#AddisonsDiseaseDay
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addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
For #AddisonsDiseaseDay we teamed up with @pituitaryorg.bsky.social to host a Sick Day Rules webinar with Endocrine Specialist Nurse, Aldons Chua.

Over 200 people from around the world joined to hear expert advice on stress dosing & adrenal crisis. Watch back ⤵️
youtu.be/PYjjW1e0ADc?... (4/7)
Sick Day Rules Webinar with Aldons Chua, Endocrine Clinical Nurse Specialist
YouTube video by Addison's Disease Self-Help Group
youtu.be
May 29, 2025 at 10:44 AM Everybody can reply
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addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
Make a stand! #AddisonsDiseaseDay awareness in your hospital.

Calling all healthcare professionals! Set up an awareness stand to educate others on this rare condition and the needs of a steroid-dependent person. Find out more 👇
www.addisonsdisease.org.uk/run-an-aware...
Run an Awareness Stand
Help us fulfill one of the main aims of our charity: to spread awareness of Addison's disease and adrenal insufficiency. With our support, set up an Awareness stand in your local hospital to help educ...
www.addisonsdisease.org.uk
May 7, 2025 at 8:36 AM Everybody can reply
theendo.bsky.social
Therapeutic Advances in Endocrinology and Metabolism
@theendo.bsky.social
🟠 Addison’s Disease Day | May 29, 2025
Organized by: Addison’s Disease Self-Help Group

📣 Theme: "Know the Signs, Save a Life"

📄 We’re sharing insights from the article "Adrenal crisis: prevention and management in adult patients" doi.org/10.1177/2042...

#AddisonsDiseaseDay #AdrenalInsufficiency
May 29, 2025 at 10:29 AM Everybody can reply
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addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
Catching up with brilliant @socendocrinology.bsky.social Nurses at #SfEBES2025 and Emma from @pituitaryorg.bsky.social!

We're asking nurses to set up adrenal insufficiency awareness stands in hospitals for #AddisonsDiseaseDay (29 May).

Could you help? 👉 www.addisonsdisease.org.uk/run-an-aware...
March 11, 2025 at 5:05 PM Everybody can reply
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addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
On our #AddisonsDiseaseDay blog, meet Joyce & Ruth, two sisters who have Addison's disease & travel the world as Sephira, the Irish Rock Violinists.

They share their signs for following the Sick Day Rules & "cortisol check-in" tips ⤵️
www.addisonsdisease.org.uk/blog/sephira... (3/7)
Sephira – The Irish Rock Violinists Story: Know the Signs, Save a Life
Meet Joyce and Ruth, sisters living with Addison's disease who perform together as Sephira – The Irish Rock Violinists. They share their journey of touring the world, all while managing Addison’s, off...
www.addisonsdisease.org.uk
May 29, 2025 at 10:44 AM Everybody can reply
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addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
Why is #AddisonsDiseaseDay on 29 May?

It’s the birthday of John F. Kennedy, the 35th US President who managed his Addison's disease & other autoimmune conditions in secret. JFK was diagnosed with Addison’s whilst in London aged 30.

Read more ⤵️
www.addisonsdisease.org.uk/famous-lives... (7/7)
Famous Lives - John F. Kennedy
President John F. Kennedy was diagnosed with Addison's in September 1947 at the age of 30 years. Whilst president he was portrayed as healthy and vibrant. In reality, he suffered various problems & hi...
www.addisonsdisease.org.uk
May 29, 2025 at 10:44 AM Everybody can reply
addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
Save the date - 29 May is #AddisonsDiseaseDay ✨

From hosting an awareness stand in your hospital to fundraising - read more on our website & get in touch to share your idea & find out how we can support you.
www.addisonsdisease.org.uk/Event/addiso...
Addison's Disease Day 2025 - 29/05/2025 00:00:00
Join us on Wednesday 29 May for Addison's Disease Day 2024! We're asking everyone around the world who is affected by Addison’s disease and adrenal insufficiency to join us in a day of raising awarene...
www.addisonsdisease.org.uk
February 25, 2025 at 3:58 PM Everybody can reply
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addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
p.s. it's just 12 days until #AddisonsDiseaseDay (29 May)! This year’s theme is: "Know the Signs, Save a Life".

