#BattenDay2024
For International Batten Disease Awareness Day, I rounded up shows and films that feature this horrific, fatal disease. It's a deeply personal topic, as my daughter has the CLN1 type. We're still hoping for a cure, but we need help to get there.

#Battenday2024

www.tvguide.com/news/the-bes...
The Best Movies and Shows to Watch for International Batten Disease Awareness Day
To get the word out for International Batten Disease Awareness Day, we're listing off the movies and television shows that mention the condition, including Chicago Med and Love, Kennedy.
www.tvguide.com
June 9, 2024 at 8:31 PM
For International Batten Disease Awareness Day, Jenn and I created a video celebrating some of the amazing children dealing with CLN1 Batten Disease, a horrendous and fatal genetic disorder.

Please give it a watch and consider sharing to spread the word!

#BattenDay2024

youtu.be/EVk4RrBHTTE?...
The Faces of CLN1 2024 | International Batten Disease Awareness Day 2024
This video showcases many of the amazing children who have been diagnosed with the CLN1 variant of Batten Disease. We're publishing this on June 9, 2024 in h...
youtu.be
June 8, 2024 at 10:35 PM
Batten Disease Awareness Day is June 9th and you can help by being an advocate!

The BDSRA has a pre-filled message ready and all you need to do is fill out your info and it’ll send to your legislators.

Please help us save lives!

#BattenDay2024

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International Batten Awareness Day 2024
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advocacy.charityengine.net
June 7, 2024 at 7:52 PM
June 6, 2024 at 4:07 AM