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First Descents

@firstdescents.bsky.social

We 💙 building community!

Ready to inquire about a 2026 Core Program and start the process toward a FREE healing adventure? Head to bit.ly/4gj4Nrh!

#testimonial #OutLivingIt #cancer #ms #AYAcancer #testimonial #free #program #cancersupport #healthroughadventure

September 26, 2025 at 3:05 PM Everybody can reply

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Kristyn J

@sciencekristyn.bsky.social

Cracking myself up over this as I sit in the waiting room, the youngest by decades #ayacancer

September 25, 2025 at 7:31 PM Everybody can reply

1 likes

Fennec Pharmaceuticals

@fennecpharma.com

60-90% of patients treated with cisplatin may experience some form of hearing loss—a side effect known as #ototoxicity.

While cisplatin is a powerful cancer treatment, its impact on hearing can be life-altering.

#ChildhoodCancerAwarenessMonth #HearingLoss #OncologySupport #AYACancer #OncSky 💛

September 25, 2025 at 1:26 PM Everybody can reply

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Dr. Emily Drake

@ekdrake.bsky.social

Thank you, Nichole! Emily Drake
#NovaScotia, #Canada
#AYACSM co-founder; #AYACancer researcher
Excited to talk about an important topic tonight! Hope that others will join us!

September 10, 2025 at 12:10 AM Everybody can reply

1 likes

Dr. Emily Drake

@ekdrake.bsky.social

For those of you new to #AYACSM this month, we normally gather for a live chat at 8pm ET on the first Tuesday of the month. We delayed this month due to the start of the academic term.

We discuss topics that are relevant and timely for those advocating for #AYACancer patients

September 10, 2025 at 12:04 AM Everybody can reply

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Dr. Emily Drake

@ekdrake.bsky.social

Join us this Tuesday for the next #AYACSM chat featuring guest moderator @ebpadvocate.bsky.social !!

We will be talking about parents of #AYACancer patients and survivors!

Please help us spread the word. This is for ALL #OncSky advocates!

#CancerResearch #ChildhoodCancer #BCSM #BTSM #LCSM

September 6, 2025 at 8:12 PM Everybody can reply

4 reposts 2 quotes 8 likes

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PROMISE Theme

@promise-theme.bsky.social

Exciting announcement! ✨ Applications for the PROMISE Madox’s Warriors Graduate Student Award open soon. More details to come! #CCMB #CHRIM #AYAcancer #CancerResearch

September 3, 2025 at 2:52 PM Everybody can reply

1 reposts 1 likes

STRONG-AYA

@strong-aya.bsky.social

Teams at @maastrichtu.bsky.social and @universityofleeds.bsky.social integrated the largest retrospective dataset in the STRONG-AYA infrastructure so far, with data from >9,000 #AYAcancer patients from the YSRCCYP cancer register. 5/7 centres now have retrospective data in their nodes!
#HorizonEU

August 14, 2025 at 1:36 PM Everybody can reply

2 likes

Children's Cancer CoLab

@cccolab.bsky.social

On #InternationalYouthDay2025 we're highlighting the challenges that adolescents & young adults (AYAs) face after being diagnosed with #cancer, from navigating high school, friendships and identity, to transitioning into life after treatment. The impact goes beyond the physical. #AYACancer

August 12, 2025 at 1:25 AM Everybody can reply

1 reposts 1 likes

Greater Attention to Long-Term Care of YA Hematologic Cancer Survivors Is Needed - Oncology Nurse Advisor

Oncology Nurse Advisor

@oncologynurseadv.bsky.social

The survivorship experience of young adults, as well as adolescents and children, who have had #bloodcancer varies widely, necessitating carefully tailored interventions to meet their specific needs. Published in @cancercaremascc.bsky.social.

bit.ly/4lF3RQL

#AYACancer

Many young adult survivors of childhood hematologic cancer do not have comprehensive survivorship care summaries or believe they need one.

bit.ly

July 22, 2025 at 3:39 PM Everybody can reply

1 reposts 1 likes

Dr. Emily Drake

@ekdrake.bsky.social

go.bsky.app/Vfp4JWE

If you would like to be added to the #AYACSM starter pack - please let me know!!