📣 If @bbcdoctorwhom.bsky.social has inspired you to raise awareness, there’s still time to get involved. Help us make a difference ⤵️
www.addisonsdisease.org.uk/Event/addiso... (🧵3/3)
Addison's Disease Day 2025 - 29/05/2025 00:00:00
Join us on Thursday 29 May for Addison's Disease Day 2025! We're asking everyone around the world who is affected by Addison’s disease and adrenal insufficiency to join us in a day of raising awarenes...
www.addisonsdisease.org.uk
May 17, 2025 at 7:08 PM Everybody can reply
addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
Catch up on our Sick Day Rules webinar with The Pituitary Foundation! Presented by Endocrine Clinical Specialist Nurse Aldons Chua for #AddisonsDiseaseDay.
⁠
🎥 Watch to learn more about the Sick Day Rules & hear the Top 5 questions as asked by you ➡️ www.youtube.com/watch?v=PYjjW1e0ADc&t=3s
Promotional graphic with the title “Watch Our Sick Day Rules Webinar.” Underneath this are the words, "with Aldons Chua, Endocrine Clinical Nurse Specialist." The background is a faded and enlarged version of the Addison's Disease Self-Help Group logo. In the centre is a graphic of an open laptop screen, showing a slide titled "Sick Day Rules." Above this is a red circular illustration that reads "Low Cortisol" and has an adrenal gland icon. Beneath the title, the slide reads: “for those with Addison’s disease & adrenal insufficiency.” Underneath this are two website links: www.addisonsdisease.org.uk and www.pituitary.org.uk. Fine print at the bottom of the slide includes charity registration numbers. A circular photo of Aldons Chua appears on the right side of the laptop screen. A red button above the laptop reads “Catch Up Now” with a play icon. At the bottom are three logos: the Addison’s Disease Self-Help Group logo, The Pituitary Foundation logo, and a purple and blue calendar illustration. This features the date "May 29", which is circled, and underneath says "Addison’s Disease Day."
October 2, 2025 at 9:01 AM Everybody can reply
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esicon2025.bsky.social
esicon2025.bsky.social
@esicon2025.bsky.social
Addison’s Disease Day | 29th May
Know the signs, Save a life.
Low cortisol isn’t always visible—but it’s always serious.

🔗 Brought to you by #ESICON2025

Join India’s biggest academic event in endocrinology
Register now: rxregistrations.com/esicon2025

#AddisonsDiseaseDay #ESICON2025
May 29, 2025 at 8:26 AM Everybody can reply
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addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
Feeling inspired by #NursesDay? If you could you host an awareness stand for #AddisonsDiseaseDay (29 May) in your hospital - please get in touch!

Take this chance to educate colleagues on adrenal insufficiency & steroid-dependency ⤵️
www.addisonsdisease.org.uk/run-an-aware...
Run an Awareness Stand
Help us fulfill one of the main aims of our charity: to spread awareness of Addison's disease and adrenal insufficiency. With our support, set up an Awareness stand in your local hospital to help educ...
www.addisonsdisease.org.uk
May 12, 2025 at 3:22 PM Everybody can reply
1 likes
1 1
addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
Right now for #AddisonsDiseaseDay, @socendocrinology.bsky.social are hosting awareness stands to improve steroid-dependency education in hospitals.

