BrainTumour #Tumour #HopeSpring #Hope #BrainCancer
June 27, 2025 at 2:06 PM
This #FactualFriday we wanted to highlight the many different kinds of brain tumours out there? 💡
#Fact #Cancer #BrainTumour #Tumour #HopeSpring #Hope #BrainCancer
#Fact #Cancer #BrainTumour #Tumour #HopeSpring #Hope #BrainCancer
🚨New paper🚨 We identified how #carers & #HCP define & describe #BTSM #BrainTumour related personality & behaviour changes. They are nuanced & complex. Grief, isolation & safety concerns are experienced by carers. #Aggression is a major concern. There is work to do
link.springer.com/10.1007/s005...
link.springer.com/10.1007/s005...
Defining the symptoms of personality and behaviour changes in brain tumour patients and their impact on caregivers - Supportive Care in Cancer
Purpose This study aimed to (i) identify how carers and healthcare professionals define and describe brain tumour–related personality and behaviour changes in adults and (ii) explore the impact of the...
link.springer.com
October 18, 2025 at 8:49 PM
🚨New paper🚨 We identified how #carers & #HCP define & describe #BTSM #BrainTumour related personality & behaviour changes. They are nuanced & complex. Grief, isolation & safety concerns are experienced by carers. #Aggression is a major concern. There is work to do
link.springer.com/10.1007/s005...
link.springer.com/10.1007/s005...
OTD in 2023 I was in A&E in Auckland City Hospital about to be told at 3amish by a very nervous young doctor - because at that point I was on my own - that I had a 3cm #BrainTumour & needed emergency surgery with my husband and kids on the other side of the world...
January 11, 2025 at 10:37 AM
OTD in 2023 I was in A&E in Auckland City Hospital about to be told at 3amish by a very nervous young doctor - because at that point I was on my own - that I had a 3cm #BrainTumour & needed emergency surgery with my husband and kids on the other side of the world...
If you or a loved one have been affected by a rare cancer please urge your MP to attend and support the second reading of this bill on Fri 14th March. #rarecancersbill #rarecancers #braintumour #sarcoma #neuroblastoma #leiomyosarcoma #panreaticcancer #oncosky #cansky #cancerresearch
It's really humbling to have @lesssurvivable.bsky.social support my Rare Cancers Bill.
Not only do they support it, they have helped shape it!
See - www.politicshome.com/thehouse/art...
Not only do they support it, they have helped shape it!
See - www.politicshome.com/thehouse/art...
The Rare Cancers Bill is an opportunity to save thousands of lives
The second reading of Dr Scott Arthur MP’s Rare Cancers Bill will take place in Parliament this Friday 14 March and could be a truly transformative...
www.politicshome.com
March 13, 2025 at 9:19 AM
If you or a loved one have been affected by a rare cancer please urge your MP to attend and support the second reading of this bill on Fri 14th March. #rarecancersbill #rarecancers #braintumour #sarcoma #neuroblastoma #leiomyosarcoma #panreaticcancer #oncosky #cansky #cancerresearch
If you’ve been affected by a rare cancer and you live in the UK please contact your local MP and urge them to support the #rarecancers bill. #sarcoma #braintumour #pancreaticcancer #bloodcancer #oncosky #cansky #thankscancer
Yesterday, I attended the Rare Cancers Bill drop-in briefing session led by Dr Scott Arthur MP.
Rare cancers account for 47% of UK cases and 55% of deaths, yet they receive far less funding. This Bill has the potential to improve survival rates and give hope to patients and families.
Rare cancers account for 47% of UK cases and 55% of deaths, yet they receive far less funding. This Bill has the potential to improve survival rates and give hope to patients and families.