#RadOnc #PediatricOncology #AYACancer #TYACancer #CanSky #OncSky #BTSM #BCSM #LCSM

July 17, 2025 at 4:41 PM Everybody can reply

3 reposts 4 likes

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Dr. Emily Drake

@ekdrake.bsky.social

Thank you! I am talking to a group of trainees and I think it is important that people understand that it essentially stopped working well for us. We have limited time and if we want to share evidence effectively - there was a need to pivot #AYACSM #AYACancer #OncSky #MedOnc

July 16, 2025 at 12:38 AM Everybody can reply

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Dr. Emily Drake

@ekdrake.bsky.social

Oh wow - so people who had #AYACancer and then became parents of #pedsonc patients? #AYACSM

July 16, 2025 at 12:26 AM Everybody can reply

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Dr. Emily Drake

@ekdrake.bsky.social

I'm Emily Drake - Assistant Professor at @mountallison.bsky.social!

I am an #AYACancer researcher and co-founder of #AYACSM

Looking forward to connecting with everyone tonight!

Dr. Emily Drake @ekdrake.bsky.social · Jul 16

Tonight, we will be talking about social media tools.

Let’s start off with introductions – What is your name? Where are you based? Why are you here? Tell us a bit about yourself! Post #AYACSM if you’re only here to listen.

July 16, 2025 at 12:08 AM Everybody can reply

1 reposts 3 likes

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Dr. Emily Drake

@ekdrake.bsky.social

For those of you new to #AYACSM this month, we normally gather for a live chat at 8pm ET on the first Tuesday of the month. We discuss topics that are relevant and timely for those advocating for #AYACancer patients

July 16, 2025 at 12:04 AM Everybody can reply

1 reposts 2 likes

#AYACancer #PatientExperience #DigitalHealth

Dr. Emily Drake

@ekdrake.bsky.social

⏰Tune in this Tuesday (15th) for the next #AYACSM ( #AYACancer societal movement) #SkyChat here on @bsky.app

👋 Everyone who works in the #AYACancer field and/or who has lived experience is welcome!

#OncSky #TYACancer @scottcapozza.bsky.social @maryamlustberg.bsky.social @darcyburbage.bsky.social

July 11, 2025 at 5:44 PM Everybody can reply

5 reposts 2 quotes 7 likes

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SurvivorshipIT

@survivorshipit.medsky.social

ACI - Applied Clinical Informatics Journal @aci-journal.medsky.social · Jun 28

NEW: A Case Study: Optimizing #CDS for Pediatric #Oncology Trials by Transitioning from Interruptive to Passive Alerts www.thieme-connect.de/products/ejo...

#MedSky #CanSky #PedSky #AlertFatigue #ClinicalTrials #ChildhoodCancer

Figure showing protocol-research study mismatch alert. When applying a local standard of care treatment plan that is not associated with a research study, the "protocol is disallowed by patient's research study" alert is triggered as the patient is enrolled in two ancillary studies. These studies are not relevant to the selection of a chemotherapy plan and enrollment in these studies should not have triggered an alert.

June 28, 2025 at 6:25 PM Everybody can reply

PROMISE Theme

@promise-theme.bsky.social

PROMISE’s official video is now live on www.youtube.com/watch?v=WHnC...
check it out! 🎥 #CCMB #CHRIM #CancerResearch #AYAcancer

PROMISE: Pediatric Research in Oncology in Manitoba: Innovation, Science, Excellence

YouTube video by CHRIM Communications

www.youtube.com

June 25, 2025 at 7:52 PM Everybody can reply

1 likes

Analysis of symptoms experienced by adolescents with cancer receiving chemotherapy were identified by prevalence, severity, and distress, and categorized into specific symptom clusters.

Elephants and Tea

@elephantsandteamag.bsky.social

Join Elephants and Tea and The Leukemia & Lymphoma Society next week for a Healing Through Writing Workshop offered exclusively to the blood cancer community!

us02web.zoom.us/meeting/regi...

#ayacancer #ayasupport #writingworkshop #healingthroughwriting #writewithus #bloodcancersurvivor

June 12, 2025 at 4:35 PM Everybody can reply

Oncology Nurse Advisor

@oncologynurseadv.bsky.social

A recent study of adolescents with oncologic malignancies being treated with chemotherapy identified certain symptoms and symptom clusters for this patient population.

bit.ly/4419mBD

#AYACancer #PedOnc
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bit.ly

June 11, 2025 at 4:50 PM Everybody can reply

1 likes