Throughout May our community held Addison’s Afternoon Teas to raise vital awareness & funds. Thank you🎉 www.addisonsdisease.org.uk/News/happy-a... |6/7
4 images with the May 29 Addison's Disease Day graphic in the centre. The top left is the back of two females wearing ADSHG charity tops, cheering on fundraisers at a race. The top right is of a endocrine Nurse standing at her Addison's awareness stand. The bottom left is of a lady wearing an ADSHG top at her Addison's Afternoon Tea. She is holding an ADSHG mug and has ADSHG bunting in the background. The bottom right image is of the materials displayed at an Addison's Awareness Stand in a hospital, it includes ADSHG leaflets, steroid emergency card and a model of an adrenal gland.
May 29, 2025 at 10:44 AM Everybody can reply
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addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
Host an Addison's Afternoon Tea this May! ☕🍰

With #AddisonsDiseaseDay on 29 May, raise awareness and support those affected by Addison’s & adrenal insufficiency by hosting an Addison’s Afternoon Tea.

💜 Sign up now 🔗 www.addisonsdisease.org.uk/addisons-aft...

Thank you for your support!
Addison's Afternoon Tea 2025
This May, host an Addison’s Afternoon Tea to bring people together, raise awareness and support those affected by Addison’s and adrenal insufficiency. Hold your tea party anytime in May 2025, leading ...
www.addisonsdisease.org.uk
March 26, 2025 at 9:18 AM Everybody can reply
addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
Tablet time & a cuppa? The perfect moment to catch up on the Addison’s Magazine!

Enjoy personal stories, a focus on exercise & bone health, research update on adrenal crisis & #AddisonsDiseaseDay roundup, alongside expert, trusted articles ⤵️
https://www.addisonsdisease.org.uk/magazine-summer-2025
A wooden table with a copy of Addison’s Magazine, Summer 2025 edition, featuring a colourful landscape painting on the cover. Next to the magazine is a white ADSHG "supporting" charity mug of tea with an ADSHG wooden pen and a strip of hydrocortisone tablets next to it,
August 27, 2025 at 11:02 AM Everybody can reply
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addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
#AddisonsDiseaseDay - Know the Signs, Save a Life

We want to educate the public & medics on the Sick Day Rules for adrenal insufficiency. By increasing awareness of low cortisol signs, we can improve quality of life & ultimately save lives.
➡️ www.addisonsdisease.org.uk/News/happy-a... (2/7)
"The Sick Day Rules" for Addison’s Disease Day. It explains when the body experiences either physical or severe emotional stress, it needs more cortisol than usual. As a result, you will need to take extra medication on top of your usual daily dose to meet the increased cortisol need. This extra medication is known as following the Sick Day Rules and is also referred to as ‘stress dosing’ or ‘updosing’. The Sick Day Rules guidelines have been developed by clinicians to help keep you safe and reduce the chances of an adrenal crisis. As everyone’s medication needs are different, they are guidance rather than concrete rules. This can be tricky! Individuals learn to “listen to their body”, tailoring how much extra cortisol medication they need based on how they feel. There is also a lack of awareness of the impact seemingly minor ailments, such as vomiting or flu, can have on anyone with a steroid-dependent adrenal condition. Informational graphic titled "What is Addison's disease & adrenal insufficiency?" for Addison’s Disease Day. It explains that Addison’s disease (AD) and adrenal insufficiency (AI) are rare, life-threatening conditions affecting adrenal gland function. Lifelong steroid hormone replacement is required. Individuals must follow Sick Day Rules and know how to use emergency hydrocortisone injections to prevent adrenal crisis. The graphic highlights the importance of patients becoming expert self-advocates due to healthcare professionals often being unfamiliar with the condition. Visuals include a calendar marked May 29, adrenal gland illustration, steroid emergency card, injection kit, and a patient diagram.
May 29, 2025 at 10:44 AM Everybody can reply
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addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
Improve GP education this #AddisonsDiseaseDay! We're thrilled to announce a new @bmj.com Learning module: "Medical emergencies in primary care: Addisonian (adrenal) crisis."