March 10, 2025 at 4:18 PM
If you’ve been affected by a rare cancer and you live in the UK please contact your local MP and urge them to support the #rarecancers bill. #sarcoma #braintumour #pancreaticcancer #bloodcancer #oncosky #cansky #thankscancer
All we know at the moment is my Nephew come through surgery abound 1441 had a headache , his mum will let me know more after she seen him, #BrainTumour 🧠
My Nephew when Down 9:10 this morning, 🍀 🙏 🤞 #BrainTumour 🧠
My Nephew is having craniotomy tomorrow for a brain tumour his is only 33 has 2 twin boys, (Hopefully this time will go ahead though) 🙏#BrainTumour 🧠
February 24, 2025 at 4:16 PM
All we know at the moment is my Nephew come through surgery abound 1441 had a headache , his mum will let me know more after she seen him, #BrainTumour 🧠
In a twist of irony, Specsvaers sent me a reminder that I need an eye test. It was an eye test this time last year that started this fun journey! #braintumour
April 9, 2025 at 4:39 AM
In a twist of irony, Specsvaers sent me a reminder that I need an eye test. It was an eye test this time last year that started this fun journey! #braintumour
Keeping everything crossed for Charly’s nephew
#BrainTumour
#BrainTumour
My Nephew is having craniotomy tomorrow for a brain tumour his is only 33 has 2 twin boys, (Hopefully this time will go ahead though) 🙏#BrainTumour 🧠
February 23, 2025 at 9:08 PM
Keeping everything crossed for Charly’s nephew
#BrainTumour
#BrainTumour
Six month brain MRI tomorrow. The emergency CT scan on my neck last week showed a weird incidental finding where my brain tumour was removed, so this should be fun. 😟
#braintumourawareness
#braintumour #scanxiety #CanSky #OncoSky #CancerBS #fuckcancer #braintumor
#braintumourawareness
#braintumour #scanxiety #CanSky #OncoSky #CancerBS #fuckcancer #braintumor
February 1, 2025 at 6:48 PM
Six month brain MRI tomorrow. The emergency CT scan on my neck last week showed a weird incidental finding where my brain tumour was removed, so this should be fun. 😟
#braintumourawareness
#braintumour #scanxiety #CanSky #OncoSky #CancerBS #fuckcancer #braintumor
#braintumourawareness
#braintumour #scanxiety #CanSky #OncoSky #CancerBS #fuckcancer #braintumor
Read @POCOG1's post sharing a new study exploring #BrainTumour related personality and behaviour change in adults with #BTSM - it is not much talked about and carers and families are dealing with it as best they can.
#SuppOnc #PsyOnc
www.linkedin.com/posts/psycho...
#SuppOnc #PsyOnc
www.linkedin.com/posts/psycho...
Defining the symptoms of personality and behaviour changes in brain tumour patients and their impact on caregivers - Supportive Care in Cancer | Psycho-oncology Co-operative Research Group
🚨New paper🚨
In this study our team identified how #carers & #HCP define & describe #BrainTumour related personality & behaviour changes. They are nuanced & complex. Grief, isolation & safety concern...
www.linkedin.com
October 18, 2025 at 9:11 PM
Read @POCOG1's post sharing a new study exploring #BrainTumour related personality and behaviour change in adults with #BTSM - it is not much talked about and carers and families are dealing with it as best they can.
#SuppOnc #PsyOnc
www.linkedin.com/posts/psycho...
#SuppOnc #PsyOnc
www.linkedin.com/posts/psycho...
Oh no! Charly I’m so sorry to hear this, what an incredibly stressful time your nephew & your fam are having. My heart goes out to you all xx💐
#BrainTumour
#BrainTumour
February 10, 2025 at 7:01 PM
Oh no! Charly I’m so sorry to hear this, what an incredibly stressful time your nephew & your fam are having. My heart goes out to you all xx💐
#BrainTumour
#BrainTumour
Radiation models of brain cancer and toxicity, Neuronal networks in brain tumours and Translational neuroscience: a primer. #BrainCancer #BrainTumour #BrainCancerResearch
February 16, 2025 at 3:19 AM
Radiation models of brain cancer and toxicity, Neuronal networks in brain tumours and Translational neuroscience: a primer. #BrainCancer #BrainTumour #BrainCancerResearch
Morning bluesky Today my Nephew only 33 is having surgery (craniotomy) it’s a 10-15 hour surgery, 🍀🤞🙏
#BrainTumour 🧠
#BrainTumour 🧠
February 10, 2025 at 7:37 AM
Morning bluesky Today my Nephew only 33 is having surgery (craniotomy) it’s a 10-15 hour surgery, 🍀🤞🙏
#BrainTumour 🧠
#BrainTumour 🧠
OTD 2 years ago (NZtime!) & only 5 days post #BrainTumour removal surgery I was discharged from hospital. I was smiling but scared in this pic as I was going to a mattress on the floor in the nearly empty NZ house all alone as hubbie was still trying to get to NZ from the UK...
January 22, 2025 at 8:30 AM
OTD 2 years ago (NZtime!) & only 5 days post #BrainTumour removal surgery I was discharged from hospital. I was smiling but scared in this pic as I was going to a mattress on the floor in the nearly empty NZ house all alone as hubbie was still trying to get to NZ from the UK...
Improving the outcomes of brain tumours requires much more research to be funded and conducted.
Look out for a full report published this week by the APPG on Brain Tumours, following a two-year inquiry.
#braintumour #glioblastoma
Look out for a full report published this week by the APPG on Brain Tumours, following a two-year inquiry.
#braintumour #glioblastoma
December 5, 2024 at 7:45 PM
Improving the outcomes of brain tumours requires much more research to be funded and conducted.
Look out for a full report published this week by the APPG on Brain Tumours, following a two-year inquiry.
#braintumour #glioblastoma
Look out for a full report published this week by the APPG on Brain Tumours, following a two-year inquiry.
#braintumour #glioblastoma