Read more & help spread the word by sharing our poster ➡️ www.addisonsdisease.org.uk/News/happy-a... (5/7)
"Improving GP Education" for Addison’s Disease Day. Text reads: We’re thrilled to have worked on the new BMJ Learning e-learning course for GPs, to ensure they are aware of the correct management of Addison’s disease and adrenal insufficiency. This course offers a practical guide for GPs, providing them with vital knowledge on the emergency treatment of Addisonian (adrenal) crisis along with key management essentials, such as the need to prescribe three months of essential steroid medication. This is to keep you safe through an episode of illness which requires increased Sick Day Rule dosing to prevent an adrenal crisis. This is the second CPD module we have co-authored to improve GP education. Help us spread the word - let your GP know about these e-modules! Download our poster to share with your GP practice, or send them the links on our website.
May 29, 2025 at 10:44 AM Everybody can reply
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jtonline.bsky.social
James Taylor
@jtonline.bsky.social
Any time traveler knows that today is #AddisonsDiseaseDay
addisonsdisease.bsky.social Addison's Disease Self Help Group (ADSHG) @addisonsdisease.bsky.social · May 17
In last week’s @bbcdoctorwhom.bsky.social, millions watched an Addisonian Crisis (adrenal crisis) unfold on screen.

Belinda is called to help with an unusual case: low blood pressure, nausea & hyperpigmentation. She says the life-saving words: "Without steroids, she could die..." (🧵1/3)
May 29, 2025 at 9:11 AM Everybody can reply
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addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
JFK's birthday is a fitting date for us to raise awareness & 29 May is only 2 months away!

📣 Join us in spreading the word & share our 2025 #AddisonsDiseaseDay theme: "Know the Signs, Save a Life."

Learn more & get involved - help us make a difference.
www.addisonsdisease.org.uk/Event/addiso...
Addison's Disease Day 2025 - 29/05/2025 00:00:00
Join us on Thursday 29 May for Addison's Disease Day 2025! We're asking everyone around the world who is affected by Addison’s disease and adrenal insufficiency to join us in a day of raising awarenes...
www.addisonsdisease.org.uk
March 31, 2025 at 1:45 PM Everybody can reply
addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
President John F. Kennedy has been back in the news following the release of thousands of declassified files.

🩺 But did you know he had Addison's disease? This is why #AddisonsDiseaseDay is celebrated on 29 May.

Read more about JFK & Addison's ⤵️
www.addisonsdisease.org.uk/famous-lives...
Famous Lives - John F. Kennedy
President John F. Kennedy was diagnosed with Addison's in September 1947 at the age of 30 years. Whilst president he was portrayed as healthy and vibrant. In reality, he suffered various problems & hi...
www.addisonsdisease.org.uk
March 31, 2025 at 1:45 PM Everybody can reply
2 reposts 2 likes
1 2 2
addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
It’s #AddisonsDiseaseDay - a day for everyone who is affected by Addison’s disease & adrenal insufficiency to join together to raise awareness & celebrate this incredible community 🎉

This year our theme is: 'Know the Signs, Save a Life' ⤵️ www.addisonsdisease.org.uk/News/happy-a... (1/7)
Happy Addison's Disease Day 2025!
Happy Addison’s Disease Day! Read on to find out how you can raise awareness and celebrate the incredible Addison’s disease and adrenal insufficiency community.
www.addisonsdisease.org.uk
May 29, 2025 at 10:44 AM Everybody can reply
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anish-endo.bsky.social
Anish Kar
@anish-endo.bsky.social
International Addison's Disease Awareness Day!!!
#AddisonsDiseaseDay #KnowthesignsSavealife
esicon2025.bsky.social esicon2025.bsky.social @esicon2025.bsky.social · May 29
Addison’s Disease Day | 29th May
Know the signs, Save a life.
Low cortisol isn’t always visible—but it’s always serious.

🔗 Brought to you by #ESICON2025

Join India’s biggest academic event in endocrinology
Register now: rxregistrations.com/esicon2025

#AddisonsDiseaseDay #ESICON2025
May 29, 2025 at 9:20 AM Everybody can